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Hi Cher,

Calling it 'lying dormant' would not really be

accurate. It doesn't just hide somewhere, and not be

detectable with current generation HCV tests, and then

somewhere down the road it suddenly becomes active and

then may be detected by testing. There may be a slight

chance of a false negative, but unlikely. If she is

that concerned she could ask to have an HCV-RNA PCR

test done to detect viral load. If her antibody test

result was negative then unless she JUST NOW (in the

past few weeks) aquired the disease, and her body has

not had time to produce the antibody markers that the

tests 'see', then it is safe to assume she really

doesn't have it. And, if her doctors thought that was

a possibility (a new, accute infection), I would think

they would have already done a PCR. It usually takes a

lot of tylenol to cause hepatitis, but if she was

drinking alcohol at the same time that really

increases the chance that it could be the tylenol. And

yes, her liver can repair itself once what ever is

causing the damage is stopped. The liver is a really

amazing organ. In living-donor transplants one person

donates half of their liver to the person needing it -

they both will begin with half a liver. But each half

will regrow into a whole new liver, sometimes in only

a few weeks. Amazing! (I always think of earth worms

when I think of this.)

Claudine

__________________________________________________

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Hi Cher,

Calling it 'lying dormant' would not really be

accurate. It doesn't just hide somewhere, and not be

detectable with current generation HCV tests, and then

somewhere down the road it suddenly becomes active and

then may be detected by testing. There may be a slight

chance of a false negative, but unlikely. If she is

that concerned she could ask to have an HCV-RNA PCR

test done to detect viral load. If her antibody test

result was negative then unless she JUST NOW (in the

past few weeks) aquired the disease, and her body has

not had time to produce the antibody markers that the

tests 'see', then it is safe to assume she really

doesn't have it. And, if her doctors thought that was

a possibility (a new, accute infection), I would think

they would have already done a PCR. It usually takes a

lot of tylenol to cause hepatitis, but if she was

drinking alcohol at the same time that really

increases the chance that it could be the tylenol. And

yes, her liver can repair itself once what ever is

causing the damage is stopped. The liver is a really

amazing organ. In living-donor transplants one person

donates half of their liver to the person needing it -

they both will begin with half a liver. But each half

will regrow into a whole new liver, sometimes in only

a few weeks. Amazing! (I always think of earth worms

when I think of this.)

Claudine

__________________________________________________

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All liver damage is not viral.

Main causes are virus (A to H) , alcohol, drugs, systemic illneses , non-viral

infections and

cancer.

They all manifest in the same way in liver tests only the outcome is different.

Some virus illnesses like B and C become chronic, some associated with drugs and

alcohol go away if

the offending agent is withdrawn.

Hope this helps.

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All liver damage is not viral.

Main causes are virus (A to H) , alcohol, drugs, systemic illneses , non-viral

infections and

cancer.

They all manifest in the same way in liver tests only the outcome is different.

Some virus illnesses like B and C become chronic, some associated with drugs and

alcohol go away if

the offending agent is withdrawn.

Hope this helps.

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  • 3 months later...

Bud,

I had my surgery at the St. Cloud hospital. My surgeon was Dr. s. I had botox injections at the Mayo clinic, If you have never been there before, I think you will be quite impressed, it's quite a facility! Good luck to you, keep me informed on your progress!

~

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Hi ,

where did you have your surgery performed? I am to have an appointment at Mayo for consultation in the near future.. Since you were from Minn. I was curious..... Bud....From Iowa....

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Hi again ,

Thanks for the quick reply... Will do..Bud

Re: just a question

Bud,

I had my surgery at the St. Cloud hospital. My surgeon was Dr. s. I had botox injections at the Mayo clinic, If you have never been there before, I think you will be quite impressed, it's quite a facility! Good luck to you, keep me informed on your progress!

~

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,

Did you get your diagnosis at the Mayo clinic or did you go there for

just the Botox? Just wondering if they do anything differently in

diagnosing or testing for Achalasia.

My mom is bugging me to go there if only to get my diagnosis

confirmed and see what treatment they recommend for me. I'm hesitant

because I've read their website info on Achalasia and it all seems

pretty standard - nothing new or different or more thorough there.

