Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Dfreels yes your write they are ignored that is a problem. I am very upset to find out the physician that is the Boy Scouts leader acts this way. See the march is about HBOT therapy but other things will be acomplished as well. There going to know we will be heard from now on. This is only the first step for me. I plan on going all the way. There will be no more going in to a so called hanicapp faclity and it not being hanicapped. I had a simular problem in Florida last year when I went for Hyperbarics I went to a TGI Fridays to eat with my child in a Wheelchair and they asked me to sit in the covered patio because it would take up to much room. All hell broke loss. Needless to say it will never happen again, they cator to use we are roaylty now at that place. This is the kind of stuff that upsets me. We can give billions of ollars to countrys for releif and to feed the people. We have the same issues here and they ignore them, not anymore. Im telling you this will make a difference where most issues die down in a couple of months we continue to march for otther things for disabilitys. They will no they have caused this to happen. We have that right. I see what you are saying I have been there to people acting like Katy doesn't exsist. I never let them get by with that anymore If i have to go as far as picking her up and sitting her in there lap and telling them face to face this is real. As far as im concerned if my child and Elvis were going down the street tommorow they would see her instead of him because behind her is Dad yelling THIS IS MY BABY YES SHE IS DISABLED AND YES SHE IS ALIVE AND YES SHE DESERVES TO BE HERE AS MUCH IF NOT MORE THAN ANYONE ELSE. That is the new attitude I now carry. If im in a store and people turn away. I walk around to them and tell them yes that is real take a look it could be you. What we need is to also aproach the television stations why do we not have real diabled people playing as actors on T.V. we want to file discrimination. Pull the same kind of stunts others have pulled over the years and have been sucessfull. It works. We are all supposed to be treated equal in this country. However this is the most comunist country I have ever seen. You only know what they tell you. You only hear what they want you to hear. They cover only what they want to. Oh as for why our children are being looked over take a look people ignore Jesus everyday people don't want to hear his word. That should give us some comfort it is telling us God has his hands on them. And people see it and are scared our loved ones can see through them. There afraid they feel are loved ones that are disabled can see right through them and see what there thinking or saying inside. As far as the email purposal I think that is a great Idea you let me know and Im there with you anything we can do to start a chain of events to let the world no disabled people are here they need. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Wow!!! Interesting analysis! [ ] Marching > I believe Darin's idea is a good idea; however, to be honest, I am not sure > what good it will do. > > I think brain-injured people are " invisible " in our society. Brain-injured > people make un-brain-injured people uncomfortable to the point where most > brain-injured people are simply ignored. > > While my son Jimmy has progressed enough to join a cub scout troop, most of > the cub scouts routinely ignore him. One of the troop leaders inevitably > creates troop activities that Jimmy cannot physically participate in. > > Ironically, or perhaps most revealing, this particular troop leader is a > physician. And while he's not a pediatric neurologist, he is a psychiatrist. > > Our children and our loved ones are ignored by our society. > > If we gathered a million strong or two million or ten million, what > difference would that make? Would it make a difference beyond a 20-second > blip on the 6 o'clock news? > > I believe we are ignored because of an ignorance perpetuated by those > people who are believed to be credentialed experts on the care of our > children. Of course, they believe nothing can be done to change the lives > of our children, and because they are the experts on our children, the myth > (the ignorance) continues to be perpetuated and so we continue to be > ignored. > > It's frustrating to say the least. > > What can we do? > > We can march--which I'm not disagreeable to, but I don't think it's enough. > > One thing I've learned on our journey is that most people have no idea what > it's like to care for a brain-injured person until they have to deal with > such a situation, such a circumstance, themselves. Then all of a sudden the > light goes on. " Ah-ha! " they say, " now I know what you mean. " > > It is only when somebody has to contend with hypoxia or the consequences of > hypoxia before they " get it " --the " it " being what it's like to live life as > a caregiver. > > So hypoxia gets attention. > > The second thing I've learned is that once somebody gets their > brain-injured loved one in a hyperbaric chamber, the loved one sees the > changes/improvements in the brain-injured at which time most loved ones > immediately move from being just a loving caregiver to a nearly fanatical > advocate of Hyperbaric Oxygen Therapy. > > Examples? Me, e, Darin, Ed Nemeth, and 300+ other people on this listserv. > > I had a brief conversation or two at the Boca conference last year with a > wise sage from Argentina who occasionally brandishes his wit and his wisdom > on this list. He told me a south-of-the-equator group of hyperbaricists > hired a PR agency a few years ago and their job was to follow the news and > anytime a person of any reknown had an encounter with brain-injury--whether > it was them or a loved one--the PR agency would contact that person or > his/her family and educate them on the use of hyperbaric oxygen for > brain-injury. > > Eventually, he said, a famous Mexican film actor tried HBOT for himself or > a