Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Hello. My name is Chellie and my son Tyler 5 was recently diagnosed with Jra. He is being treated at Children's Hospital LA in California by Dr. Reiff. He is currently in a clinical study for Vioxx. His right knee is a 2+4 swelling alot better than when he was first seen and his Left knee is now a 6+4 and it was at 0 when first seen. He has elevated Liver Functions and a HLA-B27 NEGATIVE. yeah... We are still ajusting to what Tyler can and can not do right now. He is a great trooper. He was scheduled for a Slit Lamp yesterday, but had a school yard accident last week and broke his nose. The eye doc wasnt able to get his eyes to dialate so his appt was rescheduled. If anyone is being treated at CHLA, please email me. Chellie- Mom 2 Tyler-5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2001 Report Share Posted November 16, 2001 Hi! I was just getting around to checking my email (494 messages!) and read your message. My daughter is also treated at CHLA by Dr. Bernstein. Her name is , she's four, and she was diagnosed with pauciarticular JRA about 1-1/2 years ago. She was on motrin and wore an ankle brace for a while, and she is now considered in remission. She will need quarterly visits to the rheumatologist and pediatric opthalmologist well into her teens. We'll just play it be ear. I am also concerned about our seven year old son who has terrible rashes all over his body, but no other symptoms. The doctor says it is unrelated to JRA. Do you like your doctor and CHLA? Dr. Bernstein is a very nice man and has a very good, gentle manner with our daughter. CHLA is a bit of a drive for us (we live in Torrance), but we have been told that he and the hospital are the best in the area. We also have an excellent pediatric opthalmologist in Torrance. --- chellieae@... wrote: > Hello. My name is Chellie and my son Tyler 5 was > recently diagnosed > with Jra. He is being treated at Children's Hospital > LA in California > by Dr. Reiff. He is currently in a clinical study > for Vioxx. His > right knee is a 2+4 swelling alot better than when > he was first seen > and his Left knee is now a 6+4 and it was at 0 when > first seen. > He has elevated Liver Functions and a HLA-B27 > NEGATIVE. yeah... > We are still ajusting to what Tyler can and can not > do right now. He > is a great trooper. > He was scheduled for a Slit Lamp yesterday, but had > a school yard > accident last week and broke his nose. The eye doc > wasnt able to get > his eyes to dialate so his appt was rescheduled. > If anyone is being treated at CHLA, please email me. > > Chellie- Mom 2 Tyler-5 > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 Hi , thanks for responding. CHLA is also a bit of a drive for us too, we live in the San Valley, but so far I am very pleased with Dr. Reiff. I do have concerns about the clinical study of Vioxx that he is presently on. He is experiencing tummy trouble that OTC meds are not helping, Dr. Reiff also thinks Tyler may be in remission because his swelling and pain are not as severe as they were pre-Vioxx study, but Tyler still complains and has morning stiffness. His next appt is on the 29th so we'll just have to wait and see. I have never met Dr. Berstien, I have heard 2 sides to him, but don't know first hand. I understand he is the Director, so he must be very knowledgable in this area. I am glad to hear is doing well. I am curious to know what her first symptoms of Jra were and how long it took until she was diagnosed with Pauci? I hope that you find the source of your son's rashes, glad to hear it is unrelated to Jra. Does attend physical therapy or adaptive Physical education at school? I ask because I was advised to place him in Adaptive P.E class. Take Care, Chellie- Mom 2 Tyler 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 Sorry! my son emailed that blank message.....ooops Quote Link to comment Share on other sites More sharing options...
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