Nicer facility probably though.

>

> Bud,

>

> I had my surgery at the St. Cloud hospital. My surgeon was Dr.

s. I had botox injections at the Mayo clinic, If you have

never been there before, I think you will be quite impressed, it's

quite a facility! Good luck to you, keep me informed on your progress!

>

> ~

>

>

>

> ---------------------------------

>

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  • 1 year later...

Karrie had to be asleep for her dental work when she was 2. She had 7

cavities filled, 4 caps, x-rays, and cleaning all done. I felt like the

world's worst mom, since she had so many cavities. I brushed her teeth,

never let her go to sleep with a bottle, etc. The dentist didn't tell me

that kids with ds can have more problems with their teeth.

Sue mom to Kate 13 and Karrie 6 w/ds

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has had a lot of problems with his teeth but and Kristi

haven't had that many.

Re: just a question

> Karrie had to be asleep for her dental work when she was 2. She had 7

> cavities filled, 4 caps, x-rays, and cleaning all done. I felt like the

> world's worst mom, since she had so many cavities. I brushed her teeth,

> never let her go to sleep with a bottle, etc. The dentist didn't tell me

> that kids with ds can have more problems with their teeth.

> Sue mom to Kate 13 and Karrie 6 w/ds

>

>

> Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

>

>

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  • 1 month later...
Guest guest

Hi Becky

> I went to our health food store the other day, and I noticed that

> they had a " spouting seed section " and then of course their bulk food

> section. In the bulk food section, they had several beans that you

> can use as sprouts (adzuki, millet, and etc.) but were classified as

> " foods " not sprouting. Can anyone tell me if there really is a

> difference in the " sprouting " seeds, verses the " foods " ?

Maybe you just know a bit more about sprouting than the folks at the

health food store. Let's face it, they can't know every subject in

depth, they are like the rest of us - only human ;-)

You know about sprouting adzuki and millet because of your own personal

interest in sprouting. And since your personal interest is great enough

to get you involved in a group like this - you probably know much more

than you give yourself credit for. For many people, sprouting is Alfalfa

and Mung bean and maybe a couple of others.

Why build JUST a Web site,

When You COULD Build a Business?

http://buildit.sitesell.com/higher-sales.html

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Guest guest

thanks, . you made my day! I can actually hold my head say, " See, I

know a little more than the average human being! " - LOL!! Only kidding!!

I wouldn't do that - bad people skills! LOL - but it sure made me feel

good.

Becky O

Re: just a question

> Hi Becky

>

> > I went to our health food store the other day, and I noticed that

> > they had a " spouting seed section " and then of course their bulk food

> > section. In the bulk food section, they had several beans that you

> > can use as sprouts (adzuki, millet, and etc.) but were classified as

> > " foods " not sprouting. Can anyone tell me if there really is a

> > difference in the " sprouting " seeds, verses the " foods " ?

>

> Maybe you just know a bit more about sprouting than the folks at the

> health food store. Let's face it, they can't know every subject in

> depth, they are like the rest of us - only human ;-)

>

> You know about sprouting adzuki and millet because of your own personal

> interest in sprouting. And since your personal interest is great enough

> to get you involved in a group like this - you probably know much more

> than you give yourself credit for. For many people, sprouting is Alfalfa

> and Mung bean and maybe a couple of others.

>

>

>

>

>

> Why build JUST a Web site,

> When You COULD Build a Business?

> http://buildit.sitesell.com/higher-sales.html

>

>

>

>

>

>

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Guest guest

on 3/21/03 10:03 AM, Becky Osterhoudt at becky.osterhoudt@... wrote:

> I went to our health food store the other day, and I noticed that they had a

> " spouting seed section " and then of course their bulk food section. In the

> bulk food section, they had several beans that you can use as sprouts

> (adzuki, millet, and etc.) but were classified as " foods " not sprouting.

> Can anyone tell me if there really is a difference in the " sprouting " seeds,

> verses the " foods " ?

>

> Becky O

>

>

>

>

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  • 10 months later...

YESSSSSSSS!

depending on what your bodyfat is as well.........but it is MORE than

possible.

