Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 In a message dated 2/20/02 12:40:49 PM Pacific Standard Time, writes: > classroom and notify them. > I even did an " army crawl " through the field one time. (The school is > surrounded by a field on 3 sides and > 1 side faces the street.) I came up from behind, through the parking lot, > and the custodian saw me and > started to talk to me (sweet old man!!) and by that time others had seen me > and then of course here comes > someone to greet me. Desperate times call for desperate m LMFAO!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 In a message dated 2/20/02 12:42:29 PM Pacific Standard Time, writes: > The part I hate most about being an educated, concerned mother to a > nonverbal child with autism and DS is that you have to rely on others for > information--and once they find out you mean business, the stories change > willy nilly. > > I don't have an answer for you besides this: ask for data. Ask for a > video tape so you can help problem-solve. Or, if they're saying he's doing > really well, ask for a video tape so you can all document what works (make > them sound like wonderful people and that you want to be able to share > their skills when there are problems in the future). > > It's an exhausting process. What you need to do is find someone you can > *trust* to tell you the truth who really *cares* about and is a part > of the " system. " What will be hard for you, (don't take this wrong), > is that you need this person to be able to present everything calmly, > without drama, and in a way that will make you almost feel like she is on > the other side. You will want to remind yourself that she is not. My gut > tells me there is enough " junk " going on that the facts will speak for > themselves. > > Lately I've taken to telling the professionals that I " m receiving > conflicting information regarding this and that, and my primary goal at the > moment is merely to determine an acurate picture of what is going on. That > frustrates folks. But when I persist by listing the various stories that > sound so different, I can then query the doubting professioinal by > saying, " Do you see what the problem is here? No story corroborates the > other. I have three or four very different versions being reported and I > merely want to be able to see the picture so I can be supportive. It's hard > to be supportive when the facts change every two minutes. " > > The school sees you now as an adversary. Everything you say will be > construed to be an attack. YOu haVe to get them to let their guard down > again so their true colors show. This is not at all easy when what you > really want to do is strap them in a rifton chair for a while so they can > see how it feels. > > Anyway. > > Sorry about the confusion. Expect it go get worse. Ask questions, don't > rely on anectdotal information. Ask for specific information.( " It's so > great that you are able to see such improvement with . the other day I > heard he didn't do so well. Can you help me understand what elements create > a " good " day and which ones make for a " tough " one? " Tell me what he's > doing. Tellme the class routine. Tell me who is working with him each day. > What are they working on? How does respond when you.... " ) > > It's exhausting. That's why I'm an official dinosaur. > > Joan > Joan and , I agree with what you are saying. I sometimes feel like throwing up after forcing myself to be nice to people that I would rather shake and yell at. Fortunately it has paid off and 's teacher and I have a positive relationship and we are working together to make sure 's transition to middle school is done to minimize difficulty for him. This also means that I will have less of a struggle knowing what is going on in the middle school since I know teachers talk about parents. Three years ago got a new teacher and things just weren't going right and it wasn't making sense so I asked them to start documenting what the specific behaviors were, what they were doing when it started and what they thought triggered them and what they did about it. I explained that I wasn't looking to criticize but rather to get a picture of what the exact behaviors were and maybe we could all see what approachs work to prevent and intervene in them. To make documentation easier for them I made up a chart with times going down the left side of sheet for times of the day.Across the top I put a wide column subdivided into narrower columns where I listed each behavior. Then the