Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Kelsey is only 3, so maybe she has more energy due to her young age. Our problem is that she isn't sleeping enough! She wakes up 4-5 times every night and rarely takes naps. It seems like I am up with her at night more now than I was when she was an infant. Something else I plan to talk to the doctor about, hopefully tomorrow. She does lay down sometimes during the day and watches a video or we read books, etc... just something quiet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Robbin40@... wrote: > > hi yall > just a question maybe one of yall have had experience with this > melissa gets up in the mornings but after about a hour or 2 > she feels tired and goes back to sleep for up to 3 or 4 hours > Robbin Hi Robbin, This isn't a problem for us when is doing well but if he's having increased arthritis activity, he tends to sleep lots more than what seems normal. Some days I'll wake him, he eats breakfast and takes his meds, and then right away wants to lay back down to go to sleep. Our average waking time is about 6:30am. We usually leave here at 7:30am. If he's in the midst of a flare, and not at school, he will sleep until I wake him for lunch. He normally goes to sleep at 9pm. so that would be about 14 hours of sleep! On the more normal days he will often get home from school, do his homework assignments, and then take a nap for an hour or so. During his flares, he's normally having the high fevers. That can make you more sleepy. And he's often anemic, which can contribute to the tiredness, too (despite taking iron supplements.) Plus, for whatever reason, after he has his methotrexate he gets extremely tired. He'll go to sleep right after the dose is given, wake in the evening for a meal and to shower, and when the next morning comes along he still feels very fatigued! When I heard that there were fewer side effects with the injectable MTX I was really excited, thinking he wouldn't be so tired afterwards, anymore. Unfortunately, that wasn't the case for us. That side effect is still just as bad, or maybe slightly worse, since Josh has been getting the shots So, I really don't know how to explain it but I think some kids with JRA just tend to need more rest than kids without. My daughter, meanwhile, has so much energy. She's non-stop from morning till evening! I remember once reading something to Josh which said that most of children's growth occurs while they are sleeping. I even worried that he might just be trying to sleep more, so he could start growing again. But his body just needs more rest, and we've adjusted to it. Anyway, I was just reading this article on teens and sleep patterns. Maybe you'll find it interesting, too. Take care, Georgina Why ny Can't Stay Awake: Teens' sleep cycles often clash with school hours http://www.healthscout.com/cgi-bin/WebObjects/Af.woa?ap=1 & id=96759 SATURDAY, June 3 (HealthSCOUT) -- Parents of groggy, grumpy teen-agers often say their kids live in a different world. Actually, it's just a different time zone, according to new sleep research. Adolescents' internal body clocks run on different schedules than those of adults, researchers say, and teens' lives would be easier -- and even safer -- if adults understood the differences. " We have to recognize this is a significant problem for teen-agers, " says Dr. Ed Gibson, lead researcher of a new study on the sleep patterns of Canadian secondary school students, and president of the sleep/Wake Disorders Canada organization. The study found that nearly one-fifth of the 2,200 students surveyed were excessively sleepy during the day. The sleepy students averaged less than eight hours of sleep a night, while research indicates teens need nine. Sizable numbers of teens also reported drowsiness dragging down their grades, school attendance and social lives. A major reason for those significant sleep problems is that adolescent body clocks " shift forward " a few hours at puberty, Gibson says, making teens sleepy at the night-owl hours of 1 a.m. to 2 a.m., and awake at 9 a.m. to 10 a.m. (Other less-common reasons, he says, include sleepiness as a symptom of depression, undiagnosed sleep disorders, and poor sleeping habits.) Gibson's work builds on recent American studies, particularly by Brown University researcher Carskadon. Gibson hopes his results will amplify a message that American researchers have vocalized for years -- alter school hours and social functions to fit in better with the teen-age body. There's been a growing push in the United States to delay secondary school starting times from their early-bird average of around 7:30 a.m. to an hour later. Some U.S. schools have already heeded the call. But others say delaying the start time would cause too many logistical problems with transportation, extracurricular activities, and union contracts. " There is lots of