Re: RAI

[Guest guest]

What a great statement - I'm taking that to the Dr.'s with me this month. My

physician (who takes synthroid) and my Endo keep pushing the RAI thing of which

I keep backing off.

Very well said - Thanks

wrote:

> I've been on vacation and I'm trying to catch up on my e-mail. There was a

recent question concerning RAI that I wanted to respond to. Because of my

husband's work we move a great deal which means that in the last five years I

have seen no less then ten endocrinologist for my Graves disease. I am

continually amazed that each time I see a new doctor I learn something new about

this disease. My most recent discovery was made this week as the doctor once

again tried to convince me too get RAI. She actually helped make my point for

me by stating that RAI will destroy the thyroid, but not the " auto-immune "

disease causing the disease. Which means that after you have the RAI and the

thyroid is no longer functioning you can still develop eye involvement or

vitiligo or B-12 insufficiency or any of the other symptoms related to Graves.

Thus the RAI only treats a symptom not the cause which is what I am trying to

do.

>

> Regards,

> Ann

>

> ------------------------------------------------------------------------

> MyPoints-Free Rewards When You're Online.

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> eGroups.com home: hyperthyroidism

> - Simplifying group communications

[Guest guest]

Dear ,

The question about RAI is an important one that is asked frequently on this

board. Maybe we could create a general response so that new people can read

what we have already said in the past. Prehaps would want to address this

since it would be a shame to miss out on others input just because they have

already answered this question. In the mean time you can go to and

search old topics labeled RAI.

I personally feel that doctors give you all the ammunition you need to fight

back on the RAI treatment. Here in Germany anyone undergoing RAI must stay in

the hospital for two weeks so that the hospital staff can control all your

bodily waste and whom you have contact with. If RAI just is just isolated to

the thyroid then why can't you be around babies or kiss someone or eat off of

the same silverware are plate or have sex or use the same towel...etc? If the

RAI is so harmless why does the person who hands you the liquid or pill wear

lead gloves and apron and shield their face?

As mentioned in previous posts RAI only destroys the thyroid not the autoimmune

disease causing the Graves disease. So RAI doesn't solve any problems, but in

my view creates more problems, the major one living without a thyroid. I find

it fascinating that whenever I have asked for doctors to measure other hormone

they explain how difficult it is to get an accurate measure of any hormone since

they can change so frequently. If this is the case then why would a doctor tell

you that they can control your thyroid hormone by giving you a pill? As

Null so clearly states when taking a daily dose of synthetic thyroid hormone

replacement, one day the amount you take is too much, one day the amount is too

little and one day maybe the amount is just right. The problem in Graves

disease is not the thyroid, but what has made the thyroid over function.

Destroying the thyroid is definitely a case of destroying the messenger.

Lastly I say if you are having to deal with an endocrinologist who is adamant

about giving you RAI find a new one. The stress of arguing over what to do with

your body and health is not helping your Graves.

Good Health,

Ann

[Guest guest]

,

I have taken these herbs and they had no effect what so ever!

Raven

H wrote:

"sue" <bswaie-@...> wrote:

original article:hyperthyroidism/?start=33

58

> Hello, Hope someone can fill me in.I must admitt I am alittle ignorant

> when

> it comes to RAI. I have read some on it but apparently not enough.

> What other options does one have when the PTU meds are running

> out?Thanks.SW

>

Sue,

I am in the same predicament. Although I have made significant progress

with my disease, I realize that it's going to take a while to get back

to normal. My endo and I don't see eye to eye so I have decided not to

see him at least for a while. Someone here posted that they had good

results with a mixture of several herbs in place of PTU. I intend to

start using the herbs next week. I would try to get the assistance of a

naturopath with these alternative treatments if you can. I'll paste the

reply I got regarding the herbs from the person below. All of these

herbs are available at mothernature.com. Let us know how it works out

if you try it and I'll do the same.

Good Luck,

,

The herbs I mentioned, bugleweed, motherwort and lemon balm, are mixed

together and in equal parts. I take 30 drops under the tongue 4

times daily. This is what was prescribed for me by a Naturopath. I

would suggest that you read up on these herbs on-line or in the library

so

that you can make informed decisions about what to take for yourself.

eGroups.com Home: hyperthyroidism

www. - Simplifying

group communications

--

MZ

[Guest guest]

" sue " <bswaie-@...> wrote:

original article:hyperthyroidism/?start=33

58

> Hello, Hope someone can fill me in.I must admitt I am alittle ignorant

> when

> it comes to RAI. I have read some on it but apparently not enough.

