I'm new here

[Guest guest]

>

> I have been scheduled for surgery on November 11. I am sooo excited

> but, ofcourse very nervous. Nina is soo wonderful and reasuring.

Any

> advice on how to deal with a very

> caring but very hesitant family this seems to be my only obsticle.

> Also what is the hotel like where your companion stays? thank soo

> much tracy

> P.S thank you to Sari your advice was greatly appreciated and

helpful

> Good Luck To All !!!!

Welcome to the board Jessie!!! Tell your family to just relaxe you

will be in very caring and good hands! Dr. Aceves is just great as is

Nina. The hospital is very clean and quiet. As for the hotel I don't

know as I went alone. But I'm sure it will be great

Best of luck to you and let us know how things progress for you.

You will love Nina and Dr. A !!!

Debi

[Guest guest]

> >

> > I have been scheduled for surgery on November 11. I am sooo

excited

> > but, ofcourse very nervous. Nina is soo wonderful and reasuring.

> Any

> > advice on how to deal with a very

> > caring but very hesitant family this seems to be my only

obsticle.

> > Also what is the hotel like where your companion stays? thank

soo

> > much tracy

> > P.S thank you to Sari your advice was greatly appreciated and

> helpful

> > Good Luck To All !!!!

> Welcome to the board Jessie!!! Tell your family to just relaxe you

> will be in very caring and good hands! Dr. Aceves is just great as

is

> Nina. The hospital is very clean and quiet. As for the hotel I

don't

> know as I went alone. But I'm sure it will be great

> Best of luck to you and let us know how things progress for you.

> You will love Nina and Dr. A !!!

>

> Debi

For the most part the hospital was quite. The Nurses were making a

lot of noise my last night. It was hard enough to sleep without the

noise. I don't know about the hotel but I would suggest your friend

stay there. My dad went and stayed in the room with me and he didn't

sleep too well either.

[Guest guest]

Congrats on your surgery date! I didn't share my surgery with many

people. Even some of my family doesn't know. I knew that it was

such a hard decision and I didn't need any negativity.

I would just assure them that you are making the right decision for

you and you have to do things just for you in life. To be happy, we

have to be " selfish " sometimes. My husband didn't want me to do it

and it was hard for me to not have him support me but in the end, he

was there and supported me through the surgery and recovery.

It's a scary thing to not have control in a situation when it comes

to someone you love. Soon, you will be on the other side of this and

everyone will see how happy you are.

Good luck and keep us updated.

Maggie

>

> I have been scheduled for surgery on November 11. I am sooo excited

> but, ofcourse very nervous. Nina is soo wonderful and reasuring.

Any

> advice on how to deal with a very

> caring but very hesitant family this seems to be my only obsticle.

> Also what is the hotel like where your companion stays? thank soo

> much tracy

> P.S thank you to Sari your advice was greatly appreciated and

helpful

> Good Luck To All !!!!

[Guest guest]

Hi Nina,

I'm not sure if I've sent my welcome wishes, with all that's been going on in

my family. If not, please forgive me, and welcome to our little gang

Kiki

PS, got an email from my Mom and my cousin is in a regular room, {out of

ICU}. All your prayers have helped my family so much. Thank you all again, so

much! She not out of the woods yet, but she's on her way!!!

[Guest guest]

Hi Nina!!!! Welcome to our list and to Lifelift!!!! We're so glad you're

here!!!! You'll love LL!

Liz

--

On Tue, 02 Nov 2004 18:53:52 -0000 " ninalynn1285 " <MetsObsest@...>

writes:

Hi! My name is Nina. I just purchased the LifeLift DVD

and I am impatiently awaiting the arrival. Here is an abbreviated

version of my story thusfar:

I started using BodyFlex nearly 4 years ago. My results were

great. I lost 10 lb and maybe 10-12 inches in 2 months. It ws

great. I maintained that size doing Bodyflex sporadically and

when I stopped altogether I gained those 10 lb back and all the

inches. I went back to bodyflex when I moved back home and

had my privacy back. The losses were so slow that I turned to

other methods. I have been using strength training and earobic

exercises that promise inch loss for the past 5 month. I am still

about the same size.

I have had a lot of trouble getting my eating habits under control. I

have just about given up on dieting and just want to find some

exercises that help me maintain a smaller size. I don't have very

much to lose. I would like to get back to the size that Bodyflex

helped me maintain. I started doing some bodyflex exercises

again on Sunday but it is hard because I don't have much privacy

with roommates. I end up having to do it in the bathroom with the

water running because the breathing is so loud.