family member, saw the results, and immediately became the biggest and > most visible advocate for the use of hyperbaric oxygen therapy for > brain-injury. > > I think that is a brilliant strategy because what it does is take advantage > of a media culture that elevates celebrities and in so doing it leap-frogs > the medical establishment and their control over medicine--particularly the > control of Hyperbaric Oxygen Therapy. > > Using the South American strategy as a model, contact has been made with > families and/or friends of a number of household names and provided them > information on the use of hyperbaric oxygen for brain-injury. > > These people include--but are not limited to--a former US senator, a former > first lady, a sitting state governor, a well-known Hollywood movie star, > the grandson of a 1950's teenage idol, the owner of an NFL football team, > and perhaps a few others that I can't remember off the top of my head. > > Most of these contacts have resulted in the administration of HBOT, and > I've learned that universally improvements have been noted; however, what > has not happened yet is a willingness for the celebrity to step up and give > credit where credit is due. > > I don't know why. > > Maybe Darin's March would bring them out. > > Another thought: Let's create some hypoxia so as to help others understand > what it's like when everything shuts down. > > An idea. > > A few months ago I obtained the email addresses of the staffers of a > congressional committee and sent them all a note and attached a small pdf > file. It turns out the congressional server software is old and obsolete by > most standards but it has not been upgraded. One of the flaws with it is > that in the event someone sends out one email to say 15 people who are all > *listed* in the " " column, the server keeps sending out the email until > it's been delivered to each intended recipient. When I sent out my email 5 > or 6 of the addresses were bad--so the email wasn't completely delivered. > > The server software isn't capable of taking this into account and so it's > instead designed to just automatically re-send the message I think 10 > times. This wouldn't be a problem except there was that pdf attachment. > > Compounding the problem is the staffers have a very small inbox of maybe 2 > MB so they have to frequently check their mail; however, because my email > was automatically re-sent with the pdf attachment, the mailboxes became > full very quickly--which resulted in a complete shut down of the email > system for the staff of that congressional committee. > > Chaos ensued. > > Throughout, the congressional server kept re-sending the same email and > kept filling up the mailboxes. Eventually the IT manager of that committee > called me to find out what was going on. > > A couple of staffers also called because eventually my email kept shutting > them down so they figured they might as well read it anyway. > > If it occurred during Darin's March, perhaps a duplicate (induced > electronic hypoxia) email campaign might bring some attention to the > problems of real live hypoxia. > > Just some thoughts. > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > " Delight yourself in the LORD and he will give you the desires of your heart. " > [Psalm 37:4] > > Freels > 2948 Windfield Circle > Tucker, GA 30084-6714 > 770/491-6776 (phone and fax) > 509/275-1618 (efax, sends fax as email attachment) > mailto:dfreels@... > > http://www.freelanceforum.org/content/portfolio.asp?ID=195 > > > > > _._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._. > Unrestricted downloads of 50+ pdf files on HBOT efficacy medicaid/files/ > > Download your state EPSDT program http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the word " ameliorate " . State Medicaid websites http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html > > Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm > > HBOT can save billions of dollars and millions of heartaches. Subscribe to by sending a blank email to mailto:medicaid-subscribe > > Unsubscribe? Click here mailto:medicaid-unsubscribe .. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Dear , One of the keys to any sort of e-mail campaign is to rally help from those in the constituency. Also the E-mail should be directed to the state legislators and cabinet officials responsible for health. The e-mail campaign in Texas did get a bill, HR 1676, passed, although I thi;nk it was rendered useless by insurance companies, and all yhose, including government health officials who would provide the reimbursements. Has the Texas law provided reimbursement to the brain damaged. I continue to read of efforts to find help.in Texas and elsewhere. In Virginia the answer is no from Medicare. And I doubt if Medicare reimburses in any of the states. Perhaps the Governor you refer to may have changed attitudes in that state.. The names of those receiving help include Secretary Lloyd Bensen who I was told did benefit from the therapy. Did Lady Bird get HBOT? If so, did it help? It would help if the media and general public knew the names of leaders who have benefitted. The stigma of brain damage would soon be erased if the public could be told the names of leaders who have benefitted The Discovery Health channel is scheduled to show the The Healing Chamber in September 14th I blieve. I sent my check for a videotape about 6 weeks ago, but still no tape. Manson. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Mr Freels analysis is very thorough and interesting, I agree with the points he makes and it certainly resonates with my experiences as a caregiver to my brain injured son. A march on Washington may indeed only generate a few video clips on the evening news and in this light can be viewed as only an opening move in a more lengthy campaign. Snow On Sun, 18 Aug 2002 23:56:17 -0500 Sue Dropp <suedropp@...