Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 I would venture to say that it is because we are not all the same, and each one's body has it's own particular quirks. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: <res075oh@...> Subject: Re: Hair Loss hypothyroidism Date: Saturday, April 16, 2011, 8:03 AM Levothyroxin is IIRC a generic of Synthroid, which is the name brand. Both are T4. Some form of T4 is what is prescribed for the vast majority of hypothyroid patients. Your thyroid gland makes T4 when it is functioning properly; it also produces T3 but I suspect it breaks some of the T4 down into T3. T4 is also broken down to T3 in other parts of your body [liver?], as T3 is what your cells actually use. Nearly everybody has either natural or artificial T4 in their bodies so if it causes massive hair loss I don't see why we aren't all bald... Luck, .. .. > Posted by: " Barbara Mackie " macbarb0503@... > <mailto:macbarb0503@...?Subject=%20Re%3A%20Hair%20Loss> > westieabbey <westieabbey> > > > Fri Apr 15, 2011 6:18 am (PDT) > > > > " Does anyone have any tips for dealing with hair loss? I seem to have lost > about half my hair in the last six months. My doc said hair loss reflects > what your body was going through about three months prior and didn't > seemed > concerned since my TSH was crazy for awhile, but I just seem to keep > losing > hair even though my TSH is better now. Please advise, thank you! " > * > I don't know what you're taking, but a listed side effect of > Levothyroxin is > hair loss. When I asked my doctor if there was something else I could > take, > he said the only other medication he could prescribe is Synthoid, and it's > basically the same thing as Levothyroxin. I don't know if that's true or > not, but since my hair is still falling out eight months after diagnosis, > I'd like an answer too. > > Thanks, > Barb ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 At this point, if it was me, I would first try to take T3 only, and start at 5 mcg as it states and increase 5 mcg every two weeks. Check out these sites. http://www.drugs.com/cons/cytomel.html http://www.drugs.com/pro/liothyronine.html The first is about the brand name drug called Cytomel and the second about the generic drug itself called liothyronine. Roni <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> " Levothyroxin is IIRC a generic of Synthroid, which is the name brand. Both are T4. Some form of T4 is what is prescribed for the vast majority of hypothyroid patients. " Thanks for the clarification . I just wish I could get my doctor to do testing to see if my body is converting properly. I requested a full thyroid panel. He still only tested for TSH, T4, and free T3. I think I have that right, but haven't picked up the paperwork yet. He wouldn't test Reverse T3. When I asked for an anti-body test, he said I didn't need that unless I had Hashimoto's. I told him I do have Hashimoto's, and he said it doesn't affect management. I'm posting the following because if anyone is diagnosed with thyroid disease, and your doctor tells you to stop taking your medicine, it might not be a good idea. My internist and endo are the doctors who said they didn't care to know I had Hashimoto's because even though it's an autoimmune disease, it's treated the same as the condition of under-active thyroid. At the time I was told to stop taking the medication, they didn't know I had it. I stopped taking Levothyroxin for about six weeks. After being sent for a chest x-ray to check for lung cancer, a CAT scan to look for a blocked duct, an ENT, and two dermatologists, I finally went to a cosmetic surgeon who told me the puffed up areas on the sides and front of my neck, and over my cheekbones, were caused by my thyroid being so " out of whack " that everything under there was shifting around. Those are his words, not mine. He also said they're not going away. It is spongy tissue between the layers of skin that collects moisture, so it will always be this way. Since no doctor could tell me what this was, and they kept sending me for more tests and making me wonder if I had another disease, I had given up on ever getting an answer. Before I went to the cosmetic surgeon and asked him if what I have is Malar Pads, I was pretty sure that's what it was, after researching it on the Internet. Some are caused from fat under the skin, and others are crescents caused by sagging skin. Mine are not fat or sagging. They're not caused by aging, but from uncontrolled thyroid disease. They appeared overnight. One day they weren't there, and the next day they were. I didn't even have to ask what caused them, as soon as he confirmed that's what it is, he explained why I got them. Since there is no way to get rid of them, I don't know what to do. I don't want to go anywhere looking like this. The lump on my neck was bad enough. A facial cosmetic surgeon told me a face lift will reposition them so they aren't noticeable. Another implied it won't make that much difference. I read about a doctor in Las Vegas who removes them surgically, but of course there are scars left on the cheeks. That might be better, because they could be less noticeable with makeup. There is no way to hide what I have now. The problem is I can't find a doctor around here who would consider removing them surgically. Also, my doctor refused to recommend the double board certified facial cosmetic surgeon I thought would be best qualified, if I decide to have surgery, and won't tell me why. He's recommending general cosmetic surgeons who do all types of cosmetic procedures, not just faces. I checked a couple of sites to investigate doctors, but couldn't find any of the cosmetic surgeons around here on them. I have no idea how to find out what doctor would be best qualified to do surgery, if I decide to have it. Another concern is I still don't know if the thyroid is under control because I got these symptoms five and six months after being diagnosed. They appeared during the time my endo told me to stop taking the medication because " maybe I didn't really have this. " He thought I might not, since my symptoms weren't consistent with the diagnosis. He thought maybe the lab report was wrong, and instead of ordering more tests, he discontinued the medicine. Around that time, I also had an upper respiratory infection. I asked my doctor this week how, if my thyroid was under control, could I develop the enlarged thyroid three months after diagnosis, the swelling around the neck at five months, and the pads on my face at six months. He said he didn't know. I've been looking for another doctor, but am having trouble finding one who will take new patients. Anyway, I'm grateful to have found a doctor who told me the truth, and very relieved to know it's not another disease. I apologize because this is all minor compared to the medical problems some here are coping with. However, when you live alone and don't want to go anywhere, because you hate what you see in the mirror, it's not healthy. I love people, going out, and socializing. If I don't find a solution to this I may become a hermit, and I definitely don't want to do that. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 Barbara, You wrote: > ... a listed side effect of Levothyroxin is hair loss. When I asked my doctor if there was something else I could take, > he said the only other medication he could prescribe is Synthoid, and it's > basically the same thing as Levothyroxin. I don't know if that's true or > not, The identification is true, but most of the usually listed side effects of T4 are actually symptoms of an incorrect dose. Get the titration correct, and you are likely to fix the hair loss, which can occur with either too much or too little of the T4. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 Thank you Roni and everyone. I started losing hair when I started on Armour after being on Synthroid, so maybe that's the reason. Also I did have very low iron, but have been taking 3 pills of 25 mg of chelated iron each day since August. I haven't been able to have my iron or thyroid levels checked recently though, since I lost my job in January. > > > > > > > Does anyone have any tips for dealing with hair loss? I seem to have lost > > about half my hair in the last six months. My doc said hair loss reflects > > what your body was going through about three months prior and didn't seemed > > concerned since my TSH was crazy for awhile, but I just seem to keep losing > > hair even though my TSH is better now. Please advise, thank you! > > > > > > > > > > -- > *Barb* > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 Hi, Barb. I'm glad I could help a little. But I must admit I'll be of no help with the cosmetic issues. Having swelling or whatever on your cheeks from a thyroid problem is news to me. It does appear to me that there is some kind of problem with your doctors; communication or otherwise. Your thyroid doctor IMHO emphatically should know if you have Hashimoto's because if you do the illness can wax and wan and when it does your natural production of T4 can go up and down. So you can be driven hypErthyroid by the same dose of T4 that you normally take during a time when your T4 output is high. And then when your production of T4 bottoms out you aren't getting enough. So your dose may need to be varied to accommodate the " Hashimoto's roller-coaster " . Best of luck, .. .. > Posted by: " Barbara Mackie " macbarb0503@... > <mailto:macbarb0503@...?Subject=%20Re%3A%20Hair%20Loss> > westieabbey <westieabbey> > > > Sat Apr 16, 2011 9:47 am (PDT) > > > > On Sat, Apr 16, 2011 at 11:03 AM, <res075oh@... > <mailto:res075oh%40verizon.net>> wrote: > > " Levothyroxin is IIRC a generic of Synthroid, which is the name brand. > Both are T4. Some form of T4 is what is prescribed for the vast > majority of hypothyroid patients. " > > Thanks for the clarification . I just wish I could get my doctor > to do > testing to see if my body is converting properly. I requested a full > thyroid panel. He still only tested for TSH, T4, and free T3. I think I > have that right, but haven't picked up the paperwork yet. He wouldn't test > Reverse T3. When I asked for an anti-body test, he said I didn't need that > unless I had Hashimoto's. I told him I do have Hashimoto's, and he said it > doesn't affect management. > > I'm posting the following because if anyone is diagnosed with thyroid > disease, and your doctor tells you to stop taking your medicine, it might > not be a good idea. My internist and endo are the doctors who said they > didn't care to know I had Hashimoto's because even though it's an > autoimmune > disease, it's treated the same as the condition of under-active > thyroid. At > the time I was told to stop taking the medication, they didn't know I had > it. I stopped taking Levothyroxin for about six weeks. > > After being sent for a chest x-ray to check for lung cancer, a CAT scan to > look for a blocked duct, an ENT, and two dermatologists, I finally > went to a > cosmetic surgeon who told me the puffed up areas on the sides and front of > my neck, and over my cheekbones, were caused by my thyroid being so > " out of > whack " that everything under there was shifting around. Those are his > words, not mine. He also said they're not going away. It is spongy tissue > between the layers of skin that collects moisture, so it will always > be this > way. Since no doctor could tell me what this was, and they kept sending me > for more tests and making me wonder if I had another disease, I had > given up > on ever getting an answer. > > Before I went to the cosmetic surgeon and asked him if what I have is > Malar > Pads, I was pretty sure that's what it was, after researching it on the > Internet. Some are caused from fat under the skin, and others are > crescents > caused by sagging skin. Mine are not fat or sagging. They're not caused by > aging, but from uncontrolled thyroid disease. They appeared overnight. One > day they weren't there, and the next day they were. I didn't even have to > ask what caused them, as soon as he confirmed that's what it is, he > explained why I got them. > > Since there is no way to get rid of them, I don't know what to do. I don't > want to go anywhere looking like this. The lump on my neck was bad enough. > A facial cosmetic surgeon told me a face lift will reposition them so they > aren't noticeable. Another implied it won't make that much difference. I > read about a doctor in Las Vegas who removes them surgically, but of > course > there are scars left on the cheeks. That might be better, because they > could be less noticeable with makeup. There is no way to hide what I have > now. The problem is I can't find a doctor around here who would consider > removing them surgically. Also, my doctor refused to recommend the double > board certified facial cosmetic surgeon I thought would be best qualified, > if I decide to have surgery, and won't tell me why. He's recommending > general cosmetic surgeons who do all types of cosmetic procedures, not > just > faces. I checked a couple of sites to investigate doctors, but couldn't > find any of the cosmetic surgeons around here on them. I have no idea how > to find out what doctor would be best