Re: Cholesteatoma

[Guest guest]

Hi ,

And welcome to the group:) I'm really glad to hear that you are

doing good after the surgery. Mine also went pretty successful. Did

you want to tell us some details about your operation.

How bad was the c-toma? Have to have eardrum or hearing bones

removed? Anything else you would like to share. We are all here to

vent and share our stories and get useful information from other's

who have this nasty disease!!!

Hope you enjoy the site!! (not the c-toma :-)That's nothing to

enjoy )

Kim

> Hi:

>

> I am new to the group... I have previously posted my

story on

> pathfinders.com.

>

> I had surgery in March and am doing fine.

>

>

[Guest guest]

Hey ,

Glad to " hear " that everything is going good. Yes consider youself

lucky and I lately. Except for the last 5 days I've had a headache

and a fever last 2 nights. A lot of pressure in my ear, so Monday I

have to go and get it checked out. But other than that, I've

considered myself lucky. It can change so fast the condition of you

ear ;(

So you had to have hearing bones removed as well? I had to have all

3 removed but my eardrum was okay. I was also getting the dizziness

and migraines like crazy seeing that the c-toma was almost into my

brain. I guess the doctor was not going to perform the operation for

quite awhile, but when I mentioned that my moniter started swaying

back and forth in front of me, he pushed the date up for the

operation.

So you go back in 6 months? Wauw, my doc was seeing me every two

weeks, now it's every six and then maybe every 3 months if all is

well.

Well I hope things are okay Monday when I go, cross your fingers

for me. Kind of scared, don't want another operation......just yet!!

But I know it will come, if not in this ear then in the other ear!!

Ta Ta for now,

Kim

> Kim:

>

> I was diagnosed with a cholesteatoma after having a lot of

dizziness and

> equilibrium problems.

>

> The doctor had to perform the radical mastoidectomy to remove the

> cholesteatoma. The bones were completely deteriorated and the build

up of

> skin and calcium was through out and he removed the eardrum.

>

> I go back in six months for a checkup but for now things are just

fine - I

> had a good recovery. I consider myself very lucky ... I know other

people

> are having it really hard.

>

>

[Guest guest]

Hey,

Actually I remembered that you had said it was your husband with

this disease. I think it's great what you are doing for him and with

him, looking up all this info and wanting to let others know about

this. I have also been doing the same.

Yes kind of hard to trust these doctors but unfortunately we have

to put all our faith into them and hope they do a good job. I have

recently found out that my doctor is one of the best in Canada here,

I think maybe 2nd best. People come from all over Canada, and I think

a few from the States. He is always on t.v. and in the newspapers,

and he was also referred to me by what I've heard is the best in

Canada. Dr. Price- in Orillia, I seen him once then he referred

me to my current ENT now, Dr. Ballagh.

I really like him alot. He tells it to me straight, doesn't use all

these long medical terms and tells me all the pros and cons of

everything.

Well keep my posted and need to vent anytime your welcome too

Tomorrow I go see my ENT to see what is the matter. Oh my ear!!! I

think I choose a good name for this group cuz the last few days I've

been going around saying " Oh my ear, oh my damn ear!!! "

Ok TTFN

Kim

[Guest guest]

Yeah, Geeeeeez oh what could it be??? Ohhhhhh my EAR!!!! Hahaha. I

think it's probably actually just a minor infection. He'll look at it

tomorrow, give it a cleaning and then prescribe ear drops and tell me

to keep water out at all costs cuz remember with c-toma " Water is

your enenmy!! "

Ok well I'm surfing and surfing trying to figure out a way hear to

promote this group. Get it listed, but I can't find it anywhere.

Really driving me nuts!!!

Anyways, oh yeah wanted to mention one more thing I might be going

away for two weeks to work, if all is good!! So just wanted to know

if you could keep an eye on the group for me and make sure no funny

stuff goes on in here HaHa....Like that would happen, but ya never

know!!!

You seem to be able to check on the pc at least every day, so I

wonder if it's possible to have a back up moderator in here. Hmm well

I'll look into that and let ya know....