> What other options does one have when the PTU meds are running

> out?Thanks.SW

>

Sue,

I am in the same predicament. Although I have made significant progress

with my disease, I realize that it's going to take a while to get back

to normal. My endo and I don't see eye to eye so I have decided not to

see him at least for a while. Someone here posted that they had good

results with a mixture of several herbs in place of PTU. I intend to

start using the herbs next week. I would try to get the assistance of a

naturopath with these alternative treatments if you can. I'll paste the

reply I got regarding the herbs from the person below. All of these

herbs are available at mothernature.com. Let us know how it works out

if you try it and I'll do the same.

Good Luck,

,

The herbs I mentioned, bugleweed, motherwort and lemon balm, are mixed

together and in equal parts. I take 30 drops under the tongue 4

times daily. This is what was prescribed for me by a Naturopath. I

would suggest that you read up on these herbs on-line or in the library

so

that you can make informed decisions about what to take for yourself.

[Guest guest]

> Someone here posted that they had good results with a mixture of several herbs

> in place of PTU. I intend to start using the herbs next week. I would try to

> get the assistance of a

> naturopath with these alternative treatments if you can.

> The herbs I mentioned, bugleweed, motherwort and lemon balm, are mixed

> together and in equal parts. I take 30 drops under the tongue 4 times daily.

> This is what was prescribed for me by a Naturopath. I would suggest that you

> read up on these herbs on-line or in the library so that you can make informed

> decisions about what to take for yourself.

> I have taken these herbs and they had no effect what so ever!

Okay, someone should mention here that most alternative medicines and

treatments, especially homeopathy, are person specific. What that means is, as

Raven pointed out, that they won't work the same for everyone. Herbs,

homeopathics, Chinese medicines and things can have profound effects on the

body, but it's not a simple matter of taking something off the shelf, especially

for something as serious as Grave's. Dis-ease means the body is ill at ease and

so it picks a point in the body (for us it's the thyroid gland) and sends up a

red flag - " Hey! In here! Something's wrong here! " - to get your attention.

How you treat a condition from a naturopathic or homeopathic standpoint depends

on who you are, and what happened to get you to where you are now. I'm neither

a naturopath nor a homeopath, but I've been working with a naturopathic doctor

for some 10 years now to keep my Grave's under control. It's very important to

work with a qualified naturopathic doctor, medical herbalist, classical

hompeopath or the like if you're going to go that route and not try to self

diagnose.

My $0.02

Me.

--

" The kingdom of God is within you and all around you,

not in mansions of wood and stone.

Split a piece of wood and I am there.

Lift a stone and you will find Me. "

The Gospel of

[Guest guest]

" youli pomaki " <pomak-@...> wrote:

I think that many people who got really

> helped by having RAI are not on this list, as they are cured, and not

> interested in communicating with other hyperTs anymore. So, maybe we

> are getting a selective, biased response by just relying on this

> posting.

>

That's probably true, but remember RAI is not a cure, you are simply

trading one disease for another, more manageable one. Why not try to

cure the disease and become healthier in the process.

[Guest guest]

Dear Youli, Thank you for your reply. What you mention about the

" cured " RAI's not being in touch any longer, is good insight. Just human

nature, but a very good point.

I keep seeing references to copper supplements. Can you tell me what this is

about? I really thank you for your time. I take care of my 83 year old

uncle, who has had several hospitalizations recently (in hospital now) and

know time is truly " of the essence " .

You also said you decided against RAI. Do you mind if I ask what you are

taking or doing for the condition? I actually had an appointment at a local

hospital for tomorrow to have RAI and called Fri. from my Uncle's hospital

room to cancel until I can get more information on the ATD's. Would like to

try them to see if an go into remission. Need to know more about the side

effects from both treatments and the % that do go into remission from ATD's.

Read an interesting article on the web that said ATD's are the treatment of

choice for the European medical community vs. RAI for the American community.