qualified to do surgery, if I decide > to have it. > > Another concern is I still don't know if the thyroid is under control > because I got these symptoms five and six months after being diagnosed. > They appeared during the time my endo told me to stop taking the > medication > because " maybe I didn't really have this. " He thought I might not, > since my > symptoms weren't consistent with the diagnosis. He thought maybe the lab > report was wrong, and instead of ordering more tests, he discontinued the > medicine. Around that time, I also had an upper respiratory infection. I > asked my doctor this week how, if my thyroid was under control, could I > develop the enlarged thyroid three months after diagnosis, the swelling > around the neck at five months, and the pads on my face at six months. He > said he didn't know. I've been looking for another doctor, but am having > trouble finding one who will take new patients. > > Anyway, I'm grateful to have found a doctor who told me the truth, and > very > relieved to know it's not another disease. I apologize because this is all > minor compared to the medical problems some here are coping with. However, > when you live alone and don't want to go anywhere, because you hate > what you > see in the mirror, it's not healthy. I love people, going out, and > socializing. If I don't find a solution to this I may become a hermit, and > I definitely don't want to do that. > > Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 Be really careful with the iron. If you are past menopause, there is no way for your body to get rid of the iron at all, except by blood removal. Too much iron can be very bad for your heart if you are not menstruating. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: mihok456 <mihok456@...> Subject: Re: Hair Loss hypothyroidism Date: Sunday, April 17, 2011, 9:09 AM Thank you Roni and everyone. I started losing hair when I started on Armour after being on Synthroid, so maybe that's the reason. Also I did have very low iron, but have been taking 3 pills of 25 mg of chelated iron each day since August. I haven't been able to have my iron or thyroid levels checked recently though, since I lost my job in January. > > > > > > > Does anyone have any tips for dealing with hair loss? I seem to have lost > > about half my hair in the last six months. My doc said hair loss reflects > > what your body was going through about three months prior and didn't seemed > > concerned since my TSH was crazy for awhile, but I just seem to keep losing > > hair even though my TSH is better now. Please advise, thank you! > > > > > > > > > > -- > *Barb* > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Thanks Roni. I will try to have it checked again. I do still have very heavy periods, though. > > > > > > > > > > > Does anyone have any tips for dealing with hair loss? I seem to have lost > > > about half my hair in the last six months. My doc said hair loss reflects > > > what your body was going through about three months prior and didn't seemed > > > concerned since my TSH was crazy for awhile, but I just seem to keep losing > > > hair even though my TSH is better now. Please advise, thank you! > > > > > > > > > > > > > > > > > -- > > *Barb* > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 If you're having heavy periods you're probably not too high. It's good to have it checked anyway. I was referring to people men, and women after menopause. <>Roni Immortality exists! It's called knowledge! Just because something isn't seen doesn't mean it's not there<> From: mihok456 <mihok456@...> Subject: Re: Hair Loss hypothyroidism Date: Monday, April 18, 2011, 6:34 AM Thanks Roni. I will try to have it checked again. I do still have very heavy periods, though. > > > > > > > > > > > Does anyone have any tips for dealing with hair loss? I seem to have lost > > > about half my hair in the last six months. My doc said hair loss reflects > > > what your body was going through about three months prior and didn't seemed > > > concerned since my TSH was crazy for awhile, but I just seem to keep losing > > > hair even though my TSH is better now. Please advise, thank you! > > > > > > > > > > > > > > > > > -- > > *Barb* > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2011 Report Share Posted April 21, 2011 For hair loss, try saw palmetto. Sent from my iPod On Apr 17, 2011, at 1:53 AM, hypothyroidism wrote: Hypothyroidism = Too Little Hormone Alt. Messages In This Digest (6 Messages) 1.1. Re: Hair Loss From: 1.2. Re: Hair Loss From: Barbara Mackie 1.3. Re: Hair Loss From: Trish 1.4. Re: Hair Loss From: Roni Molin 1.5. Re: Hair Loss From: Roni Molin 1.6. Re: Hair Loss From: gumboyaya@... View All Topics | Create New Topic Messages 1.1. Re: Hair Loss Posted by: " " res075oh@... jamesl33511 Sat Apr 16, 2011 8:03 am (PDT) Levothyroxin is IIRC a generic of Synthroid, which is the name brand. Both are T4. Some form of T4 is what is prescribed for the vast majority of hypothyroid patients. Your thyroid gland makes T4 when it is functioning properly; it also produces T3 but I suspect it breaks some of the T4 down into T3. T4 is also broken down to T3 in other parts of your body [liver?], as T3 is what your cells actually use. Nearly everybody has either natural or artificial T4 in their bodies so if it causes massive hair loss I don't see why we aren't all bald... Luck, .. .. > Posted by: " Barbara Mackie " macbarb0503@... > <mailto:macbarb0503@...?Subject=%20Re%3A%20Hair%20Loss> > westieabbey <westieabbey> > > > Fri Apr 15, 2011 6:18 am (PDT) > > > > " Does anyone have any tips for dealing with hair loss? I seem to have lost > about half my hair in the last six months. My doc said hair loss reflects > what your body was going through about three months prior and didn't > seemed > concerned since my TSH was crazy for awhile, but I just seem to keep > losing > hair even though my TSH is better now. Please advise, thank you! " > * > I don't know what you're taking, but a listed side effect of > Levothyroxin is > hair loss. When I asked my doctor if there was something else I could > take, > he said the only other medication he could prescribe is Synthoid, and it's > basically the same thing as Levothyroxin. I don't know if that's true or > not, but since my hair is still falling out eight months after diagnosis, > I'd like an answer too. > > Thanks, > Barb Back to top Reply to sender | Reply to group | Reply via web post Messages in this topic (35) 1.2. Re: Hair Loss Posted by: " Barbara Mackie " macbarb0503@... westieabbey Sat Apr 16, 2011 9:47 am (PDT) On Sat, Apr 16, 2011 at 11:03 AM, <res075oh@...