Re: etc.

[Guest guest]

In a message dated 7/26/01 7:50:14 AM Eastern Daylight Time, paul.3@...

writes:

> Donna, PB and I celebrated our birthday on the 20th. But I had a grownups

> only dinner on the 21st. Is Miss Maddie doing better now that she is back

> in school? Been thinking about you kids!

Cool Beth. Miss Maddie IS doing better now that she's back in school.

The climbing is still a big problem, but the aggression is not as bad.

Plus, we're getting lots of eye contact and really really cute smiles!!!!

AND she is doing GREAT with swimming lessons at school. They had taken her

out of the group to do one on one because she was in such a panic. Her

teacher tells me now that they have to hold her back til they all get in the

water, she's so eager to jump in. And she's getting to the sides fairly

quickly. I'm gonna go be a fly on the wall, so I can witness this!!!

Fun!!!!

You are going to a place in PA? Where is this place MB? I hope you have

a fabulous vacation. We're heading to the beach on Saturday for another

week. Wish us luck with Miss Boo!!!!

Donna

P.S. Tomorrow Maddie and I are going on a class trip----Sesame Place.

Should be interesting!!!

[Guest guest]

<<Gail? We haven't heard much lately. You guys ok?>>

Hi Beth!

You always make me feel so included! THANKS! I kept your

post about your birthdays then it got to be so late that I felt

funny by then to reply. Happy Birthday to you and Ben!

I am gearing up for school again. I don't know if you read the

down-syn list but I had posted about Ted possibly getting an

Augmentative device and Joan had responded with some very

valuable information. She is amazing! So I have been researching

about that. I will talk to the SLP when she calls me tonight and

ask her lots of questions. I haven't had a car for the last few months

so life just takes a lot longer now.

<<a, you paint a great picture of enjoying life. He always

sounds like he is having so much fun.>>

I enjoy reading everyone's posts but I do especially like a's posts

about . Maybe because he is close in age to Ted?

I had also posted about the SD moving the " unit " to a middle school and

I am opposed to Ted having to go because he is a member of the " unit "

I want him to go to his neighborhood school and get to go to 4th grade

there with his friends that he is invited to their birthday parties and

such.

Why should he be yanked away because he has Down syndrome? I just

don't get it. They say he is an ungraded student and has no grade. They

divided the unit and moved the " younger " children to another elementary

school and said they wanted to share this population with the children

that

normally attend their neighborhood school as it had previously been in my

neighborhood. What are they? A traveling circus? Shouldn't they just

" share " them as the chips fall? ie meaning where they naturally live???

I just don't get it. Hope you are not sorry you asked as now you got an

earful. LOL

hugs,

Gail

[Guest guest]

Hey Gail

Wow! Keep us posted about the augmentative devices! (Haven't you been

worked uphill with the Cleveland ditstrict for like three years to get them

to do this? Or am I confusing you with someone else?

Also, I only read the DS list as a newsgroup, so I haven't seen the many

posts (they don't all show up on the NG). If you don't mind sharing here,

I would love to read your original post and Joan's response. I think it

will be helpful to other people here as well- and a lot of folks only

belong on this list.

So far as the school placement stuff- oh my gosh, Gail, it is the *exact*

same battle we had with our district last year- and those are the same

words I used- Ben is going to be a Fourth Grader at his school, not

an MH kid who goes to so and so's class over at this school. AAAUUGH. I

hate that shuffling- so many of our kids go through the same thing.

So keep us up to date about the machines. What all does Ted say? I forget

what you have mentioned before.

It was fun seeing his photo with Marley! Too cool at the pool!

Beth Mum to Ben age 11

<<Gail? We haven't heard much lately. You guys ok?>> Hi Beth!

You

always make me feel so included! THANKS! I kept your

post about your

birthdays then it got to be so late that I felt

funny by then to reply.

Happy Birthday to you and Ben!

I am gearing up for school again. I

don't know if you read the

down-syn list but I had posted about Ted

possibly getting an

Augmentative device and Joan had responded with some

very

valuable information. She is amazing! So I have been

researching

about that. I will talk to the SLP when she calls me tonight

and

ask her lots of questions. I haven't had a car for the last few

months

so life just takes a lot longer now.

<<a, you paint a great

picture of enjoying life. He always

sounds like he is having so

much fun.>> I enjoy reading everyone's posts but I do especially like

a's posts

about . Maybe because he is close in age to Ted?

I

had also posted about the SD moving the " unit " to a middle school and

I am

opposed to Ted having to go because he is a member of the " unit "

I want him

to go to his neighborhood school and get to go to 4th grade

there with his

friends that he is invited to their birthday parties and

such.

Why should

he be yanked away because he has Down syndrome? I just

don't get it. They

say he is an ungraded student and has no grade. They

divided the unit and

moved the " younger " children to another elementary

school and said they

wanted to share this population with the children

that

normally attend

their neighborhood school as it had previously been in my

neighborhood.

What are they? A traveling circus? Shouldn't they just

" share " them as

the chips fall? ie meaning where they naturally live???

I just don't get

it. Hope you are not sorry you asked as now you got an

earful. LOL

hugs,

Gail

[Guest guest]

thanks gail, im gld you are still here, you are very helpful, im still

learning many of the things nathan should be allowed to do and just starting

some of the fights, getting ready for the new school year as many parents

are now, nathan goes back on the 6th of august, and i geuss it will be his

new special ed teacher(remember we opted for a closed classroom this year

for his academic studies, all specials recess and lunch will stil be with

his peers)I am rather nervous about this new teacher, none of us have really

met her, an aid did briefly but just a hi im .... nothing else, i guess she

was still teaching somewhere else and just moved here this month. But for

the first two weeks nathan only goes for 40minutes every day, then usual

when school starts on the 21st. I want to change his IEP, they had been

doing +1 and -1 all last year, nathan understood more but not less yet, I

want them to continue with counting and math concepts but to work on

tellling time instead of addition and subtraction this fall, work up to

those later on. has been showing an interest in time lately and

actually understands concepts such as later, tomarrow, wait, morning and

night, and over the last few weeks has learned at 5oclock daddy comes home

and we get to eat supper, he is always rooting for pizza hut or mc

donalds,lol, " at 5clock " " ok? " holding up his five chubby fingers, so i feel

this would be a more successful goal for him. Then ofcourse continue with

the reading and the handwriting, he has been doing handwriting for years and

still cant write, he can peck type and spell some words and uses those

rubber stampers etc, just cant write, not even his name, i have some

catalogs coming from the " people " lol in des moines on assistive technology

and devices we can look through and see if any may be of help for him.

shawna

>From: gboughton@...

>Reply-

>

>Subject: Re: Etc.

>Date: Thu, 26 Jul 2001 16:03:23 -0400

>

>

><<Gail? We haven't heard much lately. You guys ok?>>

>

>Hi Beth!

>You always make me feel so included! THANKS! I kept your

>post about your birthdays then it got to be so late that I felt

>funny by then to reply. Happy Birthday to you and Ben!

>I am gearing up for school again. I don't know if you read the

>down-syn list but I had posted about Ted possibly getting an

>Augmentative device and Joan had responded with some very

>valuable information. She is amazing! So I have been researching

>about that. I will talk to the SLP when she calls me tonight and

>ask her lots of questions. I haven't had a car for the last few months

>so life just takes a lot longer now.

><<a, you paint a great picture of enjoying life. He always

>sounds like he is having so much fun.>>

>I enjoy reading everyone's posts but I do especially like a's posts

>about . Maybe because he is close in age to Ted?

>I had also posted about the SD moving the " unit " to a middle school and

>I am opposed to Ted having to go because he is a member of the " unit "

>I want him to go to his neighborhood school and get to go to 4th grade

>there with his friends that he is invited to their birthday parties and

>such.

>Why should he be yanked away because he has Down syndrome? I just

>don't get it. They say he is an ungraded student and has no grade. They

>

>divided the unit and moved the " younger " children to another elementary

>school and said they wanted to share this population with the children

>that

>normally attend their neighborhood school as it had previously been in my

>neighborhood. What are they? A traveling circus? Shouldn't they just

> " share " them as the chips fall? ie meaning where they naturally live???

>I just don't get it. Hope you are not sorry you asked as now you got an

>earful. LOL

>hugs,

>Gail

>

>

>

[Guest guest]

Hi Beth,

Sorry it took so long to reply. Here is some of what Joan said.

Ted was granted a wish to go to Disneyworld and we go in 2 days

so I will be going to no mail and talk to you all when we get back.

Gail

On Wed, 25 Jul 2001 12:24:03 -0400, Gail Boughton <gboughton@...>

wrote:

I am thinking a step beyond wants and needs and I am thinking

>it

>will benefit him in a more conversational way. To say something about

>what

>interests him or what he did at camp or home the day or week before that

>he

>can not articulated.

Indeed! That is, of course what should happen! " REquests " are a natural

first category of communicaiton and easiest to focus on when trying to

determine what is called " access " to the device. With the exception of

the

single-switch devices (and even they grow some), all AAC devices do more

than create a means for request. The limitations of what is programmed

lies

in the person doing the programming, not the device or Ted!

But if Ted can't make it work yet, then it's frustrating. That's the

tough

part. For instance, if he can maneuver a mouse and click it, you're not

out

of line considering some of the computer solutions like a freestyle mac

or

the other one that company makes (forgot the name of it--the company is

assistive technology inc...look them up in a google search). If he can

operate a mouse then speaking dynamically might work--they're like

computerized communication boards: you make selections by category groups

(food, jokes, math class, etc). But while this has a great deal of

communicative flexibility that we can see without a lot of creativity, it

also has limitations. Computers don't go to Mc's too well. So then

you ahve to consider portability.

That's why I don't understand the evaluator's lack of description

regarding

device. Here she is going to fill otu paper work. Will they buy something

compatible with TEd's learning styles and with Your HOME life? I have to

wonder if she hasn't alreay decided on something but hasn't said yet?

Anyway....you have to consider:

access: how the child will make it talk

language: what type of system will he use to make it talk (symbols,

words,

photos, etc)

type of voice: digitized speech (sounds like a tape recorder) or computer

generated speech (sounds like a Klingon)

portability: where will it go? Will it stay in the classroom or will he

carry it around?

Programming: who is going to program it? If YOU will be in charge over

the

years then make sure it's something easy to understand and not time

consuming--but that's true of staff too.

Training: Who will train folks in how to a) use the device, update the

device, c) do repair work, d) teach with the device?

All sorts of good stuff, eh?

Good luck!!!

(Feeling like I probably confused you more than helped)

Joan

On Thu, 26 Jul 2001 20:10:23 -0400 Beth <paul.3@...>

writes:

> Hey Gail

>

> Wow! Keep us posted about the augmentative devices! (Haven't you

> been

> worked uphill with the Cleveland ditstrict for like three years to

> get them

> to do this? Or am I confusing you with someone else?

>

> Also, I only read the DS list as a newsgroup, so I haven't seen the

> many

> posts (they don't all show up on the NG). If you don't mind sharing

> here,

> I would love to read your original post and Joan's response. I

> think it

> will be helpful to other people here as well- and a lot of folks

> only

> belong on this list.

>

> So far as the school placement stuff- oh my gosh, Gail, it is the

> *exact*

> same battle we had with our district last year- and those are the

> same

> words I used- Ben is going to be a Fourth Grader at his

> school, not

> an MH kid who goes to so and so's class over at this school.

> AAAUUGH. I

> hate that shuffling- so many of our kids go through the same thing.

>

> So keep us up to date about the machines. What all does Ted say? I

> forget

> what you have mentioned before.

>

> It was fun seeing his photo with Marley! Too cool at the pool!

>

> Beth Mum to Ben age 11

>

>

>

> <<Gail? We haven't heard much lately. You guys ok?>> Hi

> Beth!

> You

> always make me feel so included! THANKS! I kept your

> post about your

> birthdays then it got to be so late that I felt

> funny by then to reply.

> Happy Birthday to you and Ben!

> I am gearing up for school again. I

> don't know if you read the

> down-syn list but I had posted about Ted

> possibly getting an

> Augmentative device and Joan had responded with some

> very

> valuable information. She is amazing! So I have been

> researching

> about that. I will talk to the SLP when she calls me tonight

> and

> ask her lots of questions. I haven't had a car for the last few

> months

> so life just takes a lot longer now.

> <<a, you paint a great

> picture of enjoying life. He always

> sounds like he is having so

> much fun.>> I enjoy reading everyone's posts but I do especially

> like

> a's posts

> about . Maybe because he is close in age to Ted?

> I

> had also posted about the SD moving the " unit " to a middle school

> and

> I am

> opposed to Ted having to go because he is a member of the " unit "

> I want him

> to go to his neighborhood school and get to go to 4th grade

> there with his

> friends that he is invited to their birthday parties and

> such.

> Why should

> he be yanked away because he has Down syndrome? I just

> don't get it. They

> say he is an ungraded student and has no grade. They

>

> divided the unit and

> moved the " younger " children to another elementary

> school and said they

> wanted to share this population with the children

> that

> normally attend

> their neighborhood school as it had previously been in my

> neighborhood.

> What are they? A traveling circus? Shouldn't they just

> " share " them as

> the chips fall? ie meaning where they naturally live???

> I just don't get

> it. Hope you are not sorry you asked as now you got an

> earful. LOL

>

> hugs,

> Gail

>

>

>

>

>

>

>

[Guest guest]

That's right Bipley,

I agree with you totally!

Thanks,

Deb

> Com'on guys.... happier times, let's make some!

>

[Guest guest]

//I've seen a couple of really unfair posts here today and just my

opinion, but I think this is dead wrong.//

This board is supposed to be for everyone. What was unfair? You

should say what's on your mind.

I think this and another couple of emails is reason enough for me to

go back to my hole.

I am sorry to the newbie's that I can not give advise, suggestions or

my opinion as it seems to get the same 3 people upset and that is not

my intention. In an effort to keep the peace I shall keep my mouth

shut (but my eyes are still open).

7/18/05

280/180/140

[Guest guest]

Hi ,

You are so right on! This board is for everyone to be able to post!

Please don't be discouraged~Please post and help others~You are one

of the only 100# WEIGHT LOSS BANDSTERS that still post on here. Your

advise is priceless. We need your expert advise. You and M.

are such an inspiration to so many. M. where are you? You both

are the reason so many of us are successful. Please keep posting girl

we need you.

Thanks,

Deb

>

> This board is supposed to be for everyone. What was unfair? You

> should say what's on your mind.

>

>

> 7/18/05

> 280/180/140

>

[Guest guest]

I just wanted to add my perspective. I agree with that there is not enough

of an evidence base to describe acupuncture as an effective treatment for many

conditions, hypothyroidism included. I do think though that there is more to

acupuncture than just a placebo effect, as I explain below.

I think one thing that makes acupuncture unique from placebo treatments is that

the body provides immediate feedback to each needle being placed; there is not

just a nebulous experience of wellbeing or pain relief hours or days later

(though this certainly may occur as well). This feedback is a different

sensation than one would otherwise ever experience - sometimes like strong heat,

sometimes like electricity going up or down, sometimes an aching throb or even

cramping. Sometimes the sensation is felt in more than one part of the body and

it can last for several seconds to a couple of minutes. This is not the

sensation of the needle placement itself, which is virtually painless. A savvy

consumer of acupuncture will tell the clinician if they are not experiencing an

effect. For example, if I let my acupuncturist know that I'm not feeling

anything she will " wiggle " the needle until I experience one of the sensations

I've described above. Merely placing

needles alone is not always sufficient.

I've always thought that mapping nerves to acupuncture points might be a useful

way to understand why one experiences such strong and unusual sensations with

proper placement. My acupuncturist does not believe that she is targeting

specific nerves and would say that we are energetic beings, but I can't think of

a better explanation than the nervous system.