Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Marilyn Is this Zoledronate you talk about related to Alendronate (Fosamax) at all? If so there appears to be some evidence that it can be linked to osteonecrosis of the jaw. You may want to check it out Regards Sharon > > > > I fractured my spine exercising on a mini trampoline about 5/6 years > ago and they did a dexa scan (bone density). All I had done was jump > up and it felt like all my Bones had moved inside me, I hadnt even > landed at that stage!!! When they do the scans there is a higher and > lower line, if your result falls between these lines, you are > considered to have healthy bones....well mine were just below the > lowest level so I was diagnosed as having Osteopena (if I had been > any lower than I was, I would have been diagnosed as being in the > early stages if osteoporosis. > I was initially treated with tablet to take each morning which > unfortunately didnt help, as they gave me very bad heartburn so I was > put on a drug trial for a drug called Zoledronate that is at present > being used as a treatment for bone cancer. My initial reaction was > to freak out, big time!!!!!! But they explained that when they gave > people this drug to treat their bone cancer, they found that it > increased their bone density quite dramatically, hence the reason for > them trying to get the drug licenced in UK for an osteopena / > osteoporosis treatment. This treatment involved an annual infusions > over 5 years nd having blood tests and dexa scans done and the > results sent off to Liverpool (UK)for collation, to try to convince > the British government that it was a great treatment for bone loss. > We are all different ages and different stages of bone loss, as they > wanted to see if the age they started treatment or the level of bone > loss when the treatment was started etc made any difference. I am > now near the top of the level for my age (58), We are now all dexa > scanned every 6 months and have bloods done, for bone turn over, to > see that now we have all finished the treatments, will the levels we > have all reached start to drop back again, or will we maintain the > levels we were at when the treatments finished. > If we do start to drop back down, they will then try to give us an > infusion every other year to see what happens and will play around > with this until they get the results they want and which are most > beneficial for us. They also want to see if the age they start > treatment and the amount of bone loss we had when we were first > diagnosed makes any differece. > I agreed too do this trial as I knew it was a safe drug already in > use and I also have no family history of osteoporosis at all, BUT I > did train as a dancer at a theatrical boarding school from aged 12 > until 18 years old, which involved many hours of physical work and > stress on my skeletal bones, which apparently I have been told is the > worst age when our bones are most at risk of developing problems. I > also developed asthma at the same age and had to take steroid based > medication both by inhaler and tablets and steroids affect yout bones > quite dramatically which is bad at that age. > I hope the information in this reply will help you to try to come to > terms with the fact that your daughters diagnosis and psssiblt need > for dexa scanns doesnt necessarily mnean disaster and that there are > a klot of tghings now adys the can be doen toi help proplr eith bone > los and that it doesnt necessarily mneana that she will have ro have > botn her hips repleced. I have been told that the need for my LTKR > was nothing to do with my osteopena at all. So keep you chin up its > not all doom and gloom and I hope for the best for your daughter. I > have also been told that people (male and female) should actually cut > back on physical exercise between the ages of 12 and 18 when their > bones are growing at their quickest and are under the greatest stress > due to puberty. > > > Yesterday was an exception and I have no clue what today will bring > when we meet > > with the orthopedics for my daughter's two stress fractures. One in > each upper > > thigh. This is really weird. > > They are going to give her a bone density test. > > I am going to get bottles of calcium and make all my athletic kids > take them > > now. > > They actually told her last week if her break moved apart, that > she would > > have pins and possibly a HIP REPLACEMENT!!!!!!!!!!! She is > 16!!!!!!!! I > > about fell apart in side. After reading all the info here, going > through a TKR > > myself, I do not want my 16 year old starting on hip replacements. > > Sorry, I am venting. I did not sleep well last night and I am > anxious to > > find out today what all the verdict is. > > Terry > > > > > > > > ************************************** AOL now offers free email to > everyone. > > Find out more about what's free from AOL at http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 First I will appologise for my bad spelling...blame the pain meds!!!! and the fact my reply seemed to post itself 3 times!!!??? No Zoledronate is nothing to do with Fosamax .... that is one of the first treatments they tried me on and it is a tablet which can cause very bad heartburn. This is what most poeple are given here in UK for osteoporosis. Zoledronate is a liquid and is given as an infusion straight into the vein in the elbow bend and has to be given slowly over 15 minutes and you just get this treatment once a year. The FDA only have this licenced for use on bone cancer patients at present, as do the drug control authorities here in UK....... BUT hopefully before long it will be licenced here and in the USA for an osteopena and osteoporosis treatment, as most treatments available at the moment just help to stop the osteoporosis getting worse they dont actually