Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 , I was " listed " for Tx way before I needed it. Not all centers list at the last minute......many like mine do it early and just keep an eye on you with visits often. I went from going every 3 months to every month then at the end every week. When my MELD hit 18 I was put on the top of the list. I too had a not very common blood type and they said the same to me.......... In my case there wasn't anyone else on list with my blood type. ; - ) I was walking about and doing things.......slowly but doing them.....eating normal.etc.although I did fall asleep often (encephalophy). I too didn't think I needed one yet..........although everyone else knew. I think we go into a sort of denial. Then at the very end I knew I was dying.you can feel yourself start to slip away.Your can feel your organs slow down. Then my edema was so bad that I actually leaked fluids from my skin. Even as ill as I was that made me sick to see. I ended up having to toss all my clothes away after my transplant as they were all stained yellow from the fluids leaking. BTW.You did join the Post Tx group.right? If not let me know and I will send the link so you two can learn all about what to expect. Joanne ____________________________________________________________ Click here to find the rental car that fits your needs. http://thirdpartyoffers.netzero.net/TGL2241/fc/Ioyw6i4uHs8QnmnwJgw273O0ebMr2Ev34\ fxigTF1g3ElZv5fw8LD7T/ Quote Link to comment Share on other sites More sharing options...
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