Re: Emma UK New Doctors Appointment Today!

[Guest guest]

Hi Emma,

Hoping this finds you before you head off to the docs, it was left a bit late

and we're probably the only ones still up!!

Look in the files and there is alist of hypo signs and symptoms, tick them off

and tell the new doc that despite being on meds for years you still have these

symptoms....

Ask for your free t4 and TSH to be measured along with the free t3. Either you

are not converting the t4 (thyroxine) which is a storage hormone, into T3 - the

useable stuff, and are converting it into reverse t3 instead, which is what

happens when you need to just get rid of the excess t4, or you're converting

ok but the cells are resistant. reasons for non conversion and / or

resistance are

Lack of selenium, low B12, low folate, Low Iron, low ferritin (sored iron) low

vit D, low zinc or copper. they all need investigation as if any one of these

is low in the body, then that's the thyroid meds stuffed up....

If the doctor doesn't want to know, be insistant and tell him you cannot wait

any longer than you have been doing and that his job is to make you well or find

someone who will. You could mention a trial of T3....?

The dosage rate of T3, is that for every 80 mcg of Throxine you knock off, you

replace it with 20 mcg t3.

Good Luck! He might be great!

x

>

> Hi Its currently nearly 1am in the UK and I have a doctors appointment today

at 9.30am in our totally new doctors with a new gp.

> As some of you may be aware I was diagnosed with hypothyroidism in 2003 and

fibromyalgia in 2004.

> I am currently taking 500mcgs of thyroxine.

> I have not had a " normal " thyroid reading in all this time.

> Since being diagnosed I have gained over 7 stones in weight (nearly 100

pounds) despite being on less then 1000 calories a day and walking everywhere.

> I feel as though my body is shutting down now.

> I am struggling every day is a battle. I am finding it very hard. I am a 32

year old woman, married with 3 children aged 12 9 and 3, the youngest being

disabled. This was due to me having a underactive thyroid during pregnancy, she

has hypotonia and developmental delays.

> I dont now what to do, I have begged for help in the past and all they do is

raise the thyroxine all the time.

> Then say wait for 6 months and see if that helps. .

> Can anyone advise me what to say and do at the new appointment today?.

> I have never had a sympathetic dr at all, they never help me with my weight

and breathlessness issues and I am very thirsty now all the time. whereas I

never used to drink liquids a lot. just a few sips here and there.

> Please help as I feel this is my last chance to get something done.

> Thanks Emma

>

[Guest guest]

Hi Emma, Since you are thirsty all the time it would be worth doing a simple

self-test for diabetes. If you are eating so little the NHS tests might not

pick up on it, particularly if it is a low carb diet.

You can test yourself by getting stix from the chemist. Test in the urine stream

before and for 3 hours after drinking a medium sized bottle of lucozade. Follow

the instructions on the stix. If it is a positive result then you can report

that to your doctor.

The symptoms of diabetes are very similar to those of low thyroid, and poor

control of blood sugar levels will interfere with attempts to correct the

thyroid problems.

Miriam

>

> Since being diagnosed I have gained over 7 stones in weight (nearly 100

pounds) despite being on less then 1000 calories a day and walking everywhere.

> I am very thirsty now all the time. whereas I never used to drink liquids a

lot. just a few sips here and there.

> Please help as I feel this is my last chance to get something done.

[Guest guest]

Hi Emma, My name is Hilda and I have the same thyroid problem there's times when

I feel great and very down lately I've been feeling good since I finish reading

this book is called The Thyroid Diet By Shomon she is a Thyroid advocate

and has many books out there they are very helpful. I started the diet about 2

weeks ago and I have lost 5 pounds and I'm feeling good check it out also

Shomon has a web site just google her name and you will find several

information. When Doctors not willing to help change till you find a good

Doctor. I went through 5 Doctors till I found the help I need it and I wasn't

helped I did my research and talk to my Doctor the good thing about my Doc. is

she willing to help in everything and checks my thyroid by ultra sounds and

blood levels every six weeks. There is hope and cure trust me I've been hypo for

6 yrs and you can live a good life.

>

> Hi Its currently nearly 1am in the UK and I have a doctors appointment today

at 9.30am in our totally new doctors with a new gp.

> As some of you may be aware I was diagnosed with hypothyroidism in 2003 and

fibromyalgia in 2004.

> I am currently taking 500mcgs of thyroxine.

> I have not had a " normal " thyroid reading in all this time.

> Since being diagnosed I have gained over 7 stones in weight (nearly 100

pounds) despite being on less then 1000 calories a day and walking everywhere.

> I feel as though my body is shutting down now.

> I am struggling every day is a battle. I am finding it very hard. I am a 32

year old woman, married with 3 children aged 12 9 and 3, the youngest being

disabled. This was due to me having a underactive thyroid during pregnancy, she

has hypotonia and developmental delays.