It sounds to me like lifelift has been able to give bodyflex users

the results that they always wanted. I also hope to be able to do

lifelift in front of my roommates without having to duck into a

bathroom. My goal is to shrink my hips an inch by Thanksgiving

and 2 inches by Christmas/New Years.

[Guest guest]

Welcome Nina

R

Re: I'm new here

Hi Nina!!!! Welcome to our list and to Lifelift!!!! We're so glad you're

here!!!! You'll love LL!

Liz

--

On Tue, 02 Nov 2004 18:53:52 -0000 " ninalynn1285 " <MetsObsest@...>

writes:

Hi! My name is Nina. I just purchased the LifeLift DVD

and I am impatiently awaiting the arrival. Here is an abbreviated

version of my story thusfar:

I started using BodyFlex nearly 4 years ago. My results were

great. I lost 10 lb and maybe 10-12 inches in 2 months. It ws

great. I maintained that size doing Bodyflex sporadically and

when I stopped altogether I gained those 10 lb back and all the

inches. I went back to bodyflex when I moved back home and

had my privacy back. The losses were so slow that I turned to

other methods. I have been using strength training and earobic

exercises that promise inch loss for the past 5 month. I am still

about the same size.

I have had a lot of trouble getting my eating habits under control. I

have just about given up on dieting and just want to find some

exercises that help me maintain a smaller size. I don't have very

much to lose. I would like to get back to the size that Bodyflex

helped me maintain. I started doing some bodyflex exercises

again on Sunday but it is hard because I don't have much privacy

with roommates. I end up having to do it in the bathroom with the

water running because the breathing is so loud.

It sounds to me like lifelift has been able to give bodyflex users

the results that they always wanted. I also hope to be able to do

lifelift in front of my roommates without having to duck into a

bathroom. My goal is to shrink my hips an inch by Thanksgiving

and 2 inches by Christmas/New Years.

[Guest guest]

Welcome Nina!

You will just fine this group so supportive and we are happy to have you!

with love,

Jenni

Proud Air Force Mom!

May God guide and protect our troops!

On Tue, 02 Nov 2004 18:53:52 -0000 " ninalynn1285 " <MetsObsest@...>

writes:

Hi! My name is Nina. I just purchased the LifeLift DVD

and I am impatiently awaiting the arrival. Here is an abbreviated

version of my story thusfar:

I started using BodyFlex nearly 4 years ago. My results were

great. I lost 10 lb and maybe 10-12 inches in 2 months. It ws

great. I maintained that size doing Bodyflex sporadically and

when I stopped altogether I gained those 10 lb back and all the

inches. I went back to bodyflex when I moved back home and

had my privacy back. The losses were so slow that I turned to

other methods. I have been using strength training and earobic

exercises that promise inch loss for the past 5 month. I am still

about the same size.

I have had a lot of trouble getting my eating habits under control. I

have just about given up on dieting and just want to find some

exercises that help me maintain a smaller size. I don't have very

much to lose. I would like to get back to the size that Bodyflex

helped me maintain. I started doing some bodyflex exercises

again on Sunday but it is hard because I don't have much privacy

with roommates. I end up having to do it in the bathroom with the

water running because the breathing is so loud.

It sounds to me like lifelift has been able to give bodyflex users

the results that they always wanted. I also hope to be able to do

lifelift in front of my roommates without having to duck into a

bathroom. My goal is to shrink my hips an inch by Thanksgiving

and 2 inches by Christmas/New Years.

[Guest guest]

Oh dear...I really can spell! LOL fine=find

Proud Air Force Mom!

May God guide and protect our troops!

Re: I'm new here

Welcome Nina!

You will just fine this group so supportive and we are happy to have you!

with love,

Jenni

Proud Air Force Mom!

May God guide and protect our troops!

On Tue, 02 Nov 2004 18:53:52 -0000 " ninalynn1285 " <MetsObsest@...>

writes:

Hi! My name is Nina. I just purchased the LifeLift DVD

and I am impatiently awaiting the arrival. Here is an abbreviated

version of my story thusfar:

I started using BodyFlex nearly 4 years ago. My results were

great. I lost 10 lb and maybe 10-12 inches in 2 months. It ws

great. I maintained that size doing Bodyflex sporadically and

when I stopped altogether I gained those 10 lb back and all the

inches. I went back to bodyflex when I moved back home and

had my privacy back. The losses were so slow that I turned to

other methods. I have been using strength training and earobic

exercises that promise inch loss for the past 5 month. I am still

about the same size.

I have had a lot of trouble getting my eating habits under control. I

have just about given up on dieting and just want to find some

exercises that help me maintain a smaller size. I don't have very

much to lose. I would like to get back to the size that Bodyflex

helped me maintain. I started doing some bodyflex exercises

again on Sunday but it is hard because I don't have much privacy

with roommates. I end up having to do it in the bathroom with the

water running because the breathing is so loud.

