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[Guest guest]

I went to see the doctor today to discuss

endo's results: TSH 0.85 mu/L (0.35-5.50) free T4 12.2 pmol/L (11.0-23.0) fT3b

4.0(3.5-6.5) serum cortisol 197nmol/L(-). He has said he will refer me for a

second opinion to the Queen Hospital in Birmingham to see prof M S

(anybody know if i stand much chance with this doc?) my doc said he did'nt dare

prescribe any thyroid hormone if my levels are in range. He was very

understanding and sympathetic as i burst into tears on him.(feeling pretty

sorry for myself at the moment) Im a bit confused about all these tests as the

previous TSH was 2.14 back in Nov 2010, they also did some other tests with the

above thyroid function and the results are as follows: serum oestradiol 205

pmol/L(-) serum FSH level High 32.5 iu/L (1.0-11.0) Luteinizing hormone High

20.0 iu/L (2.0-13.0) prolactin 105 mu/L (0-520), i would at this point like to

make you aware that i have not been diagnosed as hypo and i do not take any

thyroid meds or any other meds at all at the moment, i would also like to say

that i had a hysterectomy about 17yrs ago that made me go into early menapause

so i think that i should be just about done with that side of things. Your

thoughts on these tests would be much appreciated and any advice you can give

as to the next step, i was considering saying sod it and just asking for a

referal to Dr S but money is so tight and i am a bit worried that if i got

diagnosed by a private doc i would then have problems getting nhs prescriptions

for the condition ! luv Sue x

[Guest guest]

Hi Sue - the problem with anybody writing to me (i.e. Hi Sheila)

is that other members might think you only wanted a response from me, so they

don't bother writing. Unfortunately, I cannot write to everybody individually

so hopefully, somebody else might pop in here to answer your questions

regarding your other blood test results.

Sorry I don't know Professor MS (write to me privately giving me

the full name at sheilatpauk (DOT) com (leave out the space) and I can perhaps let

you know more then. I do have a list of doctors who appear to know a little

more about thyroid than most endocrinologists, because these doctors will

prescribe using synthetic or natural products containing the active thyroid

hormone T3, which I will send to you privately, and you might wish your GP to

change your referral to one of them.

What is it about patients suffering symptoms of hypothyroidism

terrifying doctors so much they refuse to give a diagnosis and start thyroid

hormone replacement - I just do not understand. TSH is a pretty useless test,

however much doctors try to tell you it is the be all and end all of thyroid

testing, it simply is not and the results can vary for all manner of

reasons. At least, thank goodness your GP can tell that something is

wrong as he has referred you on.

Ask the endocrinologist (whoever you see) to give you a full

thyroid function test, i.e. TSH, free T4, free T3 and also test to see whether

you have thyroid antibodies (TP0 and TgAb). Ask also for your levels of

ferritin, B12, D3, folate, magnesium, copper and zinc to be tested to see

whether any are low in the reference range. If you have members of your family

who have a thyroid or autoimmune disease, tell your endocrinologist and it is a

good idea to also take your temperature for 4/5 mornings before you see him and

let him/her know if any of these are below 97.8 (they could be much less). Doctors

appear to have lost the art of diagnosing by signs, symptoms, clinical

examination, family history these days, relying ONLY on serum thyroid function

test results before giving you a diagnosis, or not.

Luv - Sheila

Hi Sheila, I went to see the doctor today to

discuss endo's results: TSH 0.85 mu/L (0.35-5.50) free T4 12.2 pmol/L

(11.0-23.0) fT3b 4.0(3.5-6.5) serum cortisol 197nmol/L(-). He has said he will

refer me for a second opinion to the Queen Hospital in Birmingham to

see prof M S (anybody know if i stand much chance with this doc?) my doc said

he did'nt dare prescribe any thyroid hormone if my levels are in range. He was

very understanding and sympathetic as i burst into tears on him.(feeling pretty

sorry for myself at the moment)

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[Guest guest]

TSH 0.85 mu/L (0.35-5.50) free T4 12.2 pmol/L (11.0-23.0) fT3b 4.0(3.5-6.5) serum cortisol 197nmol/L(-). He has said he will refer me for a second opinion to the Queen Hospital in Birmingham to see prof M S....

