this and that from the Netherlands

[Guest guest]

Hi everybody,

I'm sorry I haven't written at all the last couple of months. I am very

tired lately and don't feel like doing anything.

Just before Christmas the doctor gave me prednisone for 3 weeks, because the

levels weren't good at all and were getting worse.

So after the 3 weeks, my levels were good again and I had to start with 150

Imuran and cut down the prednisone.

I don't have prednisone anymore, which I'm glad about, but as I said in the

beginning, I'm very tired.

Next month I have to go back for an echo and the normal blood checkup I get

every 2/3 months.

I will ask if there is anything to do about being tired all the time.

I guess I'm lucky that I don't have pain at all. I'm sorry to read about the

pain some people in this group have.

In Holland it has been very cold. I'm not really used to cold weather. We

mostly have it about 3 weeks and then it's gone, but it has been cold here

off and on since the beginning of December. It's freezing outside and it

feels like I don't have any clothes on.

My bones hurt when I go outside, but I have to go, because I have to go to

my work and walk my 2 English Bulldogs.

I'm glad I still have a job, even if it's for only 20 hours a week.

Before I worked 32 hours for the same boss and they could keep me on for

these new hours.

I have worked with this company since I graduated from school and that's 23

years already.

I only work in the morning and when I get back I go to bed for about 2

hours.

After that I walk the dogs, check my mail and then start dinner. After

dinner I usually check if somebody needs my help with the courses I give

true email (Excel, Dreamweaver, Photoshop), watch some TV and go to bed.

I wish everybody a nice day and I will try to write some more.

Michele

AIH since march 2009 (imuran 150mg)

43 years old

[Guest guest]

I am sorry to hear you are not feeling well. I hope the doctors have some

answers for you when you go to your next appointment. I hope the weather warms

up soon and you get some relief from the cold.

I know that when I quit taking the prednisone I went through some rough times

til my body got used to it. Maybe you need to stay on the prednisone or change

the dose of Imuran? some people have to take Urso instead of the Imuran, they do

better with it.

Make sure you talk to your doctor about how tired you are so they can check for

a reason. When I was tired like you are the found out that I have Pernicious

Anemia. I now have to take B-12 shots every month and they have really helped. I

can tell when it is time for the next shot as I start to get tired again.

Let me know how you make out and good luck,

the WV hillbilly

LOVE IS IN ALL THINGS AND IN ALL THINGS IS LOVE

________________________________

From: MPS Design <contact@...>

Sent: Tue, February 22, 2011 10:32:53 AM

Subject: [ ] this and that from the Netherlands

Hi everybody,

I'm sorry I haven't written at all the last couple of months. I am very

tired lately and don't feel like doing anything.

Just before Christmas the doctor gave me prednisone for 3 weeks, because the

levels weren't good at all and were getting worse.

So after the 3 weeks, my levels were good again and I had to start with 150

Imuran and cut down the prednisone.

I don't have prednisone anymore, which I'm glad about, but as I said in the

beginning, I'm very tired.

Next month I have to go back for an echo and the normal blood checkup I get

every 2/3 months.

I will ask if there is anything to do about being tired all the time.

I guess I'm lucky that I don't have pain at all. I'm sorry to read about the

pain some people in this group have.

In Holland it has been very cold. I'm not really used to cold weather. We

mostly have it about 3 weeks and then it's gone, but it has been cold here

off and on since the beginning of December. It's freezing outside and it

feels like I don't have any clothes on.

My bones hurt when I go outside, but I have to go, because I have to go to

my work and walk my 2 English Bulldogs.

I'm glad I still have a job, even if it's for only 20 hours a week.

Before I worked 32 hours for the same boss and they could keep me on for

these new hours.

I have worked with this company since I graduated from school and that's 23

years already.

I only work in the morning and when I get back I go to bed for about 2

hours.

After that I walk the dogs, check my mail and then start dinner. After

dinner I usually check if somebody needs my help with the courses I give

true email (Excel, Dreamweaver, Photoshop), watch some TV and go to bed.