interest, and there's been lots of discussion, " says Ray Lemley, deputy executive director of the National Association of Secondary School Principals, although he's not sure how many schools have experimented with the later starting times. School district sees benefits An early convert was the Edina school district in Minnesota, which switched high school start times from 7:30 a.m. to 8:30 a.m. in 1996 after the Minnesota Medical Association sent a letter to all state schools recommending the change. Edina has since fielded inquiries from more than 200 school districts nationwide about its program, says spokeswoman Teuting . " It seems like a common-sense thing for all the people who raise adolescents. Everyone says, it's hard to get them out of bed. It's kind of nice to find out there may be a reason other than laziness or staying up late, " she Says. A 1998 University of Minnesota study that included Edina reported that students in schools with later start times are getting significantly more sleep than their peers -- about 45 minutes more a night -- and getting that sleep at a critical point in their sleep cycle. And more than half the teachers surveyed found students were more alert early in the day, with " fewer heads down on desks. " The study also showed that students with the later school start times reported receiving better grades than a control group. But the study warned that several unrelated factors could be contributing to the higher grades. , the Edina spokeswoman, says teachers there believe students are performing better in school with the later start times, but the district hasn't done studies to prove it. Gibson urges schools to look at not just starting school later, but saving the knottiest subjects for a time when kids are awake enough to handle them. That makes sense to Pamela Eakes, who watched her then-15-year-old son struggle to get up for a 7:15 a.m. advanced math class in the suburbs of Seattle four years ago. But Eakes, president of Mothers Against Violence in America, has a far more compelling reason for her organization's recent effort to encourage secondary schools nationwide to delay starting times. Other benefits cited Beyond the apparent health benefits, Eakes says, starting school later also means ending school later in the day, eliminating some of the unsupervised afternoon hours when teens frequently get into trouble with drugs, sex, or violence. The American Academy of Sleep Medicine is concerned about another potentially dangerous byproduct of tired teens: drowsy driving. A few months ago, the academy began distributing an educational program titled " Crash in Bed Instead, " meant to teach teen-agers about the differences in their body clocks and steps to avoid falling asleep at the wheel. The program, aimed at driver's education and health classes, " talks about why and how we sleep, sleep debt, the dangers of sleepiness, and then some solutions, " says Deb Fisher, the academy's educational director. " It goes into trying to explain to teen-agers how much sleep they need, and why they need it, and that they just can't make it up on the weekends. " While Gibson applauds moves to increase the awareness of teen sleep patterns, he believes more work remains to be done. He's particularly concerned that some sleepy teens may be suffering from undiagnosed sleep disorders. Six percent of the students in his study reported possible symptoms of sleep disorders, including insomnia, narcolepsy and sleep apnea. In clinical practices that treat adults with sleep disorders, " We find a lot of people who say, 'My problems really started when I was a teen-ager, and I wish I'd known then. School was difficult, or I dropped out, or people just thought I was lazy,' " Gibson says. What To Do If your teen suffers from sleep problems, start with a visit to his or her doctor. For more information on sleep problems, try http://www.aasmnet.org or http://www.sleepfoundation.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 melissa was very active at 3 so was my son who is 22 now does kelsey hurt when she gets up? or is it that she just needs the comfort of you to go back to sleep? melissa use to wake and come get in bed with me but i found that if i layed something i wore by her and put a pillow mimicing me she stayed sleeping most of the night Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Robbin, Most of the time Kelsey wakes up whimpering or crying and when my husband or I go sit with her for a minute or two she goes back to sleep. Sometimes, though, she will wake up down in her bed, off of her pillow, and her hands are so stiff and sore that she needs help getting comfortable. Usually she is only awake for a few minutes, sometimes just to go to the bathroom. We also use a pillow beside Kelsey to help prevent her from rolling out of bed! lol I think her new therapists will work out just fine once she