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Dear Amy,

  I have a little girl who hasn't been officially diagnosed with JRA, but is

being treated like she does.  She doesn't eat much.  She continues to grow, but

is on the 25th percentile for weight.  I have found when she is having a

flare-up she will not eat at all and will lean to liquids for most of her

nourishment.  She will drink tons of milk and want soup.  The doctors think this

is just fine and she is " just a picky eater " however, i find the pattern of not

wanting to eat when she is in a flare...very interesting.

 

Love,

mia

Mia is cute

   Ian    10 years old

   Sashi 5

     

  

 

From: ereiam <nuestrasenora@...>

Subject: weight loss

Date: Saturday, December 27, 2008, 8:18 AM

Another question for you all. As far as I know, Lucy's symptoms

started in October. At least that is when I noticed that her wrist was

swollen and stiff. The JA may have started much earlier than that.

But in early October she weighed 53 lbs. (She's nearly 7 years old.)

When we went to the doctor last Monday, she was down to 48 lbs. I've

been paying a lot more attention to what she eats. She's the youngest

of four and in the past I pretty much made dinner and they ate whatever

they ate. But now I am paying attention, and she seems to have very

little appetite. Is this common with JA?

Thanks,

Amy

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Hi, Amy. I am not sure if it is common, but I do know my son has had

issues with this as well. When he was first diagnosed he was normal to

heavy weight. Then he grew taller and thinned out, but then lost weight

as well. The dr was concerned he might have Crohn's (which goes along

with some types of jra) but he was tested and he does not have that. To

this day, he still has difficulty gaining and retaining weight. He is

6'4 " and weighs about 155 lbs. I have attributed it to the jra and his

metabolism. When he was younger and I had a little more control over

what he ate (he was not diagnosed until he was 13), I would suggest

healthier things. He has unfortunately developed food allergies to fresh

fruits and vegetables, so this makes eating healthy even more difficult.

That and a teenagers love of fast food!

My suggestion to you would be to keep an eye on what she is eating,

offer healthy stuff, maybe using whole milk, or regular type of foods,

not lite, sugar free or fat free, if you do that. I would try not to

make too big a deal out of it, as you do not want to make her feel

self-conscious about her weight. If she continues to lose, or does not

gain, the dr may send her to a GI specialist, just to make sure there is

nothing else going on. Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of ereiam

Sent: Saturday, December 27, 2008 11:18 AM

Subject: weight loss

Another question for you all. As far as I know, Lucy's symptoms

started in October. At least that is when I noticed that her wrist was

swollen and stiff. The JA may have started much earlier than that.

But in early October she weighed 53 lbs. (She's nearly 7 years old.)

When we went to the doctor last Monday, she was down to 48 lbs. I've

been paying a lot more attention to what she eats. She's the youngest

of four and in the past I pretty much made dinner and they ate whatever

they ate. But now I am paying attention, and she seems to have very

little appetite. Is this common with JA?

Thanks,

Amy

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Hi,

was born at 4 pounds 17 inches long. She has always been under

the 5 percentile in weight and height. Our Dr looked at the Family to see if it

could be Family History. 's Dad is 6 ft 4 in, I am right at 5 ft 2

in, her brother is right at 6 ft tall. Leaving the shortness to fall on my side

maybe? lolol. Well My Mom barely made it to 4 ft 8 in and that was at age

50. was not a big eater either. Many small meals helped better than 3

large meals. Take your hand and make a fist, This is the size of your Stomach.

So have your child make a fist and put that on a plate to see how much a

child should eat. You may not think they are eating enough but to them food

portions are big to them. The way I did it was find the food's the kid's liked

to

eat. Adding a Multi Vitamin can be added to make up for the lack of vitamins.

Vitamins B-12 is a appetite getter. Or just add some Iron to the child

everyday. Iron will make the child eat alittle more. But remember the child's

fist

this is always a way to make sure they eat at least half of their fist size.