And that is when I thought, " Wait a minute. Get more info. and don't be

hasty about this. "

Thanks again for your help. Helen

[Guest guest]

help help help

what is ATD? i had no idea. i am facing RAI and thought my only alternative

was surgery. my doctor is a very popular doctor (being the only one of two

in my area) and i never see her. i am getting so frustrated. will RAI

make my eyes get puffy? my doctor tried to tell me that i have had

undiagnosed graves for so long that my chances of getting eye disease were

slim. or was she just pacifing my fears? if you find out more about ATD, or

even if you don't, please talk to me....

from WA state (for clarification... there seems to be a few mary's in

this group)

p.s. it's nice to find a group like this.... to know that others are kept in

the dark..... and to see what lies ahead for my future

p.p.s. what about children? anyone in this group try to have a child in the

midst of all this? i am not ready.... but in a couple of years i would like

to. this is one reason why i agreed to take RAI. i thought i could get it

mostly over with..... um duh.... stupid of me... it sounds like people

still have problems after RAI.... i am scared.... my doctor will insist i

take it....

[Guest guest]

ok ok ok

i am stupid. ATD's is just the term for meds. yeah, i am taking 12 ptu's

per day, a phenomenal amount according to my doctor. and yes, whatever my

white blood cells are doing they aren't doing their job. i have had an off

and on ear infection for four months. my doctor has told me that there is no

way in hell to go into remission from " ATD's " so i still face

RAI......help?!?

WA state

[Guest guest]

i was told that RAI stays in your body the rest of your life, continually

killing off thyroid.... a nuclear phsicist said it leaves your body?

wow.... i might take the RAI.... i've heard alot of people struggle with

graves for years and years, fighting the RAI treatment, but in the end most

of them seem to take it. so i am thinking, why not take it now and save

myself some pain. my sister took it once (she had graves too) and she's

fine... although she does seem to have puffy eyes. but besides that she's

fine. hey, do you know measures to PREVENT puffy eyes? does anybody?

WA state

[Guest guest]

Hi, , from WA state! I now live in Phila, PA --UGH! (My home town) But

lived for 15 years in Wyoming & Montana. Great country out there in the

northwest.

Last June was when my M.D. first suspected hyperthyroidism. Took until

this month to be diagnosed. Graves disease. Endocrinologist told me, " I'll

treat it with radioactive iodine. " End of discussion. Have used the web &

just recently this group to obtain more info. Was all set to have RAI

therapy tomorrow. After finding out there were such things as antithyroid

drugs (ATD), called off the RAI until I could get more info & be better

informed. As far as I know, no eye involvement for me. So that is where I

am at. Not much technical help for you, I realize.

As far as children go, I am a 57 year old grandmother so this is not an

issue with me.

Oh, have also been on a beta-blocker, which is a heart medicine, to

reduce heartrate for several months. When first I went to see my m.d. last

June, he thought I was having panic attacks and anxiety because of the

symptoms & racing heartbeat. So ended up fooling around with mental health

people until -- finally -- got correct diagnosis.

That's about all I can tell you. I'm still trying to research the

options & make an informed decision myself.

If it helps & you want to write to me at hkenton@... feel free.

Good luck. Helen

[Guest guest]

PS: How old are you ? You said you are scared & your doctor will insist

you take it (RAI). You have a say in this--a BIG say. Don't let the medical

community intimidate you! In the end, you do have to take the best advice

you can get, but you DO NOT have to BLINDLY just do what your doctor says.

You may end up taking the RAI, and so might I, but . . . be an informed

patient, know what the pros and cons are. Is it possible for you to get a

second opinion?

I hope this group helps you. I have several other medical problems and

mega-experience with the medical community. It took me quite a while to

realize doctors are not the end-all and be-all a lot of them think they are.

So just try not to be scared, take it easy & slow, get the info you

need to know to make a decision and do not let your M.D. intimidate you. She

is only a person just like you.

Good luck. Helen

[Guest guest]

Hkenton@... wrote:

> Need to know more about the side effects from both treatments and the % that

do

> go into remission from ATD's.

Wanted to throw my two cents in here....I had several experiences w/both PTU and

Tapazole and had lingering problems with an elevated white count, which can be

dangerous. I was told that it is a known side effect of ATDs. I did go into

remission (4 times over 10 years) but the Graves always won out. The last time

it

flared I had had enough and was particularly afraid of the effects recurring

hyper-t had on my heart, (a resting h/r of 130 is not a good thing, as you all

know!). So I decided to have the treatment.

