Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 hello amanda,I'm glad to hear you and you mother are better...remember you're life today is not what it was yesterday,I'm a post liver trans patient and doing the pegintron also,my labs very alot,so I have to stay on top of my health as much as possible,nothing in this life is forever,so help your mother,encourage her to eat healthy,ask the doctors all those silly questions,alway question " why " they are doing something,what results are they hoping to get,and take all the meds,sometimes when we feel well they don't seem important but they are,they keep us well...stay away from " herbs " unless aproved by the docs..remember they are just chemicals in natural form...hope things get better soon,they always change,the last chance only comes once and we pass on ,so till then ,smile,be brave as I know you are,love and cherish the time you've won...it takes time for us to recover,I was transplanted in 1997,the hep-c still causes me to feel bad,but I'm still here and fighting....smiles jack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 hello amanda,I'm glad to hear you and you mother are better...remember you're life today is not what it was yesterday,I'm a post liver trans patient and doing the pegintron also,my labs very alot,so I have to stay on top of my health as much as possible,nothing in this life is forever,so help your mother,encourage her to eat healthy,ask the doctors all those silly questions,alway question " why " they are doing something,what results are they hoping to get,and take all the meds,sometimes when we feel well they don't seem important but they are,they keep us well...stay away from " herbs " unless aproved by the docs..remember they are just chemicals in natural form...hope things get better soon,they always change,the last chance only comes once and we pass on ,so till then ,smile,be brave as I know you are,love and cherish the time you've won...it takes time for us to recover,I was transplanted in 1997,the hep-c still causes me to feel bad,but I'm still here and fighting....smiles jack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Hello , if I understand correctly your moms problem is that she is becoming anemic. I too suffered from this side effect and had to stop therapy. I am now researching using Procrit along with therapy to combat anemia. I am to start Peg/rib therapy at the end of this month and know that I will again either have to stop therapy or take such low doses that therapy may not work. I have found a doctor at a military hospital in San Texas that is using Procrit with hep c therapy and says it is working! It is not supposed to work but it does. It is used for cancer and HIV patients to combat the reduction of red blood cells due to chemotherapy. So, why wouldnt it work with Hep C therapy. The problem is doctors are not familiar with this drug and because it is not widely used with Hep C therapy are uncomfortable. I would be happy to let you know my findings. <br>May the Lord bless you both,<br>Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Hello , if I understand correctly your moms problem is that she is becoming anemic. I too suffered from this side effect and had to stop therapy. I am now researching using Procrit along with therapy to combat anemia. I am to start Peg/rib therapy at the end of this month and know that I will again either have to stop therapy or take such low doses that therapy may not work. I have found a doctor at a military hospital in San Texas that is using Procrit with hep c therapy and says it is working! It is not supposed to work but it does. It is used for cancer and HIV patients to combat the reduction of red blood cells due to chemotherapy. So, why wouldnt it work with Hep C therapy. The problem is doctors are not familiar with this drug and because it is not widely used with Hep C therapy are uncomfortable. I would be happy to let you know my findings. <br>May the Lord bless you both,<br>Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 Deb, The thing about being able to have a living donor is twofold........ One, you can get your TX sooner.(no waiting until you are VERY ill) and the fact that you can now also get bone marow TX and then you will not need to be on immune suppresant medication your entire life afterward. Getting some marrow from your donor will enable your bood to change and youj will become the same as your donor.so no need for any med to stop rejection as the body would see the new liver as its own. I will explain better tomorrow as am leaving home right now. Joanne Oh.to see if a person is compatable is simply a blood test and a chat with your TX doctors. If they were ok then they would have tests to be sure they were healthy enough. Quote Link to comment Share on other sites More sharing options...
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