Re: More problems for Kelsey

[Guest guest]

Thank you, Ursula. I will check out the links on kidney reflux. I am not

looking forward to this procedure, to say the least. Do they give the kids

anything to help calm them while they do it? (Something tells me they won't)

Her fever went up to 103.3 earlier. I had to give her Tylenol and a cool

bath to get it down, now it's right at 98. I hope she will be feeling better

tomorrow... today has been one of her worst in several weeks. This infection

has most definitely caused her to flare. She was doing quite well until this

week. Again, thanks

[Guest guest]

Since a sit down bath isn't a good thing, I'm wondering if maybe Kelsey's

pool therapy could be aggrevating her UTI? She goes for an hour once a week,

but she doesn't sit around in her wet bathing suit or anything. We change

her as soon as she gets out of the pool. Could the chlorine be bad for her?

The links you have on Macey's page are great... very helpful. Thank you!

[Guest guest]

- the catheter procedure is called a VCUG and macey has had two of

them. There are many kidney reflux links on macey's resource page. When

macey was diagnosed with kidney reflux in 98 she started on Septra every day

and has been on t for two years now. she does urine cultures every 3 months

to check for bacteria. the Septra helps to keep the UTI's out so they won't

scar the kidney's or the ureters. The kidney reflux comes in 5 grades with

Grade 5 being the worst. Macey has grade 1 on the right side. sometimes

reflux can be on both sides.

http://boards2.parentsplace.com/messages/get/ppchildkidneyreflux14.html

Good luck with the tests. P.S. I would give her some antihistamine

medicine before the catheter procedure because it will help with the

swelling and help her deal with the catheterization. it's not a fun

procedure.

http://home.att.net/~maceyh/organizations.htm - Links for Kidney reflux

information are on this page.

http://www.childrenshospital.org/radiology/patient/xray/patient/vcug_gpg.htm

l - this is a wonderful link to explain the procedure to little girls.

Ursula Holleman

Macey and 's mom

http://home.att.net/~maceyh

[Guest guest]

unfortunately anything that would make her calm will also make the bladder

and kidney calm and that won't allow the radiologist to see if the pressure

is there or what the problem might be. you want the organs to function as

they truly do. the antihistamine is the closest thing we've found that will

calm macey down and not alter her body functions. as with any UTI I'm sure

you know to push water and cranberry juice and you might want to shower her

instead of baths. bath water washing back up into a little girl with a UTI

or kidney reflux is not a good thing. once macey was diagnosed with kidney

reflux she's maybe had a handful of baths since. all showers now. my

sister had reflux and they say it's congenital. there is a high incidence

of siblings having it also but katie was so old by the time macey was

diagnosed that she wasn't even tested. most children outgrow it by the time

they're 5 or 6. Macey was diagnosed at 3 and katie was already 6 and had

very little history of UTI's so they didn't think she was at risk. Sorry

again to hear that this has aggravated the JRA. I guess it makes me realize

just how our body interacts with itself.

Ursula Holleman

Macey and 's mom

http://home.att.net/~maceyh

[Guest guest]

Macey's been in pool therapy for almost a month now, since the water

movement is constant and the health club is diligent about their testing I

wouldn't think so. the bath water is stagnant and isn't filtered or cleaned

in any way so that's where the urologist was coming from I think. we see

dr. Edwin smith on clairmont rd in Atlanta. it's near Egleston. they're

great and come to Macon twice a month. where are they doing the tests?

Ursula Holleman

Macey and 's mom

http://home.att.net/~maceyh

[Guest guest]

Ursula,

We live in Salem (Roanoke area) VA. The tests will be done at Carilion

Roanoke Community Hospital. There are 3 hospitals in the Roanoke/Salem area

and Community is my top choice. I'm nervous, but I will be relieved to at

least know something.

[Guest guest]

was on tolectin but had to be taken off of it

she was put on voltaren and its helped alot

tolectin gave melissa bad migraine headaches

but each child is different and melissa is allergic to ibuprofen

i feel for you i understand how you feel

being scred to death of the unknown

let me know how yall are doing

Robbin

[Guest guest]

Hi ,

Just wanted to send some positive energy and let you know that you and

Kelsey will be in our thoughts. Good luck with the testing. I hope it

all goes well and isn't too worrisome. Let us know what you find out.