Ciau

Kim

> Hi Kim,

>

> Please let me know what's up with your ear, although

> it seems like we probably already know. My best to

> you!

>

>

[Guest guest]

Thanks Lynn for explaining it in a easy way! Sometimes

this medical jargon is too much.

__________________________________________________

[Guest guest]

Hi, Fiona.

Oprah is retiring after this year, so I'm somewhat pessimistic that my story will be told. I'm glad you read it and I hope it helped you know you are not alone. I wrote letters to Parents Magazine and Good Housekeeping and only received a response from Parents Magazine (only that they will contact me if they use my story). I wish these people knew how serious the disease is and how it needs to be made public. It's frustrating for me, because more and more children and adults are being diagnosed with it -- too late, unfortunately.

I wish we lived closer, so we could get together! If you have any questions or want to write, you can reach me at tpotts@....

Take care,Terri

-----Original Message-----From: Fiona Beashel [mailto:cat.mouse@...]Sent: Thursday, September 19, 2002 2:12 AMcholesteatoma Subject: cholesteatomaHI,I am the mother of a 4 year old boy in Melbourne Australia. My son was diagnosed with a congenital cholesteatoma and had it removed urgently in December 00 he had a radical mastoidectory with a meatoplasty, I have been trying to find other parents within melbourne that have gone through similar traumatic experiences but so far have found none. I will keep looking though. The letter to Oprah which was on the website, that is me to a tee! I feel exactly the same way, as probably most parents of young children going through the same thing feel.I would like to be involved in the cholestatoma support group.-- ThanksFiona BeashelDingley, Melbourne , AustraliaPhone 9558 3648Fax 9551 0448Mobile 0417 556 353

[Guest guest]

things are very hard when you are facing the lose of hearing but they do get

better and as long as you have support in your family you can come through

anything. my family has been very supportive and we are all learning to sign.

good luck to you and best wishes.

tammy

[Guest guest]

> does

> anyone know

> if cholesteatoma is genetic? What are the odds of contracting

> cholesteatoma?

Phil, I don't think there is evidence showing that it's genetic. It

can be congenital (you're born with it), but I think a lot of us

have acquired it from poor eustachian tube function, other ear

disease or mulitple ear infections.

If anyone knows of anything to the contrary?

Christa

[Guest guest]

Hello Phil,

My husbands doc said it wasn't hereditary; however, he said our son

would stand a higher chance (although still extremely low) of

contracting c-toma than a child of a family who has never had to

deal with this monster.

Michele

> does

> anyone know

> if cholesteatoma is genetic? What are the odds of contracting

> cholesteatoma?

[Guest guest]

Missthenorth,

I think you need to get a second opinion. If you have c-toma, it needs to be removed. Are you near any teaching hospitals? They usually have grants and what not to help people that don't have insurance. For example, when my husband had his first surgery, although not a teaching hospital, we were able to apply for and receive a grant that covered hospital costs. It didn't cover the doctors costs, but all of our hospital expenses were written off. The last 2 surgeries he had were at teaching hospitals. Due to our low income at the time we were able to get assistance from the state in the form of the Oregon Health Plan. The teaching hospital would have covered our expenses if we wouldn't have been on the health plan.

Please try and seek out a second opinion. Better to get this monster removed now. The earlier it is done, the less damage it will do.

Please keep us posted.

Michele, Group Moderatormissthenorth <missthenorth@...> wrote:

Hi Everyone,I had a cholesteatoma removed from my right ear in 1997. It was a very long operation. 6 hours. I guess my ear was a mess. I have a implant in that ear now. Well to make a long story short-I lost my job in 2001 due to fibro, no insureance etc. Well I began having earaches in that ear in 2002. I got into a ENT. He and his partner had to clean more cho. out of the canal in that ear. They said I defiantely needed surgery asap. Well I move to Georgia, tryed to get rehab to help. They sent me to a Doc that told me "I've seen these before, just have it cleaned out every three months or so" This shocked me . Therefore I had no help getting it taken care of. Now I am getting dizzyness, headaches. I am still waiting for disability. No income no insurance.. anyone have any suggestions? Was the second doctor just pushing

me off?? I am so confused now.