I can honestly say that the only lasting side effect I've suffered from the RAI

is no thyroid function, and of course, that's the objective. But that didn't

happen until I'd had RAI twice. I've remained stable on replacement for the

past

8+ years, with no serious problems and *much* improved overall health.

For me the unknown is what might happen in the future....it's what the RAI

doesn't fix that I worry about. I'm more apprehensive and watchful of other

autoimmune problems like RA or lupus cropping up than lasting effects of the

RAI.

I've been assured by a nuclear medicine tech support friend that I131 or

whichever it is (I forget which is used for the uptake and which is used for the

treatment) really does have a very short half life and leaves the body very

quickly.

Amy

[Guest guest]

Dear Helen,

It is very wise of you to reject the RAI. There is a good chance you will

get better using the supplements recommended on this board. Meanwhile,

Tapezol rarely has side effects, and neither does Atenol (beta blocker),

which you can use while you work on getting well. PTU seems to have more

side effects, although lots of people seem to use it. After a short course

of Tapezol and Atenol, plus acupuncture, supplements and diet modifications,

I was cured from Graves. It seems that the longer one is sick, the longer it

takes to get well. I was sick only for a few months before I got treatment,

so time is of the essence.

Good luck,

AntJoan

[Guest guest]

In a message dated 1/23/2000 10:07:34 PM Eastern Standard Time,

elh@... writes:

<< I'm wondering to myself, what is so bad about the surgery. >>

It's a difficult surgery.

A lot can go wrong.

If you go that route find someone with a lot of experience in that particular

surgery.

Ann

[Guest guest]

Helen,

Funny you should mention Dr being the end all. When my eyes started acting

up, I went to a specialist. He was gun-ho on surgery. There is no way I

would agree to it and left. I found a more level headed doctor. His view

is to wait and see. Something I can live with. Since Graves, I am becoming

more informed. You would be surprised when I talk about my disease and they

realize I am informed. Some of them are put out. I say too bad!! I read

all I can on the topic. I recommend The Thyroid Solution by Dr. Arem Ridha

to everyone.

Thanks again Helen, I will take your advice to heart.

Stay well,

Re: RAI

>PS: How old are you ? You said you are scared & your doctor will

insist

>you take it (RAI). You have a say in this--a BIG say. Don't let the

medical

>community intimidate you! In the end, you do have to take the best advice

>you can get, but you DO NOT have to BLINDLY just do what your doctor says.

>You may end up taking the RAI, and so might I, but . . . be an informed

>patient, know what the pros and cons are. Is it possible for you to get a

>second opinion?

> I hope this group helps you. I have several other medical problems

and

>mega-experience with the medical community. It took me quite a while to

>realize doctors are not the end-all and be-all a lot of them think they

are.

> So just try not to be scared, take it easy & slow, get the info you

>need to know to make a decision and do not let your M.D. intimidate you.

She

>is only a person just like you.

> Good luck. Helen

>

>------------------------------------------------------------------------

>Save 50% at MotherNature.com! See site for details.

>1/766/5/_/6563/_/948655670/

>

>-- 20 megs of disk space in your group's Document Vault

>-- docvault/hyperthyroidism/?m=1

>

>

>

[Guest guest]

I'm wondering to myself, what is so bad about the surgery. Then we are done

with all this and just need to take the thyroxine. The only side effect I

can see (besides anesthesia and the risk of any surgery) is that you have to

get really sick before they consider it, or am I missing something? If it

wasn't for that, I'd probably be scheduling surgery. Of course, I don't

even have a full blown case of it yet and until I do, the Docs will do

absolutely nothing. That's why I'm here!

I guess I'm being really silly, but the thought of living the rest of my

life without milk, yogurt, ice cream, bread, etc. I don't know if it's

really worth it. Maybe I " m just " grieving " all my favorite foods but would

be interested in feedback. I read in a different " holistic health book "

that you only need to stay away from dairy for the first 3 months and said

nothing about bread. Another web site suggested having wheat only 1 time a

day. I can live with those restrictions, just the lifetime without stuff

that I don't think I " m ready for. The donuts at church will be just too

tough to pass up every single week!