I wish everybody a nice day and I will try to write some more.

Michele

AIH since march 2009 (imuran 150mg)

43 years old

[Guest guest]

Thank you for replying ,

I have to go to the doctors in a couple of weeks and before that I will have

an echo and I have to give blood. The doctor gives me a form in advance what

has to be checked.

I have added B12, TSH and FT4 to the form. (I don't know if you use the same

names, but this is what a nurse told me to have checked), so with the next

appointment I will have the results.

I have been reading online and found 1 other person that had the same

problem after stopping the prednisone.

It's like you are an addict and have to get used to not using it anymore.

I have found a lot of articles that say prednisone is not addictive, but I

don’t really believe that.

I also hope that spring will come soon and that it will get warmer outside.

I think it will help a lot also.

I have been busy also last week, so it's possible that I still don't want to

acknowledge my illness.

My friend told me that I still do too much and my body can't handle it all.

Maybe she's right and I have to slow down even more, but I'm hardly doing

anything. I don't even clean my house regularly because it's too hard to do.

I’ll let you know the results of the B12. I’m very curious now if that’s

the

problem.

Michele

AIH since 2009

150 mg Imuran / D3

-----Oorspronkelijk bericht-----

From: brenda myers

Sent: Wednesday, February 23, 2011 4:03 AM

Subject: Re: [ ] this and that from the Netherlands

I am sorry to hear you are not feeling well. I hope the doctors have some

answers for you when you go to your next appointment. I hope the weather

warms

up soon and you get some relief from the cold.

I know that when I quit taking the prednisone I went through some rough

times

til my body got used to it. Maybe you need to stay on the prednisone or

change

the dose of Imuran? some people have to take Urso instead of the Imuran,

they do

better with it.

Make sure you talk to your doctor about how tired you are so they can check

for

a reason. When I was tired like you are the found out that I have Pernicious

Anemia. I now have to take B-12 shots every month and they have really

helped. I

can tell when it is time for the next shot as I start to get tired again.

Let me know how you make out and good luck,

the WV hillbilly

LOVE IS IN ALL THINGS AND IN ALL THINGS IS LOVE

________________________________

From: MPS Design <contact@...>

Sent: Tue, February 22, 2011 10:32:53 AM

Subject: [ ] this and that from the Netherlands

Hi everybody,

I'm sorry I haven't written at all the last couple of months. I am very

tired lately and don't feel like doing anything.

Just before Christmas the doctor gave me prednisone for 3 weeks, because the

levels weren't good at all and were getting worse.

So after the 3 weeks, my levels were good again and I had to start with 150

Imuran and cut down the prednisone.

I don't have prednisone anymore, which I'm glad about, but as I said in the

beginning, I'm very tired.

Next month I have to go back for an echo and the normal blood checkup I get

every 2/3 months.

I will ask if there is anything to do about being tired all the time.

I guess I'm lucky that I don't have pain at all. I'm sorry to read about the

pain some people in this group have.

In Holland it has been very cold. I'm not really used to cold weather. We

mostly have it about 3 weeks and then it's gone, but it has been cold here

off and on since the beginning of December. It's freezing outside and it

feels like I don't have any clothes on.

My bones hurt when I go outside, but I have to go, because I have to go to

my work and walk my 2 English Bulldogs.

I'm glad I still have a job, even if it's for only 20 hours a week.

Before I worked 32 hours for the same boss and they could keep me on for

these new hours.

I have worked with this company since I graduated from school and that's 23

years already.

I only work in the morning and when I get back I go to bed for about 2

hours.

After that I walk the dogs, check my mail and then start dinner. After

dinner I usually check if somebody needs my help with the courses I give

true email (Excel, Dreamweaver, Photoshop), watch some TV and go to bed.

I wish everybody a nice day and I will try to write some more.

Michele

AIH since march 2009 (imuran 150mg)

43 years old