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Hello Everyone,

I really do enjoy reading everyones messages. saw the

pediatric rheumatoligist on Monday.He was feeling great that day and still is.

We didn't even talk about the enbrel because he is doing so well.We think maybe

the mtx is kicking in. He is on 12.5 mtx we are going to try and wean him again

from the prednisone this time more slowly.He is on 10 mg 3 weeks, 9 mg 2 weeks

then continue doen 1 mg every two weeks and possibly try to maintain him on 7

mg.Supposedly at that dose there is less side effects and we are hoping maybe

allow him to grow, he has been the same height for 2 years 3ft. 11 inches, the

Dr. will be watching his growth carefully.I really notice his stunted growth now

I see where all the children in third grade seem to be much taller than

him,Actually he was a huge baby 11 pds and right up tp age 4 was off the charts

in ht. and weight.The Dr. said itr could be the steroids or the jra which is

stunting growth.The Dr. suprised us last vbisit when he said he thought

might have juvenile ankylosing spondylitis, he mentioned it kind os matter of

factly, but since I've got home and got thinking about it I wished I had asked

more questions. I don;t know if that is better or worse than systemic Jra or

very similiar, etc...In answer to your question Georgina, developed the

adrenal insufficiency from a virus he caught and couldn't shake, he couldn't

stop vomiting..The pulse steroids helped immediatley. He is outside now with the

neighborhood boys playing frisbee but it is starting to look more like a

football game. I try to tell him to be careful, he thinks nothing of tacking

these boys and throwing them on the ground, I noticed they are always careful

not to hurt him though.Therse boys are only 7,8, and 9 but they all seem to

understand ryans condition They never sau anything to him about it but i can

tell by the way they treat him during play, sports, etc that they know to go

easy on him. We are really lucky to live in a neighborhood with such good

kids.It is so nice to see being active. When he first became ill 2 years

ago he was almost bedridden for 2 months, I remember thinking how sad it was to

take off his clothes at night and have them so spotless,When I hear parents

complain about there kids getting there clothes dirty or ripping the knees in

their jeans I tell them to be glad their child is active and healthy.Now when I

put s clothes in the wash I am thrilled to see the grassd

stains!!!!!!!!!!!Sometimes I think having a child with a chronis illness makes

you appreciate the little things in life...Well Ry just ran in and is looking

for dinner!!!! More later wishing you all and your children the best!! Rys

birthday by the way is Jan. 19 1991.. Jane