> I dont now what to do, I have begged for help in the past and all they do is

raise the thyroxine all the time.

> Then say wait for 6 months and see if that helps. .

> Can anyone advise me what to say and do at the new appointment today?.

> I have never had a sympathetic dr at all, they never help me with my weight

and breathlessness issues and I am very thirsty now all the time. whereas I

never used to drink liquids a lot. just a few sips here and there.

> Please help as I feel this is my last chance to get something done.

> Thanks Emma

>

[Guest guest]

Hi, Emma. Good luck with getting any kind of effective treatment for

hypothyroidism under the socialist medical system in the UK if you don't

happen to fit the " mold " that the majority of patients apparently fall into.

A number of points: 500 mcg is IMHO a pretty darn large dose [mine is

75 mcg/day; on the low side]. I'd suggest you talk to Roni on this list

and get the list of tests needed to rule out an RT3 problem. Then try

to convince your doctors to run those tests and post the results here

[be sure to include the ranges].

Best of luck,

..

..

>

> Posted by: " lesking71 " lesking71@...

>

<mailto:lesking71@...?Subject=%20Re%3A%20Emma%20UK%20New%20Doctors%20App\

ointment%20Today%21>

> lesking71 <lesking71>

>

>

> Mon Jan 17, 2011 4:51 pm (PST)

>

>

>

> Hi Its currently nearly 1am in the UK and I have a doctors appointment

> today at 9.30am in our totally new doctors with a new gp.

> As some of you may be aware I was diagnosed with hypothyroidism in

> 2003 and fibromyalgia in 2004.

> I am currently taking 500mcgs of thyroxine.

> I have not had a " normal " thyroid reading in all this time.

> Since being diagnosed I have gained over 7 stones in weight (nearly

> 100 pounds) despite being on less then 1000 calories a day and walking

> everywhere.

> I feel as though my body is shutting down now.

> I am struggling every day is a battle. I am finding it very hard. I am

> a 32 year old woman, married with 3 children aged 12 9 and 3, the

> youngest being disabled. This was due to me having a underactive

> thyroid during pregnancy, she has hypotonia and developmental delays.

> I dont now what to do, I have begged for help in the past and all they

> do is raise the thyroxine all the time.

> Then say wait for 6 months and see if that helps. .

> Can anyone advise me what to say and do at the new appointment today?.

> I have never had a sympathetic dr at all, they never help me with my

> weight and breathlessness issues and I am very thirsty now all the

> time. whereas I never used to drink liquids a lot. just a few sips

> here and there.

> Please help as I feel this is my last chance to get something done.

> Thanks Emma

[Guest guest]

Emma,

What were your blood test results?

Chuck

> Hi Its currently nearly 1am in the UK and I have a doctors appointment today

at 9.30am in our totally new doctors with a new gp.

> As some of you may be aware I was diagnosed with hypothyroidism in 2003 and

fibromyalgia in 2004.

> I am currently taking 500mcgs of thyroxine.

> I have not had a " normal " thyroid reading in all this time.

> Since being diagnosed I have gained over 7 stones in weight (nearly 100

pounds) despite being on less then 1000 calories a day and walking everywhere.

> I feel as though my body is shutting down now.

> I am struggling every day is a battle. I am finding it very hard. I am a 32

year old woman, married with 3 children aged 12 9 and 3, the youngest being

disabled. This was due to me having a underactive thyroid during pregnancy, she

has hypotonia and developmental delays.

> I dont now what to do, I have begged for help in the past and all they do is

raise the thyroxine all the time.

> Then say wait for 6 months and see if that helps. .

> Can anyone advise me what to say and do at the new appointment today?.

> I have never had a sympathetic dr at all, they never help me with my weight

and breathlessness issues and I am very thirsty now all the time. whereas I

never used to drink liquids a lot. just a few sips here and there.

> Please help as I feel this is my last chance to get something done.

> Thanks Emma

>

[Guest guest]

Hi Chuck, I have to go in on Monday to have them done, then I'll post them here

when I go to get them on Friday. Not that fast on the NHS!. Thanks. Emma

- Re: Emma UK New Doctors Appointment Today!

Sent: 18 Jan 2011 21:53

  Emma, What were your blood test results? Chuck > Hi Its currently nearly 1am

in the UK and I have a doctors appointment today at 9.30am in our totally new

doctors with a new gp. > As some of you may be aware I was diagnosed with

hypothyroidism in 2003 and fibromyalgia in 2004. > I am currently taking 500mcgs

of thyroxine. > I have not had a " normal " thyroid reading in all this time. >

Since being diagnosed I have gained over 7 stones in weight (nearly 100 pounds)

despite being on less then 1000 calories a day and walking everywhere. > I feel

as though my body is shutting down now. > I am struggling every day is a battle.