> wrote: " Levothyroxin is IIRC a generic of Synthroid, which is the name brand. Both are T4. Some form of T4 is what is prescribed for the vast majority of hypothyroid patients. " Thanks for the clarification . I just wish I could get my doctor to do testing to see if my body is converting properly. I requested a full thyroid panel. He still only tested for TSH, T4, and free T3. I think I have that right, but haven't picked up the paperwork yet. He wouldn't test Reverse T3. When I asked for an anti-body test, he said I didn't need that unless I had Hashimoto's. I told him I do have Hashimoto's, and he said it doesn't affect management. I'm posting the following because if anyone is diagnosed with thyroid disease, and your doctor tells you to stop taking your medicine, it might not be a good idea. My internist and endo are the doctors who said they didn't care to know I had Hashimoto's because even though it's an autoimmune disease, it's treated the same as the condition of under-active thyroid. At the time I was told to stop taking the medication, they didn't know I had it. I stopped taking Levothyroxin for about six weeks. After being sent for a chest x-ray to check for lung cancer, a CAT scan to look for a blocked duct, an ENT, and two dermatologists, I finally went to a cosmetic surgeon who told me the puffed up areas on the sides and front of my neck, and over my cheekbones, were caused by my thyroid being so " out of whack " that everything under there was shifting around. Those are his words, not mine. He also said they're not going away. It is spongy tissue between the layers of skin that collects moisture, so it will always be this way. Since no doctor could tell me what this was, and they kept sending me for more tests and making me wonder if I had another disease, I had given up on ever getting an answer. Before I went to the cosmetic surgeon and asked him if what I have is Malar Pads, I was pretty sure that's what it was, after researching it on the Internet. Some are caused from fat under the skin, and others are crescents caused by sagging skin. Mine are not fat or sagging. They're not caused by aging, but from uncontrolled thyroid disease. They appeared overnight. One day they weren't there, and the next day they were. I didn't even have to ask what caused them, as soon as he confirmed that's what it is, he explained why I got them. Since there is no way to get rid of them, I don't know what to do. I don't want to go anywhere looking like this. The lump on my neck was bad enough. A facial cosmetic surgeon told me a face lift will reposition them so they aren't noticeable. Another implied it won't make that much difference. I read about a doctor in Las Vegas who removes them surgically, but of course there are scars left on the cheeks. That might be better, because they could be less noticeable with makeup. There is no way to hide what I have now. The problem is I can't find a doctor around here who would consider removing them surgically. Also, my doctor refused to recommend the double board certified facial cosmetic surgeon I thought would be best qualified, if I decide to have surgery, and won't tell me why. He's recommending general cosmetic surgeons who do all types of cosmetic procedures, not just faces. I checked a couple of sites to investigate doctors, but couldn't find any of the cosmetic surgeons around here on them. I have no idea how to find out what doctor would be best qualified to do surgery, if I decide to have it. Another concern is I still don't know if the thyroid is under control because I got these symptoms five and six months after being diagnosed. They appeared during the time my endo told me to stop taking the medication because " maybe I didn't really have this. " He thought I might not, since my symptoms weren't consistent with the diagnosis. He thought maybe the lab report was wrong, and instead of ordering more tests, he discontinued the medicine. Around that time, I also had an upper respiratory infection. I asked my doctor this week how, if my thyroid was under control, could I develop the enlarged thyroid three months after diagnosis, the swelling around the neck at five months, and the pads on my face at six months. He said he didn't know. I've been looking for another doctor, but am having trouble finding one who will take new patients. Anyway, I'm grateful to have found a doctor who told me the truth, and very relieved to know it's not another disease. I apologize because this is all minor compared to the medical problems some here are coping with. However, when you live alone and don't want to go anywhere, because you hate what you see in the mirror, it's not healthy. I love people, going out, and socializing. If I don't find a solution to this I may become a hermit, and I definitely don't want to do that. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 What is saw palmetto? Thanks On Fri, Apr 22, 2011 at 12:17 AM, Ciozda <pciozda@...> wrote: > > > For hair loss, try saw palmetto. > > Sent from my iPod > > On Apr 17, 2011, at 1:53 AM, hypothyroidism wrote: > > Hypothyroidism = Too Little Hormone Alt. > Messages In This Digest (6 Messages) > 1.1. > Re: Hair Loss From: > 1.2. > Re: Hair Loss From: Barbara Mackie > 1.3. > Re: Hair Loss From: Trish > 1.4. > Re: Hair Loss From: Roni Molin > 1.5. > Re: Hair Loss From: Roni Molin > 1.6. > Re: Hair Loss From: gumboyaya@... > View All Topics | Create New Topic Messages > 1.1. > Re: Hair Loss > Posted by: " " res075oh@... jamesl33511 > Sat Apr 16, 2011 8:03 am (PDT) > > Levothyroxin is IIRC a generic of Synthroid, which is the name brand. > Both are T4. Some form of T4 is what is prescribed for the vast > majority of hypothyroid patients. Your thyroid gland makes T4 when it > is functioning properly; it also produces T3 but I suspect it breaks > some of the T4 down into T3. T4 is also broken down to T3 in other > parts of your body [liver?], as T3 is what your cells actually use. > > Nearly everybody has either natural or artificial T4 in their bodies so > if it causes massive hair loss I don't see why we aren't all bald... > > Luck, > > . > . > > > Posted by: " Barbara Mackie " macbarb0503@... > > <mailto:macbarb0503@...?Subject=%20Re%3A%20Hair%20Loss> > > westieabbey <westieabbey> > > > > > > Fri Apr 15, 2011 6:18 am (PDT) > > > > > > > > " Does anyone have any tips for dealing with hair loss? I seem to have > lost > > about half my hair in the last six months. My doc said hair loss reflects > > what your body was going through about three months prior and didn't > > seemed > > concerned since my TSH was crazy for awhile, but I just seem to keep > > losing > > hair even though my TSH is better now. Please advise, thank you! " > > * > > I don't know what you're taking, but a listed side effect of > > Levothyroxin is > > hair loss. When I asked my doctor if there was something else I could > > take, > > he said the only other medication he could prescribe is Synthoid, and > it's > > basically the same thing as Levothyroxin. I don't know if that's true or > > not, but since my hair is still falling out eight months after diagnosis, > > I'd like an answer too. > > > > Thanks, > > Barb > > Back to top Reply to sender | Reply to group | Reply via web post > Messages in this topic (35) > 1.2. > Re: Hair Loss > Posted by: " Barbara Mackie " macbarb0503@... westieabbey > Sat Apr 16, 2011 9:47 am (PDT) > > On Sat, Apr 16, 2011 at 11:03 AM, <res075oh@...