Re: [SD] Question- Plaquenil Users

Posted July 16, 1999 · July 16, 1999

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Hi Tracey,

I'm switching this over to our jra list, since it pertinent here, too.

Hope you don't mind.....

For whatever reasons, the doctors here have never talked about Josh's

illness in terms of pauci or poly articular arthritis. They've always stuck

with the systemic label. I have read that some kids who initially present

with systemic symptoms later fall into the other categories due to changes

in their symptomology. The fevers and rash and inflammation/involvement

of organs, if I understand correctly, seem to diminish as time goes on

for them, often being less severe during each subsequent flare up. And

the child eventually just has regular arthritis symptoms, often lasting

into adulthood. 15 or 20 % or so, from things I've read, continue to have

ongoing systemic features. This is the category my son seems to fall under.

Which is probably why he's still needing that darned prednisone!

Even after his treatment began, Josh had super high fevers almost daily

for over a year. He still gets it often, despite all the heavy meds. I

can't help but think that one day, his body will get tired of working overtime,

have to adjust and go into a remission. His lowest SED rate ever was a

28, indicating that he still had inflammation going on, even when he felt

his absolute best. The highest has been over 135! He has had recurring

periods of medicated remissions but they never lasted too long. But one

of these days...... & nbsp; :-)

Tracey Herzog wrote:

<blockquote TYPE=CITE>Georgina,

Which type does Josh have? & nbsp; has polyarticular with system

onset.

Tracey

Georgina wrote:

> Hi Lesley,

>

> Thanks :-) & nbsp; The inflammation you mention (uveitis?), isn't that

very infrequent

> in children who have still's (systemic subset) and much more common

in children

> who have the pauciarticular subset of JRA?

>

> ~Georgina

>

> lesley kay wrote:

>

> > The eye examination is for a different reason in childresn. In

children

> > there's a risk of inflammation in the eye. It's dangerous because

it has no

> > symptoms and the child could suddenly go blind, so slit lamp screening

is

> > necessary to spot the early, very treatable signs. I don;t know

why this

> > doesn;t happen in adults.

> > Lesley</blockquote>

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