Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 My 2 cents worth.... Hannah has had 3 joint aspiration/steroid injections thus far, 2 in the right knee and 1 in the left. They have had an almost miraculous effect on the inflammation in these joints and have enabled her to avoid treatment with systemic steroids. I HIGHLY recommend this treatment if suggested by the doc. > > > > Hi Angie: > > My daughter, Mickey (6, systemic jra, diagnosed 3 yrs ago, steroid > > dependent, also metho by wkly inj, indomethacin, cytotec, folic acid) has > > had many steroid joint injections. Her knees and ankles have been done 5 > > times, her wrists twice, elbows once, and she goes to have her hips injected > > for the 3rd time on Friday. She always has to stay off her feet completely > > for 48 to 60 hours afterwards, I think to keep her own weight (all 34 lbs of > > her) from squishing the corticosteroids back out of the joint. She has never > > gone into med-free remission and has never gotten below 5ml prednisone a day > > without flaring badly. > > The joint injections are a way of getting the steriods to specific problem > > areas without upping her overall steroids taken orally. It has been VERY > > effective - very dramatic results, usually. From a kid who could hardly walk > > from pain, she goes to running around like any kid, climbing, jumping, full > > of energy. The swelling usually disappears before she can even be back on > > her feet, and she has greatly improved joint mobility. The big bonus for us > > is that it usually prevents upping the oral steroids again. My understanding > > is that it also helps reduce the chances of joint deterioration and damage. > > As for surgery to remove inflammation, with Mickey, her hips seem to get a > > synovial fluid buildup, which apart from causing pain and difficulty > > walking, can also do damage to the joint. They have - I think the word is > > aspirated - her hips each time they've been injected - which is to say, > > drawn out the excess fluid. This takes pressure off the joint and helps > > reduce inflammation also. I'm not sure if this is what you meant, or what > > your doctors meant, but that is what has been done in Mickey's case. > > I wish you luck with it, it has been very successful with Mickey. > > > > ----- Original Message ----- > > > Hi everyone. I have a quick question. > > > > How many of you have had to endure the steroid shots? Allie had another > > flare up in her knee and the doctor has decided to start with the steroid > > injections. What are the side-effects? Did it help/hinder the JRA??? This > > was our last resort. If this doesn't work, they are talking about surgery to > > remove all the inflammation? Ever heard of this? > > > > Thanks, > > Angie Quote Link to comment Share on other sites More sharing options...
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