> wrote: > > " Levothyroxin is IIRC a generic of Synthroid, which is the name brand. > Both are T4. Some form of T4 is what is prescribed for the vast > majority of hypothyroid patients. " > > Thanks for the clarification . I just wish I could get my doctor to do > testing to see if my body is converting properly. I requested a full > thyroid panel. He still only tested for TSH, T4, and free T3. I think I > have that right, but haven't picked up the paperwork yet. He wouldn't test > Reverse T3. When I asked for an anti-body test, he said I didn't need that > unless I had Hashimoto's. I told him I do have Hashimoto's, and he said it > doesn't affect management. > > I'm posting the following because if anyone is diagnosed with thyroid > disease, and your doctor tells you to stop taking your medicine, it might > not be a good idea. My internist and endo are the doctors who said they > didn't care to know I had Hashimoto's because even though it's an > autoimmune > disease, it's treated the same as the condition of under-active thyroid. At > the time I was told to stop taking the medication, they didn't know I had > it. I stopped taking Levothyroxin for about six weeks. > > After being sent for a chest x-ray to check for lung cancer, a CAT scan to > look for a blocked duct, an ENT, and two dermatologists, I finally went to > a > cosmetic surgeon who told me the puffed up areas on the sides and front of > my neck, and over my cheekbones, were caused by my thyroid being so " out of > whack " that everything under there was shifting around. Those are his > words, not mine. He also said they're not going away. It is spongy tissue > between the layers of skin that collects moisture, so it will always be > this > way. Since no doctor could tell me what this was, and they kept sending me > for more tests and making me wonder if I had another disease, I had given > up > on ever getting an answer. > > Before I went to the cosmetic surgeon and asked him if what I have is Malar > Pads, I was pretty sure that's what it was, after researching it on the > Internet. Some are caused from fat under the skin, and others are crescents > caused by sagging skin. Mine are not fat or sagging. They're not caused by > aging, but from uncontrolled thyroid disease. They appeared overnight. One > day they weren't there, and the next day they were. I didn't even have to > ask what caused them, as soon as he confirmed that's what it is, he > explained why I got them. > > Since there is no way to get rid of them, I don't know what to do. I don't > want to go anywhere looking like this. The lump on my neck was bad enough. > A facial cosmetic surgeon told me a face lift will reposition them so they > aren't noticeable. Another implied it won't make that much difference. I > read about a doctor in Las Vegas who removes them surgically, but of course > there are scars left on the cheeks. That might be better, because they > could be less noticeable with makeup. There is no way to hide what I have > now. The problem is I can't find a doctor around here who would consider > removing them surgically. Also, my doctor refused to recommend the double > board certified facial cosmetic surgeon I thought would be best qualified, > if I decide to have surgery, and won't tell me why. He's recommending > general cosmetic surgeons who do all types of cosmetic procedures, not just > faces. I checked a couple of sites to investigate doctors, but couldn't > find any of the cosmetic surgeons around here on them. I have no idea how > to find out what doctor would be best qualified to do surgery, if I decide > to have it. > > Another concern is I still don't know if the thyroid is under control > because I got these symptoms five and six months after being diagnosed. > They appeared during the time my endo told me to stop taking the medication > because " maybe I didn't really have this. " He thought I might not, since my > symptoms weren't consistent with the diagnosis. He thought maybe the lab > report was wrong, and instead of ordering more tests, he discontinued the > medicine. Around that time, I also had an upper respiratory infection. I > asked my doctor this week how, if my thyroid was under control, could I > develop the enlarged thyroid three months after diagnosis, the swelling > around the neck at five months, and the pads on my face at six months. He > said he didn't know. I've been looking for another doctor, but am having > trouble finding one who will take new patients. > > Anyway, I'm grateful to have found a doctor who told me the truth, and very > relieved to know it's not another disease. I apologize because this is all > minor compared to the medical problems some here are coping with. However, > when you live alone and don't want to go anywhere, because you hate what > you > see in the mirror, it's not healthy. I love people, going out, and > socializing. If I don't find a solution to this I may become a hermit, and > I definitely don't want to do that. > > Barb > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 , thank you for you comment. I do note that for your one line reply you posted 20 pages of mostly garbage. Could you please trim your replies, and only leave enough of the original to make sense of your reply? There are still people who have dial-up; and for the rest of us it's a PITA to have to page down through 20 pages of garbage for a six word reply. Thanks, L. on Assistant Moderator .. .. > Posted by: " Ciozda " pciozda@... > <mailto:pciozda@...?Subject=%20Re%3A%20Hair%20Loss> > pciozda <pciozda> > > > Thu Apr 21, 2011 7:47 am (PDT) > > > > For hair loss, try saw palmetto. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2011 Report Share Posted April 22, 2011 I believe he is referring to the berries of the saw palmetto plant (serenoa repens) which I have growing in my woods about 100 feet from where I am sitting now. It's a low growing type of palm with sharp edges on the leaves, and around here in Florida it is a native ground cover. It has a bitter fruit, which looks like an olive when ripe, and people say they have many helpful compounds. I hadn't heard anything about aiding in hair growth, although the skunks, bobcats, and foxes who live in the woods on my property all have lovely coats! The indians used them for medicine, and they contain some good fatty acids. I don't harvest the palmetto berries, but leave them for the wildlife to eat. People pay high dollars for the fruit though. I don't know what or how they are prepared for sale, but you see many bottles of " Saw Palmetto " in health food stores. Marla > > What is saw palmetto? > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 Hi, . If you put " saw palmetto " into Google or any search engine you will find a lot of info. One thing I find interesting is the side effects associated with any allopathic or alternative remedy. This link discusses some of them: .. <http://www.google.com/search?hl=en & source=hp & q=saw+palmetto+side+effects & aq=1s & \ aqi=g-s9g-ms1 & aql= & oq=saw+palmeto> .. Here's a brief line from Wikipedia: .. > / " Saw palmetto/ extract is an extract of the fruit of Serenoa repens. > It is rich in fatty acids and phytosterols... " .. I think Serenoa repens is a common palmetto bush found in Florida [and probably elsewhere], and I suspect the extract is taken from the yellow " berries " that it produces but I may be off base there. But the real reason I wrote: Would you please edit your responses? You posted a four word reply and then included 22 pages of garbage that should have been eliminated. Some of us still have dial-up which is very slow, and too many posts like yours can grind everything to a halt. For the rest of us it's a PITA to have to page down through 22 pages of garbage that could so easily be deleted from your reply. Bear in mind: You DO need to include enough of the original post for clarity. Thanks, L. on Assistant Moderator .. .. > Posted by: " Parsons " loradora10@... > <mailto:loradora10@...?Subject=%20Re%3A%20Hair%20Loss> > loradora10 <loradora10> > > > Fri Apr 22, 2011 4:00 am (PDT) > > > > What is saw palmetto? > Thanks > > > On Fri, Apr 22, 2011 at 12:17 AM, Ciozda <pciozda@... > <mailto:pciozda%40>> wrote: > > > > > > > For hair loss, try saw palmetto. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2011 Report Share Posted April 23, 2011 I believe it is an herb and available in health food stores. Roni > > " Levothyroxin is IIRC a generic of Synthroid, which is the name brand. > Both are T4. Some form of T4 is what is prescribed for the vast > majority of hypothyroid patients. " > > Thanks for the clarification . I just wish I could get my doctor to do > testing to see if my body is converting properly. I requested a full > thyroid panel. He still only tested for TSH, T4, and free T3. I think I > have that right, but haven't picked up the paperwork yet. He wouldn't test > Reverse T3. When I asked for an anti-body test, he said I didn't need that > unless I had Hashimoto's. I told him I do have Hashimoto's, and he said it > doesn't affect management. > > I'm posting the following because if anyone is diagnosed with thyroid > disease, and your doctor tells you to stop taking your medicine, it might > not be a good idea. My internist and endo are the doctors who said they > didn't care to know I had Hashimoto's because even though it's an > autoimmune > disease, it's treated the same as the condition of under-active thyroid. At > the time I was told to stop taking the medication, they didn't know I had > it. I stopped taking Levothyroxin for about six weeks. > > After being sent for a chest x-ray to check for lung cancer, a CAT scan to > look for a blocked duct, an ENT, and two dermatologists, I finally went to > a > cosmetic surgeon who told me the puffed up areas on the sides and front of > my neck, and over my cheekbones, were caused by my thyroid being so " out of > whack " that everything under there was shifting around. Those are his > words, not mine. He also said they're not going away. It is spongy tissue > between the layers of skin that collects moisture, so it will always be > this > way. Since no doctor could tell me what this was, and they kept sending me > for more tests and making me wonder if I had another disease, I had given > up > on ever getting an answer. > > Before I went to the cosmetic surgeon and asked him if what I have is Malar > Pads, I was pretty sure that's what it was, after researching it on the > Internet. Some are caused from fat under the skin, and others are crescents > caused by sagging skin. Mine are not fat or sagging. They're not caused by > aging, but from uncontrolled thyroid disease. They appeared overnight. One > day they weren't there, and the next day they were. I didn't even have to > ask what caused them, as soon as he confirmed that's what it is, he > explained why I got them. > > Since there is no way to get rid of them, I don't know what to do. I don't > want to go anywhere looking like this. The lump on my neck was bad enough. > A facial cosmetic surgeon told me a face lift will reposition them so they > aren't noticeable. Another implied it won't make that much difference. I > read about a doctor in Las Vegas who removes them surgically, but of course > there are scars left on the cheeks. That might be better, because they > could be less noticeable with makeup. There is no way to hide what I have > now. The problem is I can't find a doctor around here who would consider > removing them surgically. Also, my doctor refused to recommend the double > board certified facial cosmetic surgeon I thought would be best qualified, > if I decide to have surgery, and won't tell me why. He's recommending > general cosmetic surgeons who do all types of cosmetic procedures, not just > faces. I checked a couple of sites to investigate doctors, but couldn't > find any of the cosmetic surgeons around here on them. I have no idea how > to find out what doctor would be best qualified to do surgery, if I decide > to have it. > > Another concern is I still don't know if the thyroid is under control > because I got these symptoms five and six months after being diagnosed. > They appeared during the time my endo told me to stop taking the medication > because " maybe I didn't really have this. " He thought I might not, since my > symptoms weren't consistent with the diagnosis. He thought maybe the lab > report was wrong, and