I bet every child I know has went through a time where the Parent wanted

them to eat more. Even me. lololol. They eat when they feel Hungry. I got a

rule up with the kid's. They had to eat at least 2 teaspoons of everything on

their plate before they could leave the table. lololol. I figuire this would

help as they ate the rule size I would look at them and say oh Man you did

great lets try for 1 more spoonful then you can go play lolololol. Use a

saucer for the child this helps it look like a bigger portion in their plate.

You want them to eat Healthy right? If a Child ate 2 fists full they

stretch their stomachs more. Heck if they eat only 1 fist it is doing good. My

Son use to be a picky eater UNTIL he turned 13 and that's when well lets say he

ate enough for 4 people. Ummm By his self he could put away 3 Supreme Pizza

Hut Pizza's by his self. Ummmm He never gained a pound doing so. The Dr said

it was his Metabolism in high gear lololol.

Today he is 31 and is 21 and they eat about the same but they

also will have days where they eat more. Everyone calls me a Bird eater as I

eat

like a bird. I feel fine and I have great Labs to where my Iron is good. No

one likes to take me to the ALL you can eat Resturants lolol As they know it

would be cheaper to just go to a Country Restaurant and I order a Kid's meal

lolololol. Amazing how our Bodies need a small amount to keep going.

JA and the meds do play a role with the child's eating. So when

could not eat due to her Jaws hurt. We got a Juicer and fixed everything in

this. Even put her meds in it. At age 12 could not chew much so

everything was liquid meds, and food, I even bought baby food for her. But it

worked. Milk shakes have high calories which Our Dr says is good. Heck ice

cream

with a cup of ensure is great with calories and vitamins.

Robbin

**************New year...new news. Be the first to know what is making

headlines. (http://www.aol.com/?ncid=emlcntaolcom00000026)

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My daughter is a peanut also. She's only 22 mos old, but she was in the

25th% for weight and has dropped to the 10th-15th% since being diagnosed

with JRA. However, she still remains in between the 50th & 75th for

height. The doctors aren't concerned because she is gaining, very

little but still gaining.

In researching JRA when she was 1st dx'd, I did read that JRA patients

tend to have small appetites and sometimes do not get the calories they

should.

It is a struggle on a daily basis to get food into my daughter. Not

only does she have a small appetite, but she is the pickiest eater I

have ever known. You'd think she would eat when she gets hungry, but

that doesn't seem to happen often. I have found keeping her on a

schedule does help somewhat. Breakfast, snack, lunch, etc... at about

the same time everyday.

~

>

> Another question for you all. As far as I know, Lucy's symptoms

> started in October. At least that is when I noticed that her wrist was

> swollen and stiff. The JA may have started much earlier than that.

> But in early October she weighed 53 lbs. (She's nearly 7 years old.)

> When we went to the doctor last Monday, she was down to 48 lbs. I've

> been paying a lot more attention to what she eats. She's the youngest

> of four and in the past I pretty much made dinner and they ate

whatever

> they ate. But now I am paying attention, and she seems to have very

> little appetite. Is this common with JA?

>

> Thanks,

> Amy

>

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Just one quick thing to add that I did not put in my other post - I do

notice that Chris' appetite will fluctuate. He will have days when he

eats a ton and then others when he barely eats anything. I too have

attributed this to the JRA. I guess I figured that if you are hurting or

just not feeling right, you don't feel much like eating. Michele

________________________________

From: [mailto: ] On

Behalf Of

Sent: Wednesday, December 31, 2008 4:01 PM

Subject: Re: weight loss

My daughter is a peanut also. She's only 22 mos old, but she was in the

25th% for weight and has dropped to the 10th-15th% since being diagnosed

with JRA. However, she still remains in between the 50th & 75th for

height. The doctors aren't concerned because she is gaining, very

little but still gaining.

In researching JRA when she was 1st dx'd, I did read that JRA patients

tend to have small appetites and sometimes do not get the calories they

should.

