Re: Important Information HBOT Must read.

[Guest guest]

,

Please note that I found reports of this behavior difficult to believe -

prior to becoming involved with HBOT. However, since becoming active in

HBOT for our kids, I have determined that there are two camps of people:

1 Parents, Physicians, etc. who are committed to having an opening

mind for the sole purpose of helping these kids.

2 Those who oppose HBOT for neurological applications for some really

good reasons that they have yet to determine.

I sponsored (financed) the Second International Symposium for HBOT for the

CP and TBI Child, July, 2000. I could write a book on the responses I

received from UCP, AACPDM, and UHMS regarding my efforts to implement the

symposium with an open discussion format, allowing for scientific debate

and dissent.

I did this because of the remarkable changes my daughter had with

HBOT, as well as because of the incredibly aggressive positions by many

dedicated physicians (and others) who were vehemently against

HBOT. Obviously, there was valuable information that has been overlooked -

or, so I thought. The truth is there is more information for HBOT for

neurologic applications than almost every other " On-label "

indication! And, the clinical results are clear, as well as reproducible

through out the world.

I was specifically taken aback by the UCP and AACPDM because their charters

and missions are solely to be advocates for your son and my

daughter! Further, they could not properly discuss any aspects of the

science of HBOT, nor the neurology. I can support the fact that there are

always new research findings ad not everyone is up to speed in their

understanding of the science, research or issues. However, these groups

have a fiduciary responsibility (read that : a responsibility that

transcends their own interests, and well being) to our kids. Period.

They specifically only heard Dr. Collette's version of the McGill study,

and felt that the issue of HBOT for CP kids was a dead end proposition.

The UHMS was a different story. And, in developing the symposium and then

after, I have found their interests specifically in line with the proposed

study mentioned (that I am responding to).

Further during my efforts in sponsoring AB 2863 the UHMS sent an " Official "

letter specifying that HBOT has no benefit for our kids, and that they are

the expert witnesses for CMS and FDA. (Others can answer that question, I

won't bother) Later, they sent another " official " letter supporting the

legislation; then during the public hearings, one hospital based company

(the UHMS stronghold) stood up during the public committee hearing during

the time allotted for testimony for " Supporters " only and stated that there

was not enough research for this application, but the committee should give

that company's centers a block grant to research the issue. (I believe it

was this group that got the UHMS to reverse their earlier letter.)

All of these things clearly muddies the water.

Finally, you have the legitimate concerns of prescribing physicians who are

not experts in this areas (HBOT), but have to do the best they can in a

limited environment as they try to provide excellent care for their

patients. They have legitimate concerns based on the " testimony " and

" research " they have access to. Their focus is on their immediate clinics,

not research in " tangential " areas. So, when they hear that the UCP, and

AACPDM, and UHMS find no basis for HBOT, what will the physician think?!

In the final assessment, the most disappointing thing is that HBOT makes

sense at the neuronal cellular level; given the etiology of a brain injury

and the brain's unique physiology. If a trained person really thought this

through (after throwing out one single solitary bias) there could be no

other alternative than for HBOT to benefit a brain injury.

(That single bias is the question of human CNS neuronal regeneration.)

Best Wishes!

Ed Nemeth

At 10:56 PM 8/24/2002 -0400, you wrote:

>That is disturbing. The neurologists and other medical staff at the

>hospitals my son was in never gave us a shred of hope for any quality of

>life or chance of improvement. I tried to keep my faith and get my son out

>of the medical machine before it killed him. The tried very hard to get us

>to leave him at a hospice. He is a happy 2+ year old today. He does have

>severe brain damage but nonetheless smiles often with us. I have yet to try

>HBOT and will be doing so this September. When the AMA trained medical

>establishment goes from the heartless, uncaring and mechanistic machine it

>has become to actively seeking to destroy hope for those that have escaped

>their control, I call it evil. The behavior mentioned below has crossed

>the line from amoral and impersonal behavior to actively destructive.