> wrote: > Wow!!! Interesting analysis! > [ ] Marching > > > > I believe Darin's idea is a good idea; > however, to be honest, I am not > sure > > what good it will do. > > > > I think brain-injured people are " invisible " > in our society. Brain-injured > > people make un-brain-injured people > uncomfortable to the point where most > > brain-injured people are simply ignored. > > > > While my son Jimmy has progressed enough to > join a cub scout troop, most > of > > the cub scouts routinely ignore him. One of > the troop leaders inevitably > > creates troop activities that Jimmy cannot > physically participate in. > > > > Ironically, or perhaps most revealing, this > particular troop leader is a > > physician. And while he's not a pediatric > neurologist, he is a > psychiatrist. > > > > Our children and our loved ones are ignored > by our society. > > > > If we gathered a million strong or two > million or ten million, what > > difference would that make? Would it make a > difference beyond a 20-second > > blip on the 6 o'clock news? > > > > I believe we are ignored because of an > ignorance perpetuated by those > > people who are believed to be credentialed > experts on the care of our > > children. Of course, they believe nothing can > be done to change the lives > > of our children, and because they are the > experts on our children, the > myth > > (the ignorance) continues to be perpetuated > and so we continue to be > > ignored. > > > > It's frustrating to say the least. > > > > What can we do? > > > > We can march--which I'm not disagreeable to, > but I don't think it's > enough. > > > > One thing I've learned on our journey is that > most people have no idea > what > > it's like to care for a brain-injured person > until they have to deal with > > such a situation, such a circumstance, > themselves. Then all of a sudden > the > > light goes on. " Ah-ha! " they say, " now I know > what you mean. " > > > > It is only when somebody has to contend with > hypoxia or the consequences > of > > hypoxia before they " get it " --the " it " being > what it's like to live life > as > > a caregiver. > > > > So hypoxia gets attention. > > > > The second thing I've learned is that once > somebody gets their > > brain-injured loved one in a hyperbaric > chamber, the loved one sees the > > changes/improvements in the brain-injured at > which time most loved ones > > immediately move from being just a loving > caregiver to a nearly fanatical > > advocate of Hyperbaric Oxygen Therapy. > > > > Examples? Me, e, Darin, Ed Nemeth, and > 300+ other people on this > listserv. > > > > I had a brief conversation or two at the Boca > conference last year with a > > wise sage from Argentina who occasionally > brandishes his wit and his > wisdom > > on this list. He told me a > south-of-the-equator group of hyperbaricists > > hired a PR agency a few years ago and their > job was to follow the news and > > anytime a person of any reknown had an > encounter with > brain-injury--whether > > it was them or a loved one--the PR agency > would contact that person or > > his/her family and educate them on the use of > hyperbaric oxygen for > > brain-injury. > > > > Eventually, he said, a famous Mexican film > actor tried HBOT for himself or > > a family member, saw the results, and > immediately became the biggest and > > most visible advocate for the use of > hyperbaric oxygen therapy for > > brain-injury. > > > > I think that is a brilliant strategy because > what it does is take > advantage > > of a media culture that elevates celebrities > and in so doing it leap-frogs > > the medical establishment and their control > over medicine--particularly > the > > control of Hyperbaric Oxygen Therapy. > > > > Using the South American strategy as a model, > contact has been made with > > families and/or friends of a number of > household names and provided them > > information on the use of hyperbaric oxygen > for brain-injury. > > > > These people include--but are not limited > to--a former US senator, a > former > > first lady, a sitting state governor, a > well-known Hollywood movie star, > > the grandson of a 1950's teenage idol, the > owner of an NFL football team, > > and perhaps a few others that I can't > remember off the top of my head. > > > > Most of these contacts have resulted in the > administration of HBOT, and > > I've learned that universally improvements > have been noted; however, what > > has not happened yet is a willingness for the > celebrity to step up and > give > > credit where credit is due. > > > > I don't know why. > > > > Maybe Darin's March would bring them out. > > > > Another thought: Let's create some hypoxia so > as to help others understand > > what it's like when everything shuts down. > > > > An idea. > > > > A few months ago I obtained the email > addresses of the staffers of a > > congressional committee and sent them all a > note and attached a small pdf > > file. It turns out the congressional server > software is old and obsolete > by > > most standards but it has not been upgraded. > One of the flaws with it is > > that in the event someone sends out one email > to say 15 people who are all > > *listed* in the " " column, the server > keeps sending out the email until > > it's been delivered to each intended > recipient. When I sent out my email 5 > > or 6 of the addresses were bad--so the email > wasn't completely delivered. > > > > The server software isn't capable of taking > this into account and so it's > > instead designed to just automatically > re-send the message I think 10 > > times. This wouldn't be a problem except > there was that pdf attachment. > > > > Compounding the problem is the staffers have > a very small inbox of maybe 2 > > MB so they have to frequently check their > mail; however, because my email > > was automatically re-sent with the pdf > attachment, the mailboxes became > > full very quickly--which resulted in a > complete shut down of the email > > system for the staff of that congressional > committee. > > > > Chaos ensued. > > > > Throughout, the congressional server kept > re-sending the same email and > > kept filling up the mailboxes. Eventually the > IT manager