> Does anyone think it is a good possibility that I will get to 135

> from 152 in these 12 weeks? I know it's silly to ask, but I was

> wondering if anyone has had these kind of results...

>

> Jenn

> C1W3D3

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It is really hard to guess since it is such an individual thing, plus

with BFL you are building muscle as well as losing fat so the scale

often isn't the best way to measure progress. It isn't an

unrealistic goal though as it would be about 1.4 lbs per week which

is a safe weight loss.

Colleen

> Does anyone think it is a good possibility that I will get to 135

> from 152 in these 12 weeks? I know it's silly to ask, but I was

> wondering if anyone has had these kind of results...

>

> Jenn

> C1W3D3

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  • 5 months later...
Guest guest

Every day, Suzi! Swallow.... breathe.....relax...."feel" it.... more water..... relax..... breathe.... close eyes.... concentrate....

Some bites will go down on their own, but I definitely know when it's time to "meditate" during a meal!Debbi in Michigan

Reading this post makes me want to ask..Do any/most of you actually have to "think" about swallowing?? I know I do..I can;t have a dinner conversation and eat..I'll choke..or it gets stuck half way etc..and I almost have a "double" swallow reflex too..anyone??

Blessings,

Suzi

Can you just see the future achalasian at his dinner table.... He/she takes a mouthful of food then concentrates madly, thinking "oesophagus - now in sequence - starting at the top contract!! LES get ready to open - LES Open - oesophagus contract - well done - now LES Close" !!!!! "Sorry my dear I was concentrating - what did you say about Bobby smoking behing the shed?"

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Guest guest

Hi Suzi!

I know all about having to concentrate on

swallowing! As soon as I stop concentrating, then KABOOM! Stickage!

I still do forget about swallowing sometimes, and then I have trouble. Many

people here say that pushing food through with water every bite helps, but with

me it is the opposite. I can drink water, but the water will come up immediately

if there is anything stuck. Only the water will come back up, not any

food, which really sucks, because if the food came up, too, I could move on

with dinner, etc. For me, only time helps squeeze food through. I

sure cannot wait until I can eat like a “normal” person again!!

Hopefully soon…

Chilliwack, BC

Suzi wrote:

Do any/most of you actually have to " think "

about swallowing?? I know I do..I can;t have a dinner conversation and

eat..I'll choke..or it gets stuck half way etc..and I almost have a

" double " swallow reflex too..anyone??

Blessings,

Suzi

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Guest guest

Hello ,

In reference to your comment:

Many people here say that pushing food through with water every bite helps, but with me it is the opposite. I can drink water, but the water will come up immediately if there is anything stuck.

I find this to be true also. Before my dilatation, food, water,

and everything came up. Now it feels like my food just sits

on the opening to my stomach, then I drink so much water

trying to get it down until the esophagus is full and the

water comes back. The food just sits there being heavier

and heavier. It does eventually get down I guess but takes

hours.

And yes, I do have to struggle to get it down. I understand

Suzi what you mean by a double swallow reflex. It seems

the first swallow gets the food past my adams apple and

from there it is try to swallow over and over.

Aren't we glad we have someone who understands what we're

talking about. :)

Maggie

Alabama

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Guest guest

I agree, I have to get in the zone (and get a 6 pack

of water) before attempting to ingest anything. Its

autochoke if I don't.

Mark (zen master) from Dayton

--- Debbi Heiser <heiser@...> wrote:

> Every day, Suzi!

>

> Swallow.... breathe.....relax.... " feel " it.... more

> water..... relax..... breathe.... close eyes....

> concentrate....

>

> Some bites will go down on their own, but I

> definitely know when it's time to " meditate " during

> a meal!

>

> Debbi in Michigan

> Reading this post makes me want to ask..Do

> any/most of you actually have to " think " about

> swallowing?? I know I do..I can;t have a dinner

> conversation and eat..I'll choke..or it gets stuck

> half way etc..and I almost have a " double " swallow

> reflex too..anyone??

