Re: non-plagio We may have to get tubes

[Guest guest]

Oh Marci so sorry to hear has to have tubes-what a scary experience. My sisters boy was a year old when he got his and they put him under-she demanded they do it at the hospital and not the Drs. office. He loves the water as well so she put the moldable ear plugs in his ears-made of wax and he wears a bathing cap. He was not thrilled with the cap but he got used to and she had very little water problems. Good luck.

beck

[Guest guest]

Beck,

Thanks for the reply to the water issue. I'm probably more worried about that

than anything else at this point!! The group has really eased my mind about

the procedure and I think I am convinced that I want it done at the hospital.

Now I'm worried that she won't be able to get in the water which will make

her completely miserable!! I will try the plugs and swimcap, but she probably

won't like it and she's too little to explain it to her!! :-( :-(

Thanks for your input!!

Marci

[Guest guest]

Marci,

I know lots of people are telling you tubes are great and not to worry--I

agree! Just wanted to add a couple things: two of my four kiddos have

had tubes. My oldest was 4 when she got them and we did it under general

anesthesia. However, when the tubes hadn't fallen out by the time she

was 6, our ENT removed them in the office. I was freaked out at that but

they gave her something to make her " loopy " and it was no big deal. (I

realize out is different than in, though.) The other thing I wanted to

say was yes, you have to keep their ears dry while they have tubes. We

have tried those waxy earplug things but I don't think they work well.

What was great was that our first ENT did molds of 's ears--a

silly putty type material that they put in her ear and they MADE earplugs

that completely kept water out. (They somewhat resembled hearing aids.)

They were fabulous! I know not all ENT's do them but you could check

into it. Good luck!

Wendi, mom to (DOC grad)

On Wed, 27 Jun 2001 09:42:15 EDT marcisch@... writes:

> Hey guys,

>

> Looks like may be on the road to tubes. She has terrible

> trouble with

> ear infections. She has one now that has been with us since the very

>

> beginning of May. We thought it had finally cleared up last week,

> but the day

> before yesterday she started back with the runny nose. I took her to

> the ped

> yesterday and he said it was time to see the ENT and talk about

> tubes. For

> some reason this makes me VERY nervous. Ped said that the ENT could

> do the

> procedure in his office or at the hospital. He said that if it was

> done in

> office then she would not be put " under " . Personally I can't see

> going

> through any kind of procedure where she has to be still or where she

> would

> have to be awake and restrained. She cries non-stop in the car when

> she is

> just strapped into her carseat (no exaggeration!!!).

>

> OK, enough rambling - the question is: Has anyone here done the

> tubes thing

> and has anyone had them put in without having their baby put

> " under " ? Also,

> for people who have done the tubes - how old was your baby?

>

> I would appreciate any input as I am really fretting over this one.

>

>

> Marci (Mom to )

> Oklahoma

>

> For more plagio info

[Guest guest]

So sorry that is still having so much trouble, Marci. ( Poor little girl. I know it makes you nervous about the tubes, but from what I hear, it's pretty quick, and just think of the relief little Meg's will feel!

Please keep us posted!!!!

Also, go thru the archives. There has been a lot of talk about tubes in the past.

(((Big Hugs!! )))

Kendra in CanadaFor more plagio info, go towww.plagiocephaly.org/support...

----- Original Message -----

From: marcisch@...

plagiocephaly

Sent: Wednesday, June 27, 2001 6:42 AM

Subject: non-plagio We may have to get tubes

Hey guys,Looks like may be on the road to tubes. She has terrible trouble with ear infections. She has one now that has been with us since the very beginning of May. We thought it had finally cleared up last week, but the day before yesterday she started back with the runny nose. I took her to the ped yesterday and he said it was time to see the ENT and talk about tubes. For some reason this makes me VERY nervous. Ped said that the ENT could do the procedure in his office or at the hospital. He said that if it was done in office then she would not be put "under". Personally I can't see going through any kind of procedure where she has to be still or where she would have to be awake and restrained. She cries non-stop in the car when she is just strapped into her carseat (no exaggeration!!!). OK, enough rambling - the question is: Has anyone here done the tubes thing and has anyone had them put in without having their baby put "under"? Also, for people who have done the tubes - how old was your baby?I would appreciate any input as I am really fretting over this one. Marci (Mom to )OklahomaFor more plagio info

[Guest guest]

Wendi,

Thank you for the information. The custom-made earplugs sound great!!

I will DEFINATELY ask the ENT about them. Thank you for the

information and the reassurance. I am starting to feel better and

better about everything!!

Marci (Mom to )

Oklahoma

--- In Plagiocephaly@y..., C Bastian <cwlkjbastian@j...>

wrote:

> Marci,

>

> I know lots of people are telling you tubes are great and not to

worry--I

> agree! Just wanted to add a couple things: two of my four kiddos

have

> had tubes. My oldest was 4 when she got them and we did it under

general

> anesthesia. However, when the tubes hadn't fallen out by the time

she

> was 6, our ENT removed them in the office. I was freaked out at

that but

> they gave her something to make her " loopy " and it was no big

deal. (I

> realize out is different than in, though.) The other thing I

wanted to

> say was yes, you have to keep their ears dry while they have

tubes. We

> have tried those waxy earplug things but I don't think they work

well.

> What was great was that our first ENT did molds of 's ears--a

> silly putty type material that they put in her ear and they MADE

earplugs

> that completely kept water out. (They somewhat resembled hearing

aids.)

