Re: who do i believe????PLEASE READ ALL!!

[Guest guest]

Oh - I feel so bad for you not only did you have to go through the emotions of deciding to band now you are being challenged on the decision you did make. Well, this is what I think.......first who is the doc you saw? Just curious. Anyhow-this is what I think-if you get the same results either way and you have already been banded then so be it now you have the band you can wear it on your little one and are certain that the head will be a beautiful round one. If your son is adjusting to the band has no problems with it and you are going about your days merrily then great-use the band and your experience to educate others. Unfortunately not everyone is guaranteed or has had the experience that their children's heads have rounded out despite aggressive intervention without helmets so atleast you have a sure thing and will never have to question why you did not do it when you had head growth and opportunity. There are docs that support this a million times over and docs that don't and anyway you look at it and with the right sample of babies any doc can get statistics that they want. It is like docs who believe in chiropractors and ones that don't- Does it cure the common cold who knows but it works for some and others still et colds 10 times a year. It is confusing but take what he says -- the fortunate part he didn't feel that banding children had any negative or detrimental effects obviously or he would have told you that so basically we are talking cosmetics -- some may think kids are cuter with the band and some without- I personally love the look of my banded baby. In the long run your son wont recall the helmet until he sees pictures and whoever is right CT or your neuro you will have a round noggin and that is the ultimate goal. The only thing that bugs me about not banding is that no one know what is going on in there and why your sons head decided to flatten in the first place there are hundreds of other kiddos that laid in the exact same positions as ours and are perfectly round without intervention so maybe a lot do round out but without being in there-why leave it to chance?

Follow your heart and good luck. You are a good mommy and whatever you decide to do from here will be the best decision for you and your family. I will send lots of Peace and good thoughts your way. Please keep us posted. Sorry this turned out so long winded.

beck

[Guest guest]

,

I did not have the DOCband - I had a locally made helmet. The neuro and ortho

I saw are involved in heavy-duty research on the subject. (they are

associated with a University Hospital) They make the helmets and do the

adjustments at cost. They do not profit from the making of the helmets. No

marketing and no sales strategies involved - they believe in the helmet and

the good it can do for children. I would stick with the band - you have it,

you've seen results - I say go with it!

I understand your frustration and concern, but I have a feeling that your

mommy instinct is saying stick with it. That is what I would do.

Good luck with your decision and as always we are here for you!

Marci (Mom to - helmet grad)

Oklahoma

[Guest guest]

Anyone know where I can find info on braciocephaly? My friend's son seems to have this as his head is flat in back, but no facial asymmetry. Thanks

[Guest guest]

,

My son did not receive his band until he was 19

months. He was moderate when he started therapy. Now

if your doctor says things will correct themselves, I

dont agree! I have living proof of that. I never

would have gone thru all that if there was not

evidence that supports banding. Now that he is thru

he got about 70% correction. Sorry if confuses you

more, but I would stick with the band. You have it,

you may as well use it to it's fullest!

Good luck!!

Jill(Mom to Josh-DOC grad & Jarred)

--- aitansmom@... wrote:

> My son was DOC banded 6 weeks ago and seems to be

> making progress. we

> noticed his head was changing for the better. But we

> kept our appt

> with the neurologist (made a long time ago) to

> ensure he was ok and

> this process was ok for him neurologically. Here is

> the problem:

>

> The Dr. we saw at children's Hospital in PA.

> said that he used to

> support banding/helmets but has been doing a lot of

> research and

> firmly believes that all these kids will end up with

> the same results

> with or without the helmet/band. He said that

> Because my son is

> already sleeping on his stomach and in many

> different positions, he

> will acheive the same results without his band. He

> said that IF he

> were still only sleeping in the one position and he

> were under 6

> months old (he's one year now) he could see doing it

> simply to enforce

> NOT teetering back to the flat spot. I asked him

> why we have seen

> such good results in such a short period of time and

> showed him our

> head mold and he measured both and said that the

> results we are seeing

> are normal....with or without the doc we are using.

