Guest guest Posted October 20, 2000 Report Share Posted October 20, 2000 In a message dated 10/20/00 4:42:09 AM Eastern Daylight Time, egroups writes: << My daughter removed an attached tick this morning (unfortunately she didn't get me before tugging it off, so I am afraid that she might have left the head in). Since I never saw the one that got me I am not sure what to ask the DR today about her bite. There is a bite mark with a little redness around the site. >> I , too, had a tick on my person........I'm sure for no more than a couple of hours.........and after I removed it, there appeared a small red itchy circle. I did read somewhere that the tick secretes some kind of " glue " which helps it adhere to your body and that sometimes we get an allergic reaction to it and actually don't get Lyme disease from that bite. I tested negative and have had no problems since. Just a thought.......I would, however have her checked out. Anyone else ever hear of this " glue " theory? Mona Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2000 Report Share Posted October 20, 2000 Dear Mona, The NY Times had an article on ticks earlier this year, and if I remember correctly (a big if) the tick secretes 3 different substances. There's an anesthetic, a blood thinner, and probably the 3rd one is the " glue " you're referring to. I don't remember the glue, but it makes sense. Anyway, one can have an allergic reaction to any of the 3, I would think. (Can't remember to quote the article). Eileen, NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2001 Report Share Posted January 6, 2001 My goodnesss Kathy, am so sorry to read of your horrible experience; was this your husband? I can't imagine girl the emotions and all you have been put thru and the financial loss, my loss of my son seems like a peice of cake compared to what you have been thru; when we lose somebody so dear it is hard to let go; I know everyday since theend of november I think ofmy son in so many ways and I am so busy with life; it is hard; I pray for your peace of mind and strength to get thru each day; I pray also for your loved ones soul; that is so important too; We know that their physical self is no longer with us but their spirit lives on; hang on to that; God bless you and all on this list, Michele in Houston -----Original Message----- From: egroups < egroups> egroups < egroups> Date: Friday, January 05, 2001 7:52 AM Subject: [ ] Digest Number 1517 >Our websites: http://rheumatoid.arthritis.freehosting.net/ >http://www.rasupport.webprovider.com/ >Change subscription options: >------------------------------------------------------------------------ > >There are 25 messages in this issue. > >Topics in this digest: > > 1. Re: Are people annoyed? > From: rhoda kendry <plantjunkie@...> > 2. Re: Are people annoyed? > From: " Valued Compaq Customer " <ruf-caimi@...> > 3. Re: University of Penn > From: " Valued Compaq Customer " <ruf-caimi@...> > 4. Re: University of Penn > From: " Valued Compaq Customer " <ruf-caimi@...> > 5. Re: low grade fever > From: rhoda kendry <plantjunkie@...> > 6. Re: Are people annoyed? > From: tpeppergirl@... > 7. Re: Are people annoyed? > From: rhoda kendry <plantjunkie@...> > 8. Re: low grade fever > From: " Matsumura " <Matsumura_Clan@...> > 9. Re: low grade fever > From: rhoda kendry <plantjunkie@...> > 10. Re: Are people annoyed? > From: kringlemom@... > 11. Re: Are people annoyed?/How to check for missed messages > From: " Matsumura " <Matsumura_Clan@...> > 12. Re: > From: kringlemom@... > 13. Re: Hi I am new > From: 12341234@... > 14. Howdy everybody!!!!!! > From: " A Coolperson " <dusty@...> > 15. Re: I am sick > From: " " <dat2352@...> > 16. Re: low grade fever > From: kringlemom@... > 17. Re: low grade fever > From: 12341234@... > 18. Re: > From: " " <dat2352@...> > 19. Re: > From: rhoda kendry <plantjunkie@...> > 20. Kathy > From: " Matsumura " <Matsumura_Clan@...> > 21. Re: Hi I am new > From: " Matsumura " <Matsumura_Clan@...> > 22. Re: Are people annoyed? > From: k.j.choate@... > 23. Re: Are people annoyed? > From: " Matsumura " <Matsumura_Clan@...> > 24. Re: AAAAAAAAAAAAAAAA > From: " Matsumura " <Matsumura_Clan@...> > 25. LaVina > From: " Matsumura " <Matsumura_Clan@...> > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Fri, 5 Jan 2001 07:43:35 -0500 (EST) > From: rhoda kendry <plantjunkie@...> >Subject: Re: Are people annoyed? > >i don't get all of the messages either i usually have >nno clue who everyone is hugging... so (((HUG))) >rhoda > >--- kringlemom@... wrote: >> i have never seen this post before, sometimes i >> really don't know what to say >> either. but no one has annoyed me at all. i think >> there must be something >> wrong with the system here. kathy >> >> Our websites: >> http://rheumatoid.arthritis.freehosting.net/ >> http://www.rasupport.webprovider.com/ >> Change subscription options: >> >> > > >_______________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 > > > > > My 4 year old son was just dx'd with a deep retraction pocket. He > > already has tubes, his left pocket is stuck there. His ent wants to > > see him back in three months and said that he would follow the > > retraction closely. Anyone