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[Guest guest]

Hello everyone!

My name is Charisa, and I have 2 children my oldest is 5 and my

youngest is 2 1/2 yrs, Hailey the little one, has another rare

medical condition which I think has made me not notice all the signs

of the JRA that she has had, because several of them are the same.

Regardless, at our last visit to childrens hospital I asked the

geneticist and pediatrician about the joint pain she is complaining

of, she has complained of sore knees and a sore back and sore arms

for several months, but I never realized that a 2 year old could tell

me, (GUILT!!)and after several blood tests, xrays and physical exams,

I was told that she has JRA in several joints, her hips, back, knees

and arms are the worst right now. (from what we can tell) I was

overwhelmed by this diagnoses, not that it is the worst thing in the

whole world, I know that there are much worse things, but she is my

baby and I know that she has and will suffer for many years to come.

I breaks my heart to see her sitting playing alone while her sister

or other friends are all running and jumping. I just want her to be

happy too. Since this is not our first diagnoses, I do know that in

time I will accept it better but for now I am scared for now. I am

interested in hearing other stories and getting and giving support to

other parents like myself. I look forward to getting to know you and

your families.

Charisa mom2 Hailey 2 1/2 PRS and JRA and 5