> he said the

> results aren't as great as were thing they are. that

> maybe we are

> trying to see more than we do. i showed him the new

> " popped out area "

> on Aitan's head and he said that again....normal

> regardless. (now that

> he doesn't sleep on his flat spot) Then he asked if

> Cranial Tech new I

> was coming in? He said because they will probably

> try to give me a

> heads up that anyone i saw would try to convince me

> that it doesn't

> work. Which is actually what happened at my appt.

> yesterday at CT.

> They suggested bring in the mold because the Dr. may

> not agree....etc.

> The Dr. at CHOP said that he thinks it's a waste of

> money etc...and

> that it's all marketing...etc

>

> I am soooooo confused. my husband and i talked about

> it and really

> don't know what to do now. We feel like were on this

> horrible

> emotional roller coaster and these people are all

> playing with our

> minds and our beautiful little boy. We're starting

> to wonder if we

> were in fact taken by all this?

>

> Sorry to unload so much after not posting for so

> long but i needed to

> get it out. thanx-lisa

>

>

__________________________________________________

[Guest guest]

My ped is of the same philosophy. My husband and I went in to CT knowing that

the are a company trying to sell a product. However, Corey

has been seeping on his stomach for almost 2 months (he's 10 months old) and I

have not seen an ounce of change. I know that isn't a very

long time, but he's been sitting up since he was 6 1/2 months old and not lying

on his back during playtime. And before then whenever he

was on his back or in a carseat he had a piece of eggcrate foam behind his head

to cushion. This seemed to work for an acquaintence in

Florida with her son. I've reconciled my conflicting feelings by agreeing that

it may round out on it's own but what if it doesn't and I

had the chance to correct it and I didn't. My neighbor's son is 17 months old

with a flat occiput, no asymmetry, but a very broad face.

And it hasn't gotten any better. That's when I decided that I didn't want Corey

to be that age and have missed my opportunity. I can't

imagine trying to fit eyeglasses or a bicycle helmet on my neighbor's boy when

he gets older. Don't second guess yourself. The band will

have no negative effects on your son, continue to rely on your parental

instincts.

Take Care

aitansmom@... wrote:

> My son was DOC banded 6 weeks ago and seems to be making progress. we

> noticed his head was changing for the better. But we kept our appt

> with the neurologist (made a long time ago) to ensure he was ok and

> this process was ok for him neurologically. Here is the problem:

>

> The Dr. we saw at children's Hospital in PA. said that he used to

> support banding/helmets but has been doing a lot of research and

> firmly believes that all these kids will end up with the same results

> with or without the helmet/band. He said that Because my son is

> already sleeping on his stomach and in many different positions, he

> will acheive the same results without his band. He said that IF he

> were still only sleeping in the one position and he were under 6

> months old (he's one year now) he could see doing it simply to enforce

> NOT teetering back to the flat spot. I asked him why we have seen

> such good results in such a short period of time and showed him our

> head mold and he measured both and said that the results we are seeing

> are normal....with or without the doc we are using. he said the

> results aren't as great as were thing they are. that maybe we are

> trying to see more than we do. i showed him the new " popped out area "

> on Aitan's head and he said that again....normal regardless. (now that

> he doesn't sleep on his flat spot) Then he asked if Cranial Tech new I

> was coming in? He said because they will probably try to give me a

> heads up that anyone i saw would try to convince me that it doesn't

> work. Which is actually what happened at my appt. yesterday at CT.

> They suggested bring in the mold because the Dr. may not agree....etc.

> The Dr. at CHOP said that he thinks it's a waste of money etc...and

> that it's all marketing...etc

>

> I am soooooo confused. my husband and i talked about it and really

> don't know what to do now. We feel like were on this horrible

> emotional roller coaster and these people are all playing with our

> minds and our beautiful little boy. We're starting to wonder if we

> were in fact taken by all this?