It sounds to me like lifelift has been able to give bodyflex users

the results that they always wanted. I also hope to be able to do

lifelift in front of my roommates without having to duck into a

bathroom. My goal is to shrink my hips an inch by Thanksgiving

and 2 inches by Christmas/New Years.

[Guest guest]

Glad to have you Nina. Hug~Connie

I'm new here

Hi! My name is Nina. I just purchased the LifeLift DVD

and I am impatiently awaiting the arrival. Here is an abbreviated

version of my story thusfar:

I started using BodyFlex nearly 4 years ago. My results were

great. I lost 10 lb and maybe 10-12 inches in 2 months. It ws

great. I maintained that size doing Bodyflex sporadically and

when I stopped altogether I gained those 10 lb back and all the

inches. I went back to bodyflex when I moved back home and

had my privacy back. The losses were so slow that I turned to

other methods. I have been using strength training and earobic

exercises that promise inch loss for the past 5 month. I am still

about the same size.

I have had a lot of trouble getting my eating habits under control. I

have just about given up on dieting and just want to find some

exercises that help me maintain a smaller size. I don't have very

much to lose. I would like to get back to the size that Bodyflex

helped me maintain. I started doing some bodyflex exercises

again on Sunday but it is hard because I don't have much privacy

with roommates. I end up having to do it in the bathroom with the

water running because the breathing is so loud.

It sounds to me like lifelift has been able to give bodyflex users

the results that they always wanted. I also hope to be able to do

lifelift in front of my roommates without having to duck into a

bathroom. My goal is to shrink my hips an inch by Thanksgiving

and 2 inches by Christmas/New Years.

What can changing the way you breathe do for you? Everything!

See why tens of thousands agree, Life Lift is the best!

http://www.oxygenzoo.com

[Guest guest]

Hi Peggy

Welcome.

My husband has had 2 injections in his back and did not work. I don't suggest narcotics.

My husband has been on them for over 2 years now and the doctor is going to stop them.

We tried physical therapy and that did not work. The test show nothing and my doctor is grasping at straws right now as to what to do.

My husband has pain in his lower back, hip and leg. They are now going to try to take a sleep disorder test to see if something will show up there.

Good luck

Ingrid__________________________________________________

[Guest guest]

My experience with the needle in the back (twice) has been very negative.

the first time it didnt help or hurt. the second time i was " nicked " and

spinal fluid went up into my head causing SEVERE headaches. this was an

epideral block, i assume that that is what you are talking about. Other

people in the group have had positive experiences too; not me.

good luck

rob in va

>From: " Peggy " <pvdavis@...>

>Reply-neck pain

><neck pain >

>Subject: I'm new here

>Date: Fri, 16 Sep 2005 20:45:01 -0400

>

>Thanks for the welcome, I'm glad I found this list. It was at my husband's

>suggestion that I look for a support group that might be able to suggest

>some things to try. My " story " ... About 10 years ago I did something

>pretty stupid - I tried to move a bookcase without completely unloading it.

>The bottom shelf was loaded with old 78 rpm records, the breakable kind.

>The bookcase didn't budge but I yanked on it anyway. I had experienced

>periodic bouts of pain in my neck and shoulders most of my life anyway from

>all those years of piano practice, but the bookcase was the icing on the

>cake. About a week after this, I couldn't get up from bed without the most

>excruciating pain on the right side of the neck going into the right arm.

>I

>was admitted to the hospital over the weekend because everything they had

>tried to relieve the pain had failed except for the morphine IV drip. Then

>came the myelogram and the news that I had ruptured two of my cervical

>disks

>C5-C6. . The laminectomy was successful and the only residual damage was

>the numbness in the tips of two fingers on my right hand, but I was

>pain-free.

>

>Now to the present.... in the last 2 years I have developed pain on the

>left

>side of my neck, upper back and left shoulder. X-rays suggest disk

>degeneration and arthritis in the area below the fusion. It's not the

>excruciating pain like before, but it is a constant ache and has left me

>unable to do things I used to do. I have tried every NSAID without any

>improvement, I've tried muscle relaxers and narcotic pain killers and no

>medicine gives complete relief. I've been seeking help from a deep tissue

>massage therapist and a physical therapist. I spend time in a hot tub.

>The

>PT hasn't helped, the therapist stated that there is stiffness in the spine

>below the fusion and it has caused the surrounding muscles to tense, thus

>they ache and until the spine is dealt with the muscles are going to

>continue to ache. He's recommending some sort of injections into the

>spine.

