Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Chuck: I actually was not sure about the exact dosage when I typed that email, but was in a hurry to get to work and did not have time to go downstairs and check the bottle---the dose that I was taking from Feb 2007 until Dec 23rd 2010 was 50mg elemental iodine per day. Upon reading the book by Dr Kharrazian, I became so concerned that I had been poisoning myself, that I stopped cold turkey. I was not feeling great when I did stop, but I really feel crappy now--and my cognition and digestion, lack of sleep---etc--all my symptoms are back in a rage. I actually did feel very good once I got to the 50mg daily dose, and your point about accelerating was likely what I had been experiencing while on it. I am actually waiting for a practitioner to become trained in Dr Kharrazian's approach so I can begin treatment. To get back to iodine, though, I too have read many conflicting reports about iodine and resisted taking in for years until my women's health practitioner convinced me to try it. It was because I did feel a lot better, and actually did not have heart palps, or thyroid hot flashes, and could concentrate and get things done so much more effectively that I did choose to continue. I just wish I knew where to turn here. I do not wish to destroy the thyroid I have left, since I've had this disease since I was 17 yrs old and am now 54. I was force fed banana flakes and soy milk as an infant, because I was losing weight and could not hold the cow's milk formula down when I was 5 months old, and my mom and doctor told me I was dying. I immediately put on pounds and was the fattest baby on the block--with three chins. I'm pretty sure that soy and banana were not the best curative for me. So, my health problems go a long way back. In past discussions about taking supplements, many contributors here have stood by the theory that if taking something makes you feel better, then take it. In the case of being a long time thyroid sufferer, feeling better is like a gift and is very precious, and many doctors are highly undereducated, or also arrogant and narrow-minded, so we often are forced to research and try what we feel could work, within reason, of course. Doctors try things on patients anyway, and we have to pay for each bottle, and if it doesn't work, then we get to try another and pay more. Based on the reaction my body had aside from any scientific finding, I honestly did feel a good 40% better while on the 50mg dose. I hate to be a crazy one here, but it's true. Once I got past the first three weeks, it was worth it to keep taking it. So now I feel like I'm back to square one, and sick all over again. I do apologize for bringing up such a topic, but I do value your opinion and was also wondering if you are acquainted with the book I mentioned, and if so, what you thought about the iodine research he did. Thanks again. O'Connell Iodine, again , You wrote: > > I would very much appreciate your opinion on the theory that a > therapeutic dose of iodine, specifically Iodoral at 75mg per day, has > been scientifically found to increase thyroid problems in the auto > immune disease, Hashimoto's Thyroiditis. I'm referring to the writings > of Dr. Datis Kharrazian. That is a substantial dose, about 500 times the recommended daily intake and about 75 times the safe upper limit. Are you sure you don't mean 75 mcg? Many many studies have shown that doses at much lower levels, close to the limit, do indeed seem to aggravate or even bring on Hashimoto's. However, if you are already way down the hypoT road, this may not necessarily be a bad thing. Iodine could accelerate the process, getting you more quickly to a stable, replacement dose. When that happens, the antibodies and peripheral symptoms can go away. That is not a good enough reason to recommend large overdosing of iodine by itself, and 75 mg could induce pseudo allergic reactions. The threshold for these potentially life threatening conditions is around 3 mg per day. If you can get to that dose without an adverse reaction, you are probably safe to go higher. However, I am highly skeptical that any benefits accrue from such massive doses. We have had lots of iodine advocates on this list who think the opposite and recommend up to 100 mg per day. As I said, they have failed to convince me. In fact, I suspect that massive doses of iodine may even be addictive. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 , You wrote: > > > In past discussions about taking supplements, many contributors here > have stood by the theory that if taking something makes you feel better, > then take it.... Many addictive substances make you feel better in the short term but eventually cause a downside. I just don't know whether iodine is like that. The literature all points to problems in the short term, even from modest doses, so very few have tested long term effects of high doses. You are definitely past the 3 mg allergy threshold, which was my biggest concern. So, continuing at your highest dose will probably not damage anything except what is left of your thyroid or your pocketbook. One possible effect you may have experienced while ramping up the dosage is a temporary reduction in T3 due to the Wolff-Chaikoff effect. If your heart palpitations and hot flashes were actually due to hyperT, then this effect could be producing relief. So would a reduction in thyroid output from progression of the Hashi's. Unfortunately, these would be only temporary help, until things stabilized. If you are having hyperT symptoms, why not simply try a reduction in thyroid dosage? Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 Chuck Interesting that you would mention lowering my thyroid dosage, since on December 26th I began taking half of the 130 mg of the Westin Nature-throid that I've been on since 2007, so I've been on 65mg and feeling worse and worse everyday since then. So, I'm now completely off of any supplemental iodine and half of my thyroid meds and feeling like I'm in slow motion with my head and body feeling like they weigh a ton. I am pursuing options here in my area and have been trying to get a referral to see a specialist who does carry my health insurance, but I have to see my primary care provider first. You know the drill, I'm sure. So, hopefully after the information I received from the office assistant there, I can use the proper terminology to get the referral. They have to approve it for reasons that fit within their box of words. red tape To speak to the long term effects of high doses, even though from Feb 2007 until December 2010 is not too terribly long, I can tell you that for me, taking 50mg of elemental iodine with ATP Co-Factors everyday, along with other vitamin and mineral supplements like Vitamin D3, I really felt good. I mean, close to normal. Sleeping, able to think well, stamina, aches and pains were much fewer and less intense, very few headaches, no episodes of heating up and getting suddenly flushed, no heart palps, dryness in my eyes very much relieved, digestion much improved and really able to get on with my day and feel good. It doesn't make any sense to me that if iodine is supposed to be toxic for the Hashi's sufferer, why did I feel so good for so long? By the way, I was admitted to a hospital December 21st, 2010, with classic heart attack symptoms. One of the tests they did was to do an imaging test using iodine given thru an IV. Not ONE person asked me about Hashi's, and I DID tell them about it. The techs administrating the test simply asked if I was allergic to iodine, and I had no reason to believe I was, since I was taking it everyday. Could you please elaborate on what you meant when you said " until things stabilized " ? Thank you, Chuck O'Connell, Owner/Operator Cloud Nine Therapeutics, LLC 10555 Montgomery Blvd NE Building #3, Suite 160A Albuquerque, NM 87111 505.298.9000 Re: Iodine, again , You wrote: > > > In past discussions about taking supplements, many contributors here > have stood by the theory that if taking something makes you feel better, > then take it.... Many addictive substances make you feel better in the short term but eventually cause a downside. I just don't know whether iodine is like that. The literature all points to problems in the short term, even from modest doses, so very few have tested long term effects of high doses. You are definitely past the 3 mg allergy threshold, which was my biggest concern. So, continuing at your highest dose will probably not damage anything except what is left of your thyroid or your pocketbook. One possible effect you may have experienced while ramping up the dosage is a temporary reduction in T3 due to the Wolff-Chaikoff effect. If your heart palpitations and hot flashes were actually due to hyperT, then this effect could be producing relief. So would a reduction in thyroid output from progression of the Hashi's. Unfortunately, these would be only temporary help, until things stabilized. If you are having hyperT symptoms, why not simply try a reduction in thyroid dosage? Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 I don't think it's a mystery that you are not feeling well. You halved your thyroid dose, and that's the gland that drives your body so if you take away half of it's fuel it's not going to run very well. On the other hand, if you take too much, it will impact your heart. Â Â Thyroid has to be handled with care and close attention paid to how you feel on a daily basis. I've even suggested to people who were having difficulties like you to keep a daily diary of everything you take, eat and do. I've done that myself when I was trying to find out what my triggers were for the afib attacks and it worked very well. <>Roni Immortality exists! It's called knowledge! Â Just because something isn't seen doesn't mean it's not there<> > > > In past discussions about taking supplements, many contributors here > have stood by the theory that if taking something makes you feel better, > then take it.... Many addictive substances make you feel better in the short term but eventually cause a downside. I just don't know whether iodine is like that. The literature all points to problems in the short term, even from modest doses, so very few have tested long term effects of high doses. You are definitely past the 3 mg allergy threshold, which was my biggest concern. So, continuing at your highest dose will probably not damage anything except what is left of your thyroid or your pocketbook. One possible effect you may have experienced while ramping up the dosage is a temporary reduction in T3 due to the Wolff-Chaikoff effect. If your heart palpitations and hot flashes were actually due to hyperT, then this effect could be producing relief. So would a reduction in thyroid output from progression of the Hashi's. Unfortunately, these would be only temporary help, until things stabilized. If you are having hyperT symptoms, why not simply try a reduction in thyroid dosage? Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2011 Report Share Posted February 9, 2011 , You wrote: > > It doesn't make any sense to me that if iodine is supposed to be toxic > for the Hashi's sufferer, why did I feel so good for so long?... Iodine is only potentially harmful in a phase with active antibodies. If your thyroid has already been destroyed, the antibodies go away - for good. Even iodine won't bring them back. That is the state I described as " stabilized. " It means you get a full replacement dose and rarely need to adjust it. Incidentally, your thyroid meds are chock full of iodine. T4 has four atoms of iodine attached to every molecule. T3 has three. So, the typical replacement dose comes pretty close to the RDA for iodine all by itself, on top of what is in your food, which is typically above the RDA. As T4 and T3 are metabolized, ALL of that iodine goes back into circulation. If hypoT people really have an iodine deficiency, we would expect them to retain and store iodine from the meds. Thus, your 50 mg per day was on top of what you really need for nutrition. It was acting as a drug, rather than a nutrient. The fact that many people say this much iodine makes them feel better does not reassure me. Remember Sigmund Freud, among others, said much the same thing about cocaine. Laudanum became a very popular " cure " in the 19th c., and it still is. > > By the way, I was admitted to a hospital December 21st, 2010, with > classic heart attack symptoms. One of the tests they did was to do an > imaging test using iodine given thru an IV.... That IV is not elemental or even ionic iodine. It is an organic compound that acts as a contrast agent for X-rays. Since you were already full of iodine, you probably absorbed very little from the contrast agent. People with an allergy (actually a pseudo-allergy) to iodine can go into anaphylactoid shock and die from such injections, since the dye contributes about 10 mg of iodine in one slug. That is why they ask about it prior to CAT scans or radiographs. The risk of aggravating Hashi's antibodies is greatly outweighed by the risk of misdiagnosing a heart problem, so there is no need to ask about Hashi's prior to the IV. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2011 Report Share Posted February 11, 2011 Chuck, is there any support for the existence of iodine addiction other than anecdotal? If so [or even if not] can you give any information as to whether the addiction is [or may be] physiological or whether it is more psychological; or whether it is some combination? Thanks, .. .. > Posted by: " ChuckB " gumboyaya@... > <mailto:gumboyaya@...?Subject=%20Re%3A%20Iodine%2C%20again> > gumbo482001 <gumbo482001> > > > Wed Feb 9, 2011 8:07 am (PST) > > > > , > > You wrote: > > > > It doesn't make any sense to me that if iodine is supposed to be toxic > > for the Hashi's sufferer, why did I feel so good for so long?... > > Iodine is only potentially harmful in a phase with active antibodies. If > your thyroid has already been destroyed, the antibodies go away - for > good. Even iodine won't bring them back. That is the state I described > as " stabilized. > " It means you get a full replacement dose and rarely > need to adjust it. > > Incidentally, your thyroid meds are chock full of iodine. T4 has four > atoms of iodine attached to every molecule. T3 has three. So, the > typical replacement dose comes pretty close to the RDA for iodine all by > itself, on top of what is in your food, which is typically above the > RDA. As T4 and T3 are metabolized, ALL of that iodine goes back into > circulation. If hypoT people really have an iodine deficiency, we would > expect them to retain and store iodine from the meds. > > Thus, your 50 mg per day was on top of what you really need for > nutrition. It was acting as a drug, rather than a nutrient. The fact > that many people say this much iodine makes them feel better does not > reassure me. Remember Sigmund Freud, among others, said much the same > thing about cocaine. Laudanum became a very popular " cure " in the 19th > c., and it still is. > > > > > By the way, I was admitted to a hospital December 21st, 2010, with > > classic heart attack symptoms. One of the tests they did was to do an > > imaging test using iodine given thru an IV.... > > That IV is not elemental or even ionic iodine. It is an organic compound > that acts as a contrast agent for X-rays. Since you were already full of > iodine, you probably absorbed very little from the contrast agent. > People with an allergy (actually a pseudo-allergy) to iodine can go into > anaphylactoid shock and die from such injections, since the dye > contributes about 10 mg of iodine in one slug. That is why they ask > about it prior to CAT scans or