of that committee > > called me to find out what was going on. > > > > A couple of staffers also called because > eventually my email kept shutting > > them down so they figured they might as well > read it anyway. > > > > If it occurred during Darin's March, perhaps > a duplicate (induced > > electronic hypoxia) email campaign might > bring some attention to the > > problems of real live hypoxia. > > > > Just some thoughts. > > > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > " Delight yourself in the LORD and he will > give you the desires of your > heart. " > > > [Psalm 37:4] > > > > Freels > > 2948 Windfield Circle > > Tucker, GA 30084-6714 > > 770/491-6776 (phone and fax) > > 509/275-1618 (efax, sends fax as email > attachment) > > mailto:dfreels@... > > > > > http://www.freelanceforum.org/content/portfolio.asp?ID=195 > > > > > > > > > > > _._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._. > > Unrestricted downloads of 50+ pdf files on > HBOT efficacy > medicaid/files/ > > > > Download your state EPSDT program > http://www.hcfa.gov/medicaid/stateplan/Map.asp > by doing a search on the word > " ameliorate " . State Medicaid websites > http://www.medi-cal.ca.gov/RelSites_Oth_States.asp > . Medicaid waiver > programs: > http://www.geocities.com/HotSprings/Villa/1029/medicaid.html > > > > Find a hyperbaric clinic > http://www.netnet.net/mums/hbolist.htm > > > > HBOT can save billions of dollars and > millions of heartaches. Subscribe to > by sending a blank email to > mailto:medicaid-subscribe > > > > Unsubscribe? Click here > mailto:medicaid-unsubscribe > . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 >I would have been happy to have created an HBOT-specific bill last >session, had I been asked. Even though the obstacles were difficult for >HB 1676, it will be even more difficult for an HBOT bill -- because of >the medical necessity problem. Les, Nothing is more medically necessary than oxygen. If you don't believe me, take a plastic bag and secure it around your head so that you cannot breathe. Wait ten minutes or so, pray throughout that someone nearby will remove the plastic bag when you cannot. During your suffocation, chances are that you will beg God to mercifully grant you some oxygen. Since you're now somewhat educated on Hyperbaric Oxygen Therapy, chances are you'll also beg God to receive that oxygen under increased atmospheric pressure so as to not only survive the anoxia but to also recover from it. I'm not kidding Les. I encourage you to try it. Maybe the way to demonstrate this is to bring in a bunch of hyperbaric chambers into the floor of the Texas legislature and put all the HBOT advocates and their chambers on one side and the naysayers on the other side, everybody put on the plastic bags for 10 minutes, let the advocates have access to the chambers, then see if there are enough survivors to have a quorum and then put it up for a vote. The problem now is that the so-called experts, particularly neurologists, believe hyperbaria has no benefit for anoxia. They're wrong Les. Perhaps better legislation would be mandatory education of hyperbaric oxygen therapy by all students attending Texas medical schools. In our country, our system of government is supposed to be of the people, by the people, and for the people. You can't say that happened with HB 1676. >HBOT bill will >have to circumvent medical necessity until the insurers are also >convinced that HBOT is " established medicine. " Les--the practice of medicine sans oxygen is no medicine. Nothing is more established in medicine than the absolute necessity for oxygen. No matter what the condition, illness, or disease, without oxygen, there is no health, no healing, and no life. >those of you that have much more experience than me. Les, if you've ever breathed a breath you have enough experience to know the value of oxygen. >I hope this is helpful. > >Les ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " Delight yourself in the LORD and he will give you the desires of your heart. " [Psalm 37:4] Freels 2948 Windfield Circle Tucker, GA 30084-6714 770/491-6776 (phone and fax) 509/275-1618 (efax, sends fax as email attachment) mailto:dfreels@... http://www.freelanceforum.org/content/portfolio.asp?ID=195 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Dear Friends, I just wanted to interject a couple of thoughts into the discussion. First, HBOT and HB 1676. HB 1676 is a new bill requiring health insurance companies regulated by the state of Texas to reimburse for a wide variety of treatments needed by persons who are survivors of acquired brain injuries. (Using the word " acquired " was a compromise needed to get the bill through the Texas House. At one point we had the bill cover all brain injuries.) Texas law requires that reimburseable treatments be medically necessary to the satisfaction of the patient, the prescribing physician, and the insurance company. This is obviously a very thorny issue -- and HB 1676 did not change that. (First, we could have never passed a bill that would have circumvented medical necessity. Second, we did not believe we should. Medical necessity has a place, but like I said, it creates some very thorny problems -- particularly for HBOT). HB 1676 is a success in that for the first time a wide range of treatments for survivors of acqired brain injuries are now reimburseable in Texas. But the bad news is that HBOT, which is the interest of this listserve, is not on firm ground. In Texas, like elsewhere, HBOT is still proving itself medically. Here in Texas, for instance, the state is paying for a variety of research that I am assuming will continue to prove up HBOT's efficacy. Hopefully soon HBOT will be considered " established medicine " and pass the medically necessary requirement and join the other therapies that are now reimburseable under HB 1676. My second point regards e-mail campaigns to legislators. Although legislators are happy to hear from anybody and everybody on any given subject, it is correspondence from their constituents that drives them. So rather than broadly e-mail all legislators (which is very easy to do with e-mail) you might want to consider having deeper conversations with your own legislators. Also be sure to include your name, address, and phone number on your e-mails, because many legislators prefer to write back to you via snail mail. Additionally, your address will also help the legislator to know that you are their constituent. Anyway, I hope these points are helpful. Please feel free to contact me at any time. Les -- Les Breeding Legislative Director Office of Rep. Lon Burnam P.O. Box 2910 Austin Texas 78768-2910 (512)463-0740 les.breeding@... >>> FAMANSON@... 