> Blessings,

> Suzi

>

>

> Can you just see the future achalasian at his

> dinner table.... He/she takes a mouthful of food

> then concentrates madly, thinking " oesophagus - now

> in sequence - starting at the top contract!! LES get

> ready to open - LES Open - oesophagus contract -

> well done - now LES Close " !!!!! " Sorry my dear I

> was concentrating - what did you say about Bobby

> smoking behing the shed? "

=====

Mark Dodson

Miami Quality Services

2760 Washington Road

Covington, Ohio 45318

937-620-9625 mobile

937-335-4532 fax

bullscreek@...

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Guest guest

We went to the Houston Doctor today! Dr. Reardon... He seems very knowleable. However he seems to think I have been mis-diagnosed with achalasia. he said I possibly have DIFFUSED ESOPHAGUS SPASMS. I cannot find any information on this...Does anyone Know anything about DES????

Re: Just a question

Every day, Suzi! Swallow.... breathe.....relax...."feel" it.... more water..... relax..... breathe.... close eyes.... concentrate....

Some bites will go down on their own, but I definitely know when it's time to "meditate" during a meal!Debbi in Michigan

Reading this post makes me want to ask..Do any/most of you actually have to "think" about swallowing?? I know I do..I can;t have a dinner conversation and eat..I'll choke..or it gets stuck half way etc..and I almost have a "double" swallow reflex too..anyone??

Blessings,

Suzi

Can you just see the future achalasian at his dinner table.... He/she takes a mouthful of food then concentrates madly, thinking "oesophagus - now in sequence - starting at the top contract!! LES get ready to open - LES Open - oesophagus contract - well done - now LES Close" !!!!! "Sorry my dear I was concentrating - what did you say about Bobby smoking behing the shed?"

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Guest guest

Hi and Maggie,

I can also not drink water when something is stuck ! It is asking for a fountain to explode from my mouth!

And I thought I was the only one......... just shows you! When the doc told me to chew my food well and drink lots of water I just laughed at him!

Hugs,

Joan

Johannesburg

South Africa

Re: Just a question

Hello ,

In reference to your comment:

Many people here say that pushing food through with water every bite helps, but with me it is the opposite. I can drink water, but the water will come up immediately if there is anything stuck.

I find this to be true also. Before my dilatation, food, water,

and everything came up. Now it feels like my food just sits

on the opening to my stomach, then I drink so much water

trying to get it down until the esophagus is full and the

water comes back. The food just sits there being heavier

and heavier. It does eventually get down I guess but takes

hours.

And yes, I do have to struggle to get it down. I understand

Suzi what you mean by a double swallow reflex. It seems

the first swallow gets the food past my adams apple and

from there it is try to swallow over and over.

Aren't we glad we have someone who understands what we're

talking about. :)

Maggie

Alabama

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Guest guest

Well this email really convinced me I just joined the right group! The water fountain effect is so undignified - but certainly part of whatever it is that has been getting worse for me. I am currently two days into a siege of "closed throat" and living on sips of apple juice, which seems to go down better than anything else has.

Does anyone out there know of any natural remedies? I am hypothyroid, but take my meds every day. Hypothyroid often leads to a magnesium deficiency, and magnesium has a lot to do with the function of all muscles.

I also have a sulfite sensitivity and my last two swallowing spells have been triggered by sulfites. Makes me wonder if this has been true all along. I didn't realize how many foods had sulfites in them, so may have missed the pattern...hmmm. (french fries, coconut and dried fruit, wine, beer, corn syrup, etc. etc. ad nauseum) But there is no doubt about it this time; I marinated the steak in wine myself! And now my throat just will not swallow a darn raspberry. Oh, well. I can live off the fat of the land for quite awhile!

Any natural suggestions??

Martha

Arlington, WA

I would like to try anything natural first and save surgery for last ditch efforts.

Re: Just a question

Hello ,

In reference to your comment:

Many people here say that pushing food through with water every bite helps, but with me it is the opposite. I can drink water, but the water will come up immediately if there is anything stuck.

I find this to be true also. Before my dilatation, food, water,

and everything came up. Now it feels like my food just sits

on the opening to my stomach, then I drink so much water

trying to get it down until the esophagus is full and the

water comes back. The food just sits there being heavier

and heavier. It does eventually get down I guess but takes

hours.

And yes, I do have to struggle to get it down. I understand

Suzi what you mean by a double swallow reflex. It seems

the first swallow gets the food past my adams apple and

from there it is try to swallow over and over.