make the bones recover their density as the Zolendronate does....Google it and it will tell you all about it....some people get side effects as I did on my second infusion as I had it done within 10 days of having my annual influenza shot.....so we made sure we did them well apart after that and hey presto no reaction. Marilyn (UK) > > > > > > > > I fractured my spine exercising on a mini trampoline about 5/6 > years > > ago and they did a dexa scan (bone density). All I had done was > jump > > up and it felt like all my Bones had moved inside me, I hadnt even > > landed at that stage!!! When they do the scans there is a higher > and > > lower line, if your result falls between these lines, you are > > considered to have healthy bones....well mine were just below the > > lowest level so I was diagnosed as having Osteopena (if I had been > > any lower than I was, I would have been diagnosed as being in the > > early stages if osteoporosis. > > I was initially treated with tablet to take each morning which > > unfortunately didnt help, as they gave me very bad heartburn so I > was > > put on a drug trial for a drug called Zoledronate that is at > present > > being used as a treatment for bone cancer. My initial reaction was > > to freak out, big time!!!!!! But they explained that when they gave > > people this drug to treat their bone cancer, they found that it > > increased their bone density quite dramatically, hence the reason > for > > them trying to get the drug licenced in UK for an osteopena / > > osteoporosis treatment. This treatment involved an annual infusions > > over 5 years nd having blood tests and dexa scans done and the > > results sent off to Liverpool (UK)for collation, to try to convince > > the British government that it was a great treatment for bone > loss. > > We are all different ages and different stages of bone loss, as > they > > wanted to see if the age they started treatment or the level of > bone > > loss when the treatment was started etc made any difference. I am > > now near the top of the level for my age (58), We are now all dexa > > scanned every 6 months and have bloods done, for bone turn over, to > > see that now we have all finished the treatments, will the levels > we > > have all reached start to drop back again, or will we maintain the > > levels we were at when the treatments finished. > > If we do start to drop back down, they will then try to give us an > > infusion every other year to see what happens and will play around > > with this until they get the results they want and which are most > > beneficial for us. They also want to see if the age they start > > treatment and the amount of bone loss we had when we were first > > diagnosed makes any differece. > > I agreed too do this trial as I knew it was a safe drug already in > > use and I also have no family history of osteoporosis at all, BUT > I > > did train as a dancer at a theatrical boarding school from aged 12 > > until 18 years old, which involved many hours of physical work and > > stress on my skeletal bones, which apparently I have been told is > the > > worst age when our bones are most at risk of developing problems. I > > also developed asthma at the same age and had to take steroid based > > medication both by inhaler and tablets and steroids affect yout > bones > > quite dramatically which is bad at that age. > > I hope the information in this reply will help you to try to come > to > > terms with the fact that your daughters diagnosis and psssiblt need > > for dexa scanns doesnt necessarily mnean disaster and that there > are > > a klot of tghings now adys the can be doen toi help proplr eith > bone > > los and that it doesnt necessarily mneana that she will have ro > have > > botn her hips repleced. I have been told that the need for my LTKR > > was nothing to do with my osteopena at all. So keep you chin up its > > not all doom and gloom and I hope for the best for your daughter. > I > > have also been told that people (male and female) should actually > cut > > back on physical exercise between the ages of 12 and 18 when their > > bones are growing at their quickest and are under the greatest > stress > > due to puberty. > > > > > > Yesterday was an exception and I have no clue what today will bring > > when we meet > > > with the orthopedics for my daughter's two stress fractures. One > in > > each upper > > > thigh. This is really weird. > > > They are going to give her a bone density test. > > > I am going to get bottles of calcium and make all my athletic > kids > > take them > > > now. > > > They actually told her last week if her break moved apart, > that > > she would > > > have pins and possibly a HIP REPLACEMENT!!!!!!!!!!! She is > > 16!!!!!!!! I > > > about fell apart in side. After reading all the info here, going > > through a TKR > > > myself, I do not want my 16 year old starting on hip > replacements. > > > Sorry, I am venting. I did not sleep well last night and I > am > > anxious to > > > find out today what all the verdict is. > > > Terry > > > > > > > > > > > > ************************************** AOL now offers free email > to > > everyone. > > > Find out more about what's free from AOL at http://www.aol.com. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Hi again Marilyn I did Google Zoledronate and also added the word " jaw " and it seems there is a connection with this drug (also called Zometa) and other biphosphonates and ON of the jaw, in fact lawsuits are on going on at the moment in the States. Perhaps it is different having the drug by infusion once per year, but there certainly seems to be concern about it. Regards Sharon > > > > > > > > > > > > I fractured my spine exercising on a mini trampoline about 5/6 > > years > > > ago and they did a dexa scan (bone density). All I had done was > > jump > > > up and it felt like all my Bones had moved inside me, I hadnt > even > > > landed at that stage!!! When they do the scans there is a higher > > and > > > lower line, if your result falls between these lines, you are > > > considered to have healthy bones....well mine were just below the > > > lowest level so I was diagnosed as having Osteopena (if I had > been > > > any lower than I was, I would have been diagnosed as being in the > > > early stages if osteoporosis. > > > I was initially treated with tablet to take each morning which > > > unfortunately didnt help, as they gave me very bad heartburn so I > > was > > > put on a drug trial for a drug called Zoledronate that is at > > present > > > being used as a treatment for bone cancer. My initial reaction > was > > > to freak out, big time!!!!!! But they explained that when they > gave > > > people this drug to treat their bone cancer, they found that it > > > increased their bone density quite dramatically, hence the reason > > for > > > them trying to get the drug licenced in UK for an osteopena / > > > osteoporosis treatment. This treatment involved an annual > infusions > > > over 5 years nd having blood tests and dexa scans done and the > > > results sent off to Liverpool (UK)for collation, to try to > convince > > > the British government that it was a great treatment for bone > > loss. > > > We are all different ages and different stages of bone loss, as > > they > > > wanted to see if the age they started treatment or the level of > > bone > > > loss when the treatment was started etc made any difference. I > am > > > now near the top of the level for my age (58), We are now all > dexa > > > scanned every 6 months and have bloods done, for bone turn over, > to > > > see that now we have all finished the treatments, will the levels > > we > > > have all reached start to drop back again, or will we maintain > the > > > levels we were at when the treatments finished. > > > If we do start to drop back down, they will then try to give us > an > > > infusion every other year to see what happens and will play > around > > > with this until they get the results they want and which are most > > > beneficial for us. They also want to see if the age they start > > > treatment and the amount of bone loss we had when we were first > > > diagnosed makes any differece. > > > I agreed too do this trial as I knew it was a safe drug already > in > > > use and I also have no family history of osteoporosis at all, > BUT > > I > > > did train as a dancer at a theatrical boarding school from aged > 12 > > > until 18 years old, which involved many hours of physical work > and > > > stress on my skeletal bones, which apparently I have been told is > > the > > > worst age when our bones are most at risk of developing problems. > I > > > also developed asthma at the same age and had to take steroid > based > > > medication both by inhaler and tablets and steroids affect yout > > bones > > > quite dramatically which is bad at that age. > > > I hope the information in this reply will help you to try to come > > to > > > terms with the fact that your daughters diagnosis and psssiblt > need > > > for dexa scanns doesnt necessarily mnean disaster and that there > > are > > > a klot of tghings now adys the can be doen toi help proplr eith > > bone > > > los and that it doesnt necessarily mneana that she will have ro > > have > > > botn her hips repleced. I have been told that the need for my > LTKR > > > was nothing to do with my osteopena at all. So keep you chin up > its > > > not all doom and gloom and I hope for the best for your > daughter. > > I > > > have also been told that people (male and female) should actually > > cut > > > back on physical exercise between the ages of 12 and 18 when > their > > > bones are growing at their quickest and are under the greatest > > stress > > > due to puberty. > > > > > > > > > Yesterday was an exception and I have no clue what today will > bring > > > when we meet > > > > with the orthopedics for my daughter's two stress fractures. > One > > in > > > each upper > > > > thigh. This is really weird. > > > > They are going to give her a bone density test. > > > > I am going to get bottles of calcium and make all my athletic > > kids > > > take them > > > > now. > > > > They actually told her last week if her break moved apart, > > that > > > she would > > > > have pins and possibly a HIP REPLACEMENT!!!!!!!!!!! She is > > > 16!!!!!!!! I > > > > about fell apart in side. After reading all the info here, > going > > > through a TKR > > > > myself, I do not want my 16 year old starting on hip > > replacements. > > > > Sorry, I am venting. I did not sleep well last night and I > > am > > > anxious to > > > > find out today what all the verdict is. > > > > Terry > > > > > > > > > > > > > > > > ************************************** AOL now offers free > email > > to > > > everyone. > > > > Find out more about what's free from AOL at http://www.aol.com. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Maybe the people who's jaws have been affected by Zoledronate had problems in that area with cancer already, as it is a treatment for bone cancer at present and that is actually what Zolerdronate was developed for. Out of curiosity, what are people with Osteoporosis given for treatment in the States if they are not given Fosamax?? Marilyn(UK) > > > > > > > > > > > > > > > > I fractured my spine exercising on a mini trampoline about 5/6 > > > years > > > > ago and they did a dexa scan (bone density). All I had done was > > > jump > > > > up and it felt like all my Bones had moved inside me, I hadnt > > even > > > > landed at that stage!!! When they do the scans there is a > higher > > > and > > > > lower line, if your result falls between these lines, you are > > > > considered to have healthy bones....well mine were just below > the > > > > lowest level so I was diagnosed as having Osteopena (if I had > > been > > > > any lower than I was, I would have been diagnosed as being in > the > > > > early stages if osteoporosis. > > > > I was initially treated with tablet to take each morning which > > > > unfortunately didnt help, as they gave me very bad heartburn so > I > > > was > > > > put on a drug trial for a drug called Zoledronate that is at > > > present > > > > being used as a treatment for bone cancer. My initial reaction > > was > > > > to freak out, big time!!!!!! But they explained that when they > > gave > > > > people this drug to treat their bone cancer, they found that it > > > > increased their bone density quite dramatically, hence the > reason > > > for > > > > them trying to get the drug licenced in UK for an osteopena / > > > > osteoporosis treatment. This treatment involved an annual > > infusions > > > > over 5 years nd having blood tests and dexa scans done and the > > > > results sent off to Liverpool (UK)for collation, to try to > > convince > > > > the British government that it was a great treatment for bone > > > loss. > > > > We are all different ages and different stages of bone loss, as > > > they > > > > wanted to see if the age they started treatment or the level of > > > bone > > > > loss when the treatment was started etc made any difference. I > > am > > > > now near the top of the level for my age (58), We are now all > > dexa > > > > scanned every 6 months and have bloods done, for bone turn > over, > > to > > > > see that now we have all finished the treatments, will the > levels > > > we > > > > have all reached start to drop back again, or will we maintain > > the > > > > levels we were at when the treatments finished. > > > > If we do start to drop back down, they will then try to give > us > > an > > > > infusion every other year to see what happens and will play > > around > > > > with this until they get the results they want and which are > most > > > > beneficial for us. They also want to see if the age they start > > > > treatment and the amount of bone loss we had when we were first > > > > diagnosed makes any differece. > > > > I agreed too do this trial as I knew it was a safe drug already > > in > > > > use and I also have no family history of osteoporosis at all, > > BUT > > > I > > > > did train as a dancer at a theatrical boarding school from aged > > 12 > > > > until 18 years old, which involved many hours of physical work > > and > > > > stress on my skeletal bones, which apparently I have been told > is > > > the > > > > worst age when our bones are most at risk of developing > problems. > > I > > > > also developed asthma at the same age and had to take steroid > > based > > > > medication both by inhaler and tablets and steroids affect yout > > > bones > > > > quite dramatically which is bad at that age. > > > > I hope the information in this reply will help you to try to > come > > > to > > > > terms with the fact that your daughters diagnosis and psssiblt > > need > > > > for dexa scanns doesnt necessarily mnean disaster and that > there > > > are > > > > a klot of tghings now adys the can be doen toi help proplr eith > > > bone > > > > los and that it doesnt necessarily mneana that she will have ro > > > have > > > > botn her hips repleced. I have been told that the need for my > > LTKR > > > > was nothing to do with my osteopena at all. So keep you chin up > > its > > > > not all doom and gloom and I hope for the best for your > > daughter. > > > I > > > > have also been told that people (male and female) should > actually > > > cut > > > > back on physical exercise between the ages of 12 and 18 when > > their > > > > bones are growing at their quickest and are under the greatest > > > stress > > > > due to puberty. > > > > > > > > > > > > Yesterday was an exception and I have no clue what today will > > bring > > > > when we meet > > > > > with the orthopedics for my daughter's two stress fractures. > > One > > > in > > > > each upper > > > > > thigh. This is really weird. > > > > > They are going to give her a bone density test. > > > > > I am going to get bottles of calcium and make all my athletic > > > kids > > > > take them > > > > > now. > > > > > They actually told her last week if her break moved > apart, > > > that > > > > she would > > > > > have pins and possibly a HIP REPLACEMENT!!!!!!!!!!! She is > > > > 16!!!!!!!! I > > > > > about fell apart in side. After reading all the info here, > > going > > > > through a TKR > > > > > myself, I do not want my 16 year old starting on hip > > > replacements. > > > > > Sorry, I am venting. I did not sleep well last night and > I > > > am > > > > anxious to > > > > > find out today what all the verdict is. > > > > > Terry > > > > > > > > > > > > > > > > > > > > ************************************** AOL now offers free > > email > > > to > > > > everyone. > > > > > Find out more about what's free from AOL at > http://www.aol.com. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Hi again Marilyn All the info I have on osteonecrosis of the jaw comes from members on the osteonecrosis boards, and from what I gather people with Jaw ON did not have prior jaw problems before taking the bisphosphonates. As regards osteoporosis, they are I believe still treating this, and in some cases osteonecrosis itself, (of the hips, which is what I have, knees, shoulders etc) with biphosphonates. It seems to be a case of the benefits of a drug having to be weighed against the risks. A lot of the ON sufferers who were taking Fosamax and similar drugs are now coming off it. By the way, I'm not in the States, but France, and am in fact British. Kind regards Sharon > > > > > > > > > > > > > > > > > > > > I fractured my spine exercising on a mini trampoline about > 5/6 > > > > years > > > > > ago and they did a dexa scan (bone density). All I had done > was > > > > jump > > > > > up and it felt like all my Bones had moved inside me, I hadnt > > > even > > > > > landed at that stage!!! When they do the scans there is a > > higher > > > > and > > > > > lower line, if your result falls between these lines, you are > > > > > considered to have healthy bones....well mine were just below > > the > > > > > lowest level so I was diagnosed as having Osteopena (if I had > > > been > > > > > any lower than I was, I would have been diagnosed as being in > > the > > > > > early stages if osteoporosis. > > > > > I was initially treated with tablet to take each morning > which > > > > > unfortunately didnt help, as they gave me very bad heartburn > so > > I > > > > was > > > > > put on a drug trial for a drug called Zoledronate that is at > > > > present > > > > > being used as a treatment for bone cancer. My initial > reaction > > > was > > > > > to freak out, big time!!!!!! But they explained that when > they > > > gave > > > > > people this drug to treat their bone cancer, they found that > it > > > > > increased their bone density quite dramatically, hence the > > reason > > > > for > > > > > them trying to get the drug licenced in UK for an > osteopena / > > > > > osteoporosis treatment. This treatment involved an annual > > > infusions > > > > > over 5 years nd having blood tests and dexa scans done and > the > > > > > results sent off to Liverpool (UK)for collation, to try to > > > convince > > > > > the British government that it was a great treatment for bone > > > > loss. > > > > > We are all different ages and different stages of bone loss, > as > > > > they > > > > > wanted to see if the age they started treatment or the level > of > > > > bone > > > > > loss when the treatment was started etc made any difference. > I > > > am > > > > > now near the top of the level for my age (58), We are now > all > > > dexa > > > > > scanned every 6 months and have bloods done, for bone turn > > over, > > > to > > > > > see that now we have all finished the treatments, will the > > levels > > > > we > > > > > have all reached start to drop back again, or will we > maintain > > > the > > > > > levels we were at when the treatments finished. > > > > > If we do start to drop back down, they will then try to give > > us > > > an > > > > > infusion every other year to see what happens and will play > > > around > > > > > with this until they get the results they want and which are > > most > > > > > beneficial for us. They also want to see if the age they > start > > > > > treatment and the amount of bone loss we had when we were > first > > > > > diagnosed makes any differece. > > > > > I agreed too do this trial as I knew it was a safe drug > already > > > in > > > > > use and I also have no family history of osteoporosis at > all, > > > BUT > > > > I > > > > > did train as a dancer at a theatrical boarding school from > aged > > > 12 > > > > > until 18 years old, which involved many hours of physical > work > > > and > > > > > stress on my skeletal bones, which apparently I have been > told > > is > > > > the > > > > > worst age when our bones are most at risk of developing > > problems. > > > I > > > > > also developed asthma at the same age and had to take steroid > > > based > > > > > medication both by inhaler and tablets and steroids affect > yout > > > > bones > > > > > quite dramatically which is bad at that age. > > > > > I hope the information in this reply will help you to try to > > come > > > > to > > > > > terms with the fact that your daughters diagnosis and > psssiblt > > > need > > > > > for dexa scanns doesnt necessarily mnean disaster and that > > there > > > > are > > > > > a klot of tghings now adys the can be doen toi help proplr > eith > > > > bone > > > > > los and that it doesnt necessarily mneana that she will have > ro > > > > have > > > > > botn her hips repleced. I have been told that the need for > my > > > LTKR > > > > > was nothing to do with my osteopena at all. So keep you chin > up > > > its > > > > > not all doom and gloom and I hope for the best for your > > > daughter. > > > > I > > > > > have also been told that people (male and female) should > > actually > > > > cut > > > > > back on physical exercise between the ages of 12 and 18 when > > > their > > > > > bones are growing at their quickest and are under the > greatest > > > > stress > > > > > due to puberty. > > > > > > > > > > > > > > > Yesterday was an exception and I have no clue what today will > > > bring > > > > > when we meet > > > > > > with the orthopedics for my daughter's two stress > fractures. > > > One > > > > in > > > > > each upper > > > > > > thigh. This is really weird. > > > > > > They are going to give her a bone density test. > > > > > > I am going to get bottles of calcium and make all my > athletic > > > > kids > > > > > take them > > > > > > now. > > > > > > They actually told her last week if her break moved > > apart, > > > > that > > > > > she would > > > > > > have pins and possibly a HIP REPLACEMENT!!!!!!!!!!! She > is > > > > > 16!!!!!!!! I > > > > > > about fell apart in side. After reading all the info here, > > > going > > > > > through a TKR > > > > > > myself, I do not want my 16 year old starting on hip > > > > replacements. > > > > > > Sorry, I am venting. I did not sleep well last night > and > > I > > > > am > > > > > anxious to > > > > > > find out today what all the verdict is. > > > > > > Terry > > > > > > > > > > > > > > > > > > > > > > > > ************************************** AOL now offers free > > > email > > > > to > > > > > everyone. > > > > > > Find out more about what's free from AOL at > > http://www.aol.com. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 As far as I'm aware, bone density isn't tested in the normal way within the NHS for anybody who is taking thyroxine. I am on Armour, and I had my bones tested because my endocrinologist is using me as his 'guinae pig' and wants to check everything. I would, however ask for such a test to be done, and find out why they refuse, if, indeed, they do refuse. You might be pleasantly surprised ;o) Luv - Sheila Hi,Does anybody know whether your bone density is tested before you start thyroxine or only after you have been taking it for a few years?If it is not tested as standard, is it reasonable to request the test be done? If not, can it be done privately and, if so, what does it cost?Thanks,Tracey No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release Date: 02/02/2008 13:50 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 > Hi, The Endo suggested I should have a bond density scan in a letter to my GP. He arranged this for me - it was ok, and suggested that I should have another one in 3 years. I will have to remember that!!! Love, Anne x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Well, hopefully, if you are on Armour, your bones should show up good - as mine did. Do they do this automatically for people using thyroxine I wonder? Anybody had a bone scan offered who is only taking L-thyroxine? Luv - Sheila >Hi,The Endo suggested I should have a bond density scan in a letter to myGP. He arranged this for me - it was ok, and suggested that I shouldhave another one in 3 years. I will have to remember that!!!Love,Anne x No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release Date: 02/02/2008 13:50 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Not me! Im doing some stuff about osteoporosis and if I come across anything I will post it. From what I can see so far its very hit and miss whether you are identified as at risk of osteoporosis and (again) largely down to GPs if they decide to do a scan to check your bone density. In a lot of areas it seems that this only happens as part of a hospital referral for, say bone pain. It doesnt seem to be happening as a heatlh prevention measure. Gill Well, hopefully, if you are on Armour, your bones should show up good - as mine did. Do they do this automatically for people using thyroxine I wonder? Anybody had a bone scan offered who is only taking L-thyroxine? Luv - Sheila >Hi,The Endo suggested I should have a bond density scan in a letter to myGP. He arranged this for me - it was ok, and suggested that I shouldhave another one in 3 years. I will have to remember that!!!Love,Anne x No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release Date: 02/02/2008 13:50 Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.6/1192 - Release Date: 21/12/07 13:17 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 -Hi I was actually asked if I would have one cos I've been on thyroxine so long. Luv -- In thyroid treatment , " sheilaturner " <sheilaturner@...> wrote: > > Well, hopefully, if you are on Armour, your bones should show up good - as mine did. Do they do this automatically for people using thyroxine I wonder? Anybody had a bone scan offered who is only taking L-thyroxine? > > Luv - Sheila > > > > > > > > Hi, > > The Endo suggested I should have a bond density scan in a letter to my > GP. He arranged this for me - it was ok, and suggested that I should > have another one in 3 years. I will have to remember that!!! > > Love, > Anne x > > > > > > > ------------------------------------------------------------------- ----------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release Date: 02/02/2008 13:50 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 I have been on thyroxine for 20 years and although I am now on Armour my GP thinks I am on Armour and thyroxine. I have had suppressed TSH for years now, I have had my previous endo and GP very concerned about this yet not once have they indicated I should have a bone test. This proves to me that either they just do not really care what happens to me, or they know there is no real risk for me. I would love to ask them which one it is One of my sisters has been on thyroxine longer than I have and nobody has suggested it to her either. Lilian I was actually asked if I would have one cos I've been on thyroxine so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Hi Lilian I am sure they do care, if only because of the cost of treating osteoporisis. A big fear in the NHS and I am sure if they thought you were " at risk " you would have one. Luv Chris > > I have been on thyroxine for 20 years and although I am now on Armour my GP thinks I am on Armour and thyroxine. I have had suppressed TSH for years now, I have had my previous endo and GP very concerned about this yet not once have they indicated I should have a bone test. > > This proves to me that either they just do not really care what happens to me, or they know there is no real risk for me. I would love to ask them which one it is > > One of my sisters has been on thyroxine longer than I have and nobody has suggested it to her either. > > Lilian > I was actually asked if I would have one cos I've been on thyroxine so long. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 >>>I am sure they do care, if only because of the cost of treating osteoporisis. A big fear in the NHS and I am sure if they thought you were "at risk" you would have one.<<< Precisely - if they thought I was at risk. So they do not think there is a risk so why all the fuss when my TSH was so suppressed I wonder. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Great - and did you say "YES" and grab their hand off??? Luv - Sheila -HiI was actually asked if I would have one cos I've been on thyroxine so long.Luv>> Well, hopefully, if you are on Armour, your bones should show up good - as mine did. Do they do this automatically for people using thyroxine I wonder? Anybody had a bone scan offered who is only taking L-thyroxine?