08/19/02 09:40AM >>> Dear , One of the keys to any sort of e-mail campaign is to rally help from those in the constituency. Also the E-mail should be directed to the state legislators and cabinet officials responsible for health. The e-mail campaign in Texas did get a bill, HR 1676, passed, although I thi;nk it was rendered useless by insurance companies, and all yhose, including government health officials who would provide the reimbursements. Has the Texas law provided reimbursement to the brain damaged. I continue to read of efforts to find help.in Texas and elsewhere. In Virginia the answer is no from Medicare. And I doubt if Medicare reimburses in any of the states. Perhaps the Governor you refer to may have changed attitudes in that state.. The names of those receiving help include Secretary Lloyd Bensen who I was told did benefit from the therapy. Did Lady Bird get HBOT? If so, did it help? It would help if the media and general public knew the names of leaders who have benefitted. The stigma of brain damage would soon be erased if the public could be told the names of leaders who have benefitted The Discovery Health channel is scheduled to show the The Healing Chamber in September 14th I blieve. I sent my check for a videotape about 6 weeks ago, but still no tape. Manson. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2002 Report Share Posted August 19, 2002 Les: Please clarify the statement that you made in this email: " Here in Texas, for instance, the state is paying for a variety of research that I am assuming will continue to prove up HBOT. " Who is doing this research? What kind of HBOT study is being paid for by state money? Thanks, e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 I disagree totally. This will cause more than just a few video clip's. It will do what you intend for it to do if you stay with it. Most causes go and march and then die off. this is only the start this march will never die off. See this is not about me it is about my child your child the child across town, a mother who had a stroke or a father that had a stroke anyone that needs this. What people are failing to see here this is not about us it will continue to grow and it will make a difference. What the problem here is most people are afrid of change they get involed in a fight and the want to keep fighting with no resolution they love the argueing. ITs not about that it is about getting the Job done. Then keeping it done. Most people are afraid they may have to do something or be called upon to stand in the heat. If your not interested fine don't go as for me I will march I will be there for your loved one as well as my own. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Les I live in Texas Im a parent don't tell these people anything that is not true. I have been through this and im still fighting it. Evedentually you need to talk to those people because they are not saying the same things you are. You talk like this is going to be a great thing in Texas. Sorry it is not haening. You have no I dea what you are talking about when it comes to this bill I Live it you don't I know what is taking place I talk to everyone involed with this bill. Besides have talked to you several times and no two conversations were the same they all chaged midstreem. If you don't have a disabled member in your family and have tried to acsess HB1676 then step out of the loop you had your chance when you all went before the implementation commitee and failed to do what was asked to began with. Hyperbaric should have been included then and we wouldn't need a March. So excuse me but don't use big words you don't understand. Best Regards I continue to March anyone else that want's to step out ok. But remember they had a shot at getting this in the implemetation of HB1676 did they even bother NO. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Way to go e. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 An answer to my question of studies being conducted in the State of Texas. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 My response to studies being conducted in Texas for HBOT. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 e, That sentence was not very precise. I understand 3 institutions (Baylor, Galveston Medical Branch, and Univ of North Texas Health Sciences Center) are doing HBOT research, two of the 3 are state institutions. Baylor, of course, is private. It could be either state or grant monies that is paying forthe studies. My point is that studies are on-going right here in Texas. Thanks!! Les >>> Acreacy@... 