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In a message dated 3/9/01 2:16:39 PM Eastern Standard Time, cavumine@...

writes:

<< but it sounds like you've

got some significant meniscus damage, if not ACL. Muscular pain is one

thing, but joint pain is quite another - can you tell the difference? I'd

suggest you stick with leg extensions and gentle, low-weight leg presses.

>>

Pardon the contradiction here... but I just had knee surgery 8 weeks ago for

just that. I had a torn meniscus, but I also have an ACL reconstruction that

is not holding up... I have one of the best sports orthopaedics in the

country, who knows my goals in bodybuilding. I just got a clean bill of

health, no real restrictions, but the one thing that he DID tell me to avoid

is leg extensions! He would much rather me doing leg presses, squats, leg

curls and deadlifts. If I do choose to do extensions, I was told NOT to go

all the way up OR down ... very minimal range of motion.

All in all I STRONGLY suggest seeing a doctor imediately!!!!! As you can see

depending on what damage there is .... your course of action can be very

different!

Andra :)

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In a message dated 3/9/01 2:16:39 PM Eastern Standard Time, cavumine@...

writes:

<< but it sounds like you've

got some significant meniscus damage, if not ACL. Muscular pain is one

thing, but joint pain is quite another - can you tell the difference? I'd

suggest you stick with leg extensions and gentle, low-weight leg presses.

>>

Pardon the contradiction here... but I just had knee surgery 8 weeks ago for

just that. I had a torn meniscus, but I also have an ACL reconstruction that

is not holding up... I have one of the best sports orthopaedics in the

country, who knows my goals in bodybuilding. I just got a clean bill of

health, no real restrictions, but the one thing that he DID tell me to avoid

is leg extensions! He would much rather me doing leg presses, squats, leg

curls and deadlifts. If I do choose to do extensions, I was told NOT to go

all the way up OR down ... very minimal range of motion.

All in all I STRONGLY suggest seeing a doctor imediately!!!!! As you can see

depending on what damage there is .... your course of action can be very

different!

Andra :)

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UGH .... Mareesa my doctor (and therapist) told me the opposite for ham

curls! Evidently one of the jobs that the hamstrings can do is to stabalize

the knee, so the stronger that is the more stable my knee will be. My

original ACL reconstruction done in 1991 has not held up and now has a

" cyclops lesion " :( basically that means that it has a huge hole in the

middle and is being held by a few fibers on each side... I now feel like a

ticking time bomb! Our hope now is that if the ACL does blow out again, my

quads and hams will be strong enough to stablize my knee.

What did your doctor suggest for hamstrings other then curls?

Another suggestion ,,.. try doing step ups, it is a great way to strengthen

the quads and hams!

Andra :)

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I would try a different cardio machine, one with less impact. Or just walk on an incline, not run.

Cheryl C.

---------------------------------------------------------------------

>They are killing me due to the LBW as well as the cardio (I run on a treadmill)and they feel very unstable of late. >

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I would try a different cardio machine, one with less impact. Or just walk on an incline, not run.

Cheryl C.

---------------------------------------------------------------------

>They are killing me due to the LBW as well as the cardio (I run on a treadmill)and they feel very unstable of late. >

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I would try a different cardio machine, one with less impact. Or just walk on an incline, not run.

Cheryl C.

---------------------------------------------------------------------

>They are killing me due to the LBW as well as the cardio (I run on a treadmill)and they feel very unstable of late. >

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You might want to try some glucosamine sulfate, as it has been shown to help

repair and strengthen cartilage. My neighbor was almost crippled from pain in

her knees and her doctor put her on glucosamine a few weeks ago, and now she's

pain-free and can bend them really well.

Tina

*********** REPLY SEPARATOR ***********

On 3/9/01 at 4:22 PM rckymtnlvr@... wrote:

>Hi all -

>

>Happy Friday! I have a question for the group. I do not have very

>good knees to begin with (probably due to years of being overweight

>and out of shape coupled with a skiing injury). They pop when I bend

>at the knees and grind going up stairs and have done that for years.

>They are killing me due to the LBW as well as the cardio (I run on a

>treadmill)and they feel very unstable of late. The question is this -

> do you think I'm doing more damage to them or do you think if I

>suffer through the pain for a while, I will build up my quads and

>hamstrings and my knees will get better (I'm hoping for the latter).

