Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 I identify Doc didnt have enough meet for the test and plugged me again. was afraid I'd never be able to draw in air again till the nurse saw me change colors and tears gushed out of my eyes. After the fact I found out how little experience he has. I'm going to a school of medicine Doc in Sept Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 I identify Doc didnt have enough meet for the test and plugged me again. was afraid I'd never be able to draw in air again till the nurse saw me change colors and tears gushed out of my eyes. After the fact I found out how little experience he has. I'm going to a school of medicine Doc in Sept Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Hi Israel, I know exactly what you are saying about having your whole world turned upside down, mine was on March 15 of this year. I am such a strong and positive person, yet this knocked me for the biggest loop of my life! I know of two other people who have had the same experience as you, with the biopsy. I have a hepatologist treating me, do you? My biopsy was just the opposite, they gave me a lidocaine drip beforehand, and I was unconscious for 4 hours afterwards - I'm finding out now that it was just as dangerous as you bleeding outside your liver. Have you had the results of your biopsy yet? That seems to be the gold standard to determine if you need treatment at this time. If you can tell the people on this list the results of your biopsy, they will be more informed to advise you of their experience. For me, I have no damage (so why am I so tired and have such an iron overload?), and I am really questioning why I am on the list for treatment - I have questions for my doctor. We are all in this together, trying to save our health and save our lives. It's by sharing through groups like this that we can make our own decisions. I hope you are feeling well. Marilyn liver biopsy hi, my name is israel. i am sort of a new comer to the club. i was diagnosed with hep c/a about two months ago. ever since, my whole world/life have been a nightmare.my doctor ordered a liver biopsy to see how bad was the damage.well, i had the text done a week ago friday.before the text they explain to me that rarely any complications would take place,that it was a simple and common procedure. as it turned out after the biopsy was done an hour later i started to bleed heavely and the pain felt like i was having a heart attack. i am 49, and a whole lot scared about starting treatment.if anyone can identify with the experience i just went throug please reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Hi Israel, I know exactly what you are saying about having your whole world turned upside down, mine was on March 15 of this year. I am such a strong and positive person, yet this knocked me for the biggest loop of my life! I know of two other people who have had the same experience as you, with the biopsy. I have a hepatologist treating me, do you? My biopsy was just the opposite, they gave me a lidocaine drip beforehand, and I was unconscious for 4 hours afterwards - I'm finding out now that it was just as dangerous as you bleeding outside your liver. Have you had the results of your biopsy yet? That seems to be the gold standard to determine if you need treatment at this time. If you can tell the people on this list the results of your biopsy, they will be more informed to advise you of their experience. For me, I have no damage (so why am I so tired and have such an iron overload?), and I am really questioning why I am on the list for treatment - I have questions for my doctor. We are all in this together, trying to save our health and save our lives. It's by sharing through groups like this that we can make our own decisions. I hope you are feeling well. Marilyn liver biopsy hi, my name is israel. i am sort of a new comer to the club. i was diagnosed with hep c/a about two months ago. ever since, my whole world/life have been a nightmare.my doctor ordered a liver biopsy to see how bad was the damage.well, i had the text done a week ago friday.before the text they explain to me that rarely any complications would take place,that it was a simple and common procedure. as it turned out after the biopsy was done an hour later i started to bleed heavely and the pain felt like i was having a heart attack. i am 49, and a whole lot scared about starting treatment.if anyone can identify with the experience i just went throug please reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Israel: I am sorry to hear that you had such a terrible experience with your biopsy. Mine turned out well, but the warning sheet that they gave me did state that in some cases, because your liver controls the clotting factor, some people do suffer from bleeding. I hope that you are feeling better. The treatments can effect everyone differently, so dont let that deter you from seeking the help you need. Life is