[Guest guest]

How do I get my name off of this group list?

Thank you. ----- Original Message -----From: Michele Date: Tue, 23 Dec 2003 11:13:43 -0800 (PST)cholesteatoma Subject: Re: Cholesteatoma

Missthenorth,

I think you need to get a second opinion. If you have c-toma, it needs to be removed. Are you near any teaching hospitals? They usually have grants and what not to help people that don't have insurance. For example, when my husband had his first surgery, although not a teaching hospital, we were able to apply for and receive a grant that covered hospital costs. It didn't cover the doctors costs, but all of our hospital expenses were written off. The last 2 surgeries he had were at teaching hospitals. Due to our low income at the time we were able to get assistance from the state in the form of the Oregon Health Plan. The teaching hospital would have covered our expenses if we wouldn't have been on the health plan.

Please try and seek out a second opinion. Better to get this monster removed now. The earlier it is done, the less damage it will do.

Please keep us posted.

Michele, Group Moderatormissthenorth <missthenorth@...> wrote:

Hi Everyone,I had a cholesteatoma removed from my right ear in 1997. It was a very long operation. 6 hours. I guess my ear was a mess. I have a implant in that ear now. Well to make a long story short-I lost my job in 2001 due to fibro, no insureance etc. Well I began having earaches in that ear in 2002. I got into a ENT. He and his partner had to clean more cho. out of the canal in that ear. They said I defiantely needed surgery asap. Well I move to Georgia, tryed to get rehab to help. They sent me to a Doc that told me "I've seen these before, just have it cleaned out every three months or so" This shocked me . Therefore I had no help getting it taken care of. Now I am getting dizzyness, headaches. I am still waiting for disability. No income no insurance.. anyone have any suggestions? Was the second doctor just p

ushing me off?? I am so confused now.

[Guest guest]

I know this message is old. I want to know did anyone reply to your message?? as you see <tonya4442000@...> wrote: hello i was wondering if anyone has saw a dr by the name of dr. jones at the university of kentucky medical center at lexington ky? please reply

[Guest guest]

Hi Katrina

I've not had an eardrum come out, I think they tend to go inwards. Both my eardrums always seemed to be perforated and one of them came so drawn it attached to the roof of the middle. Years later when I was being treated for ctoma there was no longer any trace of an eardrum. It seems to have simply dissolved. A couple of years later a new eardrum was grafted using a little piece of neck muscle. Only the top half of the space was filled the bottom half was built up from cartilage. The idea being that a smaller eardrum would function just as well but be less likely to rutpture. Good luck with the research.

Phil

cholesteatoma

Has anyone experienced a ruptured eardrum that physically came out of the outer ear? If so, during surgery, did they take tissue from the neck or behind the ear to reconstruct the eardrum? My son had 2 surgeries in the mid 90's, and I now am a pre-nursing student working on a report on this subject for my anatomay class. Appreciate any input. Thanks, Katrina Petaluma ,CA

[Guest guest]

Hi there, thank you so much for replying. I have never participated in a forum online. I am afraid I am a child of the 70's, and very green when it comes to technology.

In my sons case, the cholesteatoma had eaten thru 2 out of the 3 bones in the ear. Did you also have that problem? If so, did they reconstruct the bones out of cartilage or did you recieve artificial bones? Also, everything I have read online leads to the poor working order of the tubes causing the cholestatoma. The surgeon said my sons was most likely present at birth w/ antibiotics slowing down the progression of the growth over the years. Are you telling me that you had a c-toma in BOTH ears? One is brutle enough. Thanks again for your quick reponse! KatrinaPhil <psmorris@...> wrote:

Hi Katrina

I've not had an eardrum come out, I think they tend to go inwards. Both my eardrums always seemed to be perforated and one of them came so drawn it attached to the roof of the middle. Years later when I was being treated for ctoma there was no longer any trace of an eardrum. It seems to have simply dissolved. A couple of years later a new eardrum was grafted using a little piece of neck muscle. Only the top half of the space was filled the bottom half was built up from cartilage. The idea being that a smaller eardrum would function just as well but be less likely to rutpture. Good luck with the research.