08/19/02 04:50PM >>> Les: Please clarify the statement that you made in this email: " Here in Texas, for instance, the state is paying for a variety of research that I am assuming will continue to prove up HBOT. " Who is doing this research? What kind of HBOT study is being paid for by state money? Thanks, e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Dear Darin, Sorry that my reply upset you. Please remember that HB 1676 is not a HBOT-specific bill. It was never envisioned to be. The group that worked on HB 1676 included health care providers, survivors, and family members who had experience with a wide variety of treatments. I would have been happy to have created an HBOT-specific bill last session, had I been asked. Even though the obstacles were difficult for HB 1676, it will be even more difficult for an HBOT bill -- because of the medical necessity problem. That does not mean it is not worth trying though. Personally, I think that such an effort would be worthwhile, but realistically one has to remember that an HBOT bill will have to circumvent medical necessity until the insurers are also convinced that HBOT is " established medicine. " Please also remember that my expertise is in lawmaking -- my knowledge of medicine is based on my reliance on my medical advisors (including Dr. Harch) and those of you that have much more experience than me. I also wanted to throw in a thought regarding your note about Rep. Harryette Ehrhardt. I think the way you were treated by her staffer was terrible and there is no excuse for it. But I also know that Harryette is still a big supporter of HB 1676 and even more so for HBOT. This issue is very personal to her because of her husband's brain injury. It is unfortunate for us all that we are losing her talents in the legislature ---- her district was decimated in redistricting last year. I hope this is helpful. Les -- Les Breeding Legislative Director Office of Rep. Lon Burnam P.O. Box 2910 Austin Texas 78768-2910 (512)463-0740 les.breeding@... >>> Bry8825@... 08/19/02 10:26PM >>> Les I live in Texas Im a parent don't tell these people anything that is not true. I have been through this and im still fighting it. Evedentually you need to talk to those people because they are not saying the same things you are. You talk like this is going to be a great thing in Texas. Sorry it is not haening. You have no I dea what you are talking about when it comes to this bill I Live it you don't I know what is taking place I talk to everyone involed with this bill. Besides have talked to you several times and no two conversations were the same they all chaged midstreem. If you don't have a disabled member in your family and have tried to acsess HB1676 then step out of the loop you had your chance when you all went before the implementation commitee and failed to do what was asked to began with. Hyperbaric should have been included then and we wouldn't need a March. So excuse me but don't use big words you don't understand. Best Regards I continue to March anyone else that want's to step out ok. But remember they had a shot at getting this in the implemetation of HB1676 did they even bother NO. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 >In Virginia the answer >is no from Medicare. And I doubt if Medicare reimburses in any of the >states. , Medicare is a federal program while Medicaid is a joint state/federal program where the states are free to administer their respective Medicaid programs however they want--as long as they are in compliance with the federal Medicaid law. On the other hand, Medicare is administered equally to each and every Medicare recipient regardless of their state of residence. A suggestion. Why don't you get your wife's doctor to write a prescription for her to receive oxygen? That way your insurance will pay for it. What you don't have to tell them is that you're going to administer the oxygen under hyperbaric conditions. While this may not pay for all of her oxygen it may pay for a good bit of it. Just an idea. Another thought. Since HCFA/CMS has the authority to regulate the use of Hyperbaric Oxygen Therapy then it's reasonable to assume that Medicare will reimburse for oxygen too--only thing is, just don't tell them you're going to give it to her under increased atmospheric pressure. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " Delight yourself in the LORD and he will give you the desires of your heart. " [Psalm 37:4] Freels 2948 Windfield Circle Tucker, GA 30084-6714 770/491-6776 (phone and fax) 509/275-1618 (efax, sends fax as email attachment) mailto:dfreels@... http://www.freelanceforum.org/content/portfolio.asp?ID=195 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Dear e, Thanks for the update on the HBOT study situation. Obviously my info is outdated. I think that is very troubling -- especially the Moody people thinking that HB 1676 ended the need for studies -- that needs to be clarified to them. It seems to me that it is worthwhile to try to get this back on-track. I would value your thoughts on how to do this. I have no problem with Ken's thoughts on efficacy. Of course, my expertise is legislative and my medical opinions don't carry any weight. Les >>> <Acreacy@...> 08/20/02 10:52AM >>> Les: I happen to be in contact weekly with the people at Baylor Hospital - have viewed their hyperbaric center before it was completed with our Medical Director and they are only treating the l3 approved indications. They do not have ANY studies going on. Maybe in the future, when and if they get grant money. Galveston UTMB has stopped all studies for the time being. They have not had a study in almost a year. No grant money. The Moody Foundation took back their grant when HB l676 passed into law - stating that Texans would now be able to access hbot with insurance money. Dr. Bud Prather (a personal friend of mine) of Ft. Worth Osteopathic Hospital and I talked last week. He thought that the ex-mayor of Ft. Worth, Kay Granger, would be helping them get grant money for a CP study last January - so far, nothing. So, I guess no studies means no proving HBOT up. Where does that leave all these Texans who are waiting for treatment? At this moment, I will have to agree with Ken Locklear's post to you. This is NOT an unproven treatment. Oxygen has been used for years. e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 A demonstration like the one described below on the floor of each of the State Legislature's certainly might have an enlightening effect upon those still bothered by the " medical necessity problem " . I would like to invite a few Health Insurance executives to participate in this study as well. On Mon, 19 Aug 2002 12:05:34 -0400 Freels <dfreels@...