all about chances, and if we didnt take any we wouldnt live, but just breathe, and that would be a very dull life. Hang in there and God Bless. Love in His Light Sandy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Israel: I am sorry to hear that you had such a terrible experience with your biopsy. Mine turned out well, but the warning sheet that they gave me did state that in some cases, because your liver controls the clotting factor, some people do suffer from bleeding. I hope that you are feeling better. The treatments can effect everyone differently, so dont let that deter you from seeking the help you need. Life is all about chances, and if we didnt take any we wouldnt live, but just breathe, and that would be a very dull life. Hang in there and God Bless. Love in His Light Sandy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi Israel, My name is Dana. Though I did not have the problem at the biopsy, my bleeding time goes up and down with the viral level. The first time they schedule my biopsy, the had to cancel because of my bleeding time and then they did it later when the bleeding time was down. And of coarse being prepared for bleeding. Though it is supposed to be and easier test than it used to be, they still have complication and should always check your bleeding time just in case. The liver bleeding can be very dangerous. Thank God you made it through. How did the biopsy come out? And welcome to the group! Dana isy1214 wrote:hi, my name is israel. i am sort of a new comer to the club. i was diagnosed with hep c/a about two months ago. ever since, my whole world/life have been a nightmare.my doctor ordered a liver biopsy to see how bad was the damage.well, i had the text done a week ago friday.before the text they explain to me that rarely any complications would take place,that it was a simple and common procedure. as it turned out after the biopsy was done an hour later i started to bleed heavely and the pain felt like i was having a heart attack. i am 49, and a whole lot scared about starting treatment.if anyone can identify with the experience i just went throug please reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi Israel, My name is Dana. Though I did not have the problem at the biopsy, my bleeding time goes up and down with the viral level. The first time they schedule my biopsy, the had to cancel because of my bleeding time and then they did it later when the bleeding time was down. And of coarse being prepared for bleeding. Though it is supposed to be and easier test than it used to be, they still have complication and should always check your bleeding time just in case. The liver bleeding can be very dangerous. Thank God you made it through. How did the biopsy come out? And welcome to the group! Dana isy1214 wrote:hi, my name is israel. i am sort of a new comer to the club. i was diagnosed with hep c/a about two months ago. ever since, my whole world/life have been a nightmare.my doctor ordered a liver biopsy to see how bad was the damage.well, i had the text done a week ago friday.before the text they explain to me that rarely any complications would take place,that it was a simple and common procedure. as it turned out after the biopsy was done an hour later i started to bleed heavely and the pain felt like i was having a heart attack. i am 49, and a whole lot scared about starting treatment.if anyone can identify with the experience i just went throug please reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Marilyn, It is big mouth Dana again, Tehee! I was told the earlier you treat Hepc the better the results. So maybe you can clear Hepc without any liver damage. That would be great. I also talked to a Toxicologist in Washington that stated something that made it easier for me to understand about the symptoms of HepC. He said that they are caused be the virus itself going through the system. So you could have symptoms with minimal or little damage to the liver. He also told me something else interesting. He told me that an Infectious Desease Doctor may actually be better at treating and understanding Hep C rather than a Hepatologis or GI. They treat is as a desease. Not as the liver itself. If that makes since. Tehee. Dana Marilyn wrote:Hi Israel, I know exactly what you are saying about having your whole world turned upside down, mine was on March 15 of this year. I am such a strong and positive person, yet this knocked me for the biggest loop of my life! I know of two other people who have had the same experience as you, with the biopsy. I have a hepatologist treating me, do you? My biopsy was just the opposite, they gave me a lidocaine drip beforehand, and I was unconscious for 4 hours afterwards - I'm finding out now that it was just as dangerous as you bleeding outside your liver. Have you had the results of your biopsy yet? That seems to be the gold standard to determine if you need treatment at this time. If you can tell the people on this list