>

> Sorry to unload so much after not posting for so long but i needed to

> get it out. thanx-lisa

>

>

> For more plagio info

[Guest guest]

I agree. If you band sooner then you have more growing time. I

waited with Mackenzie and got a correction about 50%. I was told if

I'd of started sooner(we started at 13mths) we would have has better

results. The longer you wait the less time you have to correct it. If

I'd of known that when she was younger I'd have done it sooner. I

believed the Dr was too keen and it would roung out when she

grew,instead it grew worse.

I wish I'd listened and not been to afraid of dealing with the

helmet because it was a good exsperience. I will always feel a little

bad when I see her assemetry.(I'm the only one noticing it).

Also some helmets work better than others. Do the research and

try to get a good one. We went to Cranial Technologies and had a DOC

band. I choose them from the Internet and found them to do amazing

work.The Tec there was very honest and knoledgable.

Learn from my mistake.

Lorraine.

-- In Plagiocephaly@y..., Jill <v2jb@y...> wrote:

> ,

>

> My son did not receive his band until he was 19

> months. He was moderate when he started therapy. Now

> if your doctor says things will correct themselves, I

> dont agree! I have living proof of that. I never

> would have gone thru all that if there was not

> evidence that supports banding. Now that he is thru

> he got about 70% correction. Sorry if confuses you

> more, but I would stick with the band. You have it,

> you may as well use it to it's fullest!

> Good luck!!

> Jill(Mom to Josh-DOC grad & Jarred)

>

> --- aitansmom@y... wrote:

> > My son was DOC banded 6 weeks ago and seems to be

> > making progress. we

> > noticed his head was changing for the better. But we

> > kept our appt

> > with the neurologist (made a long time ago) to

> > ensure he was ok and

> > this process was ok for him neurologically. Here is

> > the problem:

> >

> > The Dr. we saw at children's Hospital in PA.

> > said that he used to

> > support banding/helmets but has been doing a lot of

> > research and

> > firmly believes that all these kids will end up with

> > the same results

> > with or without the helmet/band. He said that

> > Because my son is

> > already sleeping on his stomach and in many

> > different positions, he

> > will acheive the same results without his band. He

> > said that IF he

> > were still only sleeping in the one position and he

> > were under 6

> > months old (he's one year now) he could see doing it

> > simply to enforce

> > NOT teetering back to the flat spot. I asked him

> > why we have seen

> > such good results in such a short period of time and

> > showed him our

> > head mold and he measured both and said that the

> > results we are seeing

> > are normal....with or without the doc we are using.

> > he said the

> > results aren't as great as were thing they are. that

> > maybe we are

> > trying to see more than we do. i showed him the new

> > " popped out area "

> > on Aitan's head and he said that again....normal

> > regardless. (now that

> > he doesn't sleep on his flat spot) Then he asked if

> > Cranial Tech new I

> > was coming in? He said because they will probably

> > try to give me a

> > heads up that anyone i saw would try to convince me

> > that it doesn't

> > work. Which is actually what happened at my appt.

> > yesterday at CT.

> > They suggested bring in the mold because the Dr. may

> > not agree....etc.

> > The Dr. at CHOP said that he thinks it's a waste of

> > money etc...and

> > that it's all marketing...etc

> >

> > I am soooooo confused. my husband and i talked about

> > it and really

> > don't know what to do now. We feel like were on this

> > horrible

> > emotional roller coaster and these people are all

> > playing with our

> > minds and our beautiful little boy. We're starting

> > to wonder if we

> > were in fact taken by all this?

> >

> > Sorry to unload so much after not posting for so

> > long but i needed to

> > get it out. thanx-lisa

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Yesterday I was out shopping and saw a child that was

probably around 2 to 2.5 years old. Her head was very

flat in the back and tall.

Also, I met a lady who has a 10 year old daughter who

has the same issue. Flat in the back (no facial

asymmetry) She told me that she wished that the band

was around for her daughter. With hair it's not

noticeable except when she goes swimming. The

mother's exact comment was, " It looks pitiful when her

hair is wet, her head is as flat as a pancake. "

Thought I'd share this. I'm sure every child is

different and both of these " cases " are bracio.