>My doc seems to concur with this. I would appreciate any ideas from other

>members of this list before I let someone stick a needle in my spine.

>

>Thanks for reading,

>Peggy

>and the Cats

>Rufus, Rusty, Fisser, and Tasha and bridge kitties: Tiger ('90), Raven

>('03), Ginger ('04), and Stubby ('05) " Dexteram tuam sic notam fac et

>conpeditos corde in sapientia "

>http://www.home.bellsouth.net/personalpages/PWP-daviscats/

>mailto:pvdavis@...

>/‘_ ___ _’\ /‘_ ___ _’\ /‘_ ___ _’\

>\ ‘_ ‘---’ _’ / \ ‘_ ‘---’ _’ / \ ‘_ ‘---’ _’ /

> | ._ |\___/| _. | | ._ |\___/| _. | | ._ |\___/| _. |

> \ ) _ _ ( / \ ) _ _ ( / \ ) _ _ ( /

> ‘. =\ Y /= .’ ‘. =\ Y /= .’ ‘. =\ Y /= .’

> \_ )===( _/ \_ )===( _/ \_ )===( _/

> / + \ / + \ / + \

> | | | | | | | | | | | |

> /\| |/\ /\| |/\ /\| |/\

> //( )( ) //( )( ) //( )( )

> (( “” “” (( “” “” (( “” “”

> )) )) ))

> (( (( ((

> \) \) \)

>

>

>

>

>

>

_________________________________________________________________

On the road to retirement? Check out MSN Life Events for advice on how to

get there! http://lifeevents.msn.com/category.aspx?cid=Retirement

[Guest guest]

My experience with the needle in the back (twice) has been very negative.

the first time it didnt help or hurt. the second time i was " nicked " and

spinal fluid went up into my head causing SEVERE headaches. this was an

epideral block, i assume that that is what you are talking about. Other

people in the group have had positive experiences too; not me.

good luck

rob in va

>From: " Peggy " <pvdavis@...>

>Reply-neck pain

><neck pain >

>Subject: I'm new here

>Date: Fri, 16 Sep 2005 20:45:01 -0400

>

>Thanks for the welcome, I'm glad I found this list. It was at my husband's

>suggestion that I look for a support group that might be able to suggest

>some things to try. My " story " ... About 10 years ago I did something

>pretty stupid - I tried to move a bookcase without completely unloading it.

>The bottom shelf was loaded with old 78 rpm records, the breakable kind.

>The bookcase didn't budge but I yanked on it anyway. I had experienced

>periodic bouts of pain in my neck and shoulders most of my life anyway from

>all those years of piano practice, but the bookcase was the icing on the

>cake. About a week after this, I couldn't get up from bed without the most

>excruciating pain on the right side of the neck going into the right arm.

>I

>was admitted to the hospital over the weekend because everything they had

>tried to relieve the pain had failed except for the morphine IV drip. Then

>came the myelogram and the news that I had ruptured two of my cervical

>disks

>C5-C6. . The laminectomy was successful and the only residual damage was

>the numbness in the tips of two fingers on my right hand, but I was

>pain-free.

>

>Now to the present.... in the last 2 years I have developed pain on the

>left

>side of my neck, upper back and left shoulder. X-rays suggest disk

>degeneration and arthritis in the area below the fusion. It's not the

>excruciating pain like before, but it is a constant ache and has left me

>unable to do things I used to do. I have tried every NSAID without any

>improvement, I've tried muscle relaxers and narcotic pain killers and no

>medicine gives complete relief. I've been seeking help from a deep tissue

>massage therapist and a physical therapist. I spend time in a hot tub.

>The

>PT hasn't helped, the therapist stated that there is stiffness in the spine

>below the fusion and it has caused the surrounding muscles to tense, thus

>they ache and until the spine is dealt with the muscles are going to

>continue to ache. He's recommending some sort of injections into the

>spine.

>My doc seems to concur with this. I would appreciate any ideas from other

>members of this list before I let someone stick a needle in my spine.

>

>Thanks for reading,

>Peggy

>and the Cats

>Rufus, Rusty, Fisser, and Tasha and bridge kitties: Tiger ('90), Raven

>('03), Ginger ('04), and Stubby ('05) " Dexteram tuam sic notam fac et

>conpeditos corde in sapientia "

>http://www.home.bellsouth.net/personalpages/PWP-daviscats/

>mailto:pvdavis@...