Thanks,

Lee

[Guest guest]

" elh " <el-@...> wrote:

original article:hyperthyroidism/?start=36

90

> I'm wondering to myself, what is so bad about the surgery. Then we

are done

> with all this and just need to take the thyroxine.

Lee,

The reason you have to take thyroxine is because you are essentially

trading hyperT for hypoT, one disease for another. Believe me, hypoT is

not fun, thyroxine does not help much as far as I can tell and

unhealthy, processed foods exacerbate the symptoms of hypoT just as

much as they do the symptoms of hyperT.

I also don't think you need to feel like you are facing a lifetime of

deprivation. If you just cut some stuff out for a little while, you

will probably feel so much better and then you can introduce that stuff

occasionally as a treat or something (for most people it is a

meal-by-meal regularity to eat refined carbs, rather than a treat. It

doesn't have to be all or nothing.) You will probably notice a few

things: Your tastes adapt, especially if some thing makes you feel

better. There was a time in my life where all I wanted was a loaf of

bread and a toaster, and I couldn't imagine life without sugary

goodies. I indulge once in a while, but I find that 1.) I don't feel

good physically after eating them, so I don't want them too soon again

(think Pavlov's dog) and 2.)they just don't taste as good as I used to

think they did. I really think tastes are conditioned by our regular

behavior and if you don't think now in terms of forever, your tastes

will just change with what you feed yourself.

Siuan

The only side effect I

> can see (besides anesthesia and the risk of any surgery) is that you

have to

> get really sick before they consider it, or am I missing something?

If it

> wasn't for that, I'd probably be scheduling surgery. Of course, I

don't

> even have a full blown case of it yet and until I do, the Docs will do

> absolutely nothing. That's why I'm here!

>

> I guess I'm being really silly, but the thought of living the rest of

my

> life without milk, yogurt, ice cream, bread, etc. I don't know if

it's

> really worth it. Maybe I " m just " grieving " all my favorite foods but

would

> be interested in feedback. I read in a different " holistic health

book "

> that you only need to stay away from dairy for the first 3 months and

said

> nothing about bread. Another web site suggested having wheat only 1

time a

> day. I can live with those restrictions, just the lifetime without

stuff

> that I don't think I " m ready for. The donuts at church will be just

too

> tough to pass up every single week!

> Thanks,

> Lee

>

[Guest guest]

Well on second thought!

Lee

[Guest guest]

> I'm wondering to myself, what is so bad about the surgery. Then we are done

> with all this and just need to take the thyroxine. The only side effect I

> can see (besides anesthesia and the risk of any surgery) is that you have to

> get really sick before they consider it, or am I missing something?

Surgery will remove all or part of your thyroid gland and you will likely end up

hypothyroid. Taking supplements for the rest of your life will alleviate some

of that, but

as I'm sure the the hypo's on this list can tell you, it's no picnic.

The thyroid gland is at the base of the throat, very close to the larynx, or

voice box.

Although there have been great advancements in surgical techniques, there is a

still a

small possibility with surgery that you could either lose your voice or have the

timbre of

your voice lowered.

Me.

[Guest guest]

hkento-@... wrote:

original article:hyperthyroidism/?start=36

60

> Dear Youli, Thank you for your reply. What you mention about the

> " cured " RAI's not being in touch any longer, is good insight. Just

human

> nature, but a very good point.

>

> I keep seeing references to copper supplements. Can you tell me what

this is

> about? I really thank you for your time. I take care of my 83 year

old

> uncle, who has had several hospitalizations recently (in hospital

now) and

> know time is truly " of the essence " .

>

> You also said you decided against RAI. Do you mind if I ask what you

are

> taking or doing for the condition? I actually had an appointment at

a local

> hospital for tomorrow to have RAI and called Fri. from my Uncle's

hospital

> room to cancel until I can get more information on the ATD's. Would

like to

> try them to see if an go into remission. Need to know more about the

side

> effects from both treatments and the % that do go into remission from

ATD's.

>

> Read an interesting article on the web that said ATD's are the

treatment of

> choice for the European medical community vs. RAI for the American

community.