>I don't want to get to the point where I blow them out or something.

>I have had very bad experiences with doctors, especially with them

>wanting to be more invasive than I'm willing to let them be (not

>specific to my knees but in other matters) so I'm very leery of going

>to a doctor. Any advice, comments, etc??

>

>Thanks!

>

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In a message dated 3/9/01 3:44:18 PM Eastern Standard Time, Andra writes:

Pardon the contradiction here...

Not at all. Every medical professional will give you some conflicting information. Every knee is different, and as you might be able to tell, I didn't examine this person's knee! Your knees are your's, and I believe you, and your physician. People also recommended glucosamine, which works great for some, but not at all for others. We do agree on one thing: see a physician. The original poster did say she (she?) was intimidated by seeing a doctor, and I have to respect that. Everyone has their reasons - even to their detriment. I hope this person realizes that seeing a PT or ortho doc will be to their great benefit, and I'd be more than willing to e-mail them personally to talk out their fears. Being in pain is no fun, and its very stressful.

a

"Language exerts hidden power, like the moon on the tides." - Rita Mae Brown

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Andra said:

> health, no real restrictions, but the one thing that he DID tell me to avoid

> is leg extensions! He would much rather me doing leg presses, squats, leg

> curls and deadlifts. If I do choose to do extensions, I was told NOT to go

> all the way up OR down ... very minimal range of motion.

Hey,

I had ACL and miniscus reconstruction, too, and my doc also said to stay

away from extensions and hamstring curls. Only problem is, I can't do

presses with my home gym. I do the extensions, but fear my knee will hate

me for it. Anyway, thought I'd pass on that extensions and ham curls,

according to my doc, are very stressful on ligaments.

Mareesa

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Wow...thanks to all of you for your advice. Sounds like I should see

a doc and at least hear what he/she has to say as well as start using

glucosamine.

> Andra said:

>

> > health, no real restrictions, but the one thing that he DID tell

me to avoid

> > is leg extensions! He would much rather me doing leg presses,

squats, leg

> > curls and deadlifts. If I do choose to do extensions, I was told

NOT to go

> > all the way up OR down ... very minimal range of motion.

>

> Hey,

> I had ACL and miniscus reconstruction, too, and my doc also said to

stay

> away from extensions and hamstring curls. Only problem is, I can't

do

> presses with my home gym. I do the extensions, but fear my knee

will hate

> me for it. Anyway, thought I'd pass on that extensions and ham

curls,

> according to my doc, are very stressful on ligaments.

>

> Mareesa

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Guest guest

I just saw your post, I am in the second week of my

second challenge, I also have no meniscus on my left

knee as well as a snapped ACL I never bothered to

repair. Since I compensated with my other leg so much

it has developed arthritis in the joint. My old Orth

doctor said don't do knee bends. After 20 years I

quit listening. I started taking

glucosimine/chondroitin several years ago and started

the first BFL last October, after the first few

dumbell squats I had some pain but concentrated on

ensuring my weight was on my heels per guidance and

the pain was gone. My knees have not felt better

since college and the atrophy in the original injured

knee has nearly disappeared. I was on heavy Motrin

the third week of BFL because I could hardly walk down

the stairs, but that was my puny muscles waking up to

the first two LBWs. GO FOR IT.

JD

--- rckymtnlvr@... wrote:

> Hi all -

>

> Happy Friday! I have a question for the group. I

> do not have very

> good knees to begin with (probably due to years of

> being overweight

> and out of shape coupled with a skiing injury).

> They pop when I bend

> at the knees and grind going up stairs and have done

> that for years.

> They are killing me due to the LBW as well as the

> cardio (I run on a

> treadmill)and they feel very unstable of late. The

> question is this -

> do you think I'm doing more damage to them or do

> you think if I

> suffer through the pain for a while, I will build up

> my quads and

> hamstrings and my knees will get better (I'm hoping

> for the latter).

> I don't want to get to the point where I blow them

> out or something.

> I have had very bad experiences with doctors,

> especially with them

> wanting to be more invasive than I'm willing to let

> them be (not

> specific to my knees but in other matters) so I'm

> very leery of going

> to a doctor. Any advice, comments, etc??

>

> Thanks!

