Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 PLEASE MODERATOR this entire message came to me with all of it in the four or five spaces in the right hand corner. This is not the first time this has happened. They are needless to say impossible to read. I would like to receive this again correctly if possible. Please help and let me know why this happens if you know. Many thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 ' ' wrote: ==== - - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 Hi Kay, thanks for your response. I've heard that even if your labs are good, your liver may still be affected. I really don't understand that and I try to be in denial as much as possible. I still have blood tests every 8 weeks and I'm still on Imuran 150 mg. Compared to last year this time I'm 100% better, as far as my physical well-being. But, my emotions are still on a roller coaster. Take care, in LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2001 Report Share Posted September 15, 2001 Dear Listmates, SAFE MINDs will have a booth at the San Diego DAN next month and is in need of help to work the booth. We will be distributing information about thimerosal and mercury toxicity and our organization, along with selling T-Shirts and buttons. Please e-mail me in private if you have any free time to help out. Also, stop by to view the Candlelight Vigil CD! SAFE MINDs is also wanting to establish a Parent Board. E-mail me in private at autism treatment@... if you are interested in helping out. Lyn Redwood PS. Thanks to all of you who dedicate endless hours to this list! It is a wonderful resource for us all! [ ] Digest Number 1566 > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Unsubscribe me from this list ----- Original Message ----- From: < > < > Sent: Sunday, March 16, 2003 12:29 PM Subject: [] Digest Number 1566 > > FAIR USE NOTICE: > > This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner. > ------------------------------------------------------------------------ > > There are 2 messages in this issue. > > Topics in this digest: > > 1. Severe Acute Respiratory Syndrome > From: bherk@... > 2. One Possible Answer to Mysterious Medical Ills: Celiac Disease > From: bherk@... > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sat, 15 Mar 2003 21:18:57 -0500 > From: bherk@... > Subject: Severe Acute Respiratory Syndrome > > " The spread of SARS ( Severe Acute Respiratory Syndrome ) worldwide is just making the headlines. The WHO has issued an advisory. American Scientist had two very timely articles relevant to SARS in the current issue. The first is about the rapidly growing antibiotic resistance in bacterial diseases and the origin and possible sources of this resistance. The second article talks about Type A Influenza and the possibility of a world pandemic similar to the 1918 Global Flu Pandemic. The transmittable nature of SARS, the lack of epidemological information and its severe resistance to antibiotics seems tailor made to fit the scenario outlined in the second article ( it even originated in the far east and is a strain of avian flu ). " > > http://www.newsday.com/news/local/wire/ny-bc-ny--us-pneumonia0315mar15,0,512 5768.story?coll=ny-ap-regional-wire > > NYC hospitals on alert for mysterious pneumonia striking Asia > By VERENA DOBNIK > Associated Press Writer > > March 15, 2003, 4:04 PM EST > > NEW YORK -- City health authorities on Saturday alerted hospitals to watch for symptoms of a mysterious pneumonia believed to have afflicted a doctor from Singapore who visited New York. > > The man was taken off a flight from New York to Singapore on Saturday during a stopover in Germany, and is quarantined at a furt hospital. His two travel companions also were hospitalized. > > " He is a physician who cared for a patient with this illness in Singapore, " said Mullin, spokeswoman for the New York City Department of Health. > > During a teleconference Saturday, top U.S. health officials said more than 150 cases have been reported worldwide of the so-called severe acute respiratory syndrome, or SARS. The doctor who passed through New York was the first suspected case in Europe. > > No cases have so far been identified in the United States. > > In addition to the doctor from Singapore, a man traveling from Atlanta, Ga., to Canada is " reported to have developed some respiratory symptoms, " said Dr. Gerberding, director of the federal Centers for Disease Control and Prevention in Atlanta. > > The two major symptoms of this pneumonia are high fever accompanied by difficulty in breathing. The potentially fatal illness is believed to spread " person to person, " said Gerberding, with an incubation period of between two and seven days. > > On Saturday, Dr. Gro Harlem Brundtland, director general of the Geneva-based World Health Organization, warned that the illness is becoming " a worldwide health threat. " > > In New York, " we're sending out a broadcast alert to all hospitals to be on the lookout for any illness that could be suggestive of this illness, " Mullin said. New York City has more than 70 hospitals. > > She said New York health authorities, working with the CDC and the WHO, were in the process of investigating the details of the case involving the Singapore doctor. > > He began to suffer symptoms while in New York, said Dr. Wirtz, a health official in the German state of Hessen where he's being treated. > > The man had attended a recent conference in New York, but it was not immediately known exactly when he was in the city, the nature of the meeting or which airline he used, Mullin said. > > In any case, " those who had casual contact with someone with this illness are likely not at risk, " Mullin said. > > The WHO on Saturday issued emergency guidance for travelers, urging anyone who may have come in contact with someone infected to watch for symptoms such as high fever, coughing and shortness of breath. SARS also may be associated with headache, muscular stiffness, loss of appetite, confusion, rash and diarrhea. > > A cluster of cases has been reported in Southeast Asian countries, including Vietnam, China, Hong Kong, Indonesia, the Philippines and Thailand. > > While no formal travel restrictions are in place, U.S. health officials said travelers may wish to postpone trips to the countries at risk if the visit is not essential, Gerberding said. And health officials are preparing to issue an alert for passengers returning from countries where SARS has been reported. > > In Atlanta, the CDC emergency operations center has been activated, and its staff is working round the clock responding to the outbreak. U.S. health officials are in close touch with health officials in China, where cases have been reported at least several weeks back, said Tommy , U.S. secretary of health and human services. > > The CDC is also working with foreign laboratories to analyze samples from patients. > > " We are doing everything humanly possible to learn what is causing this outbreak. " said , speaking to the teleconference from O'Hare International Airport in Chicago, before flying to Washington. > > ___ > > On the Net: > > World Health Organization: www.who.org > > Centers for Disease Control and Prevention: www.cdc.gov > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 2 > Date: Sat, 15 Mar 2003 21:36:29 -0500 > From: bherk@... > Subject: One Possible Answer to Mysterious Medical Ills: Celiac Disease > > One Possible Answer to Mysterious Medical Ills: Celiac Disease > > > > > > BY DAVID BROWN > THE WASHINGTON POST > > WASHINGTON -- By the time Alyson and Weinberg found out what was wrong with their daughter Josie, the toddler was too weak to walk across the room. She had sunken cheeks and a swollen belly, and she was vomiting frequently. She was clingy and scared, and her parents were petrified. No one in a suburban office full of pediatricians recognized what was wrong with her. > " There was something that was telling me this kid is literally dying and we need to do something about it, and nobody is listening, " Alyson Weinberg recalled. > It wasn't until they took their daughter to a pediatric gastroenterologist in Washington that they learned what was making her so sick: the food that was supposed to nourish her. Josie had celiac disease, a chronic ailment caused by an immune reaction to gluten, a protein found in wheat and several other grains. > That disease, it is becoming clear, is far more common than doctors have been taught. New research is revealing that celiac disease may be one of the most common genetic diseases, affecting perhaps as many as 2 million Americans. A national survey published last month, for example, estimates that one in 133 Americans has it. > In Josie's case, she stopped throwing up within three days of being taken off food containing gluten. Within three weeks, she was running around and singing. Over the next six months, she grew 4 inches. > " It was like someone had given us our child back, " Alyson Weinberg said recently. > -------------------------------------------------------------------------- > > > > Often Misdiagnosed: The Weinbergs' experience is an extreme example of an indisputable fact of American medicine: Most doctors miss the diagnosis of celiac disease. It's now clear that the textbook description of this once-obscure ailment is woefully incomplete and describes only a minority of cases. Below the tip of the so-called celiac iceberg is a diverse world of illness that may include thousands of people suffering from various, seemingly unrelated conditions, such as anemia, osteoporosis, infertility, irritable bowel syndrome and chronic fatigue. > " We were taught in another way. We were looking in the wrong direction. We