Phil

cholesteatoma

Has anyone experienced a ruptured eardrum that physically came out of the outer ear? If so, during surgery, did they take tissue from the neck or behind the ear to reconstruct the eardrum? My son had 2 surgeries in the mid 90's, and I now am a pre-nursing student working on a report on this subject for my anatomay class. Appreciate any input. Thanks, Katrina Petaluma ,CA

[Guest guest]

Hi there, thank you so much for replying. I have never participated in a forum online. I am afraid I am a child of the 70's, and very green when it comes to technology.

In my sons case, the cholesteatoma had eaten thru 2 out of the 3 bones in the ear. Did you also have that problem? If so, did they reconstruct the bones out of cartilage or did you recieve artificial bones? Also, everything I have read online leads to the poor working order of the tubes causing the cholestatoma. The surgeon said my sons was most likely present at birth w/ antibiotics slowing down the progression of the growth over the years. Are you telling me that you had a c-toma in BOTH ears? One is brutle enough. Thanks again for your quick reponse! Katrina

Hi Katrina

Right, I still have ctoma in both ears, but it's an unusual variety of the disease. Originally I did have a regular kind of ctoma which seemed to have eaten away all trace of bones in one ear. So that was reconstructed using a titanium torp (total ossicular replacement prosthesis). I think different doctors choose different reconstruction methods according to the circumstances.

Eustachian tube problems which lead to ear infections are behind most acquired ctomas. I'm not sure if that's the case with congenital ctomas. I think they may be due to the presence of the wrong kind of skin cells trapped inside the eardrum which eventually start to grow and spread into the middle ear.

Phil

[Guest guest]

Hi ,

I'm sorry to hear about your son's recurrence and number of

surgeries. I'm right there with you with my 10 year old son, with

surgery number 6 scheduled for July.

My daughter, who does not have CToma was a candidate for growth

hormones. She made it to the 3rd percentile on height and weight, so

never took them. However, we still see an endocrinologist annually.

I'd check with the doctor who perscribed the hormones, as they can

cause many side effects (I'm sure you know more about that than me).

Also, are you seeing an otologist? If not, you might want to have a

consult with one. We have a fabulous ENT, who referred us to one

after doing my son's previous surgeries, as he recognized that when

Ctoma recurs, a sub-specialist needs to become involved.

Best of luck and please post any info. you find regarding the growth

hormones.

Sheri

[Guest guest]

the ONLY cure for C-toma is surgery, only your Doc

should advise on how long you could/should go before

you need to have it done. I would do it asap so

damage that the c-toma could be limited............

tom hansen

--- mallikar2003 <mallikar2003@...> wrote:

> Dear All,

>

> I am diagnosed as cholesteatoma in the right ear

> and doctor

> suggested me to go for a surgery. I have lost 20% of

> hearing right ear

>

>

***********************************************************

> The following is the CT scan results.

>

> CT Temporal Bone: Volume of scan of the temporal

> bone is performed.

>

> Right

> A small non-dependent soft tissue attenuation is

> seen in the right

> middle ear between the acoustic membrane and the

> long process of the

> incus. The acoustic membrane is retracted. The

> ossicle is not

> displaced. No definite erosion of the ossicle is

> seen. The scutum is

> not eroded.

>

> Left

> No structural abnormality is detected.

>

> Both mastoids are sclerosed.

>

> Conclusion:

> The soft tissue attenuation is seen in the right

> middle ear is most

> likely granulation tissue.

>

>

**************************************************************

>

>

> My questions are....

>

> I am getting dizziness sometimes. Not sure, this is

> due to c-toma or

> not? Doctor told me that, c-toma may cause

> dizziness.

