Hello: I am new with a few questions

March 7, 2011

I have been struggling with severe illness since 1997. Slowly over the past 3

years I have learned a lot. The books that I worship at the moment are " Breaking

the Vicious Cycle, " " Gut and Psychology Syndrom, " " Feeling Fat, Fuzzy or

Frazzled? " and " Amalgum Illness. " I have also been following Dr. Klinghardt, a

researcher dealing with Pyrrole & Lyme disease.

I have been diagnosed with

CFS & Fibromyalgia

Hypothyroid with antibodies

Kryptopyrrole: drains the body of vit/min disabling enzymes by binding to heavy

metals

High histamine

Adrenal exhaustion

Low B (likely from destroyed digestive tract)

Low Zinc

Severe malabsorption

Susceptibility to bad gut bacteria, viruses and parasites

Self-diagnosed susceptiblity to methylation blocks (Recovered via Freddds Vit B

protocol)

Will be testing for heavy metal toxicity soon due to the pyrrole disorder and

symptoms

The CFS/Fibro really doesn't fit. After I began the SCD diet, my debilitating

pain went away, my brain pain and functioning improved, my hypoglycemia

dissipated and slowly but surely I am digesting more food. I am still working my

way through SCD phase 3 and it's been 6 months so far - slower than average.

I am taking:

Compounded T4/T3 Thyroid 25/37.5 mcg

Cortisol 10 mg

Full basic vit/min

Essential Fatty Acids

L-glutamine

Methylation associated supplements

Kryptopyrrole associated supplements

Digestive Enzymes

On this protocol, I was still adrenally flat, one wrong word would leave me

bedbound. My hair was falling out again too after having been stable for a year

and my thyroid has been hurting the last few weeks. I ordered an endocrine test

from canaryclub.org that I will be taking on Friday.

I read " Feeling Fat, Fuzzy or Frazzled? " , a book that looks at the thyroid,

adrenals and sex hormones. Making changes to one of these can apparently lead to

changes in the others. I just added Immoplex Glandular (Adrenal, Pancreas,

Thymus, Spleen) 1x/day 2 weeks ago and within 24 hours of starting I began

feeling better than anytime I can remember. I am still messed up severely

though, this just shows how deep the pit is that I am climbing out of. The light

in the eye trick shows that my adrenals are still very bad off. I can't wait to

get my endocrine tests back to figure out my next step.

Is there anyone in this group that has been able to migrate from the pharma

drugs to over the counter glandulars, supplements and creams?

Are there others of you dealing with some of the same mult-faceted issues as me?

What have you done that has helped? I need to balance my endocrine system before

I can move on to the Andy Cutler protocol. Just curious if anyone has been able

to pull their endocrine system back into shape.

Thanks,

Jacki

March 8, 2011

Dear sister in sickness Jackie,

I have dealt with many of your issues and I continue to make progress...slow and

fairly steady. I made the best gains with a naturopath.

I am back at work and have only a little energy left to give in the evening, but

over time I would be will ing to support you and share what I have learned.

Joan

hypothyroidism

From: hello_jacki@...

Date: Mon, 7 Mar 2011 20:45:33 +0000

Subject: Hello: I am new with a few questions

I have been struggling with severe illness since 1997. Slowly over the

past 3 years I have learned a lot. The books that I worship at the moment are

" Breaking the Vicious Cycle, " " Gut and Psychology Syndrom, " " Feeling Fat, Fuzzy

or Frazzled? " and " Amalgum Illness. " I have also been following Dr. Klinghardt,

a researcher dealing with Pyrrole & Lyme disease.

I have been diagnosed with

CFS & Fibromyalgia

Hypothyroid with antibodies

Kryptopyrrole: drains the body of vit/min disabling enzymes by binding to heavy

metals

High histamine

Adrenal exhaustion

Low B (likely from destroyed digestive tract)

Low Zinc

Severe malabsorption

Susceptibility to bad gut bacteria, viruses and parasites

Self-diagnosed susceptiblity to methylation blocks (Recovered via Freddds Vit B

protocol)

Will be testing for heavy metal toxicity soon due to the pyrrole disorder and

symptoms

The CFS/Fibro really doesn't fit. After I began the SCD diet, my debilitating

pain went away, my brain pain and functioning improved, my hypoglycemia

dissipated and slowly but surely I am digesting more food. I am still working my

way through SCD phase 3 and it's been 6 months so far - slower than average.

