Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 <<I am taking fish oil and borage oil, because together they are said to fight inflammation and I figure if I a wrong, this is probably harmless.>> 1) Don't take anything at all without your doctor's approval!!!! You can't say, " If I'm wrong, it's probably harmless. " What if it's not? As it happens, ***borage oil is often implicated in liver damage***! Do NOT take this unless your doctor okays it -- which is highly unlikely. Ordinary OTC medications can be harmful for a liver that has problems. Ask what you should take for moderate pain relief -- aspirin, acetaminophen, etc. 2) For diet, speak with your doctor. Mine told me to eat a substantial, balanced diet with a good supply of protein. Some people, with a particular liver situation, need to minimize protein. Most do not. Ask your doctor what you need to do. Your doctor probably will tell you to take a multi-vitamin. If you begin taking prednisone, you'll need supplementary calcium/D, probably calcium citrate with D3, dietary calcium and weight-bearing exercise. 3) I've never heard that eating GF will bring liver numbers down. Perhaps eating GF was coincidental with your other treatment. 4) Although people rarely overdo water, it can happen. Harper [ ] Diet and Life Style Heya, I am curious as to what others with autoimmune liver issues have done to try and give things a better outcome. Reading online is very confusing, because it all adds to avoid everything! This is what I have been doing, not sure its all the best choices. 1. (Low Fat) Because fat is hard on the liver, my cholesterol is high and it might help me from getting other health problems ontop of this. 2. (Low Salt) Because my blood pressure is a litte hight and its apparently hard on the liver too. 3. (Low Sugar) Because sugar causes inflammation and auto-immune diease in part an inflammation diease. 4. (Low Processed foods) Because all the chemicals in them are probably hard on the liver. 5. (Low HFCS) Becaue its in general really bad for people and supposedly ups liver damage. 6. (No Gluteon) because my blood test was suspicous for celiacs and it brought my liver numbers down! 7. High fruits and veggies - cause they are healthy! 8. Moderate protien (too much is hard on the liver, but some is needed for healing) 9. Moderate caffine (too much is possibly hard on the liver, although some new study says a few cups a slow the process of cirroshis, so I figure 1-2 cups is okay). 10. Lots of water! (because its good not t get dehydrated. I am not sure if I should think about lowering dairy, cause some places say Caesin is bad for people with auto-immune liver diease or not. But I also feel like I still need to eat some foods! Then I wonder if the nightshade family is possibly and issue, because of the whole nightshade/lupus/RA/Auto-immune diease thing. But again, I still need some foods and no potatoes and no gluteon would be really hard. Then I have been trying to work out. Hard when so exhausted, in nursing school and raising a special needs son, but I am trying. Then I take a multi-vitamin, calicum and vita d - because people with pbc have a high risk of osteoporisis and some have malabortpion of vitamins. Then I am taking fish oil and borage oil, because together they are said to fight inflammation and I figure if I a wrong,t his is probably harmless. I am avoiding all those herbal drugs for liver issues, like milk thistle and dandelion, cause my doc said to and I figure I could do harm if I am wrong. My doctor also there is not much diet and life style that ones needs to do this, but it makes me feel better to at least try and do what I can to give things a better outcome. But I wonder what others do? Missy 35, CO, AIH/PBC stage 2, dx 2/11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 eeepppp! Now I am worried I hurt my liver, I have been taking it! I will stop doing that right now. ________________________________ From: Harper <flatcat9@...> Sent: Tue, February 22, 2011 6:15:43 PM Subject: Re: [ ] Diet and Life Style  <<I am taking fish oil and borage oil, because together they are said to fight inflammation and I figure if I a wrong, this is probably harmless.