Methotrexate, etc(Was Re: Steroids)

[Guest guest]

Hi ,

You know, I'm still convinced that the big differences we've been seeing

in Josh can be attributed to switching from oral to sub Q injections of

methotrexate. He took it orally for 4 years, first. That's why I was

very concerned after almost a year when he started being resistant to

getting the shots, and the doctor okayed having the shots twice a month,

the pills twice a month. My worries were unfounded. It's all continued

to work out better than expected. And Josh, while he still says the

shots make him feel weird, a little dizzy, and more tired ... seems to

have adjusted to the point where he can even do his homework and then go

out and play, even on the day he gets the shots. He used to just fall

asleep right away! Strange. I guess we'll never know for sure what

exactly is making these good things happen but I'm not complaining. Just

very glad for the recent changes

Take care,

Georgina

LINDA BUDD wrote:

>

> Georgina, The doctor thinks that increasing the dose of the MTX is

> what really is making do so good. She has had no side

> effects from the increase, just a little more tired the next day.

> I reduces the Indocin about 6 days ago and the only thing

> Ive noticed different is that she is not eating as much as normal.

> Saying she is not hungry a lot more.

> Its hard to tell with her. She is the type that loves to

> play and she will keep going all day with no problems than when she

> winds down in the evening, than she complains about things hurting or

> being stiff. But no morning stiffness ever. I tell her to slow down

> during the day, but of course she doesnt listen.

> Take Care