Re: Re: Emma UK New Doctors Appointment Today!

[Guest guest]

Hi Thanks for the great emails and info I have had on here!

I went to see the new Dr today.

She is disgusted it has been left this long and I am so ill with it.

The " weight " I have on my legs and stomach is mostly water retention and she

wants to investigate my heart etc. She has said because my thyroid has been

failing me for so long my heart has had to do too much work on its own.

I am now swollen and sore with all the water on my body.

I have to go back on Monday for a full range of blood tests. to include the rt3

and all the thyroid tests. and also the vitamins. minerals etc. She also thinks

I could be diabetic as I am so thirsty all the time and overweight.

I am cautiously hopeful something may happen. first time in over 7 years!.

Emma

 

From: <res075oh@...>

Subject: Re: Emma UK New Doctors Appointment Today!

hypothyroidism

Date: Tuesday, 18 January, 2011, 18:06

 

Hi, Emma. Good luck with getting any kind of effective treatment for

hypothyroidism under the socialist medical system in the UK if you don't

happen to fit the " mold " that the majority of patients apparently fall into.

A number of points: 500 mcg is IMHO a pretty darn large dose [mine is

75 mcg/day; on the low side]. I'd suggest you talk to Roni on this list

and get the list of tests needed to rule out an RT3 problem. Then try

to convince your doctors to run those tests and post the results here

[be sure to include the ranges].

Best of luck,

..

..

>

> Posted by: " lesking71 " lesking71@...

>

<mailto:lesking71@...?Subject=%20Re%3A%20Emma%20UK%20New%20Doctors%20App\

ointment%20Today%21>

> lesking71 <lesking71>

>

>

> Mon Jan 17, 2011 4:51 pm (PST)

>

>

>

> Hi Its currently nearly 1am in the UK and I have a doctors appointment

> today at 9.30am in our totally new doctors with a new gp.

> As some of you may be aware I was diagnosed with hypothyroidism in

> 2003 and fibromyalgia in 2004.

> I am currently taking 500mcgs of thyroxine.

> I have not had a " normal " thyroid reading in all this time.

> Since being diagnosed I have gained over 7 stones in weight (nearly

> 100 pounds) despite being on less then 1000 calories a day and walking

> everywhere.

> I feel as though my body is shutting down now.

> I am struggling every day is a battle. I am finding it very hard. I am

> a 32 year old woman, married with 3 children aged 12 9 and 3, the

> youngest being disabled. This was due to me having a underactive

> thyroid during pregnancy, she has hypotonia and developmental delays.

> I dont now what to do, I have begged for help in the past and all they

> do is raise the thyroxine all the time.

> Then say wait for 6 months and see if that helps. .

> Can anyone advise me what to say and do at the new appointment today?.

> I have never had a sympathetic dr at all, they never help me with my

> weight and breathlessness issues and I am very thirsty now all the

> time. whereas I never used to drink liquids a lot. just a few sips

> here and there.

> Please help as I feel this is my last chance to get something done.

> Thanks Emma

[Guest guest]

Emma,

You wrote:

> ... I have to go back on Monday for a full range of blood tests. to include

the rt3 and all the thyroid tests. and also the vitamins. minerals etc. She also

thinks I could be diabetic as I am so thirsty all the time and overweight.

Excellent! Congratulations on finding a good doctor.

Remaining hypoT for an extended period can indeed bring on Type II diabetes.

Let's hope that can be quickly reversed.

Why do you have to wait until Monday for the tests?

Chuck

[Guest guest]

That's the next free appointment to see the nurse for a fasting blood test.

Quite fast really! Emma

Sent from my BlackBerry® wireless device

Re: Re: Emma UK New Doctors Appointment Today!

Emma,

You wrote:

> ... I have to go back on Monday for a full range of blood tests. to include

the rt3 and all the thyroid tests. and also the vitamins. minerals etc. She also

thinks I could be diabetic as I am so thirsty all the time and overweight.

Excellent! Congratulations on finding a good doctor.

Remaining hypoT for an extended period can indeed bring on Type II diabetes.

Let's hope that can be quickly reversed.

Why do you have to wait until Monday for the tests?

Chuck

[Guest guest]

I understand how you feel Emma. I have gone through this. No one believed me

until my Rheumatologist was willing to do the correct testing. The tests are

Free T3, FreeT4, ReverseT3 and TSH all at the same time after a 12 hour fast

with no meds of any kind before the test. I usually have it at 9 or 10 am and

bring a bottle of water and my meds to take after the blood draw. Then, you need

to get a hard copy of the lab report complete with your results and the norms.

When you get all this if you post to the group we can help you. If your body is

not converting the T4 to T3 it feels like you're dying, which is how I felt.