It is a struggle on a daily basis to get food into my daughter. Not

only does she have a small appetite, but she is the pickiest eater I

have ever known. You'd think she would eat when she gets hungry, but

that doesn't seem to happen often. I have found keeping her on a

schedule does help somewhat. Breakfast, snack, lunch, etc... at about

the same time everyday.

~

>

> Another question for you all. As far as I know, Lucy's symptoms

> started in October. At least that is when I noticed that her wrist was

> swollen and stiff. The JA may have started much earlier than that.

> But in early October she weighed 53 lbs. (She's nearly 7 years old.)

> When we went to the doctor last Monday, she was down to 48 lbs. I've

> been paying a lot more attention to what she eats. She's the youngest

> of four and in the past I pretty much made dinner and they ate

whatever

> they ate. But now I am paying attention, and she seems to have very

> little appetite. Is this common with JA?

>

> Thanks,

> Amy

>

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Being small and skinny does sometimes correlate with autoimmune diseases.

Obviously children who are on steroids tend to gain weight quickly but I think a

lot of children tend to be on the smaller side. Growing up I was always very

skinny. In my younger years I was incredibly short but did manage to catch up

and even surpass my sisters (I'm the tallest one somehow!). I am no longer stick

skinny but still thin and fit. When I flare I tend to lose my appetite and lose

a lot of weight. My immunologist does say that is a common side affect of a

flare. So the weight loss may have something to do with that. I would also make

sure that the reason she is not eat is from not being hungry rather that from of

jaw pain. Unfortunately the jaw can be affected from JA and if her jaw is

hurting when she eats she may be avoiding eating because of that. If its not jaw

pain weight loss  and appetite loss are listed as symptoms for JA. As long as

she is eat and growing it

should be ok.

With Love,

(MCTD, 24)

From: <doremusv@...>

Subject: Re: weight loss

Date: Wednesday, December 31, 2008, 2:00 PM

My daughter is a peanut also. She's only 22 mos old, but she was in the

25th% for weight and has dropped to the 10th-15th% since being diagnosed

with JRA. However, she still remains in between the 50th & 75th for

height. The doctors aren't concerned because she is gaining, very

little but still gaining.

In researching JRA when she was 1st dx'd, I did read that JRA patients

tend to have small appetites and sometimes do not get the calories they

should.

It is a struggle on a daily basis to get food into my daughter. Not

only does she have a small appetite, but she is the pickiest eater I

have ever known. You'd think she would eat when she gets hungry, but

that doesn't seem to happen often. I have found keeping her on a

schedule does help somewhat. Breakfast, snack, lunch, etc... at about

the same time everyday.

~

>

> Another question for you all. As far as I know, Lucy's symptoms

> started in October. At least that is when I noticed that her wrist was

> swollen and stiff. The JA may have started much earlier than that.

> But in early October she weighed 53 lbs. (She's nearly 7 years old.)

> When we went to the doctor last Monday, she was down to 48 lbs. I've

> been paying a lot more attention to what she eats. She's the youngest

> of four and in the past I pretty much made dinner and they ate

whatever

> they ate. But now I am paying attention, and she seems to have very

> little appetite. Is this common with JA?

>

> Thanks,

> Amy

>

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  • 1 year later...

, you might want to check out, " The Vegetarian Myth " by Lierre

, a 20 year former, highly committed vegan veteran who lost her

health because of vegan nutrition. It is a fascinating discussion of

all aspects of vegetarianism, and highly informative of vegan health

issues.

On Jan 25, 2010, at 3:54 AM, Coconut Oil

wrote:

> Hi all,

>

> I've recently started taking coconut oil for weight loss and am a

> bit nervous as to whether it will work? i'm no ablt to do much in

> the way of low carb as i am a vegan and am worried i'll end up

> putting weight on!!

>

> any thoughts gratefully recieved

>

> katie x

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Yes, I have lost 10 dear friends to cancer who were very strict vegitarians.They

just could not understand because they were 'doing everything right'. Was a

smack in my face and opened my eyes to our human journey thru time. There is a

reason we developed spears and other impliments to fall animals. I was a

vegitarian and got fatter and fatter. My body just does not like carbs. Was a

very hard life lesson for me. I understand from an emotional standpoint why one

would be a vegitarian, but I am now a reformed- vegitarian. I am much happier

and healthier.