Hope Kelsey is feeling better soon,

Aloha,

Georgina

imshellrenee@... wrote:

>

> Ursula,

> We live in Salem (Roanoke area) VA. The tests will be done at Carilion

> Roanoke Community Hospital. There are 3 hospitals in the Roanoke/Salem area

> and Community is my top choice. I'm nervous, but I will be relieved to at

> least know something.

>

[Guest guest]

Are you making sure that Kelsey takes probiotics like acidophilus with all

of these meds. I don't know if you realize it, but when you take

antibiotic, it kills not only the bad bacteria, but the good bacteria which

balance the gut. In my opinion, you should be giving her acidophilus 2

hours after the antibiotics for the best results. You can get them in

chewable form in any health food store.

Also, up your vitamin C to make her body acidic with the urinary tract

infection.

Bonnie

Regional Director, PHD Products

http://phdproducts.com mailto:bonnie@...

800-863-3403

More problems for Kelsey

>Well... today has been a very busy and emotional day for us. We took

Kelsey

>to her pediatrician today and she has another urinary tract infection. She

>just got over one at the end of May, and now its back She is taking

>Cefzil this time. Her doctor ordered some tests to make sure there isn't

>something underlying causing it. We go Tuesday to have an ultrasound done

>and another test that will consist of putting dye through a catheter into

her

>bladder, checking for reflux. (I don't know the correct terminology!)

>Needless to say this has me scared to death. I think I remember reading

>about someone else having the reflux problem??? Also, I talked to her

>rheumatologist today about some of her joints flaring again. She said it

>could very well be due to the infection, but to give the antibiotic a few

>days to clear up the infection and if she wasn't any better by Wed. to call

>her back. The Naprosyn has helped a lot, but she said it may be time to go

>ahead and add another medicine, I believe she said Tolectin? (however

that

>is spelled! lol) She said it was in pill form and we would have to crush

>them. Anyone have experience with this medicine? I am trying real hard to

>keep a positive attitude and be thankful we have good doctors. I know

things

>could always be worse. Hope everyone has a great weekend.

>Take care,

>

>

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>1/5291/2/_/524922/_/960591484/

>------------------------------------------------------------------------

>

>For links to websites with JRA info visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

To calm her down , I'd get some Rescue Remedy which is a flower essence. It

doesn't interact with any meds. It works to take the panic out.

We all use it. I use it if I feel as if I'm loosing it, or gonna scream at

the kids, my husband if he has a major meeting at work, my daughter if she

is nervous before a test or before a big doctor's appointment. It's great.

Any good health food store will have it.

Just take a few drops in some water or juice.

I can tell you that I've used it on my nephew to stop temper tantrums, etc.

Bonnie

Regional Director, PHD Products

http://phdproducts.com mailto:bonnie@...

800-863-3403

RE: More problems for Kelsey

>unfortunately anything that would make her calm will also make the bladder

>and kidney calm and that won't allow the radiologist to see if the pressure

>is there or what the problem might be. you want the organs to function as

>they truly do. the antihistamine is the closest thing we've found that

will

>calm macey down and not alter her body functions. as with any UTI I'm sure

>you know to push water and cranberry juice and you might want to shower her

>instead of baths. bath water washing back up into a little girl with a UTI

>or kidney reflux is not a good thing. once macey was diagnosed with kidney

>reflux she's maybe had a handful of baths since. all showers now. my

>sister had reflux and they say it's congenital. there is a high incidence

>of siblings having it also but katie was so old by the time macey was

>diagnosed that she wasn't even tested. most children outgrow it by the

time

>they're 5 or 6. Macey was diagnosed at 3 and katie was already 6 and had

>very little history of UTI's so they didn't think she was at risk. Sorry

>again to hear that this has aggravated the JRA. I guess it makes me

realize

>just how our body interacts with itself.

>

>Ursula Holleman

>Macey and 's mom

>http://home.att.net/~maceyh

>

>

>------------------------------------------------------------------------

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>1/2567/2/_/524922/_/960605172/

>------------------------------------------------------------------------

>

>For links to websites with JRA info visit:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

>