were not putting our face under the water to see the iceberg, " said Alessio Fasano, a gastroenterologist at the University of land School of Medicine in Baltimore. > Fasano and his colleagues are publishing the survey that estimates one in 133 Americans has celiac disease. About 40 percent of the afflicted report no symptoms, although the disease may be having inapparent effects, such as the loss of bone mass, subtle changes in mood and infertility. In close relatives of people with celiac disease, the ailment was especially common, with a prevalence of one in 22, according to the paper, which appeared in the Archives of Internal Medicine. > The rapid expansion of a disease's prevalence is not a new phenomenon, but the rise in celiac disease is virtually without precedent. > A generation ago, physicians were taught the disease was so rare that a practitioner might go a lifetime without seeing a case. In 1993, researchers at Children's Hospital in Buffalo, N.Y., published a study estimating celiac disease's prevalence to be 1.3 cases per 10,000 children. Mayo Clinic researchers the next year measured a rate of 1.1 cases per 5,000 people in the Minnesota population the clinic serves. Fasano's work suggests that celiac disease is 50 times more common than that. > The new estimate doesn't come from a rigorous epidemiological study, but from a survey of several heterogeneous groups: blood donors, relatives of people with celiac disease, West Virginia schoolchildren and routine medical clinic patients. In all, 13,000 people from 32 states were tested. Despite these limitations, many experts believe the new estimate is probably close. > > Symptoms: Celiac disease is characterized by chronic inflammation of the upper portion of the small intestine. This occurs in response to gluten and similar proteins found in wheat, rye and barley. In classical cases, this leads to vomiting and diarrhea in young children soon after cereals are introduced in the diet. What's now clear is that people can develop celiac disease throughout life and that they often have few, if any, intestinal symptoms. > The symptoms they do have often arise from deficiencies of nutrients absorbed in the affected part of the intestine, such as iron, calcium and fat-soluble vitamins. Iron-deficiency anemia is the most common " clinical presentation " of adults with celiac disease. In Fasano's survey, 30 percent of people in which the disease was newly diagnosed had joint pain. One quarter had fatigue. Six percent had osteoporosis. > Celiac disease is diagnosed by testing for three antibodies -- anti-gliadin, anti-endomysial and anti-tissue transglutaminase -- that are present when an affected person is exposed to gluten but disappear when the offending grains are no longer consumed. Most physicians strongly recommend that the intestine be viewed and biopsied through a fiber-optic endoscope to confirm the diagnosis before a person embarks on a gluten-free diet, which is hard to follow for a lifetime. > Despite its apparent commonness, there's little support for populationwide screening for celiac disease. Because the ailment can arise throughout life, it's not obvious at what age testing would be appropriate or cost-effective. In Italy, mandatory testing for 6-year-olds was abandoned after several years because a cost-benefit analysis didn't justify it and it was difficult to persuade Italian parents to put asymptomatic children on a diet that would ban pasta for life. > It's also unknown whether people without symptoms actually benefit from the strict diet. A small study from Finland published last year hints they may. > Researchers there compared two groups of people with celiac disease. Diagnoses were made in members of one group because they had symptoms. Members of the other were found only when they were screened for the disease after it was diagnosed in a symptomatic relative. After a year on a gluten-free diet, both groups reported significant improvements in psychological well-being and gastrointestinal complaints. > What no one doubts is that doctors should think of celiac disease more often than they do. A survey of 1,600 people in celiac support groups in the United States found that a person's symptoms were present for 11 years before the disease was identified. > " It usually takes years to change the practice of medicine unless it's a real breakthrough, " said , head of digestive-diseases research at the National Institutes of Health. " And part of that occurs by educating the public. More and more diagnoses today are being made because the patient says, 'Don't you think I might have this or that?' " > > > > [This message contained attachments] > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > > Quote Link to comment Share on other sites More sharing options...
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