AIH in Family

[Guest guest]

I have been diagnosed with AIH in November 2009 and I know that Autoimmune

Diseases run in families but that it’s most likely not always the same

autoimmune disease. I read about all these kids having AIH and I am in a

constant panic that my kids might develop AIH, they are currently 5 and 7. They

have no symptoms, except about once every 2 or 3 months, my son has a stool with

no color (which is odd but not sure if this is liver related). I have mentioned

this to his doctor before, but he said it’s normal and no further testing

needed. So here is my question, do we actually know of a family where the mother

and a child BOTH have AIH? Just curious. I myself have 4 autoimmune diseases

(AIH, Celiac, Hashimotos and autoimmune Urticaria, plus a sarcoma cancer In the

breast and Cushings) and I find myself often in panic that either I or my kids

develop an autoimmune disease and we don’t find out until damage ahs already

been done. ly it’s quite stressful and I was wondering if somebody else

had these constant thoughts and what do you do about it?

Thanks

Sabine

[Guest guest]

Hello -I used to worry that my girls would develop AIH or PBC or both -in fact

they are pretty allergic people -like me have skin allergies mostly and

hayfever,but they are now in their 30s with children of their own.The AIH

concern was knocked onto the back burner when it turned out that they may

develop a genetically linked cancer of stomach and breasts.That certainly was

and is a much bigger concern to us.

My girls have liver function tests done once a year to rule out anything.They

have never been tested for either condition as, after lengthy discussion and

advice from my consultant and genetic consultant,they decided against-for many

reasons ,insurance and mortgages being 2 of them.

I hope it helps you to know this.I have the overlap condition of PBC and AIH,was

diagnosed in Stage 4 in 1999 and AIH in 2000

As to your son's stool sample being colourless -it may be that he has had a fair

amount of dairy/yoghurty/ricey or colourless foods in the preceeding days -and

nothing too concerning..

Louise

Newcastle upon Tyne

England