Guest guest Posted September 27, 1999 Report Share Posted September 27, 1999 Every thing has been gong well with 's tapering on the steroids. She is still on a high dose of 3.14 mg Dexamethasone (X10 to = Prednisone) every 1/3 day with.5mg on the off days. is just 4 and weighs 39lbs. Then after 7 weeks of no JRA symptoms she woke up from her afternoon nap with her right knee very painful and her foot and ankle in pain. We used a heat pad on it and it went after a couple of hours. No residue pain, nothing unusual about what she did before her nap, no smashing it hard, no symptoms since. It just came out of the blue for two hours and went away. Has anyone else experienced anything like that? By the way I measured her tummy as it was looking small and it had shrunk by 6 cm! It must be the shrinking does of steroid. she has a long way to go still, but it is an improvement:) Quote Link to comment Share on other sites More sharing options...
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