New to group intro

[Guest guest]

HI my name is we live in Atlanta GA, my husband is Kent we have 4

wonderful children or youngest is age 4 with: Down syndrome,

tetrology of Fallot Repaired (will need new pulmonary valve in 2 yrs)

severe left pulmonary stenosis with 2 stents in his LPA, Hirschsprungs

Diease with colostomy, Autism, PDD, NON verbal, asthma,seizures and how

having syncope episodes for no reason and he on a heart monitor 24/7

because he passes out, and arrests. 2 times so far in a month. None of

the Docs have a clue why.

Okay so there it all is. My best freind Jim is in the Navy NPN Naval

hospital VA,and is a HBOT doc of sorts (I am not good with ranks!) We

have talked about HBOT for and both feel it would bennefit him

greatly.

Here are my questions, has Medicaid in GA, we have BC?BS as

Primary and Medicaid 2nd. He also has a MRWP waiver and we are

switching to a GAPP waiver for medically fragile children.

I need to find out the steps to getting him the HBOT therapy, and where

would we go to have it done? Is there a place here in GA?

I know the man in charge of this group is from GA so I am hoping he can

give me insight.

I am working with DReam House for medically fragile children, and we

have just devloped a team to help get all he needs and deserves.

I am a fire lit under my butt Mom ready to write letters, fill forms

and have a sit in to do what ever it takes to help me son. I now have a

team of advocates also ready to help me.

I can be reached here or on my email off list I am also not apposed to

giving my number to someone off line to talk personally.

I appriate all this group has to offer and look ofrward to sharing

's progress as soon as we get the HBOT therapy going.

Bliss " Honored to be chosen as s MOM, a Kiddo proud to have

DS "

[Guest guest]

Boy, you and me both!!! Esp. as our new prez in the states talks about what

we'll all need to do to ourselves, and our country. I just bet that will

include mandated forced vaccination.

Nita (crew chief) and the crew: 15, Jon 14, 11, 9,

7, Christian (7/16/03 to 8/22/04), 3 and Isaac, 2/3/08

http://momof6.dotphoto.com <http://momof6.dotphoto.com/> for not

necessarily current pictures and http://nitasspot.blogspot.com

Come, PLAY!! http://www.discoverytoyslink.com/nitagarner

Learn from the mistakes of others. Trust me... you can't live long enough

to make them all yourself.

s, but I am increasingly worried about potential forced vaccine situations!

I look forward to joining...... thanks! Rita

[Guest guest]

Welcome, Rita! What a story. So sorry you all had to go through that.

Winnie

New to group intro

Vaccinations

> Greetings everyone!

> I'm Rita from Ontario Canada. Our youngest, now a teen, was

> vaccinated through infancy while undergoing 2 surgeries/full

> spectrum antibiotics for a congenital defect in his ureter

> (surgery botched, they had to go in and take his kidney out a

> few weeks later!) We naively trusted the doctors when they told

> me it was fine to go ahead with his vaccines, even though they

> were within weeks of the surgeries and antibiotics. He

> developed life threatening allergies and his body was covered in

> eczema and it wasn't until after his 18 month shots (his

> anaphylaxis to eggs got him out of the MMR!) when we had

> consulted an MD from Russia practicing in Ontario as a

> naturopath who just shook her head after hearing his history and

> asking if he was vaccinated as an infant. We didn't make the

> connection until then. I am forever grateful to that

> naturopath for making the connection for us. My main focus has

> been the connection between anaphylaxis and vaccines, but I am

> increasingly worried about

> potential forced vaccine situations!

> I look forward to joining...... thanks! Rita

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