the results of your biopsy, they will be more informed to advise you of their experience. For me, I have no damage (so why am I so tired and have such an iron overload?), and I am really questioning why I am on the list for treatment - I have questions for my doctor. We are all in this together, trying to save our health and save our lives. It's by sharing through groups like this that we can make our own decisions. I hope you are feeling well. Marilyn liver biopsy hi, my name is israel. i am sort of a new comer to the club. i was diagnosed with hep c/a about two months ago. ever since, my whole world/life have been a nightmare.my doctor ordered a liver biopsy to see how bad was the damage.well, i had the text done a week ago friday.before the text they explain to me that rarely any complications would take place,that it was a simple and common procedure. as it turned out after the biopsy was done an hour later i started to bleed heavely and the pain felt like i was having a heart attack. i am 49, and a whole lot scared about starting treatment.if anyone can identify with the experience i just went throug please reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Marilyn, It is big mouth Dana again, Tehee! I was told the earlier you treat Hepc the better the results. So maybe you can clear Hepc without any liver damage. That would be great. I also talked to a Toxicologist in Washington that stated something that made it easier for me to understand about the symptoms of HepC. He said that they are caused be the virus itself going through the system. So you could have symptoms with minimal or little damage to the liver. He also told me something else interesting. He told me that an Infectious Desease Doctor may actually be better at treating and understanding Hep C rather than a Hepatologis or GI. They treat is as a desease. Not as the liver itself. If that makes since. Tehee. Dana Marilyn wrote:Hi Israel, I know exactly what you are saying about having your whole world turned upside down, mine was on March 15 of this year. I am such a strong and positive person, yet this knocked me for the biggest loop of my life! I know of two other people who have had the same experience as you, with the biopsy. I have a hepatologist treating me, do you? My biopsy was just the opposite, they gave me a lidocaine drip beforehand, and I was unconscious for 4 hours afterwards - I'm finding out now that it was just as dangerous as you bleeding outside your liver. Have you had the results of your biopsy yet? That seems to be the gold standard to determine if you need treatment at this time. If you can tell the people on this list the results of your biopsy, they will be more informed to advise you of their experience. For me, I have no damage (so why am I so tired and have such an iron overload?), and I am really questioning why I am on the list for treatment - I have questions for my doctor. We are all in this together, trying to save our health and save our lives. It's by sharing through groups like this that we can make our own decisions. I hope you are feeling well. Marilyn liver biopsy hi, my name is israel. i am sort of a new comer to the club. i was diagnosed with hep c/a about two months ago. ever since, my whole world/life have been a nightmare.my doctor ordered a liver biopsy to see how bad was the damage.well, i had the text done a week ago friday.before the text they explain to me that rarely any complications would take place,that it was a simple and common procedure. as it turned out after the biopsy was done an hour later i started to bleed heavely and the pain felt like i was having a heart attack. i am 49, and a whole lot scared about starting treatment.if anyone can identify with the experience i just went throug please reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Dana, Fellow big mouth here, LOL! Using a term my English friend, Sally, uses, I am *waffling* about treatment. At first I was honked off that I had to be on a waiting list for the peg and ribavirin. Now I think it is a good thing because I have time to research and make up my own mind. Much as I dearly love and trust my hepatologist, I am going to have him recommend an Infectious Disease doctor for a second opinion. Another *very* good point you made, that it is not just the liver, it's the whole body that has the virus. Like you said about hepatologists, I have strictly been thinking about it in terms of my liver. So today I am leaning towards treatment, who knows what I'll think tomorrow <VBG>. Boy, you're smart!!! Marilyn Re: liver biopsy Marilyn, It is big mouth Dana again, Tehee! I was told the earlier you treat Hepc the better the results. So maybe you can clear Hepc without any liver damage. That would be great. I also talked to a Toxicologist in Washington that stated something that made it easier for me to understand about the symptoms of HepC. He said that they are caused be the virus itself going through the system. So you could have symptoms with minimal or little damage to the liver. He also told me something else interesting. He told me that an Infectious Desease Doctor may actually be better at treating and understanding Hep C rather than a Hepatologis or GI. They treat is as a desease. Not as the liver itself. If that makes since. Tehee. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2002 Report Share Posted July 29, 2002 Hi Dana, Fellow big mouth here, LOL! Using a term my English friend, Sally, uses, I am *waffling* about treatment. At first I was honked off that I had to be on a waiting list for the peg and ribavirin. Now I think it is a good thing because I have time to research and make up my own mind. Much as I dearly love and trust my hepatologist, I am going to have him recommend an Infectious Disease doctor for a second opinion. Another *very* good point you made, that it is not just the liver, it's the whole body that has the virus. Like you said about hepatologists, I have strictly been thinking about it in terms of my liver. So today I am leaning towards treatment, who knows what I'll think tomorrow <VBG>. Boy, you're smart!!! Marilyn Re: liver biopsy Marilyn, It is big mouth Dana again, Tehee! I was told the earlier you treat Hepc the better the results. So maybe you can clear Hepc without any liver damage. That would be great. I also talked to a Toxicologist in Washington that stated something that made it easier for me to understand about the symptoms of HepC. He said that they are caused be the virus itself going through the system. So you could have symptoms with minimal or little damage to the liver. He also told me something else interesting. He told me that an Infectious Desease Doctor may actually be better at treating and understanding Hep C rather than a Hepatologis or GI. They treat is as a desease. Not as the liver itself. If that makes since. Tehee. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Thank you fellow big mouth! tehee! I don't know if I am as smart as I am persistant. I have gotten the run around so many times I started doing allot of research. And if I can't get the answers I need I just keep going up the lines of rank. Some are real arregant. But others are quite helpful. I want to get well, not get the run around or be told I don't know. As for treatment. That is just another one of my missions in life. If not for me for others. I had such bad reactions to everything and as my neurologist tells me, (I am so hyper synsitive to every medication.) If it has a side effect of 1 out of 100, I get it. He's funny though. The only doctor that understands my pain and tries to treat it rather than telling me there is nothing he can do. And he really knows all the breakdowns of the medication. And give me samples first to try. I have not tried the pegalated stuff. Not sure I will. The combo was horrible. Bed ridden 3 weeks before I said to hell with this. Could not take it. I don't know why we have to get so sick to get better. But I will keep looking. Something new will come up. Probably will have to go to another country to get treated! Tehee! But we shall see. Glad that advice helped you. I never really thought about it till the toxicologist explained it to me. Hell, I'm still waiting for a referral for accupunture. And that was forever ago! Dana P.S. Tell Carol to get back here. Miss her Jokes and since of humor. --- Marilyn <MarilynWilkinson@...> wrote: > Hi Dana, > > Fellow big mouth here, LOL! Using a term my English > friend, Sally, uses, I am *waffling* about > treatment. At first I was honked off that I had to > be on a waiting list for the peg and ribavirin. Now > I think it is a good thing because I have time to > research and make up my own mind. Much as I dearly > love and trust my hepatologist, I am going to have > him recommend an Infectious Disease doctor for a > second opinion. > > Another *very* good point you made, that it is not > just the liver, it's the whole body that has the > virus. Like you said about hepatologists, I have > strictly been thinking about it in terms of my > liver. So today I am leaning towards treatment, who > knows what I'll think tomorrow <VBG>. > > Boy, you're smart!!! > > Marilyn > Re: liver > biopsy > > > > Marilyn, > It is big mouth Dana again, Tehee! > I was told the earlier you treat Hepc the better > the results. So maybe you can clear Hepc without > any liver damage. That would be great. I also > talked to a Toxicologist in Washington that stated > something that made it easier for me to understand > about the symptoms of HepC. He said that they are > caused be the virus itself going through the system. > So you could have symptoms with minimal or little > damage to the liver. He also told me something else > interesting. He told me that an Infectious Desease > Doctor may actually be better at treating and > understanding Hep C rather than a Hepatologis or GI. > They treat is as a desease. Not as the liver > itself. If