>

> 1. Do I need to go for surgery or the surgery can be

> delayed for some

> more time?

>

> 2. What are the benefits of going for a surgery?

>

> 3. What are the drawbacks of going for a surgery?

>

> 4. Does anyone from singapore has gone for c-toma

> surgery? Feel like

> taking to them about the sugery with them regardign

> the doctor,

> hospital and charges.

>

> Some times, I am getting depression and not getting

> enough courage to

> go for a surgery. Kindly share your thoughts and

> suggestions.

>

> Thanks in advance for your time.

>

> Regards

> Mallik

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

I would call it a form of discrimination. I imagine the UK has as may lawyers\barristers per capita as the US does...I'd look into it if I were you.keithpearsonkeithpearson <keithpearsonkeithpearson@...> wrote: Hello World,I have been diagnosed as having a cholesteatoma in my left ear since 2003. I was operated on in Jan 2004, and subsequently was hired by the Inland Revenue(IR) (same as the IRS in the USA) in May 2005. Because of time off, taken due to colds and subsequent ear infections, I was

dismissed from this employment in Oct 2006. Do I have any legal recourse against the IR in this matter. I look forward to hearing any comments on this matter.Cheers Pearson.

Pinpoint customers who are looking for what you sell.

[Guest guest]

I have been diagnosed as having a cholesteatoma in my left ear since

2003. I was operated on in Jan 2004, and subsequently was hired by

the Inland Revenue(IR) (same as the IRS in the USA) in May 2005.

Because of time off, taken due to colds and subsequent ear infections,

I was dismissed from this employment in Oct 2006. Do I have any legal

recourse against the IR in this matter. I look forward to hearing any

comments on this matter.

Hello

I don't think there is any absolute law which specifies how much time you

can take off due sickness. It really depends on what stated in your

employment contract. You would usually be enttiled to so many days

self-certified sick leave per year. If you go over that period without an

authorized medical certificate then the employer may decide that you are in

breach of contract. I think they are supposed to give a verbal or written

warning before actually dismissing you. Probably the first place to go for

advice would be to the union if you were a memeber of one. Failing that the

Citizens Advice Bureau should be able to tell you your rights on this

matter.

Phil

[Guest guest]

Hi

Firstly, I'm not qualified to give legal advice, but I would say the following:

I was in the Civil Service, and when they (that's 'they' as in the Area Office, not the local folks) threatened to extend my probation, or even to terminate my employment because I had had 4+ weeks off sick (the maximum permitted in one's probation period is 2 weeks), I asked them if they even KNEW who I was - ie had they read my employment record, etc., because I was actually registered disabled, and had gained employment with them under the Double-Tick scheme i.e. they were acknowledged as an employer who treated the disabled fairly - huh! They hadn't bothered to check up as to WHY I had had time off or the like. All - and I mean ALL - of my time off was related to my ears and every time I was off sick, I had been to the GP to get meds, and to get it on my record that I had been genuinely ill. I'm registered deaf due to my cholesteatoma and other related ear/hearing problems, and as a War Pensioner (though I'm only 44 now, I was previously in the RAF), I wanted everything recorded for my pension, etc. Anyway, when they (the Civil Service people) actually bothered to check up on everything, they wrote to me formally and said they wouldn't be taking action against me, but strongly recommended I do everything in my power to prevent getting ear infections!! I wrote back - formally - and asked them if they knew of anything at all I could do to prevent infections/perforations as I certainly didn't WANT the darned things, but they never wrote back.

I left shortly after that, mostly because of the harassment and discrimination I suffered at the hands of the Service as a whole, but including my 'boss'... who suggested that I might be able to answer the phone and, if I couldn't hear the reply from the caller, I should (and I quote) "ask them to shout"; against such ignorance one has little hope.

Fortunately, around this time, a previous employer was keen to take me back on and contacted me (actually drove to my house to leave a note, rather than trying to phone me) and I've been back in his employ for some 4½ years - with no worries, limitations or hassle in my direction whatsoever.