I am taking:

Compounded T4/T3 Thyroid 25/37.5 mcg

Cortisol 10 mg

Full basic vit/min

Essential Fatty Acids

L-glutamine

Methylation associated supplements

Kryptopyrrole associated supplements

Digestive Enzymes

On this protocol, I was still adrenally flat, one wrong word would leave me

bedbound. My hair was falling out again too after having been stable for a year

and my thyroid has been hurting the last few weeks. I ordered an endocrine test

from canaryclub.org that I will be taking on Friday.

I read " Feeling Fat, Fuzzy or Frazzled? " , a book that looks at the thyroid,

adrenals and sex hormones. Making changes to one of these can apparently lead to

changes in the others. I just added Immoplex Glandular (Adrenal, Pancreas,

Thymus, Spleen) 1x/day 2 weeks ago and within 24 hours of starting I began

feeling better than anytime I can remember. I am still messed up severely

though, this just shows how deep the pit is that I am climbing out of. The light

in the eye trick shows that my adrenals are still very bad off. I can't wait to

get my endocrine tests back to figure out my next step.

Is there anyone in this group that has been able to migrate from the pharma

drugs to over the counter glandulars, supplements and creams?

Are there others of you dealing with some of the same mult-faceted issues as me?

What have you done that has helped? I need to balance my endocrine system before

I can move on to the Andy Cutler protocol. Just curious if anyone has been able

to pull their endocrine system back into shape.

Thanks,

Jacki

March 8, 2011

Jackik,

You wrote:

> I have been struggling with severe illness since 1997. ...

>

> I have been diagnosed with

> CFS & Fibromyalgia

> Hypothyroid with antibodies

> Kryptopyrrole: drains the body of vit/min disabling enzymes by binding

> to heavy metals

> High histamine

> Adrenal exhaustion

> Low B (likely from destroyed digestive tract)

> Low Zinc

> Severe malabsorption

> Susceptibility to bad gut bacteria, viruses and parasites

> Self-diagnosed susceptiblity to methylation blocks (Recovered via

> Freddds Vit B protocol)

> Will be testing for heavy metal toxicity soon due to the pyrrole

> disorder and symptoms

Many elements of this list could be traced to the thyroid alone, but you

seem to be on a relatively low dose of the T4/T3 combination. If your

antibodies are positive, how are you titrating or adjusting your dosage?

Chuck

March 8, 2011

Hi Chuck,

In the past, my dosage has been adjusted after taking a blood test (from what I

have read, this is not a good method). I have lost my Dr., she did 'ok' but I

must find another. My last blood test, in August, showed that my T4 was being

suppressed so she added Synthroid. My T3 became too high so we reduced my dose a

little bit. While searching for a new Dr., I am schooling myself on the

endocrine system and will be taking a Saliva 4x Cortisol, Pg, T, DS, E2 and

Blood Spot for TSH, fT3, fT4, TPO, LH, FSH. I don't know why they don't add rT3.

??

I certainly hope that all of my symptoms/issues are related to low thyroid! That

would make things easier for me to balance. I suspect that all of my issues

began due to the kryptopyrrole which would have affected my thyroid causing all

of those symptoms.

Thanks,

Jacki

> > I have been struggling with severe illness since 1997. ...

> >

> > I have been diagnosed with

> > CFS & Fibromyalgia

> > Hypothyroid with antibodies

> > Kryptopyrrole: drains the body of vit/min disabling enzymes by binding

> > to heavy metals

> > High histamine

> > Adrenal exhaustion

> > Low B (likely from destroyed digestive tract)

> > Low Zinc

> > Severe malabsorption

> > Susceptibility to bad gut bacteria, viruses and parasites

> > Self-diagnosed susceptiblity to methylation blocks (Recovered via

> > Freddds Vit B protocol)

> > Will be testing for heavy metal toxicity soon due to the pyrrole

> > disorder and symptoms

>

> Many elements of this list could be traced to the thyroid alone, but you

> seem to be on a relatively low dose of the T4/T3 combination. If your

> antibodies are positive, how are you titrating or adjusting your dosage?

>

> Chuck

>

March 8, 2011

Thank you, Joan!

If or whenever you are able, if there are books or recommendations on what to

learn/focus on/be aware of, etc., anything would be appreciated.