>/‘_ ___ _’\ /‘_ ___ _’\ /‘_ ___ _’\

>\ ‘_ ‘---’ _’ / \ ‘_ ‘---’ _’ / \ ‘_ ‘---’ _’ /

> | ._ |\___/| _. | | ._ |\___/| _. | | ._ |\___/| _. |

> \ ) _ _ ( / \ ) _ _ ( / \ ) _ _ ( /

> ‘. =\ Y /= .’ ‘. =\ Y /= .’ ‘. =\ Y /= .’

> \_ )===( _/ \_ )===( _/ \_ )===( _/

> / + \ / + \ / + \

> | | | | | | | | | | | |

> /\| |/\ /\| |/\ /\| |/\

> //( )( ) //( )( ) //( )( )

> (( “” “” (( “” “” (( “” “”

> )) )) ))

> (( (( ((

> \) \) \)

>

>

>

>

>

>

_________________________________________________________________

On the road to retirement? Check out MSN Life Events for advice on how to

get there! http://lifeevents.msn.com/category.aspx?cid=Retirement

[Guest guest]

Welcome to the group GiGi , nice to see ya out and about ...hehe (met ya at hepatitis hope chat) Its really good to see you , I hope you are well ? elizabethnv1

I'm New Here

Hello my name is Georganna u guys can call me GiGi for short I was dx with Hepatitis C when i was 15 yrs old on Jan 9th 2002 and i had a liver biopsy done March 27th 2002 it showed i was stage 1 earlyest stage. When i was 17 yrs old i went on Pegasys-Copegus for 24 weeks i was a genotype 2b and 70% chance of clearing the virus. the side effects for 2 weeks were muslce pain, fever, cold chills and after 2 weeks i felt back to my normal self. I been clear of the Hepatitis C virus for almost 2 yrs and every once a year i do lab work to recheck to see if i'm still in remission. I think children and teenagers with hepatitis c should try out the treatment. my doctor name is Dr. at Shands Children Hospital in Gainesville, FL. I was his first responder on Pegasys-Copegus and his 2nd youngest he treated with Hepatitis C.

please conect me at sweetiechick2010@...

your truly,

~*~Georganna~*~

[Guest guest]

Hi Georganna Welcome to our forum,, its nice to meet you.. I hope you will feel free to post here often. and congrats for beating the dragon! hugs jaxsweetiechick2010 <sweetiechick2010@...> wrote: Hello my name is Georganna u guys can call me GiGi for short I was dx with Hepatitis C when i was 15 yrs old on Jan 9th 2002 and i had a liver biopsy done March 27th 2002 it showed i was stage 1 earlyest stage. When i was 17 yrs old i went on Pegasys-Copegus for 24 weeks i was a genotype 2b and 70% chance of clearing the virus. the side effects for 2 weeks were muslce pain, fever, cold chills and after 2 weeks i felt back to my normal self. I been clear of the Hepatitis C virus for almost 2 yrs and every once a year i do lab work to recheck to see

if i'm still in remission. I think children and teenagers with hepatitis c should try out the treatment. my doctor name is Dr. at Shands Children Hospital in Gainesville, FL. I was his first responder on Pegasys-Copegus and his 2nd youngest he treated with Hepatitis C. please conect me at sweetiechick2010@... your truly, ~*~Georganna~*~ Jackie

[Guest guest]

Hi Kim, were you having problems with your liver before the bleed? That most

of been terrifying for you and your family. Do you know what has caused the

cirrhosis? Was there any long term effects from the stroke? Hope you are doing

much better now, glad you joined the group. Jennie AIH 2002

[ ] I'm new here

Hi my name is Kim and I am 38 years old.I found out in Oct.2004 that I

have Cirrhosis ,I went to my local ER I was having a Varcies Bleed .I

lost 12 pints of blood and was air lifted to Emory Hospital in

Atlanta.The Drs got me stable enough to do a Banding of my

Esophegus ,during that precedure I had a Stroke.

[Guest guest]

>

> Hi Kim, were you having problems with your liver before the

bleed? That most of been terrifying for you and your family. Do

you know what has caused the cirrhosis? Was there any long term

effects from the stroke? Hope you are doing much better now, glad

you joined the group. Jennie AIH 2002

>

> [ ] I'm new here

>

>

> Hi my name is Kim and I am 38 years old.I found out in Oct.2004

that I

> have Cirrhosis ,I went to my local ER I was having a Varcies

Bleed .I

> lost 12 pints of blood and was air lifted to Emory Hospital in

> Atlanta.The Drs got me stable enough to do a Banding of my

> Esophegus ,during that precedure I had a Stroke.

>

>

>

>

>

>

[Guest guest]

>

> My name is and am 21 years old. I was just diagnosed with Hep C

> yesterday...I go back in a few weeks to talk about starting

> treatment...I am so scared since I don't know what to expect.