>

> K

> C1W7D6

>

> p.s. Disclaimer - I know you all can't substitute a

> doctor's

> advice :-)

>

>

__________________________________________________

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Guest guest

I just saw your post, I am in the second week of my

second challenge, I also have no meniscus on my left

knee as well as a snapped ACL I never bothered to

repair. Since I compensated with my other leg so much

it has developed arthritis in the joint. My old Orth

doctor said don't do knee bends. After 20 years I

quit listening. I started taking

glucosimine/chondroitin several years ago and started

the first BFL last October, after the first few

dumbell squats I had some pain but concentrated on

ensuring my weight was on my heels per guidance and

the pain was gone. My knees have not felt better

since college and the atrophy in the original injured

knee has nearly disappeared. I was on heavy Motrin

the third week of BFL because I could hardly walk down

the stairs, but that was my puny muscles waking up to

the first two LBWs. GO FOR IT.

JD

--- rckymtnlvr@... wrote:

> Hi all -

>

> Happy Friday! I have a question for the group. I

> do not have very

> good knees to begin with (probably due to years of

> being overweight

> and out of shape coupled with a skiing injury).

> They pop when I bend

> at the knees and grind going up stairs and have done

> that for years.

> They are killing me due to the LBW as well as the

> cardio (I run on a

> treadmill)and they feel very unstable of late. The

> question is this -

> do you think I'm doing more damage to them or do

> you think if I

> suffer through the pain for a while, I will build up

> my quads and

> hamstrings and my knees will get better (I'm hoping

> for the latter).

> I don't want to get to the point where I blow them

> out or something.

> I have had very bad experiences with doctors,

> especially with them

> wanting to be more invasive than I'm willing to let

> them be (not

> specific to my knees but in other matters) so I'm

> very leery of going

> to a doctor. Any advice, comments, etc??

>

> Thanks!

>

> K

> C1W7D6

>

> p.s. Disclaimer - I know you all can't substitute a

> doctor's

> advice :-)

>

>

__________________________________________________

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  • 7 months later...

From: " patty " <life4m@...>

> I have a question. Perhaps someone has had experience in with this. Is

knee pain common in people with achondroplasia?

In a word " Yes! " Most definitely!

Part of the condition of achondroplasia IS the deformed joints. Add to that

the bowing of the legs. Put the two together and you have undue outward

force on knees which are not properly formed.

At the grand old age of 56 I have found for some years now, that

occasionally a knee will give up completely and I nearly collapse to the

floor. Also, the left knee is REALLY feeling the wear and tear now, and

gives one hell of a lot of pain if put to too much stress. I also find it is

a lot more 'loose' than the right.

Like you, the x-ray showed nothing. However, I was advised by my

physiotherapist neighbour to go see a podiatrist (a sort of extra special

Chiropodist), who made me an insole with built up heel and under toe

support, to try to correct some of the mis-alignment. It worked wonders!

Now I know why, in the past, as my shoes wore down, the pain in the knee got

worse and worse, until I either bought new shoes, or built up the outside!

Good luck to Alisha with her dancing, but really, not wishing to be the

harbinger of doom, I think she will suffer for it in years to come. There

again, if we listen to all the sages, there is very little we (achons etc)

SHOULD do, because we risk SOME injury etc:-)

Kindest regards

Fred

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Hi Patty,

I have been an avid dancer for the past 18 years. One day back in high school, I

was leaning on the desk waiting for the bell to ring and I straightened my leg,

I heard a pop and my knee gave out. It hurt so bad, I could barely make it back

to my car. I couldn't put pressure on my leg and I couldn't bend it at all.

I went to a sports injury specialist in my area who looked over my knee did some

x-rays and found out this is what happened:

Tore my munniscus(sp?) tendon, had 2 baker cysts & a pulled hamstring.

I had to go through weeks of physical therapy to stregthen my hamstrings, and

massage (shouldn't call it a massage, it's not relaxing! :-) the cysts so that

the pockets of fluid would disperse.

I strongly recommened physical therapy, and if you haven't already, to go to a

specialist in the field of sports related injuries. Since they are specialists,

They know a whole lot about little tendons in your knees and joints that can get

damaged, that some basic physicians, won't know too much about.

My Doctor didn't have much background with knowledge in dwarfism, but he did all

the right things for my knee injury.