Though I did leave the Civil Service because of such treatment, I know that they backed down from taking any action against me, because I didn't buckle under the threat of action; they hadn't bothered to check up on anything about me, about what my disability was, or why in fact I had had so much time off sick, so took the standard stance against me and my 'excessive' time off work. My own GP even suggested to me that I shouldn't just be taking the 1 day off each time my ears perforated, but that I should take 4 or 5, to allow my body to heal properly. Haha.. imagine if I had produced supporting documentation from him to the Civil Service - what would they have said!? LOL

If you feel that you were forced to leave or were sacked because of your disability, I suggest you go speak to the wonderful people at the Citizens' Advice Bureau and see what they say. You may have a case for wrongful dismissal, but you need to speak to people 'in the know'.

I wish you well in any action you properly take against anyone who discriminates, but moreover, I wish you well in finding gainful employment with more sympathetic people, who treat you as a 'normal' person.

Kazzy :-)

-- cholesteatoma

Hello World,I have been diagnosed as having a cholesteatoma in my left ear since 2003. I was operated on in Jan 2004, and subsequently was hired by the Inland Revenue(IR) (same as the IRS in the USA) in May 2005. Because of time off, taken due to colds and subsequent ear infections, I was dismissed from this employment in Oct 2006. Do I have any legal recourse against the IR in this matter. I look forward to hearing any comments on this matter.Cheers Pearson.

--

This email has been verified as Virus free

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[Guest guest]

Hiya sorry to hear about your woes.

Ok after checking up abit you may well have a case as it makes no

difference if you were on a probationary period or not. Since it

would be a case where DDA came into play there would also be no

limit on compensation, go get 'em tiger.

You would need a letter from your ent/gp to back up the medical

facts of c-toma and it's associate effects on health - you'll

probably have to write that bit out yourself and get the doc to sign

it. Advice from hubby is take them to a tribunal, they will probably

want to settle before it goes ahaead as once it does it becomes a

matter of public record, oh can't you just imagine the headlines.

Good luck.

Cheers

June

p.s Kazzy after reading your reply I said a few bad words and I bet

you can guess which ones

>

> Hi

>

> Firstly, I'm not qualified to give legal advice, but I would say

the

> following:

>

> I was in the Civil Service, and when they (that's 'they' as in the

Area

> Office, not the local folks) threatened to extend my probation, or

even to

> terminate my employment because I had had 4+ weeks off sick (the

maximum

> permitted in one's probation period is 2 weeks), I asked them if

they even

> KNEW who I was - ie had they read my employment record, etc.,

because I was

> actually registered disabled, and had gained employment with them

under the

> Double-Tick scheme i.e. they were acknowledged as an employer who

treated

> the disabled fairly - huh! They hadn't bothered to check up as to

WHY I had

> had time off or the like. All - and I mean ALL - of my time off

was related

> to my ears and every time I was off sick, I had been to the GP to

get meds,

> and to get it on my record that I had been genuinely ill. I'm

registered

> deaf due to my cholesteatoma and other related ear/hearing

problems, and as

> a War Pensioner (though I'm only 44 now, I was previously in the

RAF), I

> wanted everything recorded for my pension, etc. Anyway, when

they (the

> Civil Service people) actually bothered to check up on everything,

they

> wrote to me formally and said they wouldn't be taking action

against me, but

> strongly recommended I do everything in my power to prevent

getting ear

> infections!! I wrote back - formally - and asked them if they

knew of

> anything at all I could do to prevent infections/perforations as I

certainly

> didn't WANT the darned things, but they never wrote back.

>

> I left shortly after that, mostly because of the harassment and

> discrimination I suffered at the hands of the Service as a whole,

but

> including my 'boss'... who suggested that I might be able to

answer the

> phone and, if I couldn't hear the reply from the caller, I should

(and I

> quote) " ask them to shout " ; against such ignorance one has little

hope.