I will be moving from overseas to PA this summer and I found a Dr located there

that is well schooled on Andy Cutler's protocol which should fully involve

supporting the thyroid and adrenals. I need to speak with there office to get

more info first. I hope to get my body better balanced by then so that I will

be able to function at a new job.

For anyone,

Are there recommendations for endocrinologists or regular Dr.s in the

Philidelpia, PA or Cherry Hill, NJ area?

Thanks,

Jacki

>

> Dear sister in sickness Jackie,

>

> I have dealt with many of your issues and I continue to make progress...slow

and fairly steady. I made the best gains with a naturopath.

>

> I am back at work and have only a little energy left to give in the evening,

but over time I would be will ing to support you and share what I have learned.

>

> Joan

>

> hypothyroidism

> From: hello_jacki@...

> Date: Mon, 7 Mar 2011 20:45:33 +0000

> Subject: Hello: I am new with a few questions

>

> I have been struggling with severe illness since 1997. Slowly over the

past 3 years I have learned a lot. The books that I worship at the moment are

" Breaking the Vicious Cycle, " " Gut and Psychology Syndrom, " " Feeling Fat, Fuzzy

or Frazzled? " and " Amalgum Illness. " I have also been following Dr. Klinghardt,

a researcher dealing with Pyrrole & Lyme disease.

>

> I have been diagnosed with

>

> CFS & Fibromyalgia

>

> Hypothyroid with antibodies

>

> Kryptopyrrole: drains the body of vit/min disabling enzymes by binding to

heavy metals

>

> High histamine

>

> Adrenal exhaustion

>

> Low B (likely from destroyed digestive tract)

>

> Low Zinc

>

> Severe malabsorption

>

> Susceptibility to bad gut bacteria, viruses and parasites

>

> Self-diagnosed susceptiblity to methylation blocks (Recovered via Freddds Vit

B protocol)

>

> Will be testing for heavy metal toxicity soon due to the pyrrole disorder and

symptoms

>

> The CFS/Fibro really doesn't fit. After I began the SCD diet, my debilitating

pain went away, my brain pain and functioning improved, my hypoglycemia

dissipated and slowly but surely I am digesting more food. I am still working my

way through SCD phase 3 and it's been 6 months so far - slower than average.

>

> I am taking:

>

> Compounded T4/T3 Thyroid 25/37.5 mcg

>

> Cortisol 10 mg

>

> Full basic vit/min

>

> Essential Fatty Acids

>

> L-glutamine

>

> Methylation associated supplements

>

> Kryptopyrrole associated supplements

>

> Digestive Enzymes

>

> On this protocol, I was still adrenally flat, one wrong word would leave me

bedbound. My hair was falling out again too after having been stable for a year

and my thyroid has been hurting the last few weeks. I ordered an endocrine test

from canaryclub.org that I will be taking on Friday.

>

> I read " Feeling Fat, Fuzzy or Frazzled? " , a book that looks at the thyroid,

adrenals and sex hormones. Making changes to one of these can apparently lead to

changes in the others. I just added Immoplex Glandular (Adrenal, Pancreas,

Thymus, Spleen) 1x/day 2 weeks ago and within 24 hours of starting I began

feeling better than anytime I can remember. I am still messed up severely

though, this just shows how deep the pit is that I am climbing out of. The light

in the eye trick shows that my adrenals are still very bad off. I can't wait to

get my endocrine tests back to figure out my next step.

>

> Is there anyone in this group that has been able to migrate from the pharma

drugs to over the counter glandulars, supplements and creams?

>

> Are there others of you dealing with some of the same mult-faceted issues as

me? What have you done that has helped? I need to balance my endocrine system

before I can move on to the Andy Cutler protocol. Just curious if anyone has

been able to pull their endocrine system back into shape.

>

> Thanks,

>

> Jacki

>

March 8, 2011

Unfortunately there are no glandulars, supplements and creams that are

effective in treating hypothyroidism. Whatever benefit you see will not

exceed chance or placebo. When you have hypothyroidism your thyroid

gland does not produce enough T4/T3, which you have to have to live; so

you need to replace it.

The antibodies mean that you have Hashimoto's; and this means that your

thyroid output may vary all over the place until your thyroid gland is

destroyed. As the output varies your need for supplemental T4 or T3

will likewise vary.

I generally approach health care from the allopathic/scientific view to

whatever level I can [since I'm not a doctor or scientist]. So my

feeling is that you need professional help in getting to the bottom of

your issues. The greatest result you will notice from most of the

over-the-counter concoctions is the lightening of your wallet.