Tell your daughter CONGRATULATIONS from me about the Nutcracker, and to keep on

going with the dancing. I love it too! :-)

www.ummmyeah.com

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> I have a question. Perhaps someone has had experience in with this.

Is knee pain common in people with achondroplasia?

>

Hello,

Joint problems are very common with achondroplasia. In later years,

most achons suffer to some degree arthritic conditions. In young

children it is common for them to have laxity in the joints. This is

sometimes referred to being " double-jointed " . When I was a kid, I

could turn from the knee down my left leg until my foot was

completely facing backwards and flat on the floor. But now, I

wouldnt't attempt it. This laxity may have contributed to the turning

of her knee.

Also, I recently had knee surgery for a tear in the menicus that the

doctor said was spontaneous (no apparent cause). Something like this

too could account for the problem your daughter suffered. (I'm not a

doctor and I don't play one on TV.)

> BTW She'll be in Nutcracker in December -- even if she has to be

> taped up to do it.

I am sure she is looking much forward to this. But please take in the

advisement of an orthopedic specialist to be sure it will not cause

further damage to her knee. Dashed hopes are sometimes healed much

easier that troubled knees.

Here is hoping that all goes well...

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  • 2 years later...

Absolutely! I would have to say that every doctor I have seen in the last 5-10

years has had a different diagnosis every time I've gone to see them. When my

knee started hurting again in 1991, my OS gave me FIVE different and unrelated

diagnoses in 5 visits. My PCP diagnosed me with two different things for finger

joint swelling. My rheumatologist was too quick to tell me that I didn't have

polymyalgia rheumatica. (Actually it turns out that I probably don't, but based

on what I've read, she skipped through enough diagnostics to make her diagnosis

very questionable.)

Then there's the difference of opinion amongst doctors as to what's the best

approach for your problem, even if your problem is clear (e.g. a lateral release

-- my old OS said " Well, I could do another LR [i had one in '95] " and my new OS

says he'll only do one if the kneecap is tilted.

Then there's finding out whether it's tilted or not. Sunset X-rays may or may

not show it. Sticking your leg out (relaxed) and tightening your quads (old OS)

may or may not show it. My new OS says he can tell once he's INSIDE scoping,

when I'm completely relaxed! But what really happens when I actually use my

leg? Since I get CP pain, could it be anything but a lateral pull?????

Then, if you're older and you need a TKR, there's the matter of who will and who

won't use the new ceramic implants, which last 80% longer.

It's very frustrating and I think all of us have run up against it.

I'm sorry it's that way. It seems to be more that way now than before HMO's

took over, or maybe back than I was just more naive, had more faith in doctors.

How old are you?

Ann

knee problems

Hi everyone,

I have a question for you, or more of a problem. I went and saw a surgeon for

my knee 6 months ago. He told me that the knee cap wasnt aligned, after viewing

the mri. That he didnt want to operate right now because he conciders me to be

too young, so he wanted to wait it out 6 months to see if it realigned itself.

I went back yesterday, and he changed his story completely. He proceeded to

tell me that my knee cap was tilted and was aligned, after me questioning why he

had told me something different before. He then tells me that its nerve damage

and that theres nothing he can do for me. He is sending me to a pain clinic now.

But i am still trying to figure out why he changed his story. Has anyone else

come acrossed this problem?

Im thinking about getting a 2nd opion, because the first thing he said to me

when he walked in the room yesterday was, " how old are you now? " That pretty

much indicates he doesnt like operating young people. I have tried accuputure

with no success. Is there anything else out there that i might be able to try

that works for others? Any suggestions would be great. All i want to do is be

able to ride my bike again. lol. half a block just doesnt cut it.

Thanks,

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Did the doctor spend any time looking into WHY you knee cap may have

out of alignment?

See Doug's " Chondromalacia Do's and Don'ts. " I've copied and pasted

it below. (For future reference, this is in the files section of this

group's web site.)

ALL the suggestions in it are very good, but the first one on the

list (finding someone who gives you a through exam) is KEY.

The first three doctors I went to weren't all that good and really

didn't look beyond the knee and giving " cookie-cutter " one-size-fits

all advice. It was only the fourth doctor who spent time tracking

down exactly what was wrong in my case and giving me a tailored PT

prescription.