> Snow

>

>At 09:05 PM 8/24/02 EDT, you wrote:

> >I got a disturbing call from a Dr. he will be making a post very soon on

>this

> >subject. There is a facilty in the upper states he said around Wisconsin

>that

> >is trying it's best to show Hyperbaric's does not work for Neurological

> >disorders. To do this he is treating his paitents at 2.0 or higher for

> >Neurological disorders. In past experiences with my child and from what I

> >have seen Posted on the list No greater than 1.5 ata or 1.75 ata for

> >Neurological disorders. The Dr. that called me never goes over 1.50 ata for

> >neurological disorders that I know of. Very soon he will be posting this

> >information he just called me today he asked me to post this he was on the

> >road at the moment.

> >

> >Darin

> >

> >

> >

[Guest guest]

Save this info

Re: [ ] Important Information HBOT Must read.

> Sara,

>

> I would suggest that you go to Dr. Neubauer's " Ocean Hyperbaric's " website

>

> go to :

>

> http://www.littlestangel.com/resource.asp

>

> then go to

> Brain Injury, CP, and Autism Treatment Centers

>

> (I am sending you there because there are also other websites and other

> online materials to help you).

>

> Dr. Neubauer has had as much experience with near drowning victims as

> anyone, except possibly Dr. Harch (Harch Hyperbarics - also on the list).

>

> Also, Contact MUMS (on another list on that same Resource page).

> Gordaon has esta. MUMS to help all of us parents with HBOT information.

>

> Also, there is a Special coming to the Discovery Channel on Sept. 14th and

> 21st at 9:00 PM and Midnight EST. (the dates have bounced around and these

> are the latest dates. This special demonstrates the basic medical

> applications of HBOT.

>

> I understand that you do live in San , but, I would really start by

> taking your son to Dr. Neubauer (Florida) , or Dr. Harch (New

> Orleans). They have together treated Over a thousand brain injured

> patients, since 1990, or so.

>

> Also, they have treated many patients with significant seizure, and other

> complications.

>

> From there, you can go to a center closer to home, that is also less

> costly. But, start your journey correctly. Go to the best.

>

> In short, (other than the complications that should be properly reviewed)

> low pressure HBOT (1.5 ATA or less) helps for neurological injuries.

>

> Best Wishes,

> Ed Nemeth

> Father of

>

>

>

>

> At 11:35 AM 8/25/2002 -0500, you wrote:

> >Hello!

> > My name is and my son's name is . He is 33 years old and 18

> >months post injury. He was trapped underwater for 10 to 15 minutes. Now

> >he has a trach, a g-tube, and is on the drug valproic acid and

> >neurontine for myoclonic (sp) seizures. He cannot speak. Occasionally he

> >will vocalize with a moan when he is turned. At times, I can tell he is

> >really trying and can squeeze my hand when asked. He keeps his mouth

> >open all the time, although he sometimes " works " it opening and closing

> >it.

> > Could anyone tell me their opinion of him gettig hbot? Can he go with a

> >trach? Would his meds affect this at all? OH! He also hasa bacofen pump.

> >It is set at 850 ug's daily. We live in Orange, Texas. Lufkin is close,

> >but we could go to San .

> > Thanks for any info you can give me!

> >God Bless,

> > Klecka

> >

> >

> >

>

>_._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._._.

> >Unrestricted downloads of 50+ pdf files on HBOT efficacy

> >medicaid/files/

> >

> >Download your state EPSDT program

> >http://www.hcfa.gov/medicaid/stateplan/Map.asp by doing a search on the

> >word " ameliorate " . State Medicaid websites

> >http://www.medi-cal.ca.gov/RelSites_Oth_States.asp . Medicaid waiver

> >programs: http://www.geocities.com/HotSprings/Villa/1029/medicaid.html

> >

> >Find a hyperbaric clinic http://www.netnet.net/mums/hbolist.htm

> >

> >HBOT can save billions of dollars and millions of heartaches. Subscribe

to

> > by sending a blank email to

> >mailto:medicaid-subscribe

> >

> >Unsubscribe? Click here

mailto:medicaid-unsubscribe .

> >

> >

[Guest guest]

k

[Guest guest]

Hi. Ok, thats fine ... enjoy your time.

Lane