> And that is when I thought, " Wait a minute. Get more info. and

don't be

> hasty about this. "

>

> Thanks again for your help. Helen

Hi Helen,

Yes, I decided against RAI, initially because it did not seem right to

me. Being hypoT for the rest of my life (I am 28 years old) was not

attractive at all to me, as you can imagine. I had a very good

discussion with my doctor, who explained all the facts of the

treatment, the propabilities and everything, and then was interested

about how I feel and think about it. I told her that I am very

reluctant, even though, she suggested that RAI is the best treatment

that she can suggest. SO, I asked for the second best, and that was to

see her in 3 months to discuss the subject once more. SO, I asked for

the third best treatment she would give me, and that was to continue

with the ATDs for one or one and a half more years. I agreed to that,

and I think she felt that she did not do her job well, and that she did

not give me the best she could. So, I reassured her that this is my

choice and that we are working together on this.

However, while we were discussing things, I realized that the reason I

rejected RAI is that by being on ATDs I still have a chance to become

healthy again. I know that with Grave's the chance is not high, but in

a way I only need a small hope. And, in the meantime I am trying

different things, like helping myself with alternatives. It is true

that in Europe, most endos will try drugs first, before RAI or surgery.

But, if one relapses after the first 1-2 year of drug treatment, then

RAI is suggested. And, most people follow the doctor's advice, and get

on with it. I thought I needed to be sure before I did anything, and I

did not feel sure about RAI. Anyway, I need to know that I did

everything before I made myself chronically ill.

My doctor told me that I AM chronically ill, whether it is hyperT, or

hypoT, and I have to work on accepting it. That was a very strong

statement. It took me some time to digest it, and in a way it helped

me. But, I think, though I AM working on accepting, I am also working

towards my wellbeing.

So, last week I visited the health-herb-alternative shop, where I got

myself some dandelion, and burdock. I also ordered some copper, which I

intend to supplement with magnesium at some moment in time. I though

I'd try, see what happens.

I am also seeing a chiropractor, with whom I am working on my

relationship to my body. It helps a lot.

I don't know what is going to happen in one or two years from now. I

know that I have entered a stage with lots of difficulties the past 4

years, but they only made me stronger, more aware, and in love with

life. I am not regreting it. On the contrary, I am very grateful for

everything that crossed my life. Apparently this is the way it all had

to happen. I am just trying to take care of myself, to come closer to

me, and to improve my life by coming closer to my purpose. It is a lot

of fun, and sometimes a lot of work too, personally, I mean.

I would suggest you take your time to find your own way through this

disease. It is RAI, it is ok, at least this is the way I think about

it. But, first get informed, talk with a good doctor, be aware of what

you are about to do, what it means for you and your life. Whatever your

decision, it is not going to be easy. It is YOUR choice, and you have

to put your heart in it.

I am not an expert, I am only speaking from my point of view, and from

what I gathered as life-luggage from this adventure. I think, I will be

needing a second suitcase real soon......

Take care, and I mean it!

Youli

[Guest guest]

My endo ssays surgery is no longer used for people with Graves as it risks

the life of the patient. He is a relatively young man and very open to " new

ideas " . He says the decision is a relatively new one and many things in

print still refer to surgery for Graves as an alternative method. I wonder

is there are M.D>'s who are not yet informed about the removal of surgery

from the list of options for treating Graves Disease.

Peace and Light,

in FLorida

[Guest guest]

iel,

What your endocrinologist says about surgery not being used any more for people

with Graves Disease is wrong! I just returned from Germany, where I lived for

three years, and the Germans are still using surgery before they suggest RAI.

Their first course of treatment is ATD then quickly followed by surgery and RAI

is reserved for people that are too old or too frail to under go surgery. I

happen to know several people who had the surgery and who are not using any

medication for their thyroid. I personally have not chosen this route because

it does not attack the fundamental cause of the disease. I also believe that

for me this is the most recent in a series of related illnesses. If I don't fix

the route cause I do believe that lupus would be the next disease in this

succession.

If are choosing surgery it is important to find a surgeon that has a high level

of experience in this area.

Excellent Health to All!

MA

Re: RAI

My endo ssays surgery is no longer used for people with Graves as it risks

the life of the patient. He is a relatively young man and very open to " new

ideas " . He says the decision is a relatively new one and many things in

print still refer to surgery for Graves as an alternative method. I wonder

is there are M.D>'s who are not yet informed about the removal of surgery

from the list of options for treating Graves Disease.