So go to other doctors and let us know what they say.

BTW, given that they don't seem to have any idea of what is wrong

with you, you shouldn't even be considering surgery at this point!

Surgery is notoriously unsucessful for many (but not all) knee

problems.

===

--- Chondromalacia Do's

1) Keep searching until you find a doctor who will give you a

thorough exam (1 - 2 hours), looking at the entire body. You'll

probably have better luck with a pain specialist, osteopath (D.O.),

doctor of applied kinesiology or a really good physical therapist.

Most orthopedic surgeons give you about 10 minutes.

2) Become your own doctor. Do as much research as you can about

knees, doctors and all the different treatment options there are.

Concentrate on what is " wrong " with you, not just controlling the

symptoms.

3) Try to keep moving your knee as best as you can. Try swimming, no-

resistance cycling or walking if you can tolerate it.

4) Start with the least invasive treatments first.

5) Keep thinking positively! You need to have the attitude that you

WILL get better.

--- Chondromalacia Don'ts

1) Don't simply accept that you " just have to live with it. " Chronic

knee pain can often be fixed.

2) Don't even consider surgery until you've exhausted every other,

less-invasive option and cannot function in your daily life.

3) Don't exercise through severe pain, even if the exercises are

prescribed by a physical therapist. Pain is the body's way of telling

you something is wrong.

4) Don't blindly accept your diagnosis. Doctors make mistakes,

especially when it comes to knees.

5) Don't stop exercising. Even if you can only work the upper-body

or exercise in a pool, you've got to try to stay healthy and strong.

Don't immobilize the leg - that could make your situation worse.

> Hi everyone,

>

> I have a question for you, or more of a problem. I went and saw a

surgeon for my knee 6 months ago. He told me that the knee cap wasnt

aligned, after viewing the mri. That he didnt want to operate right

now because he conciders me to be too young, so he wanted to wait it

out 6 months to see if it realigned itself.

>

> I went back yesterday, and he changed his story completely. He

proceeded to tell me that my knee cap was tilted and was aligned,

after me questioning why he had told me something different before.

He then tells me that its nerve damage and that theres nothing he can

do for me. He is sending me to a pain clinic now. But i am still

trying to figure out why he changed his story. Has anyone else come

acrossed this problem?

>

> Im thinking about getting a 2nd opion, because the first thing he

said to me when he walked in the room yesterday was, " how old are you

now? " That pretty much indicates he doesnt like operating young

people. I have tried accuputure with no success. Is there anything

else out there that i might be able to try that works for others? Any

suggestions would be great. All i want to do is be able to ride my

bike again. lol. half a block just doesnt cut it.

>

> Thanks,

>

>

>

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I would agree 100% with Ann

I have had knee probs for 4 years and have found that GP's are of

little help (not enough specialist knowledge), OS's all have

different opinions, physiotherapists vary ENORMOUSLY in competence,

etc etc... I'm afraid you will have to see several OS's and use your

common sense about what they are telling you. You need to find

someone who will do a thorough examination, take an interest and

listen to what YOU tell him. There's a lot of jerk OS's out there

with big egos and strong (but wrong) opinions... The knee joint is

the most complex joint in the body, and it is extremeley difficult to

diagnose....

Joe

> Absolutely! I would have to say that every doctor I have seen in

the last 5-10 years has had a different diagnosis every time I've

gone to see them. When my knee started hurting again in 1991, my OS

gave me FIVE different and unrelated diagnoses in 5 visits. My PCP

diagnosed me with two different things for finger joint swelling. My

rheumatologist was too quick to tell me that I didn't have

polymyalgia rheumatica. (Actually it turns out that I probably

don't, but based on what I've read, she skipped through enough

diagnostics to make her diagnosis very questionable.)

>

> Then there's the difference of opinion amongst doctors as to what's

the best approach for your problem, even if your problem is clear

(e.g. a lateral release -- my old OS said " Well, I could do another

LR [i had one in '95] " and my new OS says he'll only do one if the

kneecap is tilted.

>

> Then there's finding out whether it's tilted or not. Sunset X-rays

may or may not show it. Sticking your leg out (relaxed) and

tightening your quads (old OS) may or may not show it. My new OS

says he can tell once he's INSIDE scoping, when I'm completely

relaxed! But what really happens when I actually use my leg? Since

I get CP pain, could it be anything but a lateral pull?????

