Palin

[Guest guest]

HI Everyone and Ed,

Here, here. I think whatever your political affiliation is, now is the time to

make our representatives hear our needs. Palin has opened the door for

this conversation and for this I thank her.

Destiny

Ed Nemeth <nemeth@...> wrote: Hi

everyone.

Look, I think there is an unspoken rule on these pages about not

discussing personal politics, and I strongly support that.

However, this is also a page for us supporting our kids, whom we all

love with all our hearts.

So, I feel it is important to suggest to everyone to heed

Palin's statement last night:

She will be an advocate for special needs children in the White House.

Now, I am under no illusions that any of us will be able to call her

up and get help with our IEP, Insurance problems, etc.

But, I also feel this is one of the greatest opportunities to move

the Civil Rights of our kids forward so they can have their voices

heard and needs met.

I will not step on anyone's toes to push Palin; nor will I open

debates on the two candidates. This is not the place for that. We

have too many other battles to fight.

However, please consider the hockey mom who also loves her little boy

with all her heart and listen to her two speech lines about the

Parents of Special Needs kids; and how she will advocate for us and them.

Blessings to all.

Ed Nemeth

President, CEO

Spectrum Events

444 North Third Street, Suite 304

Sacramento, CA 95814

916-856-7044 x 339

916-856-7040 (fax)

[Guest guest]

I support her as my personal right

Rapid Recovery Hyperbarics

www.hbot4u.com

[ ] Palin

> Hi everyone.

>

> Look, I think there is an unspoken rule on these pages about not

> discussing personal politics, and I strongly support that.

>

> However, this is also a page for us supporting our kids, whom we all

> love with all our hearts.

>

> So, I feel it is important to suggest to everyone to heed

> Palin's statement last night:

>

> She will be an advocate for special needs children in the White House.

>

> Now, I am under no illusions that any of us will be able to call her

> up and get help with our IEP, Insurance problems, etc.

>

> But, I also feel this is one of the greatest opportunities to move

> the Civil Rights of our kids forward so they can have their voices

> heard and needs met.

>

> I will not step on anyone's toes to push Palin; nor will I open

> debates on the two candidates. This is not the place for that. We

> have too many other battles to fight.

>

> However, please consider the hockey mom who also loves her little boy

> with all her heart and listen to her two speech lines about the

> Parents of Special Needs kids; and how she will advocate for us and them.

>

> Blessings to all.

>

>

> Ed Nemeth

> President, CEO

> Spectrum Events

> 444 North Third Street, Suite 304

> Sacramento, CA 95814

>

> 916-856-7044 x 339

> 916-856-7040 (fax)

>

>

> ------------------------------------

>

> " So I say to you: Ask and it will be given to you; seek and you will find;

> knock and the door will be opened to you. For everyone who asks receives;

> he who seeks finds; and to him who knocks, the door will be opened. " [Luke

> 11: 9-10]

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

[Guest guest]

Hi Janet,

Thanks. I heard that earlier. I would like to find out the facts

before making judgement.. CBS is not going to give the facts.... most

reporters have no idea what they are writing about and just mix

things up. I have seen that many times on news stories on the clinic

I built for and all her friends.

Most importantly, I am not running a Palin campaign. I am only

suggesting that individuals look at her.

And, if your point is valid, then each individual can make the

decision to toss her.

But, also, my response is that there are plenty of programs that are

supposed to be for my daughter which I would love to see killed. I

can name two:

UCP and AACPDM which are non-profits and I think the worst