>> 1) Don't take anything at all without your doctor's approval!!!! You can't say, " If I'm wrong, it's probably harmless. " What if it's not? As it happens, ***borage oil is often implicated in liver damage***! Do NOT take this unless your doctor okays it -- which is highly unlikely. Ordinary OTC medications can be harmful for a liver that has problems. Ask what you should take for moderate pain relief -- aspirin, acetaminophen, etc. 2) For diet, speak with your doctor. Mine told me to eat a substantial, balanced diet with a good supply of protein. Some people, with a particular liver situation, need to minimize protein. Most do not. Ask your doctor what you need to do. Your doctor probably will tell you to take a multi-vitamin. If you begin taking prednisone, you'll need supplementary calcium/D, probably calcium citrate with D3, dietary calcium and weight-bearing exercise. 3) I've never heard that eating GF will bring liver numbers down. Perhaps eating GF was coincidental with your other treatment. 4) Although people rarely overdo water, it can happen. Harper [ ] Diet and Life Style Heya, I am curious as to what others with autoimmune liver issues have done to try and give things a better outcome. Reading online is very confusing, because it all adds to avoid everything! This is what I have been doing, not sure its all the best choices. 1. (Low Fat) Because fat is hard on the liver, my cholesterol is high and it might help me from getting other health problems ontop of this. 2. (Low Salt) Because my blood pressure is a litte hight and its apparently hard on the liver too. 3. (Low Sugar) Because sugar causes inflammation and auto-immune diease in part an inflammation diease. 4. (Low Processed foods) Because all the chemicals in them are probably hard on the liver. 5. (Low HFCS) Becaue its in general really bad for people and supposedly ups liver damage. 6. (No Gluteon) because my blood test was suspicous for celiacs and it brought my liver numbers down! 7. High fruits and veggies - cause they are healthy! 8. Moderate protien (too much is hard on the liver, but some is needed for healing) 9. Moderate caffine (too much is possibly hard on the liver, although some new study says a few cups a slow the process of cirroshis, so I figure 1-2 cups is okay). 10. Lots of water! (because its good not t get dehydrated. I am not sure if I should think about lowering dairy, cause some places say Caesin is bad for people with auto-immune liver diease or not. But I also feel like I still need to eat some foods! Then I wonder if the nightshade family is possibly and issue, because of the whole nightshade/lupus/RA/Auto-immune diease thing. But again, I still need some foods and no potatoes and no gluteon would be really hard. Then I have been trying to work out. Hard when so exhausted, in nursing school and raising a special needs son, but I am trying. Then I take a multi-vitamin, calicum and vita d - because people with pbc have a high risk of osteoporisis and some have malabortpion of vitamins. Then I am taking fish oil and borage oil, because together they are said to fight inflammation and I figure if I a wrong,t his is probably harmless. I am avoiding all those herbal drugs for liver issues, like milk thistle and dandelion, cause my doc said to and I figure I could do harm if I am wrong. My doctor also there is not much diet and life style that ones needs to do this, but it makes me feel better to at least try and do what I can to give things a better outcome. But I wonder what others do? Missy 35, CO, AIH/PBC stage 2, dx 2/11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 I keep hearing people say that eating fat is hard on the liver, but I don't recall reading anything official on this. I eat a substantial amount of fat without any problem. I'm on a modified Atkins diet: high protein, medium fat, low carbs. Dietary fat doesn't increase serum cholesterol as long as your carb intake is low. My cholesterol is a healthy 160. in Napa California, age 69, PBC stage 4 dx 9/2010; also IBS, hypertension, Sjogren’s --------------------------------------------------------------------------------\ ---------------------------- -----Original Message----- From: Missy Kay This is what I have been doing, not sure its all the best choices. 1. (Low Fat) Because fat is hard on the liver, my cholesterol is high Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 You may want to look up the terms " borage oil liver " . It would be good to ask your doctor's advice. I doubt that you've done any great damage in a short time, but this is an example of why you need to discuss with your doctor ***anything*** you consider taking. I'd suggest that you ask now what you should take if you need something for a cold or headache or sore muscle, etc. -- minor pain that needs some OTC help. Harper [ ] Diet and Life Style Heya, I am curious as to what others with autoimmune liver issues have done to try and give things a better outcome. Reading online is very confusing, because it all adds to avoid everything! This is what I have been doing, not sure its all the best choices. 