B., Charlotte

--- aitansmom@... wrote:

> My son was DOC banded 6 weeks ago and seems to be

> making progress. we

> noticed his head was changing for the better. But we

> kept our appt

> with the neurologist (made a long time ago) to

> ensure he was ok and

> this process was ok for him neurologically. Here is

> the problem:

>

> The Dr. we saw at children's Hospital in PA.

> said that he used to

> support banding/helmets but has been doing a lot of

> research and

> firmly believes that all these kids will end up with

> the same results

> with or without the helmet/band. He said that

> Because my son is

> already sleeping on his stomach and in many

> different positions, he

> will acheive the same results without his band. He

> said that IF he

> were still only sleeping in the one position and he

> were under 6

> months old (he's one year now) he could see doing it

> simply to enforce

> NOT teetering back to the flat spot. I asked him

> why we have seen

> such good results in such a short period of time and

> showed him our

> head mold and he measured both and said that the

> results we are seeing

> are normal....with or without the doc we are using.

> he said the

> results aren't as great as were thing they are. that

> maybe we are

> trying to see more than we do. i showed him the new

> " popped out area "

> on Aitan's head and he said that again....normal

> regardless. (now that

> he doesn't sleep on his flat spot) Then he asked if

> Cranial Tech new I

> was coming in? He said because they will probably

> try to give me a

> heads up that anyone i saw would try to convince me

> that it doesn't

> work. Which is actually what happened at my appt.

> yesterday at CT.

> They suggested bring in the mold because the Dr. may

> not agree....etc.

> The Dr. at CHOP said that he thinks it's a waste of

> money etc...and

> that it's all marketing...etc

>

> I am soooooo confused. my husband and i talked about

> it and really

> don't know what to do now. We feel like were on this

> horrible

> emotional roller coaster and these people are all

> playing with our

> minds and our beautiful little boy. We're starting

> to wonder if we

> were in fact taken by all this?

>

> Sorry to unload so much after not posting for so

> long but i needed to

> get it out. thanx-lisa

>

>

__________________________________________________

[Guest guest]

My other son's head is pretty flat up the back, a little wide, but certainly not tall in the least. isn't it possible that some kid's heads are just shaped this way? no facial assymetry either. everything is perfectly symmetrical head and face wise. isn't that what we sort of want and are striving for on the whole? that's what I'm hoping for his brother anyway.. just some symmetry.. and who cares if it's a little flat up the back. Just coming from my perspective, which is confused a usual. diane

----- Original Message -----

From: B.

Plagiocephaly

Sent: Thursday, April 26, 2001 1:50 PM

Subject: Re: who do i believe????PLEASE READ ALL!!

Yesterday I was out shopping and saw a child that wasprobably around 2 to 2.5 years old. Her head was veryflat in the back and tall. Also, I met a lady who has a 10 year old daughter whohas the same issue. Flat in the back (no facialasymmetry) She told me that she wished that the bandwas around for her daughter. With hair it's notnoticeable except when she goes swimming. Themother's exact comment was, "It looks pitiful when herhair is wet, her head is as flat as a pancake."Thought I'd share this. I'm sure every child isdifferent and both of these "cases" are bracio. B., Charlotte--- aitansmom@... wrote:> My son was DOC banded 6 weeks ago and seems to be> making progress. we > noticed his head was changing for the better. But we> kept our appt > with the neurologist (made a long time ago) to> ensure he was ok and > this process was ok for him neurologically. Here is> the problem:> > The Dr. we saw at children's Hospital in PA.> said that he used to > support banding/helmets but has been doing a lot of> research and > firmly believes that all these kids will end up with> the same results > with or without the helmet/band. He said that> Because my son is > already sleeping on his stomach and in many> different positions, he > will acheive the same results without his band. He> said that IF he > were still only sleeping in the one position and he> were under 6 > months old (he's one year now) he could see doing it> simply to enforce > NOT teetering back to the flat spot. I asked him> why we have seen > such good results in such a short period of time and> showed him our > head mold and he measured both and said that the> results we are seeing > are normal....with or without the doc we are using.> he said the > results aren't as great as were thing they are. that> maybe we are > trying to see more than we do. i showed him the new> "popped out area" > on Aitan's head and he said that again....normal> regardless. (now that > he doesn't sleep on his flat spot) Then he asked if> Cranial Tech new I > was coming in? He said because they will probably> try to give me a > heads up that anyone i saw would try to convince me> that it doesn't > work. Which is actually what happened at my appt.> yesterday at CT. > They suggested bring in the mold because the Dr. may> not agree....etc. > The Dr. at CHOP said that he thinks it's a waste of> money etc...and > that it's all marketing...etc > > I am soooooo confused. my husband and i talked about> it and really > don't know what to do now. We feel like were on this> horrible > emotional roller coaster and these people are all> playing with our > minds and our beautiful little boy. We're starting> to wonder if we > were in fact taken by all this?> > Sorry to unload so much after not posting for so> long but i needed to > get it out. thanx-lisa> > __________________________________________________