Aren't we glad we have someone who understands what we're

talking about. :)

Maggie

Alabama

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Guest guest

I once had a Dr who said drink warm water with meals I said For me Ice water works He insists He was right gave me many reasons why But could not understand why I said Ice cold I could not explain why Nor did I care why .... ......Having a better day But on liquids Had slimfast for lunch Had on orange creme flavor Now oranges in it Oranges or toooo citrasey Is that a word

-- Re: Just a question

Hi and Maggie,

I can also not drink water when something is stuck ! It is asking for a fountain to explode from my mouth!

And I thought I was the only one......... just shows you! When the doc told me to chew my food well and drink lots of water I just laughed at him!

Hugs,

Joan

Johannesburg

South Africa

Re: Just a question

Hello ,

In reference to your comment:

Many people here say that pushing food through with water every bite helps, but with me it is the opposite. I can drink water, but the water will come up immediately if there is anything stuck.

I find this to be true also. Before my dilatation, food, water,

and everything came up. Now it feels like my food just sits

on the opening to my stomach, then I drink so much water

trying to get it down until the esophagus is full and the

water comes back. The food just sits there being heavier

and heavier. It does eventually get down I guess but takes

hours.

And yes, I do have to struggle to get it down. I understand

Suzi what you mean by a double swallow reflex. It seems

the first swallow gets the food past my adams apple and

from there it is try to swallow over and over.

Aren't we glad we have someone who understands what we're

talking about. :)

Maggie

Alabama

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Guest guest

I sent this message once but after four hours I

don't see it. So, here it is again.

tkshelby wrote:

....DIFFUSED

ESOPHAGUS SPASMS. I cannot find any information on this...Does

anyone Know anything about DES????

Take a look at

http://www.merck.com/mrkshared/mmanual/section3/chapter20/20f.jsp

or

http://tinyurl.com/58xf4

It has information on achalasia first and then DES. Two quotes of

interest are

" Over many years, this disorder may evolve into

achalasia. "

" Some patients show symptom complexes that fit neither typical

achalasia nor typical diffuse spasm. Some of these complexes have been

called " vigorous achalasia " because they have both the fluid

retention and aspiration of achalasia and the severe pain and spasm of

diffuse spasm. "

See also:

http//www.blackwell-synergy.com/links/doi/10.1046/j.1440-1746.17.s1.7.x/full/

or

http//tinyurl.com/4lh9d

" The term 'diffuse' esophageal spasm has been used to denote the

condition in which the entire length of the smooth muscle part of the

esophagus is affected. There is no indication that localized spasm is a

disease entity that is different from diffuse spasm. "

He just calls DES " Eesophageal

spasm. "

From what I have seen from people here describing

their own symptoms, it seems that some doctors just call it all

achalasia. There are variants of achalasia.

Consider

http//www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=11231931

or

http//tinyurl.com/3mppl

" These variants were characterized by (1) the presence of high

amplitude esophageal body contractions, (2) a short segment of esophageal

body aperistalsis, (3) retained complete deglutitive LES relaxation, and

(4) intact transient LES relaxation. "

(1) This is true of

nutcracker

esophagus. Some doctors consider DES and

nutcracker to be one disorder. Other do not agree with that. See also

corkscrew esophagus.

(3) Deglutitive means swallowing. So, why is this achalasia? My guess is

that it is either not well timed or not consistent, so that it is still a

relaxation failure (the meaning of achalasia).

(4) This is one way you can have true HCl heartburn even if you have

achalasia.

In disorders of the esophagus, different tests of the same patient may

find or miss different symptoms. Even the same test repeated at different

times may get different results. So, the same patient may be diagnosed at

different times or by different doctors with different diagnoses.

The following site has some classic (not all of us have classic symptoms)

manometry

graphs of different disorders including DES

and achalasia. The different graphs don't always show readings from the

same locations. Some show LES data and some don't. See figures 4 -

8.

http//www.clevelandclinicmeded.com/diseasemanagement/gastro/motor/motor.htm#pdiagnosis

or

http//tinyurl.com/7yd29

notan

Jerry Hastings

hastings@...

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