I'm a bit confused about all these tests as the previous TSH was 2.14 back in Nov 2010.....

Hello Sue,

It is a pity that your GP hasn't tested for thyroid antibodies. Results like yours (fluctuating "normal" TSH and low or "normal" FTs) often indicate Hashimoto's disease (autoimmune thyroiditis). You might find that you have positive thyroid autoantibodies and if the Prof you are going to see is worth his salt, he will order those tests. If he doesn't, then please request him to order TPO, TgAB, and TRAB. If you tested positive for any of the thyroid antibodies, that in itself would be diagnostic for Hashimoto's disease and you should get treated, whatever your TSH.

I assume the Prof might order a Short Synacthen Test (SST) for you, because your morning cortisol levels are pretty low, which indicates that your adrenals are struggling. A reasonably good morning cortisol result would be about the 450-500 level ... yours is under 200, which gives reason for concern.

If the Prof will order an SST for you, please make sure that the appointment will be scheduled for no later than 9 am. This is when your cortisol level is (supposed to be) at its highest and it will give a more accurate result than a test that is performed later in the day. Also – if you are currently taking any kind of sex hormone (including creams or HRT) you will need to stop that for some weeks before an SST as those hormones will invalidate the test result; and please turn up fastened for the test – it seems that patients are often not told to do either....- but I am getting ahead of myself; this is something to bear in mind for the future IF the Prof is investigating further – first you have to go and see the endo, and see what he says.... let's hope he's a good `un J.

Best wishes,

[Guest guest]

I asked him to do the antibodies tests but he said that onlyendo's could ask for that blood test, he did however enlighten me on what mylump in the thyroid has been named as.. a coliodal cyst (have no idea if thatsthe correct spelling), what that is i have no idea! maybe you could enlightenme? luv Sue

Your GP is telling you porky pies, Sue. GP's can order a thyroid antibody test, they just don't like to do it because it's expensive. My own GP ordered the test for me, hence I am certain that they are allowed to do it.

A `colloid thyroid cyst' is a collection of many small cysts, and is not believed to be of much importance, but if it were very large or unsightly, surgery might be needed to remove it. – however, what makes your GP so certain that this `lump' is "just" colloid cysts? Have you have a scan to confirm it, or a needle biopsy perhaps?

Best wishes,

[Guest guest]

>

>

> I asked him to do the antibodies tests but he said that only

> endo's could ask for that blood test, he did however enlighten me on

> what my

> lump in the thyroid has been named as.. a coliodal cyst (have no idea if

> thats

> the correct spelling), what that is i have no idea! maybe you could

> enlighten

> me? luv Sue

>

>

>

> Your GP is telling you porky pies, Sue. GP's can order a thyroid

> antibody test, they just don't like to do it because it's expensive

>Hi , I some how thought he was, he was so sincere aswell ! The way he

held my hand (as i walked out of the surgery in floods of tears) clasping it in

both of his hands and assuring me that he will see me right.... lying t@##er!

Oops, he would'nt even do the vit & mineral blood tests either. I have had a

biopsy and it is benign but i get quit a bit of discomfort from it even though

it is'nt that big about an inch in diameter, after the last biopsy i had a

really nasty sore throat that lasted about 3wks that was'nt as much sore as

really achey like tonsilitis but not in my tonsils, and it felt like i had

something stuck at the back of my throat which no amount of crawking would

shift, it may of been just a coincidence ? but it did worry me a bit. Anyway im

thinking of writing him a letter saying that i want refering to dr s as i have

now run out of patience with the nhs, i do'nt want to be lied to or fobbed off

anymore, any idea how much it is to see dr S ? because i'm going to have to

borrow the money to pay for it, hey ho hopefully he is worth it. luv Sue

[Guest guest]

What a ridiculous statement to make. You should ask your GP to

point out the ruling so you can read about this where it states that GP's

cannot request tests to see whether their patient has thyroid antibodies. He is

not wanting to spend his surgeries money and passing this on elsewhere. He is

not there to save money, he is there to secure good health for his patients,

first and foremost. Go back and challenge him, or send a letter sending a copy

to the Head of Practice also, asking for the information to back up his

statement. We must not allow doctors to treat us like the idiots they think we

are.