> They were fabulous! I know not all ENT's do them but you could

check

> into it. Good luck!

>

> Wendi, mom to (DOC grad)

>

>

> On Wed, 27 Jun 2001 09:42:15 EDT marcisch@a... writes:

> > Hey guys,

> >

> > Looks like may be on the road to tubes. She has terrible

> > trouble with

> > ear infections. She has one now that has been with us since the

very

> >

> > beginning of May. We thought it had finally cleared up last week,

> > but the day

> > before yesterday she started back with the runny nose. I took her

to

> > the ped

> > yesterday and he said it was time to see the ENT and talk about

> > tubes. For

> > some reason this makes me VERY nervous. Ped said that the ENT

could

> > do the

> > procedure in his office or at the hospital. He said that if it

was

> > done in

> > office then she would not be put " under " . Personally I can't see

> > going

> > through any kind of procedure where she has to be still or where

she

> > would

> > have to be awake and restrained. She cries non-stop in the car

when

> > she is

> > just strapped into her carseat (no exaggeration!!!).

> >

> > OK, enough rambling - the question is: Has anyone here done the

> > tubes thing

> > and has anyone had them put in without having their baby put

> > " under " ? Also,

> > for people who have done the tubes - how old was your baby?

> >

> > I would appreciate any input as I am really fretting over this

one.

> >

> >

> > Marci (Mom to )

> > Oklahoma

> >

> > For more plagio info

[Guest guest]

Hey Marci,

Sorry to hear may be on her way to tubes; hopefully the results of surgery

will be worth the stress. I know everyone has told you already not to worry

(but

it can't be helped, we all do it) and I hope it has put you at ease a little

bit. Ear tube placement in children is the most commonly performed surgery

today. Two of my close friends have had tubes for their children and both had

better hearing afterwards and improved speech for the one, the other little

guy's

speech was fine beforehand. In fact, I think his speeech would be even better

had

they done the surgery sooner, he was 2 1/2 with unbelievable, horrible chronic

sinus and ear infections.

I would opt for the hospital too.

Take care,

, Corey's mommy (DOC banded 5/4/01)

marcisch@... wrote:

> Hey guys,

>

> Looks like may be on the road to tubes. She has terrible trouble with

> ear infections. She has one now that has been with us since the very

> beginning of May. We thought it had finally cleared up last week, but the day

> before yesterday she started back with the runny nose. I took her to the ped

> yesterday and he said it was time to see the ENT and talk about tubes. For

> some reason this makes me VERY nervous. Ped said that the ENT could do the

> procedure in his office or at the hospital. He said that if it was done in

> office then she would not be put " under " . Personally I can't see going

> through any kind of procedure where she has to be still or where she would

> have to be awake and restrained. She cries non-stop in the car when she is

> just strapped into her carseat (no exaggeration!!!).

>

> OK, enough rambling - the question is: Has anyone here done the tubes thing

> and has anyone had them put in without having their baby put " under " ? Also,

> for people who have done the tubes - how old was your baby?

>

> I would appreciate any input as I am really fretting over this one.

>

> Marci (Mom to )

> Oklahoma

>

> For more plagio info

[Guest guest]

,

Thank you for your reply. Thanks to everyone here I really don't feel

the nerves and worry that I did yesterday after talking to ped! This

support group is SOOOOO awesome!!

Thanks again!

Marci

>

> > Hey guys,

> >

> > Looks like may be on the road to tubes. She has terrible

trouble with

> > ear infections. She has one now that has been with us since the

very

> > beginning of May. We thought it had finally cleared up last week,

but the day

> > before yesterday she started back with the runny nose. I took her

to the ped

> > yesterday and he said it was time to see the ENT and talk about

tubes. For

> > some reason this makes me VERY nervous. Ped said that the ENT

could do the

> > procedure in his office or at the hospital. He said that if it

was done in

> > office then she would not be put " under " . Personally I can't see

going

> > through any kind of procedure where she has to be still or where

she would

> > have to be awake and restrained. She cries non-stop in the car

when she is

> > just strapped into her carseat (no exaggeration!!!).

> >

> > OK, enough rambling - the question is: Has anyone here done the

tubes thing

> > and has anyone had them put in without having their baby put

" under " ? Also,

> > for people who have done the tubes - how old was your baby?

> >

> > I would appreciate any input as I am really fretting over this

one.

> >

> > Marci (Mom to )

> > Oklahoma

> >

> > For more plagio info

[Guest guest]

Marci,

Just wanted to add my 2 cents about PE tubes. I am a speech language pathologist and have treated many children with delayed language development secondary to chronic ottis. In my experience, PE tubes are a WONDERFUL benefit to these children. The middle ear is made up of an air filled space with three tiney bones that transfer sound to the inner ear. When this area is filled with fluid, the transfer of energy is impeded. The tubes are to normalized this function. Because many children have chronic ottis and by the time you have hearing evaluated the fluid might have cleared, it is often difficult to get true sense of what they are hearing. The wonderful news is once the tubes do their job, and the hearing function normalizes, many children become "chatty cathy".

If after the tubes you are still concerned about 's speech development, have her evaluated by a therapist who will teach you lots of great language stimulation techniques. You can either go through your insurance or through an early intervention program in your county. Check out the American Speech &

Hearing Assoc. (ASHA) web site (www.asha.org) for lots of great links.

Good Luck with all. Hope this e-mail was helpful.

Staci & Adam

PS Our neurosurgeon appointment is tomorrow.......we are sooooo anxious!