Guest guest Posted August 18, 2000 Report Share Posted August 18, 2000 Oliver, There was just a large article in our paper about a new 'compounding pharmacist' that just opened up in our town. He takes the doctor's prescription and makes the medicine into a sucker, suspensions, tablets, whatever out of the specific dose of med that's ordered. I have no idea if anything could be do as opposed to an injection, but if you live in an area with a compounding pharmacist, you may want to give them a call and see what you can find out. Just an idea, Oliver Skudder wrote: > Hi All, > > We are having some difficulties with our son who has become seriously needle > phobic. I have therefore been hunting around for another solution to the > problem, which I am sure affects a large number of our children when it is > time for the weekly methotrexate shot. > > Searching around the net, I found a number of resources, and this web site > in particular: > http://www.cdc.gov/nip/dev/jetinject.htm#devicelinks > > I was wondering if anyone has come across these devices and has anyone heard > of them being used for methotraxate? > > Many thanks for any help. > > Oliver > > > > For links to websites with JRA info visit: > http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Hi All, We are having some difficulties with our son who has become seriously needle phobic. I have therefore been hunting around for another solution to the problem, which I am sure affects a large number of our children when it is time for the weekly methotrexate shot. Searching around the net, I found a number of resources, and this web site in particular: http://www.cdc.gov/nip/dev/jetinject.htm#devicelinks I was wondering if anyone has come across these devices and has anyone heard of them being used for methotraxate? Many thanks for any help. Oliver Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2000 Report Share Posted August 20, 2000 Hello Oliver, No, I haven't heard about them being used for MTX. But I thought I would mention that all has been going well with , still, who not too long ago switched from weekly sub q MTX doses to a rather unconventional plan. By injection one week, oral dose the next. Stayed at the same amount, which is currently 15mgs. And despite my worries, there seems now to be no bad effects from this. He is still getting the right benefits but is much happier to have the injections just twice a month instead of weekly. Might be worthwhile to ask about this type of arrangement, since Damien seems to feel much like Josh in this respect. good Luck. Take care, Georgina Oliver Skudder wrote: > > Hi All, > > We are having some difficulties with our son who has become seriously needle > phobic. I have therefore been hunting around for another solution to the > problem, which I am sure affects a large number of our children when it is > time for the weekly methotrexate shot. > > Searching around the net, I found a number of resources, and this web site > in particular: > http://www.cdc.gov/nip/dev/jetinject.htm#devicelinks > > I was wondering if anyone has come across these devices and has anyone heard > of them being used for methotraxate? > > Many thanks for any help. > > Oliver Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 Oliver, We have always had big problems with injections. My sons dr. sent us to counseling to deal with the phobia. Well, it helped mainly because Robbie hated going to counseling almost as much as he hates shots! He ended up saying he would get the injections if we could quit counseling. We learned that he can't inject himself and I can't inject him... it is better to have an outsider be the bad guy. Robbie is getting 3 injections a week now (2 Enbrel/1 metho), he says the Enbrel is not working even though I think it is.... he would do anything to stop the injections, even if he feels worse. Patches would be a god send! Jana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2000 Report Share Posted August 21, 2000 My pediatric rheumatologist prescribed a topical cream called EMLA, when applied to the injection site 1 hour before it totally numbs the area, and the child feels nothing. I use it on her before every metho shot and Enbrel shot and every lab draw. My 7 year old holds the butterfly needle when getting a lab draw and has since she was 5 years old and its not a horrific experience. I used to apply the EMLA about 1/2 hour before she went to bed, then I would wait until she was sleeping, she did not feel the shot and she did not wake up. After 2 1/2 years of injections, she is now used to the needle and I no longer need the EMLA for her weekly injections, but I still use it for lab draws. > > > Hi All, > > > > We are having some difficulties with our son who has become seriously needle > > phobic. I have therefore been hunting around for another solution to the > > problem, which I am sure affects a large number of our children when it is > > time for the weekly methotrexate shot. > > > > Searching around the net, I found a number of resources, and this web site > > in particular: > > http://www.cdc.gov/nip/dev/jetinject.htm#devicelinks > > > > I was wondering if anyone has come across these devices and has anyone heard > > of them being used for methotraxate? > > > > Many thanks for any help. > > > > Oliver > > > > > > > > For links to websites with JRA info visit: > > http://www.geocities.com/Heartland/Village/8414/Links.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Kelsey is only 3 and having lab work done is a terrifying experience for her. It usually takes 3 adults to hold her still while they do it, so I'm wondering if I should call and ask our rheumatologist if she could prescribe EMLA for her? Seems like a good idea to me, but is it something doctors are reluctant to prescribe? I'm wondering why none of Kelsey's doctors hasn't offered it yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Great... I will call her doctor's office today and request EMLA. I think it will help Kelsey deal with it better and make it much less traumatic for her. Thanks for the advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 , call your doctor today, get the prescription and use it, it is hard enough being poked and in pain without having the trauma of it. The prescription costs me $25 a tube, and it lasts about 2 months. The first time she had a blood test with the EMLA she was still scared, until she realized there was no pain involved. I put the cream on Amy's arm about 2 hours before, a large drop about the size of a silver dollar, cover it in plastic wrap and wait. No pain, no trauma, no screaming. > Kelsey is only 3 and having lab work done is a terrifying experience for her. > It usually takes 3 adults to hold her still while they do it, so I'm > wondering if I should call and ask our rheumatologist if she could prescribe > EMLA for her? Seems like a good idea to me, but is it something doctors are > reluctant to prescribe? I'm wondering why none of Kelsey's doctors hasn't > offered it yet. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2000 Report Share Posted August 24, 2000 , Both my pediatrician & the peds rheumatology suggested EMLA right away. As a mater of fact when my daughter was in a Rheumatology trial at Duke University they supplied Emla for her. I would think there would be no problem prescibing it... and it has worked wonders for us!! Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2000 Report Share Posted August 26, 2000 Hi All, Firstly, many thanks for the responses. We have tried using EMLA cream but have not found it very useful. In fact, at a recent JIA Weekend, I asked some of the older sufferers what they thought and the concensus of opinion was that it was better not to use EMLA as they found that it increased the stress. Better to just get it over and done with quickly. Damien went to Great Ormond Street Hospital this week for the injection (he usually gets it done at a local hospital) and the Psychiatrist and Doctor managed to perform the injection with minimal hassle. He is rightly proud that even if he did cry a little, he was brave and didn't make as much fuss as normal. I'll see what I can find out about the availability of MTX patches and I think I will continue to pursue the needle-free investigations though. If I make any progress I will be sure to let you all know. Regards, Oliver Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 Over the weekend I talked to my aunt about EMLA and she said most doctors she's worked for (she's a nurse) won't prescribe it just for regular lab work, but maybe for those who need it on a very frequent basis or receive frequent injections. Leaves me wondering if I should still ask the doctor? I guess I probably will... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2000 Report Share Posted August 27, 2000 Hi Oliver, Be sure to let Damien know that we are very proud of him, too I had read about, and posted, a study about EMLA creme once and it's not being as effective as hoped for. But many times we have to take into account the placebo affect. While it didn't do much for either, and he decided not to use it anymore, plenty here say that it's had a great effect for their kids. I guess each case is different. You may have noticed that I posted an article earlier about current research looking into making injectables available in pill form. You also probably noticed that this technology is, unfortunately, still several years away for most applications. If I come across anything else, I too will post about it. Wish there was something more we could do ... right NOW! Take Care, Georgina Oliver Skudder wrote: > > Hi All, > > Firstly, many thanks for the responses. We have tried using EMLA cream but > have not found it very useful. In fact, at a recent JIA Weekend, I asked > some of the older sufferers what they thought and the concensus of opinion > was that it was better not to use EMLA as they found that it increased the > stress. Better to just get it over and done with quickly. > > Damien went to Great Ormond Street Hospital this week for the injection (he > usually gets it done at a local hospital) and the Psychiatrist and Doctor > managed to perform the injection with minimal hassle. He is rightly proud > that even if he did cry a little, he was brave and didn't make as much fuss > as normal. > > I'll see what I can find out about the availability of MTX patches and I > think I will continue to pursue the needle-free investigations though. If I > make any progress I will be sure to let you all know. > > Regards, > > Oliver Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2000 Report Share Posted August 28, 2000 I would ask our dr's didn't hesitate since we get labs done on a regular basis Kris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2000 Report Share Posted August 28, 2000 , Ask for the EMLA and see if it helps. I don't think the doctor will have an issue with it, it is common for JRA kids. Jana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2000 Report Share Posted August 28, 2000 I will ask Kelsey's rheumatologist, because she really does respect our wishes and does all things possible to make sure Kelsey is happy. I'm willing to try anything at this point! Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2000 Report Share Posted August 28, 2000 Georgina, Once again, many thanks for your help and kind words and I hope Josh is well today. Regards, Oliver Re: Needle Free Injections > Hi Oliver, > > Be sure to let Damien know that we are very proud of him, too I had > read about, and posted, a study about EMLA creme once and it's not being > as effective as hoped for. But many times we have to take into account > the placebo affect. While it didn't do much for either, and he > decided not to use it anymore, plenty here say that it's had a great > effect for their kids. I guess each case is different. > > You may have noticed that I posted an article earlier about current > research looking into making injectables available in pill form. You > also probably noticed that this technology is, unfortunately, still > several years away for most applications. If I come across anything > else, I too will post about it. Wish there was something more we could > do ... right NOW! > > Take Care, > Georgina > > Oliver Skudder wrote: > > > > Hi All, > > > > Firstly, many thanks for the responses. We have tried using EMLA cream but > > have not found it very useful. In fact, at a recent JIA Weekend, I asked > > some of the older sufferers what they thought and the concensus of opinion > > was that it was better not to use EMLA as they found that it increased the > > stress. Better to just get it over and done with quickly. > > > > Damien went to Great Ormond Street Hospital this week for the injection (he > > usually gets it done at a local hospital) and the Psychiatrist and Doctor > > managed to perform the injection with minimal hassle. He is rightly proud > > that even if he did cry a little, he was brave and didn't make as much fuss > > as normal. > > > > I'll see what I can find out about the availability of MTX patches and I > > think I will continue to pursue the needle-free investigations though. If I > > make any progress I will be sure to let you all know. > > > > Regards, > > > > Oliver > > > For links to websites with JRA info visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
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