>

> If anyone has any info please send it my way...

>

> Thanks...

>

Hi - Getting the dx of Hep C is very scarey and depressing. But

the good news is, sometimes with treatment you can kick it's ass and

get better. I was diagnosed in December and started the

peginterferon/riba treatment in February. I just had my 24 week viral

load test and it came back " none detected " which means I have to do

another 24 weeks of treatment. It sucks, but the alternative is worse.

Right? I felt pretty bad when I first started treatment, but it seems

to be getting better. I am still very tired - I'm only working 6 hour

days 4 days a week. I am also on Neupogen for a load white blood cell

count.

I just wanted you to know you're not alone and at least for me, the

treatment has gotten a little better. Every week is different for

sure. But if you can keep an eye on your long-term goal, it helps. I'm

trying to eat good, drink LOTS of water, get alot of rest, and take

care of myself. Do you have any support at home? I hope you have

someone there for you.

>

[Guest guest]

Hi ,

Welcome to a very loving group. I have learned a lot by just reading

the info everyone has shared. There is a world of information on Hep

C, but each person must chose their own way. Be strong and you know

what, you will make it through this. Two things have really helped

me: Knowledge of the disease and my friends including everyone in

this group. School may be out, but you have a lot to learn. Anytime

you have a question, just ask. One of the wonderful people in this

group will answer.

Good luck

-- In Hepatitis C , " af_wife2005 "

<af_wife2005@...> wrote:

>

> My name is and am 21 years old. I was just diagnosed with Hep

C

> yesterday...I go back in a few weeks to talk about starting

> treatment...I am so scared since I don't know what to expect.

>

> If anyone has any info please send it my way...

>

> Thanks...

>

>

[Guest guest]

(http://www.smileycentral.com/?partner=ZSzeb001_ZNxmk762YYUS) Hello ,

It's a pleasure to meet you, however I am sorry it has to be under these

circumstances.

I am on shot #3, and this is my second time to do treatment. The first

time, I moved, lost insurance and had to quit after only 16 weeks. I remained

clear for almost 2 years. I am geno 1A, stage 1 and grade 3, which isn't bad,

however geno 1 is the hardest to clear and the longest to treat. I must do

48 weeks of treatment.

The best thing you can do for yourself is become your own " advocate " and

learning as much as you can, through reading books and researching the

internet. There are a ton of web sights you can go to that will help you.

You might start out with the American Liver Foundation.

As far as the treatment, it is all so INDIVUAL, this you must remember, no

TWO People are alike. Including the way they feel with the hep, they way the

respond to treatment, the side affects from treatment. Some people are lucky

enough to not have any sides at all.

Myself, on the other hand, have many sides, but no way near enough to keep

me from trying to rid this virus from my system.

I had so many sides the first time, I was bed ridden most of the time,

however, I chose to do it again. And God willing - this time I am not in bed

all

the time. Just a day or two after the shot.

Choosing to do the treatment is a big step, and be proud of yourself for

doing so. Stay online, and find some support groups where you feel comfortable

and are able to acquire good info and lots of support.

As far as this group goes, there are a lot of good people and good info, and

we will always be happy to help guide you in a direction where you can get

the right answers...

I wish you all the best my Dear and will keep you in my prayers..

Love, hugs and prayers

[Guest guest]

Welcome Joanne,

I didn't finger joint replacement but I did have the thumb joint worked on. What the OS did was cut away the arthritis and took part of my tendon removed fron my left hand to do the repair. So far that only hand joint that I have problems with. I have had both knees replaced last yr. The first knee didn't do so well. Had to have a revision at least now I can walk with a cane. I don't have a good bend. As for my right hand it a different story for that to. Hope I don't get arthritis in that hand. When I was 5 I was burned pretty bad and my right arm and hand suffered the most. So I don't know if any Dr would do surgery on it.

Shirley

I'm new here

Two days ago, I had 4 finger joints replaced: index, long, and fifthfinger PIP's and index finger MP. I also had my second LRTI-the firstone was three years ago and the joint had become dislocated and quitepainful. Right now, pain management is my priority. I recall that with thefirst LRTI it was pretty painful for the first 24 hours but then I didquite well. I don't know whether this is so painful because it's aredo LRTI and he had to steal another tendon, or it's the additionalsurgery with the joint replacements. I honestly thought that the newjoints would be less painful than they were preoperatively! I'mtaking zanaflex 2-4mg, vicodin (7.5 mg hydrocodone/ 325 APAP, two tothree)every four hours. I believe my body is accustomed to thehydrocodone because I had several surgeries last year, the most recentbeing mid-October when I had some spinal fusions.I'd really appreciate hearing from anyone with finger

jointreplacements, some ideas as to the amount of time involved inrecuperation, and concerns regarding preserving these new joints. Besides this recent surgery to my left hand, I also had four jointsfused one year ago. My right hand is another story.I'm so happy I have a voice activated programby on my computer!Joanne

