Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 -Hi , THank you for your reply, I have a phone call to the dr. and he should call me back on Monday, His surgury for the adnoid removel is scheduled for August 27th. So We will see what the Dr. says. Jack could not breastfeed but could such from the bottle with severe spitting up until he was 1yr and off the bottle. Hmmmmm milk allergy I think, Jack will not even go near milk at all. JAck can chew but tends to overstuff his mouth, (Sensory) Jack has never seen a neurologist for his speech so never went that route. He did go for his brachial plexus but feel at this point that a neurologist might be a good idea. Thanks, Eileen -- In @y..., bobby hannan <hannan@t...> wrote: > Hi Eileen, Yes, my son was seen by several Neurologist and > he has an upper body weakness, his trunk, arms and he also > had MAJOR feeding trouble as a baby. He had NO sucking > instinct, he didn't chew till he was well over 2 years of > age, and then he would put food in his mouth and just try to > swallow without chewing. It was a very stressful time for > all of us. Needless to say, he is an inspiration to us > daily, his speech is great, he does talk at a slower rate, > but is perfectly understandable. He also is very smart, > computers are his gift and he is like the game Trivial > Pursuit, he has so much fascinating information stored up > and at times he blows our family away with his knowledge! > Not to mention his gentle nature, I know I am his mother, > but in all honesty, he is a rare gem, he is kind, always > generous, not your typical teenage boy, he truly is a gift > from above! If I can be of any other support or help, feel > free to email me directly at hannan@t... Good luck and > Godbless! mom to 3 great kids! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 eileen, i too was found to have valve prolapses after i had tachycardia of 220 for 4 hours. it gives me hope that my body might heal as well thanks, linda ----- Original Message ----- From: Arroon@... Sent: Monday, January 13, 2003 3:15 PM Subject: Re: [] an 8 year health mystery..maybe related to sick building?... Janet,I have not seen any other postings either. I thought the website had been lost from me.I have had the same symptoms as you and . I also noted a trend of illness that began when I started working at this hospital 5 years ago. Last Spring I saw an Environmental Doc who filed an L & I claim for me. Naturally, the hospital's private insurer did not want to pay for any of this so I was sent see an independent medical examiner last month. I went with ALL of my records, documents and pictures. I received a copy of his findings the other day. I have always been sensitive to "hayfever" and have had seasonal rhinitis and burning eyes but nothing like the horror that I have endured at work for 5 years. The Doc admitted that my exposure to the molds in the workplace exacerbated my condition also I had an exposure to Methylmethracrylate( bone cement) used in total joint surgery in the OR. He stated that a person with sensitivities such as I have would react to these exposures. Because I moved out of the exposed area and finally made the OR use a closed system to mix the bone cement the Doc stated that I have no further restrictions. Does not matter much now as I found a new job and finished there on Friday. At least he admitted that exposure to mold and unhygienic conditions caused my problems. Many others are still sick at work. I just pray that I will begin to get better.Since I moved out of the contaminated locker area last May I have started to get better. My latest echocardiogram is normal. No more mitral or tricuspid prolapse.My skin testing done by the Independent med.examiner showed only 2+ allergy to Alternia and histamine. Three years ago I had a 4+ reaction to four molds which were identified in the locker area a year later. My pulmonologist is happy because he states that this indicates that I am beginning to detoxify and get rid of the crap in my body now that I am not under the toxic dump in the locker room.By the way,Janet,I just returned from New England. My mother died the day after New Years. She had been in a Nursing Home in Portsmouth. I was staying with my sister's family in Topsfield,Mass. so had been doing the highway hop for a few days prior to her death. Unfortunately, my sister, niece and sister-in-law smoked nonstop which made me ill. I ended up going to a motel the last few days and have been sick with sinusitis,otitis,and bronchitis since my return last Monday. Lot of snow,ice,cold etc.I have not been back to New England in the winter in 10 years.EileenFAIR USE NOTICE:This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2007 Report Share Posted February 8, 2007 Hi Eileen, I live in NY and considering seeing Dr. R what have been your experiences so far. Please reply as i am anxious to get my son started. thks > > Hi Eileen: > > I am Eileen too and we just had our first appt with Dr. R in NY on Friday..He told me they are not doing NeuroSpects on the east coast but hopefully in DC soon....I dont know much more than that as my son was totally out of control and it was a difficult appt for him....Eileen B. > > > --------------------------------- > Get your own web address for just $1.99/1st yr. We'll help. Small Business. > > Quote Link to comment Share on other sites More sharing options...
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