Luv - Sheila

I asked him to do the

antibodies tests but he said that only

endo's could ask for that blood test, he did however enlighten me on what my

lump in the thyroid has been named as.. a coliodal cyst (have no idea if thats

the correct spelling), what that is i have no idea! maybe you could enlighten

me? luv Sue

[Guest guest]

I suspect this could be a similar situation to my GP –

he can get antibody tests done, but under the arrangement they have with the lab

(ie the test available to him), the results would just show that I’d got

them or not got them, and not give any indication how far out of range I

was. Therefore as a diagnostic tool (which is what we are talking about

here) it wouldn’t be much use.

Just playing devil’s advocate here but it could

be that your GP is right and merely stating facts – an endo could be

better placed to help you. Also antibody tests help with diagnosis (and

later on when judging if someone has achieved remission) but they don’t

actually do a lot for treatment. I have had lengthy discussions about

this with my lovely endo, who I see privately and he keeps reassuring me to

save my money as the antibody tests right now wouldn’t add a great deal.

I agree that an accurate diagnosis is essential but I

think its important to try and see it from both sides of the fence, and not

assume our GP is necessarily being obstructive. Not saying he’s

not, just saying from my own experience, it has been important for me not to

give my power away by getting stuck in the ‘victim’ position.

Best of luck

I am using the Free version of SPAMfighter.SPAMfighter has removed 4175 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

Anyway im thinking of writing him a letter saying that i want refering to dr s as i have now run out of patience with the nhs, i do'nt want to be lied to or fobbed off anymore, any idea how much it is to see dr S ? because i'm going to have to borrow the money to pay for it, hey ho hopefully he is worth it. luv Sue

Hi Sue,

Good idea about writing your GP a letter. I am all for voting with our feet..... - If he hasn't upped his prices (don't think he has) Dr. S. charges £ 180 for a consultation which lasts a good hour, I am told.... and most his patients say he's worth every penny.

Good luck,

[Guest guest]

….and Dr Peatfield charges £150 for an hour and half

consultation and he will take into account the possibility that you may be

suffering with low adrenal reserve, which Dr Skinner no longer does apparently.

You need to get the best possible option when you are needing to borrow money.

Also, if you get a private prescription (which you will if you see Dr Skinner,

that can cost you a lot more than buying the thyroid hormone you need from

Internet Pharmacies without a prescription. You need to check all your options

Sue.

Luv - Sheila

Anyway im thinking of writing him a letter

saying that i want refering to dr s as i have now run out of patience with the

nhs, i do'nt want to be lied to or fobbed off anymore, any idea how much it is to

see dr S ? because i'm going to have to borrow the money to pay for it, hey ho

hopefully he is worth it. luv Sue

Hi Sue,

Good idea about writing your GP a letter. I am all for voting with

our feet..... - If he hasn't upped his prices (don't think he has)

Dr. S. charges £ 180 for a consultation which lasts a good hour, I

am told.... and most his patients say he's worth every penny.

Good luck,

[Guest guest]

>

> ….and Dr Peatfield charges £150 for an hour and half consultation and he

> will take into account the possibility that you may be suffering with low

> adrenal reserve, which Dr Skinner no longer does apparently.

>

>

>

>

> Anyway im thinking of writing him a letter saying that i want refering to

> dr s as i have now run out of patience with the nhs, i do'nt want to be lied

> to or fobbed off anymore, any idea how much it is to see dr S ?