>

> Then, if you're older and you need a TKR, there's the matter of who

will and who won't use the new ceramic implants, which last 80%

longer.

>

> It's very frustrating and I think all of us have run up against it.

>

> I'm sorry it's that way. It seems to be more that way now than

before HMO's took over, or maybe back than I was just more naive, had

more faith in doctors.

>

> How old are you?

>

> Ann

> knee problems

>

>

> Hi everyone,

>

> I have a question for you, or more of a problem. I went and saw a

surgeon for my knee 6 months ago. He told me that the knee cap wasnt

aligned, after viewing the mri. That he didnt want to operate right

now because he conciders me to be too young, so he wanted to wait it

out 6 months to see if it realigned itself.

>

> I went back yesterday, and he changed his story completely. He

proceeded to tell me that my knee cap was tilted and was aligned,

after me questioning why he had told me something different before.

He then tells me that its nerve damage and that theres nothing he can

do for me. He is sending me to a pain clinic now. But i am still

trying to figure out why he changed his story. Has anyone else come

acrossed this problem?

>

> Im thinking about getting a 2nd opion, because the first thing he

said to me when he walked in the room yesterday was, " how old are you

now? " That pretty much indicates he doesnt like operating young

people. I have tried accuputure with no success. Is there anything

else out there that i might be able to try that works for others? Any

suggestions would be great. All i want to do is be able to ride my

bike again. lol. half a block just doesnt cut it.

>

> Thanks,

>

>

>

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>I would agree 100% with Ann

Ahem. Thangyew, thangyew ver' mudge.

> <snip> ... There's a lot of jerk OS's out there

with big egos and strong (but wrong) opinions...

You must have been to see the second knee dr. I saw when I got my crippling

knee pain in '93! He has the rep for being the best in town, but after an

extremely cursory and curt examination, he dismissed me as an aging middle aged

woman (OK -- he didn't say that, but I got the distinct feeling) who probably

didn't need much mobility anyway (this was after my having becoming pretty

athletic climbing mtns every weekdn and XC skiing in the winter). He couldn't

find anything wrong after spending about 5 min. with me. (After I went to

another one, he did a LR and that fixed the problem till I got a new one --

problem, not knee.) And the 2nd guy wasn't just curt, he was kinda rude. The

OS I saw before him, nice enough guy, didn't have a clue as to what was wrong

bec. nothing showed up on X-ray or MRI. He said he could " do an exploratory

scope " which in this case wouldn't have revealed anything.

Ann

Joe

> Absolutely! I would have to say that every doctor I have seen in

the last 5-10 years has had a different diagnosis every time I've

gone to see them. When my knee started hurting again in 1991, my OS

gave me FIVE different and unrelated diagnoses in 5 visits. My PCP

diagnosed me with two different things for finger joint swelling. My

rheumatologist was too quick to tell me that I didn't have

polymyalgia rheumatica. (Actually it turns out that I probably

don't, but based on what I've read, she skipped through enough

diagnostics to make her diagnosis very questionable.)

>

> Then there's the difference of opinion amongst doctors as to what's

the best approach for your problem, even if your problem is clear

(e.g. a lateral release -- my old OS said " Well, I could do another

LR [i had one in '95] " and my new OS says he'll only do one if the

kneecap is tilted.

>

> Then there's finding out whether it's tilted or not. Sunset X-rays

may or may not show it. Sticking your leg out (relaxed) and

tightening your quads (old OS) may or may not show it. My new OS

says he can tell once he's INSIDE scoping, when I'm completely

relaxed! But what really happens when I actually use my leg? Since

I get CP pain, could it be anything but a lateral pull?????

>

> Then, if you're older and you need a TKR, there's the matter of who

will and who won't use the new ceramic implants, which last 80%

longer.

>

> It's very frustrating and I think all of us have run up against it.

>

> I'm sorry it's that way. It seems to be more that way now than

before HMO's took over, or maybe back than I was just more naive, had

more faith in doctors.

>

> How old are you?