that makes since. Tehee. > Dana > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Thank you fellow big mouth! tehee! I don't know if I am as smart as I am persistant. I have gotten the run around so many times I started doing allot of research. And if I can't get the answers I need I just keep going up the lines of rank. Some are real arregant. But others are quite helpful. I want to get well, not get the run around or be told I don't know. As for treatment. That is just another one of my missions in life. If not for me for others. I had such bad reactions to everything and as my neurologist tells me, (I am so hyper synsitive to every medication.) If it has a side effect of 1 out of 100, I get it. He's funny though. The only doctor that understands my pain and tries to treat it rather than telling me there is nothing he can do. And he really knows all the breakdowns of the medication. And give me samples first to try. I have not tried the pegalated stuff. Not sure I will. The combo was horrible. Bed ridden 3 weeks before I said to hell with this. Could not take it. I don't know why we have to get so sick to get better. But I will keep looking. Something new will come up. Probably will have to go to another country to get treated! Tehee! But we shall see. Glad that advice helped you. I never really thought about it till the toxicologist explained it to me. Hell, I'm still waiting for a referral for accupunture. And that was forever ago! Dana P.S. Tell Carol to get back here. Miss her Jokes and since of humor. --- Marilyn <MarilynWilkinson@...> wrote: > Hi Dana, > > Fellow big mouth here, LOL! Using a term my English > friend, Sally, uses, I am *waffling* about > treatment. At first I was honked off that I had to > be on a waiting list for the peg and ribavirin. Now > I think it is a good thing because I have time to > research and make up my own mind. Much as I dearly > love and trust my hepatologist, I am going to have > him recommend an Infectious Disease doctor for a > second opinion. > > Another *very* good point you made, that it is not > just the liver, it's the whole body that has the > virus. Like you said about hepatologists, I have > strictly been thinking about it in terms of my > liver. So today I am leaning towards treatment, who > knows what I'll think tomorrow <VBG>. > > Boy, you're smart!!! > > Marilyn > Re: liver > biopsy > > > > Marilyn, > It is big mouth Dana again, Tehee! > I was told the earlier you treat Hepc the better > the results. So maybe you can clear Hepc without > any liver damage. That would be great. I also > talked to a Toxicologist in Washington that stated > something that made it easier for me to understand > about the symptoms of HepC. He said that they are > caused be the virus itself going through the system. > So you could have symptoms with minimal or little > damage to the liver. He also told me something else > interesting. He told me that an Infectious Desease > Doctor may actually be better at treating and > understanding Hep C rather than a Hepatologis or GI. > They treat is as a desease. Not as the liver > itself. If that makes since. Tehee. > Dana > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Marilyn and Dana, I have to tell you.....whether it's because I have every Christian I know....and their churches praying for me, or I tolerate this junk well. I have rheumatoid arthritis. The be in charge nurse said anything that has been a problem, could pop up in the next 53 weeks. Day 4 and I feel REALLY good. Good enough that I'm waiting for the other shoe to drop! I almost didn't start treatment because I have so little damage.......but the longer I wait.....the longer it will be to be done with this mess. I will come clean. I will not think otherwise, regardless of test results! The initial reaction is the worst.....and I haven't heard of anyone having the flu symptoms more than 3 days on the PEG-Interon/rib from scherring. That gives you 4 good days. Plus, the longer you are on the shots.....according to people I know and many on line, the less severe and quicker you get over the shot's side effects. On another note. There is no support groups anywhere closer than a 45 minute drive from me. I'm gonna start one on Friday nights at my church if I can get approval from church.....and I'm sure there's no problem there. What I need to know is what is a support group..........I've never been to one. Is it like a coffee club where you just sit and YAK??????? Do you have to have a committee??????? I have to do this for me and the others who need to rub elbows with like HCV'ers. any input or help or links would be immensely appreciated!