instead of ordering more tests, he discontinued the > medicine. Around that time, I also had an upper respiratory infection. I > asked my doctor this week how, if my thyroid was under control, could I > develop the enlarged thyroid three months after diagnosis, the swelling > around the neck at five months, and the pads on my face at six months. He > said he didn't know. I've been looking for another doctor, but am having > trouble finding one who will take new patients. > > Anyway, I'm grateful to have found a doctor who told me the truth, and very > relieved to know it's not another disease. I apologize because this is all > minor compared to the medical problems some here are coping with. However, > when you live alone and don't want to go anywhere, because you hate what > you > see in the mirror, it's not healthy. I love people, going out, and > socializing. If I don't find a solution to this I may become a hermit, and > I definitely don't want to do that. > > Barb > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 Are you referring to me having posted " 22 pages of garbage? " All I did was post a four word question. I don't live in Florida I'm on the other side of the world so am not always familiar with things you may take for granted Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 Hi, . Your post to which I am replying is just below this reply. The post with over 20 pages of unneeded text is just below that [with my apologies to the group]. I assure you that it is just as it came to me; I didn't add anything. As you can see your most recent post Is brief and to the point, while the one to which I referred [below that one] just runs on forever. Browsers differ. On mine when I reply the text from the original message that I am including is shown. All I have to do is to highlight what I don't want to send and click " delete " and it is gone. Is it more complicated than that on yours? And from there things got worse. Two people since have IIRC quoted the entire 20 + pages of trash back to the list. That's over 60 pages of trash that goes to about 2500 people on this list. Only 1/3 of that sent by you; but we each need to do what we can to keep it under control. But heck, everybody goofs now and then. I know I do and I'm really embarrassed when it happens. As assistant moderator I need to help take care of things; not be adding to the mess. Thanks, .. .. > Posted by: " Parsons " loradora10@... > <mailto:loradora10@...?Subject=%20Re%3A%20Hair%20Loss> > loradora10 <loradora10> > > > Sat Apr 23, 2011 4:04 pm (PDT) > > > > Are you referring to me having posted " 22 pages of garbage? " > All I did was post a four word question. > I don't live in Florida > I'm on the other side of the world so am not always familiar with > things you may take for granted > .. .. Here is your reply with the 20 + pages of garbage: .. .. Posted by: " Parsons " loradora10@... <mailto:loradora10@...?Subject=%20Re%3A%20Hair%20Loss> loradora10 <loradora10> Fri Apr 22, 2011 4:00 am (PDT) What is saw palmetto? Thanks On Fri, Apr 22, 2011 at 12:17 AM, Ciozda <pciozda@... <mailto:pciozda%40>> wrote: > > > For hair loss, try saw palmetto. > > Sent from my iPod > > On Apr 17, 2011, at 1:53 AM, hypothyroidism <mailto:hypothyroidism%40> wrote: > > Hypothyroidism = Too Little Hormone Alt. > Messages In This Digest (6 Messages) > 1.1. > Re: Hair Loss From: > 1.2. > Re: Hair Loss From: Barbara Mackie > 1.3. > Re: Hair Loss From: Trish > 1.4. > Re: Hair Loss From: Roni Molin > 1.5. > Re: Hair Loss From: Roni Molin > 1.6. > Re: Hair Loss From: gumboyaya@... <mailto:gumboyaya%40cox.net> > View All Topics | Create New Topic Messages > 1.1. > Re: Hair Loss > Posted by: " " res075oh@... <mailto:res075oh%40verizon.net> jamesl33511 > Sat Apr 16, 2011 8:03 am (PDT) > > Levothyroxin is IIRC a generic of Synthroid, which is the name brand. > Both are T4. Some form of T4 is what is prescribed for the vast > majority of hypothyroid patients. Your thyroid gland makes T4 when it > is functioning properly; it also produces T3 but I suspect it breaks > some of the T4 down into T3. T4 is also broken down to T3 in other > parts of your body [liver?], as T3 is what your cells actually use. > > Nearly everybody has either natural or artificial T4 in their bodies so > if it causes massive hair loss I don't see why we aren't all bald... > > Luck, > > . > . > > > Posted by: " Barbara Mackie " macbarb0503@... <mailto:macbarb0503%40gmail.com> > > <mailto:macbarb0503@... <mailto:macbarb0503%40gmail.com>?Subject=%20Re% 3A%20Hair%20Loss> > > westieabbey <westieabbey <westieabbey>> > > > > > > Fri Apr 15, 2011 6:18 am (PDT) > > > > > > > > " Does anyone have any tips for dealing with hair loss? I seem to have > lost > > about half my hair in the last six months. My doc said hair loss reflects > > what your body was going through about three months prior and didn't > > seemed > > concerned since my TSH was crazy for awhile, but I just seem to keep > > losing > > hair even though my TSH is better now. Please advise, thank you! " > > * > > I don't know what you're taking, but a listed side effect of > > Levothyroxin is > > hair loss. When I asked my doctor if there was something else I could > > take, > > he said the only other medication he could prescribe is Synthoid, and > it's > > basically the same thing as Levothyroxin. I don't know if that's true or > > not, but since my hair is still falling out eight months after diagnosis, > > I'd like an answer too. > > > > Thanks, > > Barb > > Back to top Reply to sender | Reply to group | Reply via web post > Messages in this topic (35) > 1.2. > Re: Hair Loss > Posted by: " Barbara Mackie " macbarb0503@... <mailto:macbarb0503%40gmail.com> westieabbey > Sat Apr 16, 2011 9:47 am (PDT) > > On Sat, Apr 16, 2011 at 11:03 AM, <res075oh@... <mailto:res075oh%40verizon.net>> wrote: > > " Levothyroxin is IIRC a generic of Synthroid, which is the name brand. > Both are T4. Some form of T4 is what is prescribed for the vast > majority of hypothyroid patients. " > > Thanks for the clarification . I just wish I could get my doctor to do > testing to see if my body is converting properly. I requested a full > thyroid panel. He still only tested for TSH, T4, and free T3. I think I > have that right, but haven't picked up the paperwork yet. He wouldn't test > Reverse T3. When I asked for an anti-body test, he said I didn't need that > unless I had Hashimoto's. I told him I do have Hashimoto's, and he said it > doesn't affect management. > > I'm posting the following because if anyone is diagnosed with thyroid > disease, and your doctor tells you to stop taking