Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 We changed to him because I wasn't happy with the pediatric group. Too difficult to make appointments and the location I didn't like. I took her to him and told him we had done it and he didn't pay much attention. This was in 2000. We kept seeing the nurse practicioner and I decided Marietta was a hike from Roswell and to take her to an adult Neuro in Roswell would be more convenient. She now sees Cohen. I have reduced her keppra from 3 a day to 2 a day. Sue Freels <dfreels@...> wrote: Sue, I'd like to ask you more about this. Did you tell Dr your daughter improved with HBOT? Did he examine her to see if she had improved, and what was his reaction to seeing her improvements? Re: [ ] Help about pedi-neuros > > > > > > > >Dr.s are followers not leaders. The leadership personalities leave the > > profession for politics. Neurologists want you to keep needing meds. That > > way you will be the bread and butter patients of the practice. Regular small > > incoming money!! We used to go to the one in Ga who was fighting > > Freel's case for hbot for medicaid. Now I take my daughter to an adult > > neuro. After the last 40 last summer, I reduced her meds 33%. She now takes > > 2 pills per day instead of 3. Sue > > > > > > > >Terry Miner <poppatgm@...> wrote: > > Hello, > > > > I just joined, so I don't know if you (anyone) can help on this > > subject. > > > > > > > > My 3mo old g'daughter (Ally) has mild/moderate(?)HIE. I've been > > > > researching HBOT for about 2 wks in hope that there would be a benefit > > > > for her. Ally's parents have approached she medical team (thru the > > > > pediatrician)as to their position re: HBOT. Her pediatric neurologist > > > > just responded with a resounding NO!! He stated that, of the 900 > > > > members in his association, none of them support the use of HBOT. > > > > There is a recent article in their newsletter that evidently sites > > > > " numerous " problems, including seizures while undergoing treatment > > > > (and not being able to provide aid until decompression is complete). > > > > He stated that he has (2) of his patients that have gone thru the > > > > treatments (@ the same facility that would provide treatment to ALLY) > > > > & haven't shown ANY benefits. > > > > > > > > Unfortunately, I feel like I'm putting my son-in-law in the middle, as > > > > I'm not in direct contact w/the Dr. I've suggested that, since the > > > > assoc & this Dr. are pointing out that there is no research supporting > > > > the " benefits " and are using these examples (seizures,etc) as > > > > potential " risks " , would be kind enough to give me the links > > > > supporting these risks? > > > > > > > > Can anyone offer some support (documents/links, etc), so I can feel > > > > confident in pursuing HBOT for ALLY? Ultimatsly, it isn't my call to > > > > make. I just want my kids to be as informed as they can be when they > > > > decide. > > > > > > > > Thank you, > > > > Terry Miner > > > > > > > > > > > > > > > > > > > > > > > > > > > >--------------------------------- > > > >Never miss a thing. Make your homepage. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 When he was her ped neuro, did she have noticeable and measureable gains with HBOT? Re: [ ] Help about pedi-neuros > > > > > > > > > >Dr.s are followers not leaders. The leadership personalities leave the > > > profession for politics. Neurologists want you to keep needing meds. That > > > way you will be the bread and butter patients of the practice. Regular small > > > incoming money!! We used to go to the one in Ga who was fighting > > > Freel's case for hbot for medicaid. Now I take my daughter to an adult > > > neuro. After the last 40 last summer, I reduced her meds 33%. She now takes > > > 2 pills per day instead of 3. Sue > > > > > > > > > >Terry Miner <poppatgm@...> wrote: > > > Hello, > > > > > I just joined, so I don't know if you (anyone) can help on this > > > subject. > > > > > > > > > > My 3mo old g'daughter (Ally) has mild/moderate(?)HIE. I've been > > > > > researching HBOT for about 2 wks in hope that there would be a benefit > > > > > for her. Ally's parents have approached she medical team (thru the > > > > > pediatrician)as to their position re: HBOT. Her pediatric neurologist > > > > > just responded with a resounding NO!! He stated that, of the 900 > > > > > members in his association, none of them support the use of HBOT. > > > > > There is a recent article in their newsletter that evidently sites > > > > > " numerous " problems, including seizures while undergoing treatment > > > > > (and not being able to provide aid until decompression is complete). > > > > > He stated that he has (2) of his patients that have gone thru the > > > > > treatments (@ the same facility that would provide treatment to ALLY) > > > > > & haven't shown ANY benefits. > > > > > > > > > > Unfortunately, I feel like I'm putting my son-in-law in the middle, as > > > > > I'm not in direct contact w/the Dr. I've suggested that, since the > > > > > assoc & this Dr. are pointing out that there is no research supporting > > > > > the " benefits " and are using these examples (seizures,etc) as > > > > > potential " risks " , would be kind enough to give me the links > > > > > supporting these risks? > > > > > > > > > > Can anyone offer some support (documents/links, etc), so I can feel > > > > > confident in pursuing HBOT for ALLY? Ultimatsly, it isn't my call to > > > > > make. I just want my kids to be as informed as they can be when they > > > > > decide. > > > > > > > > > > Thank you, > > > > > Terry Miner > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >--------------------------------- > > > > >Never miss a thing. Make your homepage. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 this was 7 yrs. ago. She doesn't have obvious problems to the adult observing her . She has seizures from numerous focal points. He only looks at the prescription and asks questions. She doesn't move her knee much when tapped. She has a slight strabismus, so visual tracing is weak. He was her neuro age 4-6. I didn't care for Chen or Flamini. Her seizures have always been well controlled. They would have no record to substiate change. They don't measure balance well or spacticity, evaluate handwriting, take photographs. I see more information recorded by the orthodontist than MDs. Freels <dfreels@...> wrote: When he was her ped neuro, did she have noticeable and measureable gains with HBOT? Re: [ ] Help about pedi-neuros > > > > > > > > > >Dr.s are followers not leaders. The leadership personalities leave the > > > profession for politics. Neurologists want you to keep needing meds. That > > > way you will be the bread and butter patients of the practice. Regular small > > > incoming money!! We used to go to the one in Ga who was fighting > > > Freel's case for hbot for medicaid. Now I take my daughter to an adult > > > neuro. After the last 40 last summer, I reduced her meds 33%. She now takes > > > 2 pills per day instead of 3. Sue > > > > > > > > > >Terry Miner <poppatgm@...> wrote: > > > Hello, > > > > > I just joined, so I don't know if you (anyone) can help on this > > > subject. > > > > > > > > > > My 3mo old g'daughter (Ally) has mild/moderate(?)HIE. I've been > > > > > researching HBOT for about 2 wks in hope that there would be a benefit > > > > > for her. Ally's parents have approached she medical team (thru the > > > > > pediatrician)as to their position re: HBOT. Her pediatric neurologist > > > > > just responded with a resounding NO!! He stated that, of the 900 > > > > > members in his association, none of them support the use of HBOT. > > > > > There is a recent article in their newsletter that evidently sites > > > > > " numerous " problems, including seizures while undergoing treatment > > > > > (and not being able to provide aid until decompression is complete). > > > > > He stated that he has (2) of his patients that have gone thru the > > > > > treatments (@ the same facility that would provide treatment to ALLY) > > > > > & haven't shown ANY benefits. > > > > > > > > > > Unfortunately, I feel like I'm putting my son-in-law in the middle, as > > > > > I'm not in direct contact w/the Dr. I've suggested that, since the > > > > > assoc & this Dr. are pointing out that there is no research supporting > > > > > the " benefits " and are using these examples (seizures,etc) as > > > > > potential " risks " , would be kind enough to give me the links > > > > > supporting these risks? > > > > > > > > > > Can anyone offer some support (documents/links, etc), so I can feel > > > > > confident in pursuing HBOT for ALLY? Ultimatsly, it isn't my call to > > > > > make. I just want my kids to be as informed as they can be when they > > > > > decide. > > > > > > > > > > Thank you, > > > > > Terry Miner > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >--------------------------------- > > > > >Never miss a thing. Make your homepage. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Son of a @#! Re: [ ] Help about pedi-neuros > > > > > > > >- I haven't seen you post in a long time. We saw . We last > > > did hbot in Winter Park, FL with Tracey , MD. The year before we did > > > the PROHBO on Bells Ferry.We nolonger have Medicaid- Becket and We do > > > not get reimbursed from Aetna. Sue > > > > > > > > Freels <dfreels@...> wrote: > > > Sue, > > > > > > > > Who were you seeing? > > > > > > > > Di [The entire original message is not included] Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.