Skyler update WARNING DAD IS PISSED

[Guest guest]

Sigh........

Mind you, I am very well known for being highly tolerant and a peacemaker.

I do not like physical vil\olence but i am nearing my limit.

After reciting a letter from the Rheumatologist clearly detailing how bad

Skylers situation is, after repeating verbaitum the words of the

Hemotollogist " You need to request a BOARD CERTIFIED PEDIATRIC

RHEUMATOLOGIST " , after determining that there is NO Dr. who specializes in

Pediatric Rheumatology IN THE STATE OF ARIZONA, our contact at the insurance

company has taken it to the highest level. The senior medical advisor or

some such lable.

Guess what this genius tells us?

" There is no such thing as a Board Certified Pediatric Rheumatologist " " You

will just have to use the referal located in Tucson, Dr. So n so "

Our current Rheumi tells us this will do no good as this fellow has no

reputation and is not a specialist. He will simply go through the same

steps, burning up more time as Skyler becomes seriously damaged from this

inane disease!

AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAARRRRRRRGGGGGHHH!!!!

I am gonna frikken kick someones A$$$$

I stayed up all night Friday night and Saturday night with a child having

106 degree fever, stills rash on 90% his body, wracking pain in all limbs,

joints, back and now the head! He is on All the most effective and potent

meds at what the Dr. sais is the highest possible dosages; He isnt eating

well, is seriously Anemic and iron deficient, his hemoglobin is dropping a

point every week and is down to " 6 " , He hasn't grown in 6 months and is

recognized as one of the most serious cases seen by all our Dr's and these

Insurance BUTTHEADS are playing games with us, stalling and possibly

jeopardizing my boy.

I am really starting to feel postal here folks.

Sorry for the raving but I gotta take this out somewhere or I may start

breaking things. Skyler is barely able to walk, his right knee is so week

and painful it keeps collapsing on him resulting in searing pain. He can no

longer use his right hand to do more than balance himself and he has to lie

down about 90% of the day. I am now noticing his knee joints visibly

shifting inward. He requires massage for a few hours every night and an

hour in the morning. The stress has seriously affected my job and I had to

withdraw my bid for a permanent position due to fumbling on remedial tasks.

This will be the third this year.

What do we have to do to get proper attention here?

Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr! DAmn I really want to cuss them out.

Please bear with me. I will update you all soon.

Tonight I have to work untill 3 or 4 am to try desperately to make a

deadline that was due last Wednesday. Lts see if I have any brains left

tomorrow.

[ & Skyler]

Re: [sD] Skyler update

> I am so glad that you are finally getting some where and hope that

> skyler starts doing better my thoughts and prayers are with you and your

> family and that you will find the right DR that can help him

>

> Love,

>

>

[Guest guest]

Ok I am really shcocked my husband & I are considering a move to Arizona & my

daughter has Poly JRA.... this frightens me!!! I do know that there is a

ped. rheumy in Vegas (my parents live there) . Woulds it be possible for them

to send you there? I know it's a drive but..... Also what about MAyo ...No

rheumy's there ??? Let me know what you find out.... You & Skyler will be

in my prayers ....Kris

[Guest guest]

,

You certainly have every right to be mad, I know I would be too. You just

need to stand your ground, fight this until you and Skyler win no matter what

it takes. I would be consulting a lawyer or something, I know that takes

money but most of the time lawyers will give you a free initial consultation,

where you can find out what you can do. It really gets me how insurance

companies have the power to over ride what the doctors order. I can't

believe they can actually get away with it. I hope things start working out

soon. There is no reason Skyler should be suffering so badly, and you're

right about the insurance company making you all wait around is causing more

harm to Skyler. They are putting your son's life at risk, and something

definitely should be done. I wish I knew what to tell you to do, but all I

do know to tell you is to keep fighting and demand your son get the proper

care.

Best of luck,

[Guest guest]

and Skyler

Our prayers are with you as always. I hope there will soon be light at the

end of your long tunnel.

Take care of your little angel !!!!!!

Charlene(chychys mom)