>

> Fortunately, around this time, a previous employer was keen to

take me back

> on and contacted me (actually drove to my house to leave a note,

rather than

> trying to phone me) and I've been back in his employ for some 4½

years -

> with no worries, limitations or hassle in my direction whatsoever.

>

> Though I did leave the Civil Service because of such treatment, I

know that

> they backed down from taking any action against me, because I

didn't buckle

> under the threat of action; they hadn't bothered to check up on

anything

> about me, about what my disability was, or why in fact I had had

so much

> time off sick, so took the standard stance against me and

my 'excessive'

> time off work. My own GP even suggested to me that I shouldn't

just be

> taking the 1 day off each time my ears perforated, but that I

should take 4

> or 5, to allow my body to heal properly. Haha.. imagine if I had

produced

> supporting documentation from him to the Civil Service - what

would they

> have said!? LOL

>

> If you feel that you were forced to leave or were sacked because

of your

> disability, I suggest you go speak to the wonderful people at the

Citizens'

> Advice Bureau and see what they say. You may have a case for

wrongful

> dismissal, but you need to speak to people 'in the know'.

>

> I wish you well in any action you properly take against anyone who

> discriminates, but moreover, I wish you well in finding gainful

employment

> with more sympathetic people, who treat you as a 'normal' person.

>

> Kazzy :-)

>

>

>

>

> -- cholesteatoma

>

> Hello World,

>

> I have been diagnosed as having a cholesteatoma in my left ear

since

> 2003. I was operated on in Jan 2004, and subsequently was hired by

> the Inland Revenue(IR) (same as the IRS in the USA) in May 2005.

> Because of time off, taken due to colds and subsequent ear

infections,

> I was dismissed from this employment in Oct 2006. Do I have any

legal

> recourse against the IR in this matter. I look forward to hearing

any

> comments on this matter.

>

> Cheers

> Pearson.

>

>

>

>

>

> --

> This email has been verified as Virus free

> Virus Protection and more available at http://www.plus.net

>

[Guest guest]

Hi,

Ctoma cannot be stopped by surgery, as there is no medication or ear

drop that stop this funny thing, at least i never heard about it in

this group.

From your writing, seems that you are in Korea now. Why not you try

to consult those chinese/oriental way of healing in Korea, such as

acupuncture etc?

Anyway, you shall regular follow up with your otologist.

Gd luck.

>

> Hello my name is Dougherty. My husband was diagnosed with

> Cholesteatoma in 2006 after going to the doctor many times becuase

of

> his hear bleeding. He had surgery in August 2006 and we were glad

> that it was over after moving to Korea for our next duty station he

> began talking to doctors about reconstruction of his hearing bones

so

> he was sent to Hawaii to the military hospital. During his surgery

it

> was discover that it was back so it was remove. This time is was

> harder for him becuase he was in more pain. We came back and things

> were good and couple of months later he had a hearing test and he

fail

> and was told that his hearing was getting worse. I think that he

> knows that he will lose all his hearing from that ear. Today he was

> giving bad news after a scan he found out that it was back again and

> another surgery. Why again and why so soon? He still cannot take a

> shower without making sure that water does not go into his ear. I

> understand that it can be treated but why can't it be stop from

coming

> back? Sorry I am just frustrated of seeing him on pain.

>

[Guest guest]

Absolutely!!! Try it TCM! I have been having great results by

omitting foods that cause ear infections. I can feel the difference

when I eat them again. I also am taking superfood supplements that I

feel are a big contributor to my healing and keeping the tumor from

returning.

> >

> > Hello my name is Dougherty. My husband was diagnosed with

> > Cholesteatoma in 2006 after going to the doctor many times

becuase

> of

> > his hear bleeding. He had surgery in August 2006 and we were glad

> > that it was over after moving to Korea for our next duty station

he

> > began talking to doctors about reconstruction of his hearing

bones

> so

> > he was sent to Hawaii to the military hospital. During his

surgery

> it

> > was discover that it was back so it was remove. This time is was

> > harder for him becuase he was in more pain. We came back and

things

> > were good and couple of months later he had a hearing test and he

> fail

> > and was told that his hearing was getting worse. I think that he

> > knows that he will lose all his hearing from that ear. Today he

was

> > giving bad news after a scan he found out that it was back again

and

> > another surgery. Why again and why so soon? He still cannot take

a

> > shower without making sure that water does not go into his ear. I

> > understand that it can be treated but why can't it be stop from

> coming

> > back? Sorry I am just frustrated of seeing him on pain.