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[Guest guest]

wow Joanne, you truly are bionic - what an amazing person - I didn't even know they did finger joint replacement. I'm sorry I can't help you, but I can cheer you on - you go girl and get well soon.

ann

I'm new here

Two days ago, I had 4 finger joints replaced: index, long, and fifthfinger PIP's and index finger MP. I also had my second LRTI-the firstone was three years ago and the joint had become dislocated and quitepainful. Right now, pain management is my priority. I recall that with thefirst LRTI it was pretty painful for the first 24 hours but then I didquite well. I don't know whether this is so painful because it's aredo LRTI and he had to steal another tendon, or it's the additionalsurgery with the joint replacements. I honestly thought that the newjoints would be less painful than they were preoperatively! I'mtaking zanaflex 2-4mg, vicodin (7.5 mg hydrocodone/325 APAP, two tothree)every four hours. I believe my body is accustomed to thehydrocodone because I had several surgeries last year, the most recentbeing mid-October when I had some spinal fusions.I'd really appreciate hearing from anyone with finger jointreplacements, some ideas as to the amount of time involved inrecuperation, and concerns regarding preserving these new joints. Besides this recent surgery to my left hand, I also had four jointsfused one year ago. My right hand is another story.I'm so happy I have a voice activated programby on my computer!Joanne

[Guest guest]

Joanne:

Hands are rare. I recall someone posting about wrist replacement. I

am impressed that you had some many done at the same time. I guess

cheaper by the dozen LOL.

About pain management some places have doctors that specialize in that

alone. You might call the hospital in you area or ask your doctor. I

had my knee done in Dec. I was given Oxiconton(sp) one tablet a day

for the first 4 days. I was also given vicodin every four hours and

if I wanted I could have a shot of something (but it would make you

sleepy). The hospital had a pretty neat way of determining pain

level. They asked you " On a scale of 10 (10 being the worst) were are

you at. " They did not argue with you and had a predetermined dosage

amount based upon you answer. I don't remember the dosage amounts for

the three drugs but all in all I was able to keep the pain within

limits. The main thing I wanted in the first couple of days was just

to sleep. I did not have morphine, a lot of people get that and I

have had it in the past. All in all I was pleasantly surprised with

the effect of the newer pain medications.

Wish you well and a speedy recovery.

Don

[Guest guest]

Welcome,

My son has congenital scoliosis too. These lovely

people let me hang out here... LOL

I will comment on your questions, but first, wanted to

let you know there is a list just for congenital

scoliosis families. You can subscribe here (if you

haven't already):

http://health./group/CongenitalScoliosisSupport/

<<The doctor has not told us how much of a curve she

has in her neck, which I don't understand, since her

neck is so crooked, doesn't that mean she has

scoliosis in her cervical spine, too?>>

I would guess the doc you have seen hasn't seen many

kids like your daughter. I would strongly encourage

you to go to Shriners in SLC or to Primary Children's

in SLC for another opinion. I'm sure the distance is

farther than traveling to Spokane, but I don't think

the orthos in Spokane have seen the complexity and

quantity of kids like this that you want them to have

seen. The orthos in SLC (both hospitals) have seen

and successfully treated many little ones with

complicated spine issues. The fact that she has fused

ribs already means she needs to see someone who is

also a thoracic specialist. There are not many of

those at all.

I'm assuming she has has had her kidneys and heart and

eyes checked thoroughly?

<<As I understand plaster casts or braces don't do

anything for a congenital curve, since it is caused by

a genetic deformity of the vertebra, that can only be

changed with surgery. Am I misinformed?>>

You are correct. An external brace or cast can not

" fix " or correct what nature didn't form correctly in

the first place. A cast or brace has been helpful to

a rare group of kids who need external support - most

have neuromuscular disease or something that prevents

their own body from supporting itself. For the most

part, bracing and casting are not an option for your

daughter.

Congenital scoliosis can be a complex and confusing

condition. Whether or not she needs surgical

intervention depends on how weak the bone structure

is, how progressive the scoliosis is, how

out-of-balance her body is, etc. You will always find

someone who has more to deal with than you do, but

that doesn't make your situation any less important or

stressful. You are in good company. There are many

families in various stages of treatment for scoliosis

and related anomalies. I wish you well.