have info on whether these pockets can > just > > be indefinitely watched, it seems like we're just waiting for a > > cholesteatoma to form. Is there anything else that can be done about > > the retraction to reduce risk of c-toma? Is a c-toma unavoidable at > > this point? > > Thanks, Tamara, I had a retraction pocket in my (then) non-affected ear for about eight years. It decided that it wanted to imitate my left ear and grow its own c-toma. Fortunately, it was caught much more quickly than the left, diagnosed after about ten years of symptoms. Right side c-toma was about the size of a small lima bean and confined to the attic area, around the tegmen, and right over all of the bones, instead of through them--mastoid was totally clear. Way to go, me!! <dances around dizzily since I'm 2 weeks postop> The left side had no ossicles left by my first surgery on that ear. There was mastoid involvement and my taste nerve was so invaded that it had to be removed. That surgery took about 5.5 hours. I have all of the bones in the right <e! I wonder why they just want to wait with a TM retraction pocket. It seems to me that removal of the pocket with tympanoplasty isn't all that invasive. Maybe the pockets form again quickly? My hearing is pretty good with a TORP--about 75% of normal, mid range is best. Forget the high range stuff. If there is any ambient noise in a room, I'm toast. I realize now that the right is full of swelling and packing how much I depended on this right ear. Next digest letter: > I found out I had the c-toma about 3 and 1/2 years ago (I was 49). I had > this full feeling in my ear all the time and when I spoke it sounded kind > of hallow. I went to the regular doctor and she just thought it was wax > in my ear and the PA kept telling me to pop my ears twice a day. After > six months of that and a change in Health inusrance where I could go see > a specialist without my Primary Care's permission, I went to see and ENT > and he orderd a ct scan and there it was. It just infuriates me when I read these same stories over and over and over for the last 8 - 10 years. I know and we all know that there is irrepairable damage by the time these things have been living inside our (or worse, our loved ones...) heads for so many years. I strongly believe that they are common enough to be diagnosed in a more timely fashion than they are. I mean, if we had something REALLY strange, like our bottom halves turning to zebras or something, we'd get attention for that! Long-time Listies know this is my main, head-banging-against-the-operating-room rant. It just doesn't make sense! Missed cholesteatoma diagnoses were the largest cause (and expense) of pediatric malpractice settlements a couple of years ago. Anyone know if it's still the case? Usually when a malpractice carrier settles, they know that it's cheaper than going to trial. Grrrrr! How can we educate? -- Diane Chidgey McNelly Sassy Suds, Inc. http://www.sassysuds.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 i am thinking that the pocket issue is better there than not. at least u have room for it to grow, be seen and removed before is starts eating up the walls/structures. that is how i always thought about it though... >From: Diane Chidgey McNelly <diane@...> >Reply-cholesteatoma >cholesteatoma >Subject: Re: Digest Number 1517 >Date: Mon, 24 Oct 2005 01:45:37 -0700 > > > > > > > > > My 4 year old son was just dx'd with a deep retraction pocket. He > > > already has tubes, his left pocket is stuck there. His ent wants to > > > see him back in three months and said that he would follow the > > > retraction closely. Anyone have info on whether these pockets can > > just > > > be indefinitely watched, it seems like we're just waiting for a > > > cholesteatoma to form. Is there anything else that can be done about > > > the retraction to reduce risk of c-toma? Is a c-toma unavoidable at > > > this point? > > > Thanks, > > >Tamara, > >I had a retraction pocket in my (then) non-affected ear for about eight >years. It decided that it wanted to imitate my left ear and grow its own >c-toma. Fortunately, it was caught much more quickly than the left, >diagnosed after about ten years of symptoms. Right side c-toma was about >the size of a small lima bean and confined to the attic area, around the >tegmen, and right over all of the bones, instead of through them--mastoid >was totally clear. Way to go, me!! <dances around dizzily since I'm 2 >weeks postop> The left side had no ossicles left by my first surgery on >that ear. There was mastoid involvement and my taste nerve was so invaded >that it had to be removed. That surgery took about 5.5 hours. I have all >of the bones in the right <e! > >I wonder why they just want to wait with a TM retraction pocket. It seems >to >me that removal of the pocket with tympanoplasty isn't all that invasive. >Maybe the pockets form again quickly? > >My hearing is pretty good with a TORP--about 75% of normal, mid range is >best. Forget the high range stuff. If there is any ambient noise in a >room, I'm toast. I realize now that the right is full of swelling and >packing how much I depended on this right ear. > >Next digest letter: > > > I found