Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Ellie, In the beginning,especially before the MTX was working, would get all over body pain.You couldnt pick him up,you couldnt rub his arms or legs to comfort him.He would scream bloody murder until he had problems breathing.The rheumy said it was myalgas,put him in a hot bath.I know Riley sang her joint pain to you,but put her in the tub.There are times when we have the cleanest kids in town. has been known to take 4-6 hot baths a day.There were times when he went from screaming,to playing in the hot water,like nothing had been wrong.Sorry to have gottewn you second guessing your rheumy about him saying the MTX was working at your last visit.They see our kids once a month,and your right ,they push and prod squishy joints all day.Personally I believe mom and dad are the only ones that can tell when it starts to work.You see improvements on a day to day bases,not one better day for the 30 minuites the rheumy is looking at them.I hate it when has been having alot of pain and just above a systemic flair and he will see the head male rheumy,and be walking just fine,so the rheumy says everything is fine,drop his pred some more,even though a couple hours prior to the visit was creaping on his belly unable to stand.His attitude of no rash,no fever drop his pred backfired.2 weeks later and no life outside,here comes the fever and rash.He appoligized to me and said he was sorry,we have only had to see him once since then.We have gotten to see the female who is great.Shes the one that added the Plaquenil and set up the appointment with the ortho.Thats what I was talking about getting things done,shes the one that told me had to have his eyes examined every 6 months instead of yearly.Head rheumy never told me anything.I am by no means comparing your rheumy to ours.It sounds like your rheumy is getting things done,alreadt uped the MTX in the first month,getting Riley a brace.Keep up with your journal and take it with you,that way you can show him that Rileys not getting better,shes getting worse,and dont be afraid to ask him why he thinks the MTX is working.Hope Riley has a better day. Becki and 4systemic Quote Link to comment Share on other sites More sharing options...
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