[Guest guest]

There is not a whole lot out there specifically on brachycephalic or scaphocephalic head shapes. The word "plagio" is used as a general term for a misshapen head.

Brachy is discussed a little bit here (http://www.cranialtech.com/help/before.html ) and here (http://www.plagiocephaly.org/support/types.htm), but if you type BRACHYCEPHALY into any search engine, you will likely come up with information using the term in reference to craniosynostosis.

Hope this helps at bit!

Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support

----- Original Message -----

From: rella1234@...

Plagiocephaly

Sent: Thursday, April 26, 2001 12:16 PM

Subject: Re: who do i believe????PLEASE READ ALL!!

Anyone know where I can find info on braciocephaly? My friend's son seems to have this as his head is flat in back, but no facial asymmetry. Thanks For more plagio info

[Guest guest]

,

My daughter Tatijana did not recieve her band until she was 19 months old.

We had noticed her head flattening at 2 months old and we tried

repostioning. We would have liked to have gotten the band earlier than 19

months but because of other things going on we were unable to. From two

months until she started moving herself into different positions we tried

repostioning and never saw any change. I personally would stick with the

band rather than wait and see. Tatijana graduates from her band on May 2.

She will have been in it exactly 3 months and 3 days.

Johanna Tatijana's mom DOC band 01/29/01

>From: aitansmom@...

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: who do i believe????PLEASE READ ALL!!

>Date: Thu, 26 Apr 2001 16:13:35 -0000

>

>My son was DOC banded 6 weeks ago and seems to be making progress. we

>noticed his head was changing for the better. But we kept our appt

>with the neurologist (made a long time ago) to ensure he was ok and

>this process was ok for him neurologically. Here is the problem:

>

> The Dr. we saw at children's Hospital in PA. said that he used to

>support banding/helmets but has been doing a lot of research and

>firmly believes that all these kids will end up with the same results

>with or without the helmet/band. He said that Because my son is

>already sleeping on his stomach and in many different positions, he

>will acheive the same results without his band. He said that IF he

>were still only sleeping in the one position and he were under 6

>months old (he's one year now) he could see doing it simply to enforce

>NOT teetering back to the flat spot. I asked him why we have seen

>such good results in such a short period of time and showed him our

>head mold and he measured both and said that the results we are seeing

>are normal....with or without the doc we are using. he said the

>results aren't as great as were thing they are. that maybe we are

>trying to see more than we do. i showed him the new " popped out area "

>on Aitan's head and he said that again....normal regardless. (now that

>he doesn't sleep on his flat spot) Then he asked if Cranial Tech new I

>was coming in? He said because they will probably try to give me a

>heads up that anyone i saw would try to convince me that it doesn't

>work. Which is actually what happened at my appt. yesterday at CT.

>They suggested bring in the mold because the Dr. may not agree....etc.