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Marilyn and Dana, I have to tell you.....whether it's because I have every Christian I know....and their churches praying for me, or I tolerate this junk well. I have rheumatoid arthritis. The be in charge nurse said anything that has been a problem, could pop up in the next 53 weeks. Day 4 and I feel REALLY good. Good enough that I'm waiting for the other shoe to drop! I almost didn't start treatment because I have so little damage.......but the longer I wait.....the longer it will be to be done with this mess. I will come clean. I will not think otherwise, regardless of test results! The initial reaction is the worst.....and I haven't heard of anyone having the flu symptoms more than 3 days on the PEG-Interon/rib from scherring. That gives you 4 good days. Plus, the longer you are on the shots.....according to people I know and many on line, the less severe and quicker you get over the shot's side effects. On another note. There is no support groups anywhere closer than a 45 minute drive from me. I'm gonna start one on Friday nights at my church if I can get approval from church.....and I'm sure there's no problem there. What I need to know is what is a support group..........I've never been to one. Is it like a coffee club where you just sit and YAK??????? Do you have to have a committee??????? I have to do this for me and the others who need to rub elbows with like HCV'ers. any input or help or links would be immensely appreciated!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi I am not either person you wrote to but I have the same problem here. The closest support group is over an hour from me. From what I gather, a support group is alot like AA. You talk about the problem, what issues are troubling you, and see if anyone else is experiencing the same as you. I applaud you for taking the reins to help others. Love in His Light Sandy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hi I am not either person you wrote to but I have the same problem here. The closest support group is over an hour from me. From what I gather, a support group is alot like AA. You talk about the problem, what issues are troubling you, and see if anyone else is experiencing the same as you. I applaud you for taking the reins to help others. Love in His Light Sandy __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hee, hee, are you ever going to give us a name, or just a nickname? I don't ever discount the power of prayer. Even before I believed in it, my life turned on a dime. A friend told me the next day that she had put me on a prayer chain at her church. Dr. Weil has some interesting books about it. I am happy to hear of your experiences, since I am probably about 6 weeks behind you. I know we all are different, but you give me hope, as I am so scared to start the therapy. I, too, am a positive person - I just think of what a friend of mine said, " Refuse to lose! " About the support groups, there's a wonderful lady named Leona, a rock'n'roller from the south side of Chicago, who runs a very successful support group and website. I love it, she calls it Leona's Dragon Killer Domain. The web addy is http://www.bugbear.net/justice/ . She has tips on starting a support group. HTH, Marilyn Re: liver biopsy Marilyn and Dana, I have to tell you.....whether it's because I have every Christian I know....and their churches praying for me, or I tolerate this junk well. I have rheumatoid arthritis. The be in charge nurse said anything that has been a problem, could pop up in the next 53 weeks. Day 4 and I feel REALLY good. Good enough that I'm waiting for the other shoe to drop! I almost didn't start treatment because I have so little damage.......but the longer I wait.....the longer it will be to be done with this mess. I will come clean. I will not think otherwise, regardless of test results! The initial reaction is the worst.....and I haven't heard of anyone having the flu symptoms more than 3 days on the PEG-Interon/rib from scherring. That gives you 4 good days. Plus, the longer you are on the shots.....according to people I know and many on line, the less severe and quicker you get over the shot's side effects. On another note. There is no support groups anywhere closer than a 45 minute drive from me. I'm gonna start one on Friday nights at my church if I can get approval from church.....and I'm sure there's no problem there. What I need to know is what is a support group..........I've never been to one. Is it like a coffee club where you just sit and YAK??????? Do you have to have a committee??????? I have to do this for me and the others who need to rub elbows with like HCV'ers. any input or help or links would be immensely appreciated!