1. (Low Fat) Because fat is hard on the liver, my cholesterol is high and it might help me from getting other health problems ontop of this. 2. (Low Salt) Because my blood pressure is a litte hight and its apparently hard on the liver too. 3. (Low Sugar) Because sugar causes inflammation and auto-immune diease in part an inflammation diease. 4. (Low Processed foods) Because all the chemicals in them are probably hard on the liver. 5. (Low HFCS) Becaue its in general really bad for people and supposedly ups liver damage. 6. (No Gluteon) because my blood test was suspicous for celiacs and it brought my liver numbers down! 7. High fruits and veggies - cause they are healthy! 8. Moderate protien (too much is hard on the liver, but some is needed for healing) 9. Moderate caffine (too much is possibly hard on the liver, although some new study says a few cups a slow the process of cirroshis, so I figure 1-2 cups is okay). 10. Lots of water! (because its good not t get dehydrated. I am not sure if I should think about lowering dairy, cause some places say Caesin is bad for people with auto-immune liver diease or not. But I also feel like I still need to eat some foods! Then I wonder if the nightshade family is possibly and issue, because of the whole nightshade/lupus/RA/Auto-immune diease thing. But again, I still need some foods and no potatoes and no gluteon would be really hard. Then I have been trying to work out. Hard when so exhausted, in nursing school and raising a special needs son, but I am trying. Then I take a multi-vitamin, calicum and vita d - because people with pbc have a high risk of osteoporisis and some have malabortpion of vitamins. Then I am taking fish oil and borage oil, because together they are said to fight inflammation and I figure if I a wrong,t his is probably harmless. I am avoiding all those herbal drugs for liver issues, like milk thistle and dandelion, cause my doc said to and I figure I could do harm if I am wrong. My doctor also there is not much diet and life style that ones needs to do this, but it makes me feel better to at least try and do what I can to give things a better outcome. But I wonder what others do? Missy 35, CO, AIH/PBC stage 2, dx 2/11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Yeah, I need to be more careful. I was so desperate to find that magic thing that might make things better, I was being a little careless. Anyways, thanks again. Missy ________________________________ From: Harper <flatcat9@...> Sent: Tue, February 22, 2011 7:08:10 PM Subject: Re: [ ] Diet and Life Style  You may want to look up the terms " borage oil liver " . It would be good to ask your doctor's advice. I doubt that you've done any great damage in a short time, but this is an example of why you need to discuss with your doctor ***anything*** you consider taking. I'd suggest that you ask now what you should take if you need something for a cold or headache or sore muscle, etc. -- minor pain that needs some OTC help. Harper [ ] Diet and Life Style Heya, I am curious as to what others with autoimmune liver issues have done to try and give things a better outcome. Reading online is very confusing, because it all adds to avoid everything! This is what I have been doing, not sure its all the best choices. 1. (Low Fat) Because fat is hard on the liver, my cholesterol is high and it might help me from getting other health problems ontop of this. 2. (Low Salt) Because my blood pressure is a litte hight and its apparently hard on the liver too. 3. (Low Sugar) Because sugar causes inflammation and auto-immune diease in part an inflammation diease. 4. (Low Processed foods) Because all the chemicals in them are probably hard on the liver. 5. (Low HFCS) Becaue its in general really bad for people and supposedly ups liver damage. 6. (No Gluteon) because my blood test was suspicous for celiacs and it brought my liver numbers down! 7. High fruits and veggies - cause they are healthy! 8. Moderate protien (too much is hard on the liver, but some is needed for healing) 9. Moderate caffine (too much is possibly hard on the liver, although some new study says a few cups a slow the process of cirroshis, so I figure 1-2 cups is okay). 