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just to clarify - i was asking about weight loss on coconut oil not for a

discussion on my eating preferences!

any thoughts on weight loss with coconut oil would be greatly appreciated.

katie

>

> Yes, I have lost 10 dear friends to cancer who were very strict

vegitarians.They just could not understand because they were 'doing everything

right'. Was a smack in my face and opened my eyes to our human journey thru

time. There is a reason we developed spears and other impliments to fall

animals. I was a vegitarian and got fatter and fatter. My body just does not

like carbs. Was a very hard life lesson for me. I understand from an emotional

standpoint why one would be a vegitarian, but I am now a reformed- vegitarian. I

am much happier and healthier.

>

>

>

>

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There is a wealth of knowledge in the archives from alobar and duncan crow this

past year about weight loss. coconut oil alone dosent seem to carry one alone

for the long haul or it didnt for me .

michael

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There is a wealth of knowledge in the archives from alobar and duncan crow this

past year about weight loss. coconut oil alone dosent seem to carry one alone

for the long haul or it didnt for me .

michael

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When one adds coconut oil into a diet to lose weight, one needs to eat

LESS of the foods which made one fat in the first place. Simply

adding coconut oil into a fattening diet won't cause weight loss. I

would suggest getting rid of all unhealthy oils (over-processed oils

like Canola, all trans-fats {margarine, etc.} and reduce carb intake.

I have known vegans who ate no grains, potatoes, or any foods not

prepared at home from fresh ingredients. They had no weight problem.

Alobar

On Tue, Jan 26, 2010 at 3:53 PM, katie.wainwright

<katiewainwright66@...> wrote:

> just to clarify - i was asking about weight loss on coconut oil not for a

discussion on my eating preferences!

> any thoughts on weight loss with coconut oil would be greatly appreciated.

>

> katie

>

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I added coco oil to my diet quite a while ago and can't say I've

experienced any weight loss solely due to the coco. oil......

I started adding coco oil for it's overall healthy benefits, but want to

add---I have used HCG for weight loss and belong to few groups on ,

know personally many people who use/have used it---it's a strict low calorie

diet for period of time without oils/fats---they tried a coco oil experiment

while ago and many people found their WEIGHT LOSS INCREASED with addition

of about 1 TB coco. oil daily.....not with all people, but a good amount,

SEEMED TO BE AN INDIVIDUAL THING.....

also on that diet and as usual with many diets, after a period of time you

" stall " with the weight loss, and it has been found that a little coco.

oil seemed to jumpstart the weight loss again in most people, but again, an

individual thing......

I have experienced weight gain from too much coco oil.........

Blessings, Margaret

" We are not held back by the love we didn't receive in the past, but by

the love we're not extending in the present. "

nne on

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  • 2 weeks later...

Raw vegan leads to emaciation of fat AND muscle though, without generous

nutritional supplementation that exceeds what the rest of the population would

need.

all good,

Duncan

> > > just to clarify - i was asking about weight loss on coconut oil not for a

discussion on my eating preferences!

> > > any thoughts on weight loss with coconut oil would be greatly appreciated.

> > >

> > > katie

> > >

> >

>

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  • 8 months later...

>

> Is there anything I can eat to put the weight back on?

>

> While many would love to keep losing weight....I always was thin. The only

thing I can think of is coconut oil.

>

+++Hi ina,

All nutrients work together so increasing coconut oil or anything else doesn't

help.

As your body becomes more healthy on this program it will naturally put on any

weight it requires. I lost an awful lot of weight on my candida program too,

which was back in 1985-88, but as I progressed my weight normalized more and

more.

All the best, Bee

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Thanks,

Hey, is almond butter ok to eat?

> >

> > Is there anything I can eat to put the weight back on?

> >

> > While many would love to keep losing weight....I always was thin. The only

thing I can think of is coconut oil.