> >

>

[Guest guest]

,

It is frustrating when it returns quickly, and everyone's experience is a little different. Our daughter (5 yrs) just had it return and will need her 12th surgery (8th of the big ones) in June. The only way to treat this is to be diligent in scheduling the rechecks and have the surgeries as needed. We have had great success with the titanium prosthesis when Chloe was ctoma free, but it was removed when it became involved with new cholesteatoma. Take a deep breath and know that you guys are doing the right things.

Blessings,

On Fri, Dec 19, 2008 at 7:38 PM, ksboheem <ksboheem@...> wrote:

Absolutely!!! Try it TCM! I have been having great results byomitting foods that cause ear infections. I can feel the difference

when I eat them again. I also am taking superfood supplements that Ifeel are a big contributor to my healing and keeping the tumor fromreturning.

> >> > Hello my name is Dougherty. My husband was diagnosed with> > Cholesteatoma in 2006 after going to the doctor many timesbecuase> of> > his hear bleeding. He had surgery in August 2006 and we were glad

> > that it was over after moving to Korea for our next duty stationhe> > began talking to doctors about reconstruction of his hearingbones> so> > he was sent to Hawaii to the military hospital. During his

surgery> it> > was discover that it was back so it was remove. This time is was> > harder for him becuase he was in more pain. We came back andthings> > were good and couple of months later he had a hearing test and he

> fail> > and was told that his hearing was getting worse. I think that he> > knows that he will lose all his hearing from that ear. Today hewas> > giving bad news after a scan he found out that it was back again

and> > another surgery. Why again and why so soon? He still cannot takea> > shower without making sure that water does not go into his ear. I> > understand that it can be treated but why can't it be stop from

> coming> > back? Sorry I am just frustrated of seeing him on pain.> >>------------------------------------

[Guest guest]

>

> Hello Bee,

>

> I know someone who has Cholesteatoma.

http://en.wikipedia.org/wiki/Cholesteatoma

>

> When he was little he had many ear infections and a surgery to

remove this flesh eating " tumor " . It was never explained that it was

Cholesteatoma. During the next 25 years or so, the doctor just kept

cleaning out debris. It wasn't until a few years ago, it was

discovered that the " tumor " was back and it ate a hole through his

skull. It was " removed " and he now has a titanium plate in his head

for future surgeries. He suffers from vertigo terribly as well as

many other symptoms. The more current surgeon has basically given up

on him. Told him it's all in his head. How nice hey? The treating

physician only gives him extremely expensive " antibiotic " drops that

seem to relieve the pain but also make him sick. He's only going to

be 32.

>

> I'm thinking this is all related to candida due to the years of ear

infections and antibiotics from when he was little. He also has gut

problems etc.

>

> If he goes on your protocol, do you think his immune system would

kick in to fight the Cholesteatoma? I'm looking for a way to present

your information to him.

+++Hi . My protocol certainly won't hurt him, and it has

been known to improve anyone's health. I can't promise he can

recover completely since the damage can be too severe. But it is

worth a shot for sure. My brother is 61 and he cured his Crohn's

Disease that he'd had for 20 years by doing my program.

He first needs to understand that drugs/antibiotics are all very

toxic/poisonous and they suppress symptoms; that's why they seem to

help. However suppressed symptoms have to come out later on in more

severe disease forms, i.e. cancer.

Second he needs to know that only the body can heal itself IF it is

given " proper nutrients " that every human body requires, and if

toxins are eliminated. That way the body has a chance to actually

heal itself naturally the way God intended.

Luv, Bee