> > Luv - Sheila> > > > > .. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release Date: 02/02/2008 13:50 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Hi Sheila Yeh I did have one. Luv Chris -- - In thyroid treatment , " sheilaturner " <sheilaturner@...> wrote: > > Great - and did you say " YES " and grab their hand off??? > > Luv - Sheila > > > > -Hi > > I was actually asked if I would have one cos I've been on thyroxine > so long. > > Luv > > > > > > > Well, hopefully, if you are on Armour, your bones should show up > good - as mine did. Do they do this automatically for people using > thyroxine I wonder? Anybody had a bone scan offered who is only > taking L-thyroxine? > > > > Luv - Sheila > > > > > > > > > > > Recent Activity > a.. 19New Members > b.. 5New Files > Visit Your Group > Meditation and > Lovingkindness > > A Group > > to share and learn. > > Health > Asthma Triggers > > How you can > > identify them. > > > w/ McEnroe > > Join the All-Bran > > Day 10 Club. > . > > > > ------------------------------------------------------------------- ----------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release Date: 02/02/2008 13:50 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 > > >>>I am sure they do care, if only because of the cost of treating osteoporisis. A big fear in the NHS and I am sure if they thought you were " at risk " you would have one.<<< > > Precisely - if they thought I was at risk. So they do not think there is a risk so why all the fuss when my TSH was so suppressed I wonder. > > Lilian > Hi Lilian My TSH has been suppressed for at least 38 years on thyroxine, but I also have a low BMI, which a dose reduction makes no difference to, nor does it up my TSH, just makes me feel hypo. luv Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 ....and did they give you the results of this bone density scan Chris? Luv - Sheila Hi SheilaYeh I did have one. LuvChris>> Great - and did you say "YES" and grab their hand off???> > Luv - Sheila> > > > -Hi> > I was actually asked if I would have one cos I've been on thyroxine > so long.> > Luv> > > > >> > Well, hopefully, if you are on Armour, your bones should show up > good - as mine did. Do they do this automatically for people using > thyroxine I wonder? Anybody had a bone scan offered who is only > taking L-thyroxine?> > > > Luv - Sheila> > > > > > > > > >> Recent Activity> a.. 19New Members> b.. 5New Files> Visit Your Group > Meditation and> Lovingkindness> > A Group> > to share and learn.> > Health> Asthma Triggers> > How you can> > identify them.> > > w/ McEnroe> > Join the All-Bran> > Day 10 Club.> . > > > > ---------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release Date: 02/02/2008 13:50> No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.19/1258 - Release Date: 04/02/2008 10:10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Hi Sheila Yeh got the results same day. Mild osteopenia, now taking calcium. But my dose of thyroxine was reduced for 3 years and I believe this is how I got it, reduced activity. Seeing endo again on Wednesday, they think my body is used to a high dose. luv Chris -- In thyroid treatment , " sheilaturner " <sheilaturner@...> wrote: > > ...and did they give you the results of this bone density scan Chris? > > Luv - Sheila > > > > Hi Sheila > > Yeh I did have one. > > Luv > Chris > > -- > > - In thyroid treatment , " sheilaturner " > <sheilaturner@> wrote: > > > > Great - and did you say " YES " and grab their hand off??? > > > > Luv - Sheila > > > > > > > > -Hi > > > > I was actually asked if I would have one cos I've been on > thyroxine > > so long. > > > > Luv > > > > > > > > > > > > Well, hopefully, if you are on Armour, your bones should show > up > > good - as mine did. Do they do this automatically for people > using > > thyroxine I wonder? Anybody had a bone scan offered who is only > > taking L-thyroxine? > > > > > > Luv - Sheila > > > > > > > > > > > > > > > > > Recent Activity > > a.. 19New Members > > b.. 5New Files > > Visit Your Group > > Meditation and > > Lovingkindness > > > > A Group > > > > to share and learn. > > > > Health > > Asthma Triggers > > > > How you can > > > > identify them. > > > > > > w/ McEnroe > > > > Join the All-Bran > > > > Day 10 Club. > > . > > > > > > > > ---------------------------------------------------------- > ----------- > > > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release > Date: 02/02/2008 13:50 > > > > > > > > > ------------------------------------------------------------------- ----------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.19/1258 - Release Date: 04/02/2008 10:10 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 What dose of thyroxine were you taking and what dose are you taking now. Are you aware that taking Calcium is like taking iron - you must not take it anywhere around the time you take your thyroxine as it stops it working. Take your calcium at least 4 hours away. Have you tried taking thyroxine at night instead of the morning as it has had good reports. Let us know what your endocrinologist says and good luck. Perhaps if you had been taking Armour instead of L-thyroxine, your bones might have been OK. Who knows? luv - Sheila Hi SheilaYeh got the results same day. Mild osteopenia, now taking calcium.But my dose of thyroxine was reduced for 3 years and I believe this is how I got it, reduced activity. Seeing endo again on Wednesday, they think my body is used to a high dose.luvChris-- In thyroid treatment , "sheilaturner" <sheilaturner@...> wrote:>> ...and did they give you the results of this bone density scan Chris?> > Luv - Sheila> > > > Hi Sheila> > Yeh I did have one. > > Luv> Chris> > --> > - In thyroid treatment , "sheilaturner" > <sheilaturner@> wrote:> >> > Great - and did you say "YES" and grab their hand off???