> >

> +++Hi ina,

>

> All nutrients work together so increasing coconut oil or anything else doesn't

help.

>

> As your body becomes more healthy on this program it will naturally put on any

weight it requires. I lost an awful lot of weight on my candida program too,

which was back in 1985-88, but as I progressed my weight normalized more and

more.

>

> All the best, Bee

>

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Hi ine,

You're not the only skinny here. I'm 5'7 " and I'm down to 110lbs. Not a pretty

sight. Bee says the weight will come back...although no one will share how long

it actually has taken them to regain. So I'm thinking that means a very long

time. I hate to go shopping with girlfriends anymore....Nothing fits

me....Maybe I should get a job as a clothes hanger...;-)..that's what I seem to

look likes these days...no padding. Just a frame. I'm going to stick to the

diet for awhile and see what happens...I've been on it for just over 3 months

now. I'm starting to believe that I have some kind of a digestive problem.

Maybe a defect? Who knows....I just don't understand how I can eat the way I do

and not gain an ounce....but keep losing especially when my body needs the

weight so much. I will be curious to know if you gain any weight. Keep me

posted...Gail (curlygirl)

> >

> > Is there anything I can eat to put the weight back on?

> >

> > While many would love to keep losing weight....I always was thin. The only

thing I can think of is coconut oil.

> >

> +++Hi ina,

>

> All nutrients work together so increasing coconut oil or anything else doesn't

help.

>

> As your body becomes more healthy on this program it will naturally put on any

weight it requires. I lost an awful lot of weight on my candida program too,

which was back in 1985-88, but as I progressed my weight normalized more and

more.

>

> All the best, Bee

>

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Hi ina,

In addition to what Bee has said, coconut oil is not useful for putting weight

on (the same as with most good fats) - in fact it has been noted for its ability

to help people speed their metabolism - see Bruce Fife's articles, for instance

The Fat that Can Make You Thin:

http://www.coconutresearchcenter.org/article10065.htm

I lost a lot of weight and was very very thin for some months, but I have gained

healthy weight back, and no one would tell me that I look too skinny anymore.

Best,

andra

group moderator

>

> Is there anything I can eat to put the weight back on?

>

> While many would love to keep losing weight....I always was thin. The only

thing I can think of is coconut oil.

>

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Hello Gail,

No one can say exactly how long it will take for you to regain the weight,

because each one of us is different: some of us were more sick than others to

start with, and had different sets of health problems. I believe I wrote you

about your weight concern, because I was also very " underweight " and my clothes

were sliding off me. I can't remember exactly how long I was that thin, because

I did not keep a detailed journal, but as noted above, my experience will not

translate directly to the amount of time your body needs.

In any case, I am glad that you are sticking with it - I know it isn't fun to

see our figures go like that. I did a lot with sweaters, and I avoided seeing

myself naked. No need to stress myself out further - and anyone who saw me eat

wouldn't believe I was starving myself, LOL.

Best,

andra

group moderator

> > >

> > > Is there anything I can eat to put the weight back on?

> > >

> > > While many would love to keep losing weight....I always was thin. The

only thing I can think of is coconut oil.

> > >

> > +++Hi ina,

> >

> > All nutrients work together so increasing coconut oil or anything else

doesn't help.

> >

> > As your body becomes more healthy on this program it will naturally put on

any weight it requires. I lost an awful lot of weight on my candida program

too, which was back in 1985-88, but as I progressed my weight normalized more

and more.

> >

> > All the best, Bee

> >

>

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Hello ina,

Nuts are very difficult to digest, even for healthy individuals. Even then,

they should only be eaten in small quantities. Nut butters should be made from

nuts that are not irradiated, and which are properly soaked and prepared. They

should not contain any bad oils or fats, etc - this usually means making it at

home. You can do a search on the group for past messages for " nut butters " for

more information. However, it's probably easier to just not have any :)

Best,

andra

group moderator

> > >

> > > Is there anything I can eat to put the weight back on?