> wrote: > >I would have been happy to have created an > HBOT-specific bill last > >session, had I been asked. Even though the > obstacles were difficult for > >HB 1676, it will be even more difficult for an > HBOT bill -- because of > >the medical necessity problem. > > > Les, > > Nothing is more medically necessary than > oxygen. > > If you don't believe me, take a plastic bag and > secure it around your head > so that you cannot breathe. > > Wait ten minutes or so, pray throughout that > someone nearby will remove the > plastic bag when you cannot. During your > suffocation, chances are that you > will beg God to mercifully grant you some > oxygen. > > Since you're now somewhat educated on > Hyperbaric Oxygen Therapy, chances > are you'll also beg God to receive that oxygen > under increased atmospheric > pressure so as to not only survive the anoxia > but to also recover from it. > > I'm not kidding Les. I encourage you to try it. > Maybe the way to > demonstrate this is to bring in a bunch of > hyperbaric chambers into the > floor of the Texas legislature and put all the > HBOT advocates and their > chambers on one side and the naysayers on the > other side, everybody put on > the plastic bags for 10 minutes, let the > advocates have access to the > chambers, then see if there are enough > survivors to have a quorum and then > put it up for a vote. > > The problem now is that the so-called experts, > particularly neurologists, > believe hyperbaria has no benefit for anoxia. > > They're wrong Les. > > Perhaps better legislation would be mandatory > education of hyperbaric > oxygen therapy by all students attending Texas > medical schools. > > In our country, our system of government is > supposed to be of the people, > by the people, and for the people. You can't > say that happened with HB 1676. > > > >HBOT bill will > >have to circumvent medical necessity until the > insurers are also > >convinced that HBOT is " established medicine. " > > Les--the practice of medicine sans oxygen is no > medicine. Nothing is more > established in medicine than the absolute > necessity for oxygen. > > No matter what the condition, illness, or > disease, without oxygen, there is > no health, no healing, and no life. > > > >those of you that have much more experience > than me. > > Les, if you've ever breathed a breath you have > enough experience to know > the value of oxygen. > > > >I hope this is helpful. > > > >Les > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > " Delight yourself in the LORD and he will give > you the desires of your heart. " > > [Psalm 37:4] > > Freels > 2948 Windfield Circle > Tucker, GA 30084-6714 > 770/491-6776 (phone and fax) > 509/275-1618 (efax, sends fax as email > attachment) > mailto:dfreels@... > > http://www.freelanceforum.org/content/portfolio.asp?ID=195 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 Hello: Combined " brain power " certainly more needs to be done to accomplish this objective. However, I have been part of this great work - to accomplish our mission in obtaining medicaid / medical insurance to provide coverage for Hyperbaric Neuroxygenative Medicine. The work that has been done to date has been helpful - ground work has been done, meetings with law makers have produced some very good results, but still we do not have national medicaid coverage like we need and want. Yes, research is going forward - more efforts and money needs to put into research [thats always a given]. However, what is ultimately important is the final result - to provide / obtain HBOT for Neurological conditions. I believe what needs to be done in order to accomplish this objective is that we all read off " the same page " . We must approach this entire concept from a serious business, medical and legislative perspective. This is the best way to move forward. Les Breeding is right in that we must address this also from a *proper* legislative perspective - because this must become a law in this nation. We don't want to give the wrong impression - that we are storming the capital. But still we need to show the urgency of the matter. There are some very good people in politics {senators, congressmen, legislators, etc} that can and have voiced their willingness to help move this whole concept forward - everyone has their talents and their work to do, let's get in here and get the job done. We need it now - today. Health care providers have their hands tied because we cannot provide the treatment that neurologically challenged children desperately need if we are held back by misunderstandings about oxygen and slight pressures {slight = less than the pressure in an airplane flying in the clouds}. It is however essential that Hyperbaric Neuroxygenative Medicine be addressed specifically through the legislature and yes it must be done in a politically correct way - otherwise, it get's thrown out before it even has a chance to get started. This is a great field of medicine to help progress forward. I do hope that everyone will continue to do whatever they can - whatever they need to, in order to accomplish this objective. Here is a thought to keep you thinking about: You might not see every detail in the hand of providence but this does not mean that things are not getting done. Things like this does take time and efforts, it takes money and hard work - so if we want to see this objective accomplished then now is the time to work as a united team effort. This does not mean we will all agree with each other on every topic - just that we need to put away our differences and pull together on this objective. People who are willing to voice their desire of Medicaid for HBOT must also be willing to put their name on a list and to work as a team to show that when united - we stand together and we stand strong. Now matter what the obstacle, no matter what the objective - we will work together and accomplish what needs to be done for the children of America. What will you do today for these people. .. ~ Please consider the gift of your signature and review our petition: THE AWAKENING PETITION is at: http://www.petitiononline.com/angel777/petition.html Lane , PhD drlanescott@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 I have never laughed so har in my life. Now that was well said. I never thought of putting out there like that. Do you think he understands now . He may not. I do belive there has allready been a lack of Oxygen to these people that is why they cannot understand. I can say you have a way with words. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 e, It is good that you press on with Texas legislature. So far the Texas Bill HR 1676 has been blocked by insurance companies, medicare and medicaid inserting such words as acquired brain damage plus all manner of regulatory blockages. As nearly as I can understand the Texas situation is still standing at Zero with neither children nor adults being reimbursed for brain damage. Is this correct> Do you know if Lady Bird received HBOT and if so, did it help her. Secretary Benson did receive 35 treatments I was told and benefitted from them, but again nothing authentic and nothing in the media. It appears to ;me that reimbursement for HBOT use for brain damage is just where we started, nowhere. Hope I-m wrong. Manson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Dear Les, I thought the entire exercise for HB 1676 was to get the Texas legislature to approve HBOT for brain damaged individuals. It was nothing lesss, northing more until it ran into the twists and turns of the word merchants, and the power structure which opposes pressurized oxygen for any sort of brain damage, children or adults. Les, you are a skilled and talented individual and your advice to all that an HBOT specific bill would have tough going because of suffering individuals or their relatives unable to prove " medical necessity " . It is well established what pressurized oxygen does to help fight a number of diseases. And it is well established world wide. It is what brought all our efforts to encourage Texas lawmakers to be the first in the nation to recognize this medical miracle in the U. S. and with the guts to do something about it HBOT for brain damage has been researched for 4 years and to my personal knowledge and certainly a long time before that. Dr. Harch proved beyond doubt that HBOT benefitted brain damage. And he was jeered, not applauded by the Underseas Hyperbari c Medical Society UHMS UTMB to whom you refer as one of the current and active researchers, conducted a study on brain damage for strokes about 3 years ago, and found the patties were on average about 20% improved. Countless research efforts have been conducted in the U. S. and worldwide and in oone or two instances the studies were rigged to prove that no significant help ;came from HBO We by grapevine that one of the greatest Texans Lloyd Benson benefited from HBOT after his stroke. Reports indicate he had 35 treatments and did benefit. Lady Bird 's family has been soncidering HBO for this great lady and I haven't heard what they did. They asked me to send all the material on my wife who has benefitted. Which I did. I think what you are saying is folks don't hold your breath until the Texas Legislature approves HBOT for brain damage. Correct? Captain Manson USN Ret. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 That is exactually what he was saying. He knows dang good and well he had no intention of ever getting it passed to where we could benifit from it. See they make you think they want it but they word or speak in around about way's where the insurance is still the decider if your covered or not. It is like this I'll make you happy, they take your bill you want passed they work on it the whole time noing they will never word it to where it can be used by me or you. Am I right Les you can Jump in here at any moment. They new when they took this bill it would proably pass but we as individuals that would need to acess it would never be able to. But in the process they made you belive they worked there tail off for you. That is how our goverment works. They can care less about you or I. They use us to get our votes the whole time making you think they are working for you. Have you ever noticed at election time you can get anyting you want promised to you but when there in office forget it. it is a known fact. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 You are correct. Demonstrations on the floor of each legislature would have some impact and they would not go unnoticed at the national level, either legislative or executive. Now is the time to have influence on politicians with the upcoming elections. Candidates sh;ould make this an issue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2002 Report Share Posted August 21, 2002 Les the bill was not a specifi bill for Hbot we all no that. It was adresses that way to get it passed it was supposed to be implemented on the implementation part. The part where e refers to as you shot us in the foot. We are working to post that whole implemetation on the net for others to read. I sorry If I offended you but you new how important this was. I read the implemetation where you testified how do you think after reading that that you did nothing wrong. You knew you were supposed to fight that for us. You left us in the cold im sorry you want us to ask you to help us again. No way for us to be shot down again. This will be done a different way. We have allready contacted Austin and told them we will be there in October for this March. We want ro do it before the election so we can get perry out of there and someone in that will at least talk to us on this issue . Yes I have spoke with well nevermind I have contacted several people and yes there willing to help. If you wanna clear yourself or make it right do it without us asking show us your willing ot help you start it show us you are willing to step to the plate then email all of us. Untill then this is a dead issue with us. You done what you set out to do for us fail. Darin Quote Link to comment Share on other sites More sharing options...
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