your medicine, it might > not be a good idea. My internist and endo are the doctors who said they > didn't care to know I had Hashimoto's because even though it's an > autoimmune > disease, it's treated the same as the condition of under-active thyroid. At > the time I was told to stop taking the medication, they didn't know I had > it. I stopped taking Levothyroxin for about six weeks. > > After being sent for a chest x-ray to check for lung cancer, a CAT scan to > look for a blocked duct, an ENT, and two dermatologists, I finally went to > a > cosmetic surgeon who told me the puffed up areas on the sides and front of > my neck, and over my cheekbones, were caused by my thyroid being so " out of > whack " that everything under there was shifting around. Those are his > words, not mine. He also said they're not going away. It is spongy tissue > between the layers of skin that collects moisture, so it will always be > this > way. Since no doctor could tell me what this was, and they kept sending me > for more tests and making me wonder if I had another disease, I had given > up > on ever getting an answer. > > Before I went to the cosmetic surgeon and asked him if what I have is Malar > Pads, I was pretty sure that's what it was, after researching it on the > Internet. Some are caused from fat under the skin, and others are crescents > caused by sagging skin. Mine are not fat or sagging. They're not caused by > aging, but from uncontrolled thyroid disease. They appeared overnight. One > day they weren't there, and the next day they were. I didn't even have to > ask what caused them, as soon as he confirmed that's what it is, he > explained why I got them. > > Since there is no way to get rid of them, I don't know what to do. I don't > want to go anywhere looking like this. The lump on my neck was bad enough. > A facial cosmetic surgeon told me a face lift will reposition them so they > aren't noticeable. Another implied it won't make that much difference. I > read about a doctor in Las Vegas who removes them surgically, but of course > there are scars left on the cheeks. That might be better, because they > could be less noticeable with makeup. There is no way to hide what I have > now. The problem is I can't find a doctor around here who would consider > removing them surgically. Also, my doctor refused to recommend the double > board certified facial cosmetic surgeon I thought would be best qualified, > if I decide to have surgery, and won't tell me why. He's recommending > general cosmetic surgeons who do all types of cosmetic procedures, not just > faces. I checked a couple of sites to investigate doctors, but couldn't > find any of the cosmetic surgeons around here on them. I have no idea how > to find out what doctor would be best qualified to do surgery, if I decide > to have it. > > Another concern is I still don't know if the thyroid is under control > because I got these symptoms five and six months after being diagnosed. > They appeared during the time my endo told me to stop taking the medication > because " maybe I didn't really have this. " He thought I might not, since my > symptoms weren't consistent with the diagnosis. He thought maybe the lab > report was wrong, and instead of ordering more tests, he discontinued the > medicine. Around that time, I also had an upper respiratory infection. I > asked my doctor this week how, if my thyroid was under control, could I > develop the enlarged thyroid three months after diagnosis, the swelling > around the neck at five months, and the pads on my face at six months. He > said he didn't know. I've been looking for another doctor, but am having > trouble finding one who will take new patients. > > Anyway, I'm grateful to have found a doctor who told me the truth, and very > relieved to know it's not another disease. I apologize because this is all > minor compared to the medical problems some here are coping with. However, > when you live alone and don't want to go anywhere, because you hate what > you > see in the mirror, it's not healthy. I love people, going out, and > socializing. If I don't find a solution to this I may become a hermit, and > I definitely don't want to do that. > > Barb > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 *It looks like I am partially to blame for this. Sorry, Barb * On Sun, Apr 24, 2011 at 12:24 PM, <res075oh@...> wrote: > > > Hi, . Your post to which I am replying is just below this reply. > The post with over 20 pages of unneeded text is just below that [with my > apologies to the group]. I assure you that it is just as it came to me; > I didn't add anything. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2011 Report Share Posted April 25, 2011 , I didn't say that, but I did want to make you aware that it could have been posted along with your email from the digest if you are on it. It used to drive me crazy being on the digest because everyone was always saying I was posting so much, and I wasn't. Just thought this might help. Roni From: Parsons <loradora10@...> Subject: Re: Re: Hair Loss hypothyroidism Date: Saturday, April 23, 2011, 4:04 PM Are you referring to me having posted " 22 pages of garbage? " All I did was post a four word question. I don't live in Florida I'm on the other side of the world so am not always familiar with things you may take for granted ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2011 Report Share Posted April 29, 2011 Hi there, Is your name ? Your hair is likely getting brittle and thin because your scalp is detoxifying. Most people have used all kinds of shampoos, gels, hair sprays and even (eek!) perms and colour which are highly toxic. Now that you are following Bee's program, your scalp is better able to get rid of those toxins. There isn't really much you can do to stop this from happening. You just have to be patient. Your hair will eventually get better. It's best to find a non-toxic shampoo. iHerb has various brands you could try. Some people like to make a baking soda shampoo and use apple cider vinegar as a rinse. You can do a Google search to find recipes for homemade shampoo using baking soda. Group Moderator > > Hi Bee... > I am starting to loose some of my hair and I'm very discouraged about this. I had such lng beautiful hair and now its looking frail..briitle and much thinner. What can I do to keep this from happening? if anything.. I'm about to go get extensions. This is so devestating. Please shed some light on why this is happening. > > Thank you. > Quote Link to comment Share on other sites More sharing options...
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