>

> Ann

> knee problems

>

>

> Hi everyone,

>

> I have a question for you, or more of a problem. I went and saw a

surgeon for my knee 6 months ago. He told me that the knee cap wasnt

aligned, after viewing the mri. That he didnt want to operate right

now because he conciders me to be too young, so he wanted to wait it

out 6 months to see if it realigned itself.

>

> I went back yesterday, and he changed his story completely. He

proceeded to tell me that my knee cap was tilted and was aligned,

after me questioning why he had told me something different before.

He then tells me that its nerve damage and that theres nothing he can

do for me. He is sending me to a pain clinic now. But i am still

trying to figure out why he changed his story. Has anyone else come

acrossed this problem?

>

> Im thinking about getting a 2nd opion, because the first thing he

said to me when he walked in the room yesterday was, " how old are you

now? " That pretty much indicates he doesnt like operating young

people. I have tried accuputure with no success. Is there anything

else out there that i might be able to try that works for others? Any

suggestions would be great. All i want to do is be able to ride my

bike again. lol. half a block just doesnt cut it.

>

> Thanks,

>

>

>

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  • 1 year later...
Guest guest

-Hi Vicki,

keep up the knee battle. I hope with time you will get to a better

place. I keep telling myself that too. I am limited with the same

activities. Earlier on when I was still able to go to the gym, I was

ok on a staie master type machine where the machine never leaves your

foot, so I got good at keeping contact with the machine all the time

to stop a lot of discomfort in my foot and knee.

Now I haven't tried it. I am limited by the same activities as you. I

had to rush across the road the other day, a car was coming at me too

fast. I think I nearly fell on my face when I tried to do a quick

skip. The mind remembers how to do it but the body is not able.

In my last knee surgery, they had to manually manipulate my knee and

break or tear the scar tissue as I only had 90 degrees. That worked!

I am now getting to 140 degrees. They also removed most of the

senovial tissue so the knee runs stiffer now too. I am hoping it will

continue to get easier to use.

My daughters have hyper mobile joints naturally. The oldest has had

so much trouble on and off crutches and wheel chairs during her

school years. That has eased, but now she gets trouble with joints

she over uses easily like you described. She is nursing a wrist at

the moment with a brace to immobalise it. I know how you are finding

it. She is supposed to incorporate gym work to keep her joints strong

but she hasn't been doing it with her hardest year at school at the

moment.

I am with you, I still can't stand a long time and limit my walking.

I am pleased I have increased it though.

All the best with your knees and A. I is a lot to deal with together.

The flip side is. When people want to ask about your health, they ask

about your knees, they just don't know that you are also struggling

with A as well so you can get around explaining it.

Kindest regards

-- In achalasia , " Vicki " <vickismiles@...> wrote:

>

> ,

> I am glad your knees are slowly improving. I am still somewhat

> limited by my knees but much better than I used to be. I was born

> with very poorly aligned knees but didn't know this or have any

> problems until I was about 20. My two surgeries have been on my

> right knee. I will probably eventually need surgery on the left

> knee (which was more mis-aligned than the right one according to

the

> CAT scan but didn't bother me as much as the right). I do worry

> that by waiting for the surgery I am wearing away the cartilage in

> my left knee since I have bone rubbing against bone but I don't

want

> to deal with another knee surgery yet.

>

> For a few years I was in constant pain. I had several months

when

> it was painful to even stand briefly or walk on crutches.

>

> Now, I can walk with only mild pain. Stairs are very painful for

> me so I avoid them. I've had tons of people (even friends who know

> I have knee problems) call my lazy for taking the elevator, but it

> is worth it. I can't do certain thinks like stand for long periods

> of time, jump, squat, jog, etc...

>

> At one point when my quadricepts were stronger I could bike

okay.

> Now it bothers me. I have been told that even though biking is not

> weight-bearing it can be rough on the knees because you have to

bend

> your knees a lot to bike.

>

> So, I use the stair master (a physical therapist who seemed good

> recommended this). I was surprised he mentioned this since I have

> trouble with stairs. He said to try to take small steps and to

> focus on trying to go fast (rather than using a high resistance).

> This is less painful for me than the bike. I try to ice my knees

> for about 20 minutes when I am done.

>

> After I got the knee problem under control, I got repetitive

> stress syndrome (pain when typing and writing in my hands and

> arms). And then when that was somewhat under control, I

> developed " A " and pain when talking. So, I am hoping that will be

> all the medical problems I get for awhile. I need a break from all

> the doctor visits.

