josh

[Guest guest]

Dear Georgina, Sorry to hear about the trials and tribulations for Josh.

n is now 12, and I have noticed that she is becoming more difficult. I

thought that maybe she was reaching puberty. I can never tell if it is her

arthritis or not. She is not very willing anymore to tell me when she

hurts. We go to the rheumy tomorrow. As of today she is free of the

steroids. She has been on them for over a year, so we will have to see how

the next few days go. She is a bit stiff in the morning and her legs

sometimes bother her, but not enough to keep her from running and biking. It

has been a long road and how I do hate this disease. See ya.

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[Guest guest]

Hi ,

So happy to hear that n is still doing well. I remember when she

was going through some really difficult periods and it's nice to know

that she's managed to get past that. I do know what you mean about

holding your breath though, when the children have been doing well and

then suddenly complain of the return of stiffness, aches and pains in

their joints. Or when you notice the rash again. All those little

reminders .....

I'm glad you'll be attending the conference. If you learn anything new

or interesting, please let us know. And have a safe trip.

Take care,

Georgina

W and C Price wrote:

>

> Dear Georgina, Great news about the prednisone. I was always so happy when

> n went down. n is doing well, but every so often she gets some

> ache or pain, then we hold our breath--and it seems to leave. She had alot

> of the rash about a month ago, but it didn't develop into anything. I will

> be going to the AJAO conference in Seattle at the end of August. See ya.

>