13-year-old attempted suicide by ME courses

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13-year-old attempted suicide by ME courses

The family hoped 13-year-old with fatigue syndrome should be well on

course " Lightning Process " . Instead, he breakdown and tried to kill

herself.

SOURCE: Camilla Sand

Posted 26/11/2011 7:21 p.m.

After only three days on the " Lightning Process " course, declare

chronically exhausted themselves healthy. When they have learned a way

to change the body's way of reacting to.

It is not until recently that ME patients have been open with their

negative experiences with the treatment program, " Lightning Process " ,

also called LP.

On the blog ME-news puts people back desperate post about their

experiences. Among them, a father who almost lost her son in her

suicide.

To NRK.no he tells of the attempt to get his son well.

Was recommended course of physician

In October 2008, the boy diagnosed with ME. The family from Southern

was told about long waiting times at the hospital, where further

investigation would take place.

The family asked the doctor at the hospital for advice on what they

could carry out in the waiting time.

The answer from the superior was that many had good experiences with

the treatment method " Lightning Process " at the Active Process in

Sandvika.

It was the hospital who recommended this, then it must be something in

it, says the father.

They immediately set in the process of gathering information about

what LP was, and was excited to see that almost 100 percent recovered.

Although they were aware of the ME Association did not support the

treatment, they decided to try.

Three day course costing 15,000 crowns.

Did breakdown two weeks after

The course took the boy, who was barely 13 years of age along with

five other young girls and their parents.

– The council have a Hallelujah-mood on the course, and some of the

first things he learned was that if he was not fresh as it was his own

fault, says the father of NRK.no.

At the end of the course was the boy asked if he was healthy.

– " No, but I have been much better, " he said.

After completing the course, the boy experienced a slight improvement,

but two weeks later he collapsed. Her mother found her son in the room

one morning where he had tried to commit suicide.

– He could not get well, and felt it was his own fault. He was upset

that he had not been able to carry out suicides, says father.

- Could be worse after LP-course

– After a period of recovery after the " Lightning Process " is any

worse than they were in the first place. Some significantly worse,

says Dr. Barbara Baumgarten-Austin in ME / CFS Department of Oslo

University of NRK.no.

Many of her patients have tried " Lightning Process " .

– Patients can often tell them at first regarded as healthier than

they really were, because they wanted so strongly that the course

would help. Many are struggling also with guilt because they have not

improved, she says.

Those who are worse, is, according to Baumgarten, Austin prolonged

worse. In the worst case, she knows, the patient has been worse in

three years.

She is aware that absolutely no scientific evidence that " Lightning

Process " works.

Got offered a new course for free

A few days after her son's suicide attempt, called the father of the

course leader and told him what had happened.

His fervent appeal to her was that they had to stop giving this type

of course for ME sufferers, particularly children and young people.

Her answer was to offer the boy a new course - free.

Even two years later took active process contact the family to offer

his son a follow-up course. The father refused and asked the NOK again

urged them to stop offering LP course to ME-ill children.

– I experienced no humility and no apology, says he NRK.no.

He says he is still waiting for an apology from the Active Process,

who held the course.

A form of exercise, not treatment

Vibeke C. Hammer, former Active Process (now Manager Health ) writes

in an e-mail to NRK.no that there is no basis to discuss issues around

the Lightning Process as the treatment program.

" LP is a form of exercise and are not approved for the treatment of

any disease diagnoses. (...) We are working with symptom relief for

patients to have a better life, " she writes.

" The issue you raise about method for the treatment of disease is

therefore not relevant to the LP, " she writes on.

Hammer will not comment on matters relating to individual

participants, but writes that it generally is terribly sad and tragic

when a child has progressed so far that they are trying to take his

own life.

Have items ME sufferers have benefited from

It was Dr. Vegard Bruun Wyller, who told the family of 12-year-old

about the Lightning Process.

NRK.no have asked Bruun Wyller if he has no qualms about sending ME

sick children on the long-course when you know that someone is ill of

it, and even tried to take his own life.

He admits that he has advised patients to try the " Lightning Process " ,

but would not comment on individual cases.

– I can see the concerns with treatments that are not scientifically

documented, and has commercial interests such as this course. At the

same time of treatment elements of cognitive behavioral therapy, which

we have seen several examples of ME patients have benefited from, says

he NRK.no.

Bruun Wyller confirms that he has received complaints from ME

sufferers he has recommended LP, which either has not been younger, or

who have been sicker of LP.