Peace and Light,

in FLorida

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[Guest guest]

Why do you feel lupus is the next logical progressive element? I know

very little about lupus. I believe it is ultimately fatal, as is life.

Doug

thomas family <ramathoma-@...> wrote:

original article:hyperthyroidism/?start=37

18

> iel,

> What your endocrinologist says about surgery not being used any more

for people with Graves Disease is wrong! I just returned from Germany,

where I lived for three years, and the Germans are still using surgery

before they suggest RAI. Their first course of treatment is ATD then

quickly followed by surgery and RAI is reserved for people that are too

old or too frail to under go surgery. I happen to know several people

who had the surgery and who are not using any medication for their

thyroid. I personally have not chosen this route because it does not

attack the fundamental cause of the disease. I also believe that for

me this is the most recent in a series of related illnesses. If I

don't fix the route cause I do believe that lupus would be the next

disease in this succession.

> If are choosing surgery it is important to find a surgeon that has a

high level of experience in this area.

>

> Excellent Health to All!

> MA

>

> Re: RAI

>

>

> My endo ssays surgery is no longer used for people with Graves as it

risks

> the life of the patient. He is a relatively young man and very open

to " new

> ideas " . He says the decision is a relatively new one and many things

in

> print still refer to surgery for Graves as an alternative method. I

wonder

> is there are M.D>'s who are not yet informed about the removal of

surgery

> from the list of options for treating Graves Disease.

> Peace and Light,

>

> in FLorida

>

>

[Guest guest]

Interesting that you would say if you don't fix the root cause lupus would

be the next result, because i was on Synthroid years ago for six months

and was found to be very allergic to it--made me sleep entire weekends. I

thought it was part of the getting well process, but when doctor did the

six month check she was very upset with herself for not doing a three

month check. Armour Thyroid made me feel I was on another planet, i just

felt totally out of it, and unable to function. and now last year, a

homeopath had me send a saliva sample and he diagnosed me with Sjogren's

Syndrome, which is a form of lupus. i sent him the supplement list, and he

wrote back to continue the supplements, and that the key ingredient for

lupus is Coenzyme Q-10 (CO Q-10). It is on the supplement list, anyhow.

So, I figure 's marvelously researched and compiled supplement will

serve as a treatment for more illnesses than thyroid disorders.

Just a thought.

Joyce in VT

+====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

" Truth is a shining goddess, always veiled, always distant,

never wholly approachable, but worthy of all the devotion

of which the human spirit is capable. " Bertrand

+====>>>>>>=====>>>>>>>>........<<<<<<<<<=======<<<<<<<<==========+

On Mon, 24 Jan 2000, Family wrote:

> iel,

> What your endocrinologist says about surgery not being used any more for

people with Graves Disease is wrong! I just returned from Germany, where I

lived for three years, and the Germans are still using surgery before they

suggest RAI. Their first course of treatment is ATD then quickly followed by

surgery and RAI is reserved for people that are too old or too frail to under go

surgery. I happen to know several people who had the surgery and who are not

using any medication for their thyroid. I personally have not chosen this route

because it does not attack the fundamental cause of the disease. I also believe

that for me this is the most recent in a series of related illnesses. If I

don't fix the route cause I do believe that lupus would be the next disease in

this succession.

> If are choosing surgery it is important to find a surgeon that has a high

level of experience in this area.

>

> Excellent Health to All!

> MA

>

> Re: RAI

>

>

> My endo ssays surgery is no longer used for people with Graves as it risks

> the life of the patient. He is a relatively young man and very open to " new

> ideas " . He says the decision is a relatively new one and many things in

> print still refer to surgery for Graves as an alternative method. I wonder

> is there are M.D>'s who are not yet informed about the removal of surgery

> from the list of options for treating Graves Disease.

> Peace and Light,

>

> in FLorida

>

>

> ------------------------------------------------------------------------

> If you took Podimin, Redux®, or the combination " Fen-Phen, "

> visit the OFFICIAL site. Request the Court authorized notice package

> explaining your rights under the class settlement.

> 1/833/5/_/6563/_/948741118/

>

> -- Create a poll/survey for your group!

> -- vote?listname=hyperthyroidism & m=1

>

>

>

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