> The Dr. at CHOP said that he thinks it's a waste of money etc...and

>that it's all marketing...etc

>

>I am soooooo confused. my husband and i talked about it and really

>don't know what to do now. We feel like were on this horrible

>emotional roller coaster and these people are all playing with our

>minds and our beautiful little boy. We're starting to wonder if we

>were in fact taken by all this?

>

>Sorry to unload so much after not posting for so long but i needed to

>get it out. thanx-lisa

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

---

,

Our son who is now five months old has been in the Starband for one

month and we have noticed dramatic improvement. Our doctor

(neurologist) at A.I. recommended it but also said there is no

scientific studies to say that it works. We too went to see a doctor

at CHOP (probably the same one you saw) for a second opinion. He said

that the plagio does resolve itself over time with or without the

helmet but since we have it, we should use it. He said the helmet

just speeds up the process of resolving the flat spot. He didn't

discourage us from using it...maybe because our son was just four

months old at the time and wasn't sleeping in many positions.

Despite some of the doctors who are on the fence about this, we have

noticed great improvement which makes us comfortable with our

decision to have him wear the helmet.

I wouldn't worry about it. What matters most is that your son is

getting better. That's something that no one can dispute.

Suzanne

In Plagiocephaly@y..., " johanna krebsbach " <tatismom20@h...> wrote:

> ,

>

> My daughter Tatijana did not recieve her band until she was 19

months old.

> We had noticed her head flattening at 2 months old and we tried

> repostioning. We would have liked to have gotten the band earlier

than 19

> months but because of other things going on we were unable to.

From two

> months until she started moving herself into different positions we

tried

> repostioning and never saw any change. I personally would stick

with the

> band rather than wait and see. Tatijana graduates from her band on

May 2.

> She will have been in it exactly 3 months and 3 days.

>

> Johanna Tatijana's mom DOC band 01/29/01

>

>

> >From: aitansmom@y...

> >Reply-Plagiocephaly@y...

> >Plagiocephaly@y...

> >Subject: who do i believe????PLEASE READ ALL!!

> >Date: Thu, 26 Apr 2001 16:13:35 -0000

> >

> >My son was DOC banded 6 weeks ago and seems to be making progress.

we

> >noticed his head was changing for the better. But we kept our appt

> >with the neurologist (made a long time ago) to ensure he was ok and

> >this process was ok for him neurologically. Here is the problem:

> >

> > The Dr. we saw at children's Hospital in PA. said that he

used to

> >support banding/helmets but has been doing a lot of research and

> >firmly believes that all these kids will end up with the same

results

> >with or without the helmet/band. He said that Because my son is

> >already sleeping on his stomach and in many different positions, he

> >will acheive the same results without his band. He said that IF he

> >were still only sleeping in the one position and he were under 6

> >months old (he's one year now) he could see doing it simply to

enforce

> >NOT teetering back to the flat spot. I asked him why we have seen

> >such good results in such a short period of time and showed him our

> >head mold and he measured both and said that the results we are

seeing

> >are normal....with or without the doc we are using. he said the

> >results aren't as great as were thing they are. that maybe we are

> >trying to see more than we do. i showed him the new " popped out

area "

> >on Aitan's head and he said that again....normal regardless. (now

that

> >he doesn't sleep on his flat spot) Then he asked if Cranial Tech

new I

> >was coming in? He said because they will probably try to give me a

> >heads up that anyone i saw would try to convince me that it doesn't

> >work. Which is actually what happened at my appt. yesterday at CT.

> >They suggested bring in the mold because the Dr. may not

agree....etc.

> > The Dr. at CHOP said that he thinks it's a waste of money

etc...and

> >that it's all marketing...etc

> >

> >I am soooooo confused. my husband and i talked about it and really

> >don't know what to do now. We feel like were on this horrible

> >emotional roller coaster and these people are all playing with our

> >minds and our beautiful little boy. We're starting to wonder if we

> >were in fact taken by all this?

> >

> >Sorry to unload so much after not posting for so long but i needed

to

> >get it out. thanx-lisa

> >

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at http://explorer.msn.com