> > >

> > > While many would love to keep losing weight....I always was thin. The

only thing I can think of is coconut oil.

> > >

> > +++Hi ina,

> >

> > All nutrients work together so increasing coconut oil or anything else

doesn't help.

> >

> > As your body becomes more healthy on this program it will naturally put on

any weight it requires. I lost an awful lot of weight on my candida program

too, which was back in 1985-88, but as I progressed my weight normalized more

and more.

> >

> > All the best, Bee

> >

>

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My almond butter's ingredients are: almonds and sea salt.

Is that ok to eat??

Sent from my iPhone

On Oct 13, 2010, at 1:28 PM, " nocalc " <nocalc@...> wrote:

> Hello ina,

>

> Nuts are very difficult to digest, even for healthy individuals. Even then,

they should only be eaten in small quantities. Nut butters should be made from

nuts that are not irradiated, and which are properly soaked and prepared. They

should not contain any bad oils or fats, etc - this usually means making it at

home. You can do a search on the group for past messages for " nut butters " for

more information. However, it's probably easier to just not have any :)

>

> Best,

> andra

> group moderator

>

>

> >

> > Thanks,

> > Hey, is almond butter ok to eat?

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This is why our food co-op is so valuable. We are all of the same mindset,

most all Weston Price and Nourishing traditions.

We pay big bucks for truly raw nuts, process them ourselves and make our own

butters.

West coast folks, check www.azurestandard.com

Don't know who supplies east coast.

Hope this info helps.

kathy B

[ ] Re: weight loss

> Hello ina,

>

> Nuts are very difficult to digest, even for healthy individuals. Even

> then, they should only be eaten in small quantities. Nut butters should be

> made from nuts that are not irradiated, and which are properly soaked and

> prepared. They should not contain any bad oils or fats, etc - this

> usually means making it at home. You can do a search on the group for

> past messages for " nut butters " for more information. However, it's

> probably easier to just not have any :)

>

> Best,

> andra

> group moderator

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>

> Thanks,

> Hey, is almond butter ok to eat?

+++Hi ina,

I have removed nuts and seeds from my program (again) because I realized that

nuts and seeds must also have their cell walls broken down in order to be

digestible, like all carbs/plant foods. There are only 2 ways to do that, which

are:

1) by fermenting them like sauerkraut

2) by cooking them long enough

If they were fermented it would change the flavor. Even though nuts can be

cooked when added to baked goods, I wouldn't know how long they must be cooked

to break down their cell walls. I know that to cook some greens long enough,

like kale or Swiss chard, it take around 50 minutes.

In addition, all grains, nuts and seeds must be raw (untoasted and unroasted

which contain bad fats), and soaked first as explained in this article:

http://www.healingnaturallybybee.com/articles/foods18.php

All the best, Bee

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>

> My almond butter's ingredients are: almonds and sea salt.

> Is that ok to eat??

+++Hi ,

Please see my reply to ina I just wrote. I have also removed nuts and seeds

from my program (again).

Bee

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THank you,

Wow, this is a lot of work.....but I guess it needs to be done.

How can one take a vacation with such a hard diet to follow?

> >

> > Thanks,

> > Hey, is almond butter ok to eat?

>

> +++Hi ina,

>

> I have removed nuts and seeds from my program (again) because I realized that

nuts and seeds must also have their cell walls broken down in order to be

digestible, like all carbs/plant foods. There are only 2 ways to do that, which

are:

>

> 1) by fermenting them like sauerkraut

>

> 2) by cooking them long enough

>

> If they were fermented it would change the flavor. Even though nuts can be

cooked when added to baked goods, I wouldn't know how long they must be cooked

to break down their cell walls. I know that to cook some greens long enough,

like kale or Swiss chard, it take around 50 minutes.

>

> In addition, all grains, nuts and seeds must be raw (untoasted and unroasted

which contain bad fats), and soaked first as explained in this article:

> http://www.healingnaturallybybee.com/articles/foods18.php

>

> All the best, Bee

>

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