Re: To Angel

[Guest guest]

Angel -- does McKenzie have arthritis in her eye? Is that why she is getting

the injections there? I know my 8 year old daughter, Ashli, gets special eye

exams every 3 months -- first to look for arthritis in the eye and second,

because the plaquenil she is on has the side effect of eye damage.

Understand your frustration with medication and side effects. The plaquenil

Ashli is on is suppose to take up to 3 months to work and were on the 3rd

month and so far I only notice things getting worse. But is it that the

arthritis is just getting worse and without the medication she'd be even in

more pain or is the medication just not working at all? Let me know how

McKenzie is doing.

God Bless,

Sandi A. (Ashli's mom)

[Guest guest]

Hi Sandi,

Yes, McKenzie does have iritis in her right eye, which is caused by the JRA.

It is known as the inflammation of the eye. That has been the hardest thing

to control in this whole JRA battle. It is also the reason we knew Kenzie

had JRA. She woke up one morning ( when she was three) with one eye

completed dilated and the other one was very small in size. The doctor

assumed she had hit her head and sent her to the eye doctor just in case.

very good doctor) The eye doctor ran some test and Kenzie came back with a

positive ANA so they sent her to the rheumy. No signs of JRA in any of her

joints at that time. A year later her knee swelled and six months after

that her other knee started swelling. Now McKenzie has just a few fingers

and both knees infected with the JRA. Mild compared to most but still heart

breaking. We have tried eye drops sometimes every two hours and nothing seem

to work so they suggested the injections and we gave it a try. That only

helps for about six months.

I agree with you sometimes I wonder if the Metho just masked the disease. I

am to afraid to take her off in fear she will develop more joints problems.

I don't even know if that is possible? I wish I had more time to ask the

doctors a million questions but with three kids running around the office I

can't even hear myself think.

Well I hope things start looking up for you and Ashli. Our thoughts are with

you two.

Angel Beers

Re: To Angel

Angel -- does McKenzie have arthritis in her eye? Is that why she is

getting

the injections there? I know my 8 year old daughter, Ashli, gets special

eye

exams every 3 months -- first to look for arthritis in the eye and second,

because the plaquenil she is on has the side effect of eye damage.

Understand your frustration with medication and side effects. The plaquenil

Ashli is on is suppose to take up to 3 months to work and were on the 3rd

month and so far I only notice things getting worse. But is it that the

arthritis is just getting worse and without the medication she'd be even in

more pain or is the medication just not working at all? Let me know how

McKenzie is doing.

God Bless,

Sandi A. (Ashli's mom)

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Was the salesman clueless? Productopia has the answers.

1/4633/3/_/524922/_/962124889/

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For links to websites with JRA info visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Angel -- good idea about the 504 allowing backpacks with wheels. I've

noticed all the store with them, Ashli even has a small suitcase type

backpack with wheels that she uses often (outside of school). Never really

thought of using at school. Will ask teacher/principal when we have a

meeting in a few weeks.

Thanks,

Sandi A. (Ashli's mom)