10. Lots of water! (because its good not t get dehydrated. I am not sure if I should think about lowering dairy, cause some places say Caesin is bad for people with auto-immune liver diease or not. But I also feel like I still need to eat some foods! Then I wonder if the nightshade family is possibly and issue, because of the whole nightshade/lupus/RA/Auto-immune diease thing. But again, I still need some foods and no potatoes and no gluteon would be really hard. Then I have been trying to work out. Hard when so exhausted, in nursing school and raising a special needs son, but I am trying. Then I take a multi-vitamin, calicum and vita d - because people with pbc have a high risk of osteoporisis and some have malabortpion of vitamins. Then I am taking fish oil and borage oil, because together they are said to fight inflammation and I figure if I a wrong,t his is probably harmless. I am avoiding all those herbal drugs for liver issues, like milk thistle and dandelion, cause my doc said to and I figure I could do harm if I am wrong. My doctor also there is not much diet and life style that ones needs to do this, but it makes me feel better to at least try and do what I can to give things a better outcome. But I wonder what others do? Missy 35, CO, AIH/PBC stage 2, dx 2/11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Hi Missy I have AIH and I take Imuran 100mg. I have been off the prednisone for about 2 yrs now and so far I am doing good. In my case I have not been able to go lower on the Imuran. As for diet I have to watch my fat intake and try to keep a healthy diet. Right now I am trying to get my weight and cholesterol down. I eat vegetables and fruits but not dairy. I am allergic to dairy and calcium so that poses a problem for me. With a history of diabetes in my family I try to watch my sugar and carbohydrate intake but have been showing signs of being prediabetic. I am going to the pool for therapy and working on cardiovascular. I am trying to get myself back into my pre-sick shape after ten years of steroids and it is hard work. Welcome to the group and ask all the questions you want we are all here to answer them or try and steer you in the right direction. the WV hillbilly LOVE IS IN ALL THINGS AND IN ALL THINGS IS LOVE ________________________________ From: Missy Kay <kay.missy@...> Sent: Tue, February 22, 2011 6:46:30 PM Subject: [ ] Diet and Life Style Heya, I am curious as to what others with autoimmune liver issues have done to try and give things a better outcome. Reading online is very confusing, because it all adds to avoid everything! This is what I have been doing, not sure its all the best choices. 1. (Low Fat) Because fat is hard on the liver, my cholesterol is high and it might help me from getting other health problems ontop of this. 2. (Low Salt) Because my blood pressure is a litte hight and its apparently hard on the liver too. 3. (Low Sugar) Because sugar causes inflammation and auto-immune diease in part an inflammation diease. 4. (Low Processed foods) Because all the chemicals in them are probably hard on the liver. 5. (Low HFCS) Becaue its in general really bad for people and supposedly ups liver damage. 6. (No Gluteon) because my blood test was suspicous for celiacs and it brought my liver numbers down! 7. High fruits and veggies - cause they are healthy! 8. Moderate protien (too much is hard on the liver, but some is needed for healing) 9. Moderate caffine (too much is possibly hard on the liver, although some new study says a few cups a slow the process of cirroshis, so I figure 1-2 cups is okay). 10. Lots of water! (because its good not t get dehydrated. I am not sure if I should think about lowering dairy, cause some places say Caesin is bad for people with auto-immune liver diease or not. But I also feel like I still need to eat some foods! Then I wonder if the nightshade family is possibly and issue, because of the whole nightshade/lupus/RA/Auto-immune diease thing. But again, I still need some foods and no potatoes and no gluteon would be really hard. Then I have been trying to work out. Hard when so exhausted, in nursing school and raising a special needs son, but I am trying. Then I take a multi-vitamin, calicum and vita d - because people with pbc have a high risk of osteoporisis and some have malabortpion of vitamins. Then I am taking fish oil and borage oil, because together they are said to fight inflammation and I figure if I a wrong,t his is probably harmless. I am avoiding all those herbal drugs for liver issues, like milk thistle and dandelion, cause my doc said to and I figure I could do harm if I am wrong. My doctor also there is not much diet and life style that ones needs to do this, but it makes me feel better to at least try and do what I can to give things a better outcome. But I wonder what others do? Missy 35, CO, AIH/PBC stage 2, dx 2/11 Quote Link to comment Share on other sites More sharing options...
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