radiographs. > > The risk of aggravating Hashi's antibodies is greatly outweighed by the > risk of misdiagnosing a heart problem, so there is no need to ask about > Hashi's prior to the IV. > > Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2011 Report Share Posted February 11, 2011 , > Chuck, is there any support for the existence of iodine addiction other > than anecdotal? I would say not even anecdotal, just my speculation. It would have to have a physiological mechanism, though, to get the rave revues posted occasionally on this list. Some have discussed the problems with withdrawal, although they attribute these to recurrence of the iodine " deficiency. " Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2011 Report Share Posted February 13, 2011 Well, a heck a lot of it fits IMHO. Thanks, .. .. > > Posted by: " gumboyaya@... " gumboyaya@... > <mailto:gumboyaya@...?Subject=%20Re%3A%20Iodine%2C%20again> > gumbo482001 <gumbo482001> > > > Fri Feb 11, 2011 1:16 pm (PST) > > > > , > > > Chuck, is there any support for the existence of iodine addiction other > > than anecdotal? > > I would say not even anecdotal, just my speculation. > > It would have to have a physiological mechanism, though, to get the > rave revues posted occasionally on this list. Some have discussed the > problems with withdrawal, although they attribute these to recurrence > of the iodine " deficiency. " > > Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2011 Report Share Posted February 13, 2011 RDA means really dumb advice--it is the minimum to prevent cretinism--I have no faith in a recommendation put forth by an entity that actually profits from an ill populace and many others feel the same... Re: Iodine, again Well, a heck a lot of it fits IMHO. Thanks, .. .. > > Posted by: " gumboyaya@... " gumboyaya@... > <mailto: gumboyaya@... ?Subject=%20Re%3A%20Iodine%2C%20again> > gumbo482001 < gumbo482001 > > > > Fri Feb 11, 2011 1:16 pm (PST) > > > > , > > > Chuck, is there any support for the existence of iodine addiction other > > than anecdotal? > > I would say not even anecdotal, just my speculation. > > It would have to have a physiological mechanism, though, to get the > rave revues posted occasionally on this list. Some have discussed the > problems with withdrawal, although they attribute these to recurrence > of the iodine " deficiency. " > > Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2011 Report Share Posted February 13, 2011 On 2/12/2011 11:53 PM, nmsjoy@... wrote: > > > RDA means really dumb advice--it is the minimum to prevent cretinism-- Actually, it is a minimum nutritional need extrapolated from studies of goiter incidence. Congenital cretinism results from a more severe deficiency, so the RDA is much greater than that. Mental retardation also results from children growing up with an iodine deficiency, so the RDA is designed to prevent that as well. There are actually several groups that review and advise on RDAs. The two that have agreed on iodine are the US Food and Nutrition Board and the Institute of Medicine. The latter is independent of government and is one of the National Academies of Science. I fail to see how either of these groups would profit from your being ill. They base their recommendations on peer reviewed research, again performed by people who do not profit from your illness but actually have a stake in treating or preventing it, since such discoveries bring them grant support. The recommended daily allowance of iodine ranges from 150 micrograms/day for adult humans to 290 micrograms/day for lactating mothers. About half of this is needed to satisfy the thyroid gland and prevent congenital problems. Most people in the U.S. get several times the RDA in their diet, which is one reason you can find iodine free table in the stores, now. The real issue is how much is too much. Every time a government undertook to prevent goiter in a region by supplementing table salt with iodine, the incidence of Hashimoto's went up along with a transient increase in incidence of hyperT. The latter always went away after a few years. And, these effect occur just around the RDA. The risk and severity of Hashi's was found to increase with multiples of the RDA. They found the same effect in several animal studies. However, this is not the range of suspected addiction. Folks on this list have recommended daily doses up to 100 times the RDA, which is way beyond any detectable nutritional need and way beyond what was ever in the natural human diet. About 20 times the RDA is the threshold for dangerous anaphylactoid reactions. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2011 Report Share Posted February 13, 2011 We all put in our two cents worth here. Sometimes we get back change! [ggg] .. .. > > Posted by: " nmsjoy@... " nmsjoy@... > <mailto:nmsjoy@...?Subject=%20Re%3A%20Iodine%2C%20again> > radiant505 <radiant505> > > > Sat Feb 12, 2011 9:53 pm (PST) > > > > > > RDA means really dumb advice--it is the minimum to prevent > cretinism--I have no faith in a recommendation put forth by an entity > that actually profits from an ill populace > and many others feel the same... Quote Link to comment Share on other sites More sharing options...
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