Luck,

..

> Posted by: " hello_jackik " hello_jacki@...

>

<mailto:hello_jacki@...?Subject=%20Re%3A%20Hello%3A%20I%20am%20new%20wit\

h%20a%20few%20questions>

> hello_jackik <hello_jackik>

>

> Mon Mar 7, 2011 4:05 pm (PST)

>

> I have been struggling with severe illness since 1997. Slowly over the

> past 3 years I have learned a lot. The books that I worship at the

> moment are " Breaking the Vicious Cycle, " " Gut and Psychology Syndrom, "

> " Feeling Fat, Fuzzy or Frazzled? " and " Amalgum Illness. " I have also

> been following Dr. Klinghardt, a researcher dealing with Pyrrole &

> Lyme disease.

>

> I have been diagnosed with

> CFS & Fibromyalgia

> Hypothyroid with antibodies

> Kryptopyrrole: drains the body of vit/min disabling enzymes by binding

> to heavy metals

> High histamine

> Adrenal exhaustion

> Low B (likely from destroyed digestive tract)

> Low Zinc

> Severe malabsorption

> Susceptibility to bad gut bacteria, viruses and parasites

> Self-diagnosed susceptiblity to methylation blocks (Recovered via

> Freddds Vit B protocol)

> Will be testing for heavy metal toxicity soon due to the pyrrole

> disorder and symptoms

>

> The CFS/Fibro really doesn't fit. After I began the SCD diet, my

> debilitating pain went away, my brain pain and functioning improved,

> my hypoglycemia dissipated and slowly but surely I am digesting more

> food. I am still working my way through SCD phase 3 and it's been 6

> months so far - slower than average.

>

> I am taking:

> Compounded T4/T3 Thyroid 25/37.5 mcg

> Cortisol 10 mg

> Full basic vit/min

> Essential Fatty Acids

> L-glutamine

> Methylation associated supplements

> Kryptopyrrole associated supplements

> Digestive Enzymes

>

> On this protocol, I was still adrenally flat, one wrong word would

> leave me bedbound. My hair was falling out again too after having been

> stable for a year and my thyroid has been hurting the last few weeks.

> I ordered an endocrine test from canaryclub.org that I will be taking

> on Friday.

>

> I read " Feeling Fat, Fuzzy or Frazzled? " , a book that looks at the

> thyroid, adrenals and sex hormones. Making changes to one of these can

> apparently lead to changes in the others. I just added Immoplex

> Glandular (Adrenal, Pancreas, Thymus, Spleen) 1x/day 2 weeks ago and

> within 24 hours of starting I began feeling better than anytime I can

> remember. I am still messed up severely though, this just shows how

> deep the pit is that I am climbing out of. The light in the eye trick

> shows that my adrenals are still very bad off. I can't wait to get my

> endocrine tests back to figure out my next step.

>

> Is there anyone in this group that has been able to migrate from the

> pharma drugs to over the counter glandulars, supplements and creams?

>

> Are there others of you dealing with some of the same mult-faceted

> issues as me? What have you done that has helped? I need to balance my

> endocrine system before I can move on to the Andy Cutler protocol.

> Just curious if anyone has been able to pull their endocrine system

> back into shape.

>

> Thanks,

> Jacki

March 8, 2011

Here are some starting points. Make sure on the 'phone when you call that the

doctor handles your problems and is open minded as far as therapies are

concerned.

http://www.thyroid-info.com/topdrs/pennsylvania.htm

<>Roni

Immortality exists!

It's called knowledge!

Just because something isn't seen

doesn't mean it's not there<>

From: hello_jackik <hello_jacki@...>

Subject: Re: Hello: I am new with a few questions

hypothyroidism

Date: Tuesday, March 8, 2011, 3:09 AM

Thank you, Joan!

If or whenever you are able, if there are books or recommendations on what to

learn/focus on/be aware of, etc., anything would be appreciated.

I will be moving from overseas to PA this summer and I found a Dr located there

that is well schooled on Andy Cutler's protocol which should fully involve

supporting the thyroid and adrenals. I need to speak with there office to get

more info first. I hope to get my body better balanced by then so that I will

be able to function at a new job.

For anyone,

Are there recommendations for endocrinologists or regular Dr.s in the

Philidelpia, PA or Cherry Hill, NJ area?