I am finding it very hard. I am a 32 year old woman, married with 3 children

aged 12 9 and 3, the youngest being disabled. This was due to me having a

underactive thyroid during pregnancy, she has hypotonia and developmental

delays. > I dont now what to do, I have begged for help in the past and all they

do is raise the thyroxine all the time. > Then say wait for 6 months and see if

that helps. . > Can anyone advise me what to say and do at the new appointment

today?. > I have never had a sympathetic dr at all, they never help me with my

weight and breathlessness issues and I am very thirsty now all the time. whereas

I never used to drink liquids a lot. just a few sips here and there. > Please

help as I feel this is my last chance to get something done. > Thanks Emma >

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[Guest guest]

Hi Chuck, I have to go in on Monday to have them done, then I'll post them here

when I go to get them on Friday. Not that fast on the NHS!. Thanks. Emma

Sent from my BlackBerry® wireless device

Re: Emma UK New Doctors Appointment Today!

Emma,

What were your blood test results?

Chuck

> Hi Its currently nearly 1am in the UK and I have a doctors appointment today

at 9.30am in our totally new doctors with a new gp.

> As some of you may be aware I was diagnosed with hypothyroidism in 2003 and

fibromyalgia in 2004.

> I am currently taking 500mcgs of thyroxine.

> I have not had a " normal " thyroid reading in all this time.

> Since being diagnosed I have gained over 7 stones in weight (nearly 100

pounds) despite being on less then 1000 calories a day and walking everywhere.

> I feel as though my body is shutting down now.

> I am struggling every day is a battle. I am finding it very hard. I am a 32

year old woman, married with 3 children aged 12 9 and 3, the youngest being

disabled. This was due to me having a underactive thyroid during pregnancy, she

has hypotonia and developmental delays.

> I dont now what to do, I have begged for help in the past and all they do is

raise the thyroxine all the time.

> Then say wait for 6 months and see if that helps. .

> Can anyone advise me what to say and do at the new appointment today?.

> I have never had a sympathetic dr at all, they never help me with my weight

and breathlessness issues and I am very thirsty now all the time. whereas I

never used to drink liquids a lot. just a few sips here and there.

> Please help as I feel this is my last chance to get something done.

> Thanks Emma

>

[Guest guest]

This will be too late for you to speak with your doctor, but

anyway, I have found that under such circumstances that you find yourself in

right now, it is best to write to your doctor and ask him to put your letter of

requests into your medical notes. Send a copy also to the head of practice.

First, in your letter, list all of the symptoms you are

suffering with now, and the signs you are showing (these are things your doctor

can see for himself). You can check these against those in our web site www.tpa-uk.org.uk under 'Hypothyroidism'.

Next, take your basal temperature BEFORE you get out of bed in a morning for 4 or 5 days and list these. Anything

under 97.8 is an indication you still have a low metabolism and this could be

because your body is not getting the thyroid hormone replacement it needs.

Next, list the blood tests you need checking to see if any of

them are low in the reference range. These are ferritin, vitamin B12, vitamin

D3, magnesium, folate, copper and zinc. Tell the GP in the letter that if any

of these are low in the reference range, your thyroid hormone will not be able

to get absorbed fully into your cells.

Next, ask for a FULL thyroid function test that will include

TSH, free T4 and free T3. This is because you need to know whether the

thyroxine is converting into the active thyroid hormone T3. Every cell in your

body and brain needs T3 to function. Tell him that thyroxine (T4) is a

prohormone with little activity. It must convert through the liver, kidneys and

100's of other thyroid hormone receptors throughout the body into the active

T3. There is a large minority of sufferers of the symptoms of hypothyroidism

who are unable to convert for many and varied reasons, and these people need

some form of T3, either synthetic or natural.

Next, ask for a referral to an endocrinologist of your choice.

You do not have to be referred to the one in your area. Also, you don't need

referring to one who has a specialty in diabetes and who knows little about the

functioning of the thyroid gland.

Next, ask for your letter to be placed into your medical notes

and send a copy to the Head of Practice. Keep a copy yourself just in case your

letter 'accidentally goes missing' and make sure it is dated.

Doctors take a lot more notice of letters than face to face

consultations with their patients - which they can deny ever took place.

Luv - Sheila

Can anyone advise me what to say and do at the new appointment today?.

I have never had a sympathetic dr at all, they never help me with my weight and

breathlessness issues and I am very thirsty now all the time. whereas I never

used to drink liquids a lot. just a few sips here and there.

Please help as I feel this is my last chance to get something done.

Thanks Emma

[Guest guest]

Sheila, this letter is really useful and I'm going to crib from it in

preparation for a doctor's appointment I have tomorrow!

Good luck to you, Emma.