>

> Vicki from CA

>

>

> > > > >

> > > > >

> > > > > Hi ,

> > > > >

> > > > > The rare time I get that question (since with most

> people

> > > it

> > > > seems to

> > > > > be more " about them, " than me,) my answer might vary

> depending

> > > > upon the

> > > > > situation or the degree of familiarity with the person.

I

> > > might

> > > > say that " I just

> > > > > need more time to eat, " or " I have a digestive disorder, "

> > or " I

> > > > like to savor

> > > > > every bite, " or " I need to drink a lot with my meal, "

> > > or " what's

> > > > it to ya

> > > > > buddy? "

> > > > >

> > > > > I can't recall the last time there was a followup

> > question

> > > > to my

> > > > > response. Perhaps, also, with the " digestive disorder "

> > > > response, more people are

> > > > > interested in a followup question if the person is female,

> > just

> > > > due to social

> > > > > issues in that connection.

> > > > >

> > > > > , from the Island of Long.

> > > > >

> > > > > In a message dated 5/6/2006 4:09:09 A.M. Eastern Standard

> > Time,

> > > > > ykosworks@ writes:

> > > > >

> > > > > Here might be another question to ask everyone.

> > > > > When you are questioned about the way you are eating, what

> is

> > > > your

> > > > > answer. I still struggle with a simple answer I am

> comfortable

> > > > with.

> > > > > Most people will ask if it is cooked OK or if anything is

> > wrong

> > > > with

> > > > > it. It is far to difficult to say what you have in most

> cases

> > > or

> > > > you

> > > > > end up with the whole medical thing happening.

> > > > >

> > > > >

> > > > > Intriqued

> > > > >

> > > >

> > >

> >

>

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  • 5 months later...

Very good advice, .

I'm contemplating inserting a rest week in between

each of the four weeks of the FIRM 90 Day Calendar.

I'm wondering if my knee twinges are due to doing so

much tall box, step, and lunge/squats with the FIRM

workouts. By rest week I mean light (low impact)

aerobics and maybe yoga/Pilates for toning. I hate to

have to do that, but it seems better than just tearing

my knees down.

My joints aren't getting any younger...me, on the

other hand, well that is debatable!

Take care,

Donna

--- Pink Pussycat

<pinkpussycat@...> wrote:

> Chondromalicia is a common knee injury among

> aerobics instructors and people who work out a lot.

> If you have chronic knee issues I would reccommend

> seeing a sports medicine doctor, as they will work

> to rehabilitate you so that you will be able to work

> out again sooner.

>

> If you have bad knees, I would not do high impact

> workouts or step and just REST. I know this is very

> hard to do when you are used to working out. I had

> the other common injury, plantar fasciitis (foot

> problem) and it hurt and it sucked not being able to

> move.

>

> Patience, love your knees and body,

> laura

>

__________________________________________________

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  • 9 months later...

Hi all has anyone had knee problems. One of my knees keeps swelling

for the last week. I went to the doctor and had an x-ray to make sure

that i didn't fracture it or anything. He said that I must of hurt it

but I dont remember hurting it. he said that it should be better in

about two weeks.

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I have knee pain every so often but not the swelling you mention. Do

you have arthritis in the knee, maybe and it just got inflamed??? I

hope someone can comment with more experience.

Clara from OR

>

> Hi all has anyone had knee problems. One of my knees keeps swelling

> for the last week. I went to the doctor and had an x-ray to make sure

> that i didn't fracture it or anything. He said that I must of hurt it

> but I dont remember hurting it. he said that it should be better in

> about two weeks.

>

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  • 1 year later...

Has anyone ever had to go back in and have scar tissue removed? I had a TKR

last December, had gotten up to between 100 - 110 degree bend and as soon as

I got to that, my physical therapy was ended. Since then, my knee has

regressed to only about an 80 - 90 degree bend. The doctor has given me 3

options - live with it, try to remove scar tissue or replace hardware with a

new one that angles allowing for a better bend.

I am not looking forward to more surgery because I feel he should have kept

me in therapy longer. But I do not want to " live with it " either, it defeats

the reason that I had the replacement in the first place.

Thanks for any info.

Debbie

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