out I had the c-toma about 3 and 1/2 years ago (I was 49). I had > > this full feeling in my ear all the time and when I spoke it sounded >kind > > of hallow. I went to the regular doctor and she just thought it was wax > > in my ear and the PA kept telling me to pop my ears twice a day. After > > six months of that and a change in Health inusrance where I could go see > > a specialist without my Primary Care's permission, I went to see and >ENT > > and he orderd a ct scan and there it was. > >It just infuriates me when I read these same stories over and over and over >for the last 8 - 10 years. I know and we all know that there is >irrepairable damage by the time these things have been living inside our >(or worse, our loved ones...) heads for so many years. I strongly believe >that they are common enough to be diagnosed in a more timely fashion than >they are. I mean, if we had something REALLY strange, like our bottom >halves turning to zebras or something, we'd get attention for that! >Long-time Listies know this is my main, >head-banging-against-the-operating-room rant. It just doesn't make sense! >Missed cholesteatoma diagnoses were the largest cause (and expense) of >pediatric malpractice settlements a couple of years ago. Anyone know if >it's still the case? Usually when a malpractice carrier settles, they know >that it's cheaper than going to trial. Grrrrr! How can we educate? > >-- >Diane Chidgey McNelly >Sassy Suds, Inc. >http://www.sassysuds.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Thanks, wow that's alot! Glad you have good hearing in your right. My sons doc did mention the possiblity of having to do a tympanoplasty. I'm pretty sure that's the big word he used. We go back in January to recheck it. > > > > > > My 4 year old son was just dx'd with a deep retraction pocket. He > > > already has tubes, his left pocket is stuck there. His ent wants to > > > see him back in three months and said that he would follow the > > > retraction closely. Anyone have info on whether these pockets can > > just > > > be indefinitely watched, it seems like we're just waiting for a > > > cholesteatoma to form. Is there anything else that can be done about > > > the retraction to reduce risk of c-toma? Is a c-toma unavoidable at > > > this point? > > > Thanks, > > > Tamara, > > I had a retraction pocket in my (then) non-affected ear for about eight > years. It decided that it wanted to imitate my left ear and grow its own > c-toma. Fortunately, it was caught much more quickly than the left, > diagnosed after about ten years of symptoms. Right side c-toma was about > the size of a small lima bean and confined to the attic area, around the > tegmen, and right over all of the bones, instead of through them-- mastoid > was totally clear. Way to go, me!! <dances around dizzily since I'm 2 > weeks postop> The left side had no ossicles left by my first surgery on > that ear. There was mastoid involvement and my taste nerve was so invaded > that it had to be removed. That surgery took about 5.5 hours. I have all > of the bones in the right <e! > > I wonder why they just want to wait with a TM retraction pocket. It seems to > me that removal of the pocket with tympanoplasty isn't all that invasive. > Maybe the pockets form again quickly? > > My hearing is pretty good with a TORP--about 75% of normal, mid range is > best. Forget the high range stuff. If there is any ambient noise in a > room, I'm toast. I realize now that the right is full of swelling and > packing how much I depended on this right ear. > > Next digest letter: > > > I found out I had the c-toma about 3 and 1/2 years ago (I was 49). I had > > this full feeling in my ear all the time and when I spoke it sounded kind > > of hallow. I went to the regular doctor and she just thought it was wax > > in my ear and the PA kept telling me to pop my ears twice a day. After > > six months of that and a change in Health inusrance where I could go see > > a specialist without my Primary Care's permission, I went to see and ENT > > and he orderd a ct scan and there it was. > > It just infuriates me when I read these same stories over and over and over > for the last 8 - 10 years. I know and we all know that there is > irrepairable damage by the time these things have been living inside our > (or worse, our loved ones...) heads for so many years. I strongly believe > that they are common enough to be diagnosed in a more timely fashion than > they are. I mean, if we had something REALLY strange, like our bottom > halves turning to zebras or something, we'd get attention for that! > Long-time Listies know this is my main, > head-banging-against-the-operating-room rant. It just doesn't make sense! > Missed cholesteatoma diagnoses were the largest cause (and expense) of > pediatric malpractice settlements a couple of years ago. Anyone know if > it's still the case? Usually when a malpractice carrier settles, they know > that it's cheaper than going to trial. Grrrrr! How can we educate? > > -- > Diane Chidgey McNelly > Sassy Suds, Inc. > http://www.sassysuds.com > Quote Link to comment Share on other sites More sharing options...
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