>

>

>

>

> Good idea about writing your GP a letter. I am all for voting with our

> feet..... - If he hasn't upped his prices (don't think he has) Dr. S.

>

Hi all, Thankyou so much for all your inputs i am so grateful, i just feel that

anymore nhs nonsense and my head will implode, all i really wanted was to find

out if i actually do have a thyroid problem and get it diagnosed in order for it

to be treated but that seems too much to ask from the nhs. My brain is all over

the place at the moment and i am an emotional wreck and it is effecting my

family, my partner of 9yrs came with me to the doc's and when i burst into tears

he said to the doc " this is happening more and more, i want Sue back " my son

wont spend any time around me because he hates to see me cry. I understand what

you are saying Sheila and the cheapest possible option has to be followed, so

what i,ve got to figure out is, if i see Dr S will i be able to get my doc to

prescribe on the nhs with Dr S's diagnoses or is the best option to see Dr P

and then have to self treat for the rest of my life ?!..I need a fairy god mum x

[Guest guest]

Bec - sorry doll, your GP is telling big fat lies as well - antibody tests are just that....a test for antibodies. The result comes back

just the same as other blood results with the result and the range. I've got some of my results here just now.

They only tested TPO the first time 295 range 0-82 iu/ml - the next time they were tested they were in the 1000's. There is also a new universal range for TRAb (well UK universal I know for a fact...universe?) which is:

<1 u/l = negative < 1-1.5 u/l = borderline positive >1.5 u/l = positive.

It's called the new Roche range..........I'm positive I put a link in the files on here a few months ago about it. Something is telling

me they were going to do the same with TPO and < 35 is rattling around my brain as a range - rattling being the operative word

lol! TRAb is definite though - testing antibodies more than once is the only good thing my crappy endo ever done..................

Getting them tested after I asked for a second opinion gave me the diagnosis of Hashis as well as Graves AND showed I had

blocking antibodies as well as stimulating.

Not like me as you know but I also disagree with your lovely endo :-) There is a multitude of evidence to show how important TRAb is as a diagnostic test in Graves - especially if they are euthyroid or hypo with eye disease, or both T4 and T3 are high -

that might not be Graves so antibodies or an uptake scan would be needed for diagnosis. Also if antibodies have never been tested they wouldn't be able to use them as a measure for remission.....all my antibodies increased and evidence shows you're

not likely to go into remission when that happens. Graves is an autoimmune disease - Hashis is autoimmune thyroid disease so antibodies are important.

As I've said before you shouldn't have to pay for them anyway - they should be done. It's bloody budgets and penny pinching -

when I saw the eye specialist not long ago he commented on how shocked he was my TRAb had been tested, he said the endo's

usually leave that one to come out their budget!!!

I thought GP's could only test TPO and TGab but I heard just last week of a GP testing for the lot................

It's scandalous the bullsh** they spout at us.

This is from a link I was sent earlier that led me to all sorts of - need to know stuff, I won't put the link up as it's got a few doctors

names on it but it's from NHS reform Scotland. This is the first paragragh:

IN GENERAL: If you think a patient has a thyroid problem, they should be discussed with or referred to endocrinology. Thyroid USS should not be routinely requested in primary care

Thyrotoxicosis

All cases of thyrotoxicosis should be referred to an endocrinologist

The lab will automatically add TSH Receptor Antibodies (TRABs) to all new thyrotoxic bloods

No further investigations are needed prior to referral

If patients are very symptomatic, consider treatment with propranolol LA (eg 80-160mg bd) provided there is no contraindication

I'd get writing that letter and show them you're not happy :-) and I need to remember what I came on to post lol

Love Tess xx

>> I suspect this could be a similar situation to my GP - he can get antibody> tests done, but under the arrangement they have with the lab (ie the test> available to him), the results would just show that I'd got them or not got> them, and not give any indication how far out of range I was. Therefore as> a diagnostic tool (which is what we are talking about here) it wouldn't be> much use.> > > . > !>