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2002 Report Share Posted July 30, 2002 Hee, hee, are you ever going to give us a name, or just a nickname? I don't ever discount the power of prayer. Even before I believed in it, my life turned on a dime. A friend told me the next day that she had put me on a prayer chain at her church. Dr. Weil has some interesting books about it. I am happy to hear of your experiences, since I am probably about 6 weeks behind you. I know we all are different, but you give me hope, as I am so scared to start the therapy. I, too, am a positive person - I just think of what a friend of mine said, " Refuse to lose! " About the support groups, there's a wonderful lady named Leona, a rock'n'roller from the south side of Chicago, who runs a very successful support group and website. I love it, she calls it Leona's Dragon Killer Domain. The web addy is http://www.bugbear.net/justice/ . She has tips on starting a support group. HTH, Marilyn Re: liver biopsy Marilyn and Dana, I have to tell you.....whether it's because I have every Christian I know....and their churches praying for me, or I tolerate this junk well. I have rheumatoid arthritis. The be in charge nurse said anything that has been a problem, could pop up in the next 53 weeks. Day 4 and I feel REALLY good. Good enough that I'm waiting for the other shoe to drop! I almost didn't start treatment because I have so little damage.......but the longer I wait.....the longer it will be to be done with this mess. I will come clean. I will not think otherwise, regardless of test results! The initial reaction is the worst.....and I haven't heard of anyone having the flu symptoms more than 3 days on the PEG-Interon/rib from scherring. That gives you 4 good days. Plus, the longer you are on the shots.....according to people I know and many on line, the less severe and quicker you get over the shot's side effects. On another note. There is no support groups anywhere closer than a 45 minute drive from me. I'm gonna start one on Friday nights at my church if I can get approval from church.....and I'm sure there's no problem there. What I need to know is what is a support group..........I've never been to one. Is it like a coffee club where you just sit and YAK??????? Do you have to have a committee??????? I have to do this for me and the others who need to rub elbows with like HCV'ers. any input or help or links would be immensely appreciated!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 This is Dana! I don't know much about starting a support group, so I am glad my fellow big mouth had that site. Tehee. I have been to just about every kind of support group there is. You would think I would be an expert. I think you can kind of think of it as what you are doing now on line. But you are there in person. Some groups I liked and others not so much. I know one of the biggest keys is to have a monitor that makes sure each person that wants to speak does. And not let one person take up the entire meeting. And I am glad you are having an easy time with your treatment. It is good to here. I have heard so many bad things and did try the other combo. And believe me I believe in prayer. That's what has carried me all these years. Neve could of done it alone. I do pray that it continues to be easy for you! Big mouth Dana Tehee! --- Marilyn <MarilynWilkinson@...> wrote: > Hee, hee, are you ever going to give us a name, or > just a nickname? I don't ever discount the power of > prayer. Even before I believed in it, my life > turned on a dime. A friend told me the next day > that she had put me on a prayer chain at her church. > Dr. Weil has some interesting books about > it. > > I am happy to hear of your experiences, since I am > probably about 6 weeks behind you. I know we all > are different, but you give me hope, as I am so > scared to start the therapy. I, too, am a positive > person - I just think of what a friend of mine said, > " Refuse to lose! " > > About the support groups, there's a wonderful lady > named Leona, a rock'n'roller from the south side of > Chicago, who runs a very successful support group > and website. I love it, she calls it Leona's Dragon > Killer Domain. The web addy is > http://www.bugbear.net/justice/ . She has tips on > starting a support group. > > HTH, > > Marilyn > Re: liver > biopsy > > > Marilyn and Dana, > > I have to tell you.....whether it's because I have > every Christian I > know....and their churches praying for me, or I > tolerate this junk well. I > have rheumatoid arthritis. The be in charge nurse > said anything that has been > a problem, could pop up in the next 53 weeks. Day > 4 and I feel REALLY good. > Good enough that I'm waiting for the other shoe to > drop! I almost didn't > start treatment because I have so little > damage.......but the longer I > wait.....the longer it will be to be done with > this mess. I will come clean. > I will not think otherwise, regardless of test > results! The initial reaction > is the worst.....and I haven't heard of anyone > having the flu symptoms more > than 3 days on the PEG-Interon/rib from scherring. > That gives you 4 good > days. Plus, the longer you are on the > shots.....according to people I know > and many on line, the less severe and quicker you > get over the shot's side > effects. > > On another note. There is no support groups > anywhere closer than a 45 minute > drive from me. I'm gonna start one on Friday > nights at my church if I can get > approval from church.....and