gets used to them. We got a brochure on the clinic and they also have a website that I checked out. It will be nice to be able to have all her therapy in one place. As it is now, we have physical therapy in the " gym " at the hospital and her pool therapy at an athletic club which is owned by the hospital. (Carilion) This place has a few locations around the area, but the one we will be going to is just a few blocks from our pediatrician. Have a great weekend, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 Macey sleep schedule goes something like 9-9:30 pm to whenever someone wakes her. That can be 9 or 10 am. If she's woken up at 7:30 to get ready for school she's pretty much a stiff zombie who begs to go back to sleep in the van on the way to school. She has been anemic for almost 2 yrs now and is on prescriptive iron. she has a problem with her iron stores. I think they called it microcytic anemia. her hemoglobin fluctuates between 11 and 12, but its been as low as 9. her mcv and mchc are her problems. plus abnormal TIBC and ferritin levels. The anemia makes her tired alot. She is still a big napper too, 2-3 hr naps on the weekends and now during the summer when she's home. Ursula Holleman Macey and 's mom http://home.att.net/~maceyh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2000 Report Share Posted June 9, 2000 Lynn, Actually my husband works different shifts, too! He works mostly daylight hours, but for the months of June and July he has gone to nights. I never really thought of that... glad you mentioned it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2000 Report Share Posted June 9, 2000 Hi Robbin: Mickey (6 with systemic) behaves like that when her inflammation is high. It seems to just tire her out, her body fighting itself like that. A flare, whatever, she is extra tired. With Mickey, she gets fevers, too. Maybe you should get her in to the doc again in case her meds need to be adjusted upwards. Lynn sleeping to much? hi yall just a question maybe one of yall have had experience with this melissa gets up in the mornings but after about a hour or 2she feels tired and goes back to sleep for up to 3 or 4 hours Robbin------------------------------------------------------------------------Never lose a file again. Protect yourself from accidental deletes,overwrites, and viruses with @Backup. Try @Backup it's easy, it's safe, and it's FREE! Click here to receive 300 MyPoints just for trying @Backup.1/4936/2/_/524922/_/960471657/------------------------------------------------------------------------For links to websites with JRA info visit: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2000 Report Share Posted June 9, 2000 Hi : This is just a thought your comment about all the waking. A friend of mine went through almost 2 years of night wakings like you described, the docs tried everything they could think of - lots of tests... well to make a long story short, in the end, it was related to her father's shift work. She was anxious about it and woke often to check that someone was there for her. Once her dad started sitting down before he left and explaining that her mom would be there for her, and could call him if needed, the little girl started sleeping through the night. So simple! Sometimes we look too hard for complicated solutions. Maybe it doesn't apply, but you never know. Lynn Re: sleeping to much? Kelsey is only 3, so maybe she has more energy due to her young age. Our problem is that she isn't sleeping enough! She wakes up 4-5 times every night and rarely takes naps. It seems like I am up with her at night more now than I was when she was an infant. Something else I plan to talk to the doctor about, hopefully tomorrow. She does lay down sometimes during the day and watches a video or we read books, etc... just something quiet. ------------------------------------------------------------------------Find out your allergy risks online!Get a $10 discount at eNutrition just for trying it.And a chance to win a desert Spa Getaway.Click Here:1/4575/2/_/524922/_/960495635/------------------------------------------------------------------------For links to websites with JRA info visit: http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 Lynn yes i think i will call the doctor this week i am trying to clean out my garage and melissa and me have been doing alittle a day but she tires easy and i end up telling her to just go inside and rest or just sit and watch me This time last year she was so get up and go never sitting and on the skates all day and most of the night this year has changed alot melissa is 13 years Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2000 Report Share Posted June 10, 2000 Lynn your right a change in the family will do it also Robbin Quote Link to comment Share on other sites More sharing options...
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