Good luck.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: Hilda Cecilia <oohcecilia@...>

Subject: Re: Emma UK New Doctors Appointment Today!

hypothyroidism

Date: Monday, January 17, 2011, 7:39 PM

Hi Emma, My name is Hilda and I have the same thyroid problem there's times when

I feel great and very down lately I've been feeling good since I finish reading

this book is called The Thyroid Diet By Shomon she is a Thyroid advocate

and has many books out there they are very helpful. I started the diet about 2

weeks ago and I have lost 5 pounds and I'm feeling good check it out also

Shomon has a web site just google her name and you will find several

information. When Doctors not willing to help change till you find a good

Doctor. I went through 5 Doctors till I found the help I need it and I wasn't

helped I did my research and talk to my Doctor the good thing about my Doc. is

she willing to help in everything and checks my thyroid by ultra sounds and

blood levels every six weeks. There is hope and cure trust me I've been hypo for

6 yrs and you can live a good life.

>

> Hi Its currently nearly 1am in the UK and I have a doctors appointment today

at 9.30am in our totally new doctors with a new gp.

> As some of you may be aware I was diagnosed with hypothyroidism in 2003 and

fibromyalgia in 2004.

> I am currently taking 500mcgs of thyroxine.

> I have not had a " normal " thyroid reading in all this time.

> Since being diagnosed I have gained over 7 stones in weight (nearly 100

pounds) despite being on less then 1000 calories a day and walking everywhere.

> I feel as though my body is shutting down now.

> I am struggling every day is a battle. I am finding it very hard. I am a 32

year old woman, married with 3 children aged 12 9 and 3, the youngest being

disabled. This was due to me having a underactive thyroid during pregnancy, she

has hypotonia and developmental delays.

> I dont now what to do, I have begged for help in the past and all they do is

raise the thyroxine all the time.

> Then say wait for 6 months and see if that helps. .

> Can anyone advise me what to say and do at the new appointment today?.

> I have never had a sympathetic dr at all, they never help me with my weight

and breathlessness issues and I am very thirsty now all the time. whereas I

never used to drink liquids a lot. just a few sips here and there.

> Please help as I feel this is my last chance to get something done.

> Thanks Emma

>

------------------------------------

[Guest guest]

Good for you Emma. I'm so glad you're going to get help.

<>Roni

Immortality exists!

It's called knowledge!

 

Just because something isn't seen

doesn't mean it's not there<>

From: <res075oh@...>

Subject: Re: Emma UK New Doctors Appointment Today!

hypothyroidism

Date: Tuesday, 18 January, 2011, 18:06

 

Hi, Emma. Good luck with getting any kind of effective treatment for

hypothyroidism under the socialist medical system in the UK if you don't

happen to fit the " mold " that the majority of patients apparently fall into.

A number of points: 500 mcg is IMHO a pretty darn large dose [mine is

75 mcg/day; on the low side]. I'd suggest you talk to Roni on this list

and get the list of tests needed to rule out an RT3 problem. Then try

to convince your doctors to run those tests and post the results here

[be sure to include the ranges].

Best of luck,

..

..

>

> Posted by: " lesking71 " lesking71@...

>

<mailto:lesking71@...?Subject=%20Re%3A%20Emma%20UK%20New%20Doctors%20App\

ointment%20Today%21>

> lesking71 <lesking71>

>

>

> Mon Jan 17, 2011 4:51 pm (PST)

>

>

>

> Hi Its currently nearly 1am in the UK and I have a doctors appointment

> today at 9.30am in our totally new doctors with a new gp.

> As some of you may be aware I was diagnosed with hypothyroidism in

> 2003 and fibromyalgia in 2004.

> I am currently taking 500mcgs of thyroxine.

> I have not had a " normal " thyroid reading in all this time.

> Since being diagnosed I have gained over 7 stones in weight (nearly

> 100 pounds) despite being on less then 1000 calories a day and walking

> everywhere.

> I feel as though my body is shutting down now.

> I am struggling every day is a battle. I am finding it very hard. I am

> a 32 year old woman, married with 3 children aged 12 9 and 3, the

> youngest being disabled. This was due to me having a underactive

> thyroid during pregnancy, she has hypotonia and developmental delays.

> I dont now what to do, I have begged for help in the past and all they

> do is raise the thyroxine all the time.

> Then say wait for 6 months and see if that helps. .

> Can anyone advise me what to say and do at the new appointment today?.

> I have never had a sympathetic dr at all, they never help me with my

> weight and breathlessness issues and I am very thirsty now all the

> time. whereas I never used to drink liquids a lot. just a few sips

> here and there.

> Please help as I feel this is my last chance to get something done.

> Thanks Emma

     

[Guest guest]

Great Emma. Let them know that at least, there is somebody who

knows what they are doing - YOU! Good luck and keep us informed.

Luv - Sheila

Sheila, this letter is really useful and I'm

going to crib from it in preparation for a doctor's appointment I have

tomorrow!

Good luck to you, Emma.