I'm sure there's no > problem there. What I > need to know is what is a support > group..........I've never been to one. Is > it like a coffee club where you just sit and > YAK??????? Do you have to have > a committee??????? I have to do this for me and > the others who need to rub > elbows with like HCV'ers. any input or help or > links would be immensely > appreciated!!!! > > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 This is Dana! I don't know much about starting a support group, so I am glad my fellow big mouth had that site. Tehee. I have been to just about every kind of support group there is. You would think I would be an expert. I think you can kind of think of it as what you are doing now on line. But you are there in person. Some groups I liked and others not so much. I know one of the biggest keys is to have a monitor that makes sure each person that wants to speak does. And not let one person take up the entire meeting. And I am glad you are having an easy time with your treatment. It is good to here. I have heard so many bad things and did try the other combo. And believe me I believe in prayer. That's what has carried me all these years. Neve could of done it alone. I do pray that it continues to be easy for you! Big mouth Dana Tehee! --- Marilyn <MarilynWilkinson@...> wrote: > Hee, hee, are you ever going to give us a name, or > just a nickname? I don't ever discount the power of > prayer. Even before I believed in it, my life > turned on a dime. A friend told me the next day > that she had put me on a prayer chain at her church. > Dr. Weil has some interesting books about > it. > > I am happy to hear of your experiences, since I am > probably about 6 weeks behind you. I know we all > are different, but you give me hope, as I am so > scared to start the therapy. I, too, am a positive > person - I just think of what a friend of mine said, > " Refuse to lose! " > > About the support groups, there's a wonderful lady > named Leona, a rock'n'roller from the south side of > Chicago, who runs a very successful support group > and website. I love it, she calls it Leona's Dragon > Killer Domain. The web addy is > http://www.bugbear.net/justice/ . She has tips on > starting a support group. > > HTH, > > Marilyn > Re: liver > biopsy > > > Marilyn and Dana, > > I have to tell you.....whether it's because I have > every Christian I > know....and their churches praying for me, or I > tolerate this junk well. I > have rheumatoid arthritis. The be in charge nurse > said anything that has been > a problem, could pop up in the next 53 weeks. Day > 4 and I feel REALLY good. > Good enough that I'm waiting for the other shoe to > drop! I almost didn't > start treatment because I have so little > damage.......but the longer I > wait.....the longer it will be to be done with > this mess. I will come clean. > I will not think otherwise, regardless of test > results! The initial reaction > is the worst.....and I haven't heard of anyone > having the flu symptoms more > than 3 days on the PEG-Interon/rib from scherring. > That gives you 4 good > days. Plus, the longer you are on the > shots.....according to people I know > and many on line, the less severe and quicker you > get over the shot's side > effects. > > On another note. There is no support groups > anywhere closer than a 45 minute > drive from me. I'm gonna start one on Friday > nights at my church if I can get > approval from church.....and I'm sure there's no > problem there. What I > need to know is what is a support > group..........I've never been to one. Is > it like a coffee club where you just sit and > YAK??????? Do you have to have > a committee??????? I have to do this for me and > the others who need to rub > elbows with like HCV'ers. any input or help or > links would be immensely > appreciated!!!! > > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 In a message dated 7/30/2002 10:46:50 PM Central Daylight Time, MarilynWilkinson@... writes: > http://www.bugbear.net/justice/ Cool...Thanks! and my name is Emo. Dad had a dry sense of humor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 In a message dated 7/30/2002 10:46:50 PM Central Daylight Time, MarilynWilkinson@... writes: > http://www.bugbear.net/justice/ Cool...Thanks! and my name is Emo. Dad had a dry sense of humor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Deena, Doctor said my liver was posterior. So he ordered an ultrasound so the technician could mark an x on my side where the needle should go. The actual procedure went very quickly and painlessly. They required me to lay on my side for a certain number of hours. Told me I couldn't get out of bed till 10:00 pm. Released me the next morning bright and early. Having to stay in the VA overnight on a too-soft bunk was the worst part. Your biopsy should be a sinch. Your friend, Gene Quote Link to comment Share on other sites More sharing options...
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