Carmell

Mom to Kara, idiopathic scoliosis and hypothyroidism, Blake 16, GERD, and

Braydon 11, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient

#137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies,

missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic

constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney,

ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic

bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96,

1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, valgus

deformity, GERD, Gastroparesis, SUA, etc.

http://carmellb-ivil.tripod.com/myfamily/

Congenital scoliosis support group

http://health./group/CongenitalScoliosisSupport/

__________________________________________________

[Guest guest]

Hello and welcome.

I'm just wondering where you are from, as we live in Kalispell. Our

son is 22 months and was diagonsed @ 4 mo. We too applied to the

Shriners Hospital in Spokane and had a few visits. (They are

wonderful) We have since chose to go to Shriners Hospital in SLC for

casting. We love it there and have had very good (great, we think)

results.

Just so you know it took us a month to hear back from the Spokane

Hospital and another 2 months to be seen. Just FYI in case you're

anxiously waiting (like we were).

Please feel free to email privately if you would like.

susanrhannah@...

Sorry I could not answer your question regarding the congenital, as

our son is idiopathic.

Have a great day.

>

> Hey everybody,

> my daughter just got diagnosed with congenital scoliosis. She is

nine

> months old and has a 20 degree curve in her lumber spine due to

some

> vertebral anomalies. She also has anomalies in C3-T2 ( a couple

fused,

> one hemivertebra and lots of clefts) which causes her to tilt her

head

> to the right. The doctor has not told us how much of a curve she

has

> in her neck, which I don't understand, since her neck is so

crooked,

> doesn't that mean she has scoliosis in her cervical spine, too? Her

> muscles are to short for her to tilt her head to the

> left at all, she can barely come to center. She also has 3 fused

ribs.

> Fortunately she has no other congenital anomalies commonly

assocciated

> with congenital scoliosis. We're waiting to get an appointment at

> Shriner's hospital in Spokane, WA, since there are no pediatric

> orthopedists in Montana. As I understand plaster casts or braces

don't

> do anything for a congenital curve, since it is caused by a genetic

> deformity of the vertebra, that can only be changed with surgery.

Am I

> misinformed? Is there anything else that con complement surgery.

Have

> heard of many alternative treatments, but some of them sound

dubious,

> some only work for idiopathic scoliosis. I'm confused. Any input on

> what worked for you?

>

[Guest guest]

Hi,

My daughter has congenital scoli. As Carmell said, it can be very complex.

My daughter is 10 now. Here are a few things we wished we would have known to

do:

Physical therapy - keeping back muscles strong, fighting against the head

tilting especially, increasing mobility (we didn't do enough of it because they

suggested fusing her spine and we didn't know any better).

Also, find a doctor right from the start who you believe understands the

mechanics of your daughter's scoliosis. Each anomaly drives the curve in it's

own way.

Third, explore all your options - especially in keeping the curve down as much

as possible for as long as possible. I don't know if early treatment with

casting would help keep the curve down, but the doctor's at SLC will tell you

honestly if that is a possibility.

Surgery is a big commitment. Any fusion will stop growth in the fused area.

Research surgical interventions now. My daughter is doing wonderful with the

VEPTR implants. They are the only thing we've tried that has successfully

conquered her curve.

Her story is in the stories section of www.infantilescoliosis.org. Her name

is Moriah Grant.

Feel free to email me with any questions. After 10 years of struggle, she is

doing wonderfully. This group is a great source of information and

encouragement.

Shellie Grant

julianemclean wrote:

Hey everybody,

my daughter just got diagnosed with congenital scoliosis. She is nine

months old and has a 20 degree curve in her lumber spine due to some

vertebral anomalies. She also has anomalies in C3-T2 ( a couple fused,

one hemivertebra and lots of clefts) which causes her to tilt her head

to the right. The doctor has not told us how much of a curve she has

in her neck, which I don't understand, since her neck is so crooked,

doesn't that mean she has scoliosis in her cervical spine, too? Her

muscles are to short for her to tilt her head to the

left at all, she can barely come to center. She also has 3 fused ribs.

Fortunately she has no other congenital anomalies commonly assocciated

with congenital scoliosis. We're waiting to get an appointment at

Shriner's hospital in Spokane, WA, since there are no pediatric

orthopedists in Montana. As I understand plaster casts or braces don't

do anything for a congenital curve, since it is caused by a genetic

deformity of the vertebra, that can only be changed with surgery. Am I

misinformed? Is there anything else that con complement surgery. Have

heard of many alternative treatments, but some of them sound dubious,

some only work for idiopathic scoliosis. I'm confused. Any input on

what worked for you?

---------------------------------

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