> > > > Luv - Sheila> > > > > > > > -Hi> > > > I was actually asked if I would have one cos I've been on > thyroxine > > so long.> > > > Luv> > > > > > > > >> > > Well, hopefully, if you are on Armour, your bones should show > up > > good - as mine did. Do they do this automatically for people > using > > thyroxine I wonder? Anybody had a bone scan offered who is only > > taking L-thyroxine?> > > > > > Luv - Sheila> > > > > > > > > > > > > > >> > Recent Activity> > a.. 19New Members> > b.. 5New Files> > Visit Your Group > > Meditation and> > Lovingkindness> > > > A Group> > > > to share and learn.> > > > Health> > Asthma Triggers> > > > How you can> > > > identify them.> > > > > > w/ McEnroe> > > > Join the All-Bran> > > > Day 10 Club.> > . > > > > > > > > ----------------------------------------------------------> -----------> > > > > > No virus found in this incoming message.> > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release > Date: 02/02/2008 13:50> >> > > > > > > ---------------------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.19/1258 - Release Date: 04/02/2008 10:10> No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.19/1258 - Release Date: 04/02/2008 10:10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2008 Report Share Posted February 5, 2008 Hi Sheila I took 200 mcg thyroxine for 33 years (but believe I was on animal stuff in the beginning. I always took it at night anyway until 2003 when a new GP dumped my dose to 150. Because I felt bad, I read the packet and it said take it in the morning, so I did this thinking I would feel better. Off my own back started taking 200 again early last year and felt better, but still in the morning. Have been taking it at night again for last month and feel fully better. Endo said to take calcium and vit D twice daily, but because I have had kidney stones in the past I only take 1 in the morning. It was endo that ordered bone density scan. luv Chris > > > > > > Great - and did you say " YES " and grab their hand off??? > > > > > > Luv - Sheila > > > > > > > > > > > > -Hi > > > > > > I was actually asked if I would have one cos I've been on > > thyroxine > > > so long. > > > > > > Luv > > > > > > > > > > > > > > > > > Well, hopefully, if you are on Armour, your bones should > show > > up > > > good - as mine did. Do they do this automatically for people > > using > > > thyroxine I wonder? Anybody had a bone scan offered who is > only > > > taking L-thyroxine? > > > > > > > > Luv - Sheila > > > > > > > > > > > > > > > > > > > > > > > Recent Activity > > > a.. 19New Members > > > b.. 5New Files > > > Visit Your Group > > > Meditation and > > > Lovingkindness > > > > > > A Group > > > > > > to share and learn. > > > > > > Health > > > Asthma Triggers > > > > > > How you can > > > > > > identify them. > > > > > > > > > w/ McEnroe > > > > > > Join the All-Bran > > > > > > Day 10 Club. > > > . > > > > > > > > > > > > ---------------------------------------------------------- > > ----------- > > > > > > > > > No virus found in this incoming message. > > > Checked by AVG Free Edition. > > > Version: 7.5.516 / Virus Database: 269.19.19/1256 - Release > > Date: 02/02/2008 13:50 > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > ----------- > > > > > > No virus found in this incoming message. > > Checked by AVG Free Edition. > > Version: 7.5.516 / Virus Database: 269.19.19/1258 - Release > Date: 04/02/2008 10:10 > > > > > > > > > ------------------------------------------------------------------- ----------- > > > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.516 / Virus Database: 269.19.19/1258 - Release Date: 04/02/2008 10:10 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Another excellent prevention for osteoperosis is weight bearing exercise. It doesn't mean you have to become a weight lifter. Keeping your bones strong can be just a half hour 2 times a week. Tammy **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Hi all, I read Sharin's post and was hoping for a reply from her after what posted. I hade hoped for a further post from Sharin on this.  I had a bone density scan last year. Yes, there was a comparison to a young woman, but that is supposed to be 100%, but there was also comparison to the average for your own age group. The radiogolist sends the report of the scans back to your doctor with the comparisons. I was a 67 y.o when mine were done. It seemed, I might have had a problem with bones as I am somewhat round shouldered and I had a wrist break 2005.  However, my bone density tests were very good with at least half of me being even better than the average young woman and the other half of me better than a woman my age.  I can't say I am sorry I had the bone density scans , but even so,the doctor even with the good result, wanted me to take a bisphosnate medication which I think is just so dangerous, and I felt I could easily tell him I didn't need it. (I have some sites on a debate on bisphonates by health professionals to look at on this if anyone is interested.) I declined taking Fosamax. How could the doctor possibly insisit someone with a good bone density like mine say I needed a Bisphosphanate?  I have never had any major problems, thinking on it, but I  have run up the score on X-Rays in my life time  I presume Sharin's Doctor knows what he is comparing against, and would not say she had osteoporosis if she didn't.  On X-Rays, Bee, I know what you are saying, but how can they be avoided. the doctor wants them, the dentist wants them and if you break a wrist in 2 places like I did, they need X-Rays to set your bones?  Regards, Jeanette Make the switch to the world & #39;s best email. Get 7 Mail! http://au./y7mail Quote Link to comment Share on other sites More sharing options...
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