next wide column I put possible purposes for each behavior (avoidance of task or person, attention seeking, self-stim, ....). This way the staff only had to put check marks for behavior and purpose. Then I put an area for them to fill in what happened after behavior. I explained that as what happened not what we want to happen. If they needed to give into a behavior because it is interfering with the whole classroom then that is important to know. I know not all teachers would accept this idea but I really presented it as a team work idea and I want to work with you to make this a success for . I killed myself not to make it a adversarial situation. That meant biting my tongue many times and addressing things differently than I emotionally wanted to. I must say though that there are schools and districts where they just don't care but I seems from previous e-mails that these teachers come across as clueless rather than stubborn and set in their ways. karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 In a message dated 2/21/02 12:15:54 PM Eastern Standard Time, KVanRyzin@... writes: > I made up a chart with times > going down the left side of sheet for times of the day.Across the top I put > a > wide column subdivided into narrower columns where I listed each behavior. > Then the next wide column I put possible purposes for each behavior > (avoidance of task or person, attention seeking, self-stim, ....). This way > the staff only had to put check marks for behavior and purpose. Then I put > an > area for them to fill in what happened after behavior. I explained that as > what happened not what we want to happen. If they needed to give into a > behavior because it is interfering with the whole classroom then that is > important to know. > Karyn, Maddie's school has a chart like this on each child in the room. Also, their goals are posted so that the teacher and aides can keep track of successes and areas that need more work (we get monthly progress reports in the mail). It is stunning that you, the MOM, had to go in there and do all that for them!!! 's a lucky guy to have such a smart and intuitive mom...;-) Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 REPLY......................... I do not recall if your atty contacted me or not, but if you are being sent to Tampa, it is probably to see the strongly pro-chemical and insurance industry expert, Dr. Stuart . Good luck. In Boca Raton, you are probably going to see Dr. Al Robbins, an allergist who does both defense and plaintiff work. He is fair and honest. As for who treats mold exposure victims, try Janet Warner in Melbourne, FL ..... or Dr. Wunderlick by Sarasota......(813) 822-3612. Dr. L. Lipsey Professor and Toxicologist University of North Florida U. of Florida Med. Ctr, Jax Poison Control Center Board CV--Toxicology And Environmental Health Assoc. _____________________________________________________________________ Message: 6 Date: Mon, 30 Sep 2002 08:47:46 -0400 From: Donna Custer <custer002@...> Subject: Re: EXCELLENT ARTICLE ON MOLD -- THANKS Hi I have a question for Dr. Lipsey. My name is Donna and I email a few weeks ago saying that I am a co-worker of yours but housed here in Tallahassee, Florida. I explained a little about my problem and you told me to have my attorney Mr. Pelham to call you, he did and you are sending him some information etc. First I want to say thank you. my question is do you know of a specialist here in the State of Florida that can help with exposures. Worker's Comp is sending me next week to Bocca Raton and Tampa. I know this is more than likely a wasted trip but I have to go. I just thought that you would know of a Medical Doctor here in Florida that can treat my mold exposure. Thanks again for all of your help. Donna ----- Original Message ----- From: CarrollBower Sent: Sunday, September 29, 2002 8:33 PM Subject: Re: [] EXCELLENT ARTICLE ON MOLD -- THANKS Dr. Lipsey comes through again for victims. Even if he does work the defense apparently Dr. Lipsey abides and holds to the truth which ever side it takes. Good for you, Dr. Lipsey, if there were just a few more of you, Ha! So glad you commented on this article. The truth should always be fought for, including in Mold cases and media tales. NTMC --- RLLIPSEY87@... wrote: > MR. GRILLO, Boston Globe: > Thank you for an excellent article on mold. > It can be harmless and even beneficial, but > pathogenic molds in high > concentration indoors after a chronic moisture > problem, can be highly toxic, > ie Stachybotrys, Aspergillus fumigatus and A. niger > especially for sensitive > individuals. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2002 Report Share Posted October 1, 2002 Thank you, you are correct on the first two Dr's. Is there anything I need to keep in mind when seeing Dr ? Should I take him copies of the two Environmental Report that were done? I also would like to ask if you have ever heard of anyone developing Syringomyelia from mold exposures. I have just had a shunt put in my thorasic area of my spinal cord for this. I have never had any problems before and just found out I have this. Just though I would ask to see if you know. Thanks again. Donna ----- Original Message ----- From: RLLIPSEY87@... Sent: Tuesday, October 01, 2002 9:12 AM Subject: Re: [] Digest Number 1389 REPLY......................... I do not recall if your atty contacted me or not, but if you are being sent to Tampa, it is probably to see the strongly pro-chemical and insurance industry expert, Dr. Stuart . Good luck. In Boca Raton, you are probably going to see Dr. Al Robbins, an allergist who does both defense and plaintiff work. He is fair and honest. As for who treats mold exposure victims, try Janet Warner in Melbourne, FL ..... or Dr. Wunderlick by Sarasota......(813) 822-3612.Dr. L. LipseyProfessor and ToxicologistUniversity of North FloridaU. of Florida Med. Ctr, JaxPoison Control Center BoardCV--Toxicology And Environmental Health Assoc. _____________________________________________________________________ Message: 6 Date: Mon, 30 Sep 2002 08:47:46 -0400 From: Donna Custer <custer002@...>Subject: Re: EXCELLENT ARTICLE ON MOLD -- THANKSHi I have a question for Dr. Lipsey. My name is Donna and I email a few weeks ago saying that I am a co-worker of yours but housed here in Tallahassee, Florida. I explained a little about my problem and you told me to have my attorney Mr. Pelham to call you, he did and you are sending him some information etc. First I want to say thank you. my question is do you know of a specialist here in the State of Florida that can help with exposures. Worker's Comp is sending me next week to Bocca Raton and Tampa. I know this is more than likely a wasted trip but I have to go. I just thought that you would know of a Medical Doctor here in Florida that can treat my mold exposure. Thanks again for all of your help. Donna ----- Original Message ----- From: CarrollBower Sent: Sunday, September 29, 2002 8:33 PM Subject: Re: [] EXCELLENT ARTICLE ON MOLD -- THANKS Dr. Lipsey comes through again for victims. Even if he does work the defense apparently Dr. Lipsey abides and holds to the truth which ever side it takes. Good for you, Dr. Lipsey, if there were just a few more of you, Ha! So glad you commented on this article. The truth should always be fought for, including in Mold cases and media tales. NTMC --- RLLIPSEY87@... wrote: > MR. GRILLO, Boston Globe: > Thank you for an excellent article on mold. > It can be harmless and even beneficial, but > pathogenic molds in high > concentration indoors after a chronic moisture > problem, can be highly toxic, > ie Stachybotrys, Aspergillus fumigatus and A. niger > especially for sensitive > individuals.FAIR USE NOTICE:This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2002 Report Share Posted October 31, 2002 For those of you a little newer to the monthly girl thing...I had a hard time at forst explaining to Jen that she would " get this " every month. I finally wrote the day she started on a piece of paper and then morning afternoon and night for five days. I taped it to the wall and she marked off each time she changed and to show her how many more days she had to go. She would tell me (signing cause she is non-verbal) that the bleeding was all done like on the first day. Initially I offered a movie if she changed etc. Well the 3rd month she took out a piece of paper and handed it to me and tried to mark it correctly...I knew she " got it " . I told her that if she knew that much she really didn't need the paper! heehee She does know it lasts 5 days etc and that she has to change etc. Keep the faith...it does get easier!!!! Kathy (mom to 15 DS and 11) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 In a message dated 11/21/2003 2:46:41 PM Pacific Standard Time, Autism Treatment writes: That bites they always used peanut m & ms for Angel and that always worked. They can still use M & Ms because they have milk in them. Funny, huh! Perkins, the Asst. Commisioner of Dep. of Ag. told me that himself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 In a message dated 11/21/2003 2:46:41 PM Pacific Standard Time, Autism Treatment writes: That bites they always used peanut m & ms for Angel and that always worked. They can still use M & Ms because they have milk in them. Funny, huh! Perkins, the Asst. Commisioner of Dep. of Ag. told me that himself. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 In a message dated 11/21/2003 2:46:41 PM Pacific Standard Time, Autism Treatment writes: no frosting Perkins told me that frosting is fine as long as it is on top of a cupcake. They just can't have frosting alone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 In a message dated 11/21/2003 2:46:41 PM Pacific Standard Time, Autism Treatment writes: no frosting Perkins told me that frosting is fine as long as it is on top of a cupcake. They just can't have frosting alone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 In a message dated 2/10/2004 9:05:54 AM Eastern Standard Time, writes: From: mark hogue <markhogue2002@...> Subject: Re: Dimethylglycine(DMG) GRACE,I HAVE THIS MEDICINE CALLED DIAZEPAM INTENSOL, INCASE I HAVE A SEIZURE IT'S SUPPOSE TO STOP THEM.YOU DROP IT ON YOUR TONGUE LIKE 2 DROPS BUT SINCE BEING ON SUNRIDER I HAVEN'T HAD TO USE IT THANK GOD >>>>> This is the liquid form of Diastat. Valium is another name for this drug. BUT,WHAT GETS ME IS THAT IT HAS ALCOHOL IN IT 19% AND I WOULD THINK IT WOULD DO MORE HARM THAN GOOD WHATEVER MEDICINE I'VE TAKEN HAD DO NOT CONSUME ALCOHOLIC BEVERAGES WITH THIS MEDICATION.I'VE NEVER HAD DRINKEN IN MY LIFE I DON'T EVEN USE COUGH SYRUP OR MOUTHWASH UNLESS IT'S ALCOHOL FREE. >>>>> The alcohol is a preservative! It does have a purpose in making this drug helpful to you when other preservatives will not make it stable. And, you said the dose is 2 drops..... under the tongue, so it's not even going into your stomach. IT'S SO WEIRD WHAT THESE DR.'S GIVE YOU THESE DAYS ISN'T IT STRANGE ISN'T GRACE TAKE CARE AND GOD BLESS LOVE,MARK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 In a message dated 2/10/2004 9:05:54 AM Eastern Standard Time, writes: From: " Delores F. " <tequilarose413@...> Subject: Re: Digest Number 1387 Good Morning MJH, took your advice...JUST had to have hubby stand there and give it to ...for some reason, my son will give me a hard way to go about taking ANYTHING...BUT he takes it for his Dad w/no problem...{go figure} mixed the flax & borage oil in with some plain yogurt...and then I added a little cup of fruit cocktail to it...No Problem! I am going to try that dressing that you suggested..and I am also going to give the coconut a whirl! kyle loooves coconut, so I think he may do well with it. Might even make some ambrosia today, and sneak his evening dose in with that..?? Thanks again! have a blessed day Dee ================== Dee I think that's just GREAT! Just remember that it's food and when you use up all the flax/borage combo, just get plain flaxseed oil. Just incorporate this into your family's meals and everyone will benefit. Keep us posted Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 MJH, I give a super omega complex liquid capsule, it has Fish, Flax and Borage oils, does this not work the same way, I know it's a lot easier to give to her. Grace On Tue, 10 Feb 2004 09:40:02 EST foxhillers@... writes: > In a message dated 2/10/2004 9:05:54 AM Eastern Standard Time, > writes: > From: " Delores F. " <tequilarose413@...> > Subject: Re: Digest Number 1387 > > Good Morning MJH, > > took your advice...JUST had to have hubby stand there and give it to > > ...for some reason, my son will give me a hard way to go about > taking > ANYTHING...BUT he takes it for his Dad w/no problem...{go figure} > > mixed the flax & borage oil in with some plain yogurt...and then I > added a > little cup of fruit cocktail to it...No Problem! > > I am going to try that dressing that you suggested..and I am also > going to > give the coconut a whirl! > kyle loooves coconut, so I think he may do well with it. > Might even make some ambrosia today, and sneak his evening dose in > with > that..?? > > Thanks again! > have a blessed day > Dee > ================== > > Dee > > I think that's just GREAT! Just remember that it's food and when > you use up > all the flax/borage combo, just get plain flaxseed oil. > > Just incorporate this into your family's meals and everyone will > benefit. > > Keep us posted > > > Quote Link to comment Share on other sites More sharing options...
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