Thanks,

Jacki

>

> Dear sister in sickness Jackie,

>

> I have dealt with many of your issues and I continue to make progress...slow

and fairly steady. I made the best gains with a naturopath.

>

> I am back at work and have only a little energy left to give in the evening,

but over time I would be will ing to support you and share what I have learned.

>

> Joan

>

> hypothyroidism

> From: hello_jacki@...

> Date: Mon, 7 Mar 2011 20:45:33 +0000

> Subject: Hello: I am new with a few questions

>

> I have been struggling with severe illness since 1997. Slowly over the

past 3 years I have learned a lot. The books that I worship at the moment are

" Breaking the Vicious Cycle, " " Gut and Psychology Syndrom, " " Feeling Fat, Fuzzy

or Frazzled? " and " Amalgum Illness. " I have also been following Dr. Klinghardt,

a researcher dealing with Pyrrole & Lyme disease.

>

> I have been diagnosed with

>

> CFS & Fibromyalgia

>

> Hypothyroid with antibodies

>

> Kryptopyrrole: drains the body of vit/min disabling enzymes by binding to

heavy metals

>

> High histamine

>

> Adrenal exhaustion

>

> Low B (likely from destroyed digestive tract)

>

> Low Zinc

>

> Severe malabsorption

>

> Susceptibility to bad gut bacteria, viruses and parasites

>

> Self-diagnosed susceptiblity to methylation blocks (Recovered via Freddds Vit

B protocol)

>

> Will be testing for heavy metal toxicity soon due to the pyrrole disorder and

symptoms

>

> The CFS/Fibro really doesn't fit. After I began the SCD diet, my debilitating

pain went away, my brain pain and functioning improved, my hypoglycemia

dissipated and slowly but surely I am digesting more food. I am still working my

way through SCD phase 3 and it's been 6 months so far - slower than average.

>

> I am taking:

>

> Compounded T4/T3 Thyroid 25/37.5 mcg

>

> Cortisol 10 mg

>

> Full basic vit/min

>

> Essential Fatty Acids

>

> L-glutamine

>

> Methylation associated supplements

>

> Kryptopyrrole associated supplements

>

> Digestive Enzymes

>

> On this protocol, I was still adrenally flat, one wrong word would leave me

bedbound. My hair was falling out again too after having been stable for a year

and my thyroid has been hurting the last few weeks. I ordered an endocrine test

from canaryclub.org that I will be taking on Friday.

>

> I read " Feeling Fat, Fuzzy or Frazzled? " , a book that looks at the thyroid,

adrenals and sex hormones. Making changes to one of these can apparently lead to

changes in the others. I just added Immoplex Glandular (Adrenal, Pancreas,

Thymus, Spleen) 1x/day 2 weeks ago and within 24 hours of starting I began

feeling better than anytime I can remember. I am still messed up severely

though, this just shows how deep the pit is that I am climbing out of. The light

in the eye trick shows that my adrenals are still very bad off. I can't wait to

get my endocrine tests back to figure out my next step.

>

> Is there anyone in this group that has been able to migrate from the pharma

drugs to over the counter glandulars, supplements and creams?

>

> Are there others of you dealing with some of the same mult-faceted issues as

me? What have you done that has helped? I need to balance my endocrine system

before I can move on to the Andy Cutler protocol. Just curious if anyone has

been able to pull their endocrine system back into shape.

>

> Thanks,

>

> Jacki

>

March 8, 2011

Your list of illnesses tells me that your thyroid needs to be corrected first. I

would definitely have your RT3 checked, because if your body is not converting

the T4 properly, it doesn't much matter what you're supplement with. It happened

to me and I had to change to a T3 only protocol, and I do feel much better. You

have many things that need actual medical testing, and I am a person that uses

both types of medicine. My Rheumatologist checked me for most of the things you

mentioned below, and when the RT3 was checked it was very clear that was the

culprit. I have Fibro too, arthritis, and several other things. I am very

chemically sensitive, so most of my " medications " are actually vitamins,

mineral, enzymes, hormones and herbs. I am lucky to have a cardiologist who will

rx these things for me. They have accepted the reality that not all people can

thrive on pharmaceutical chemicals.

I think that is the kind of doctor you need to find, a medical doctor who also

uses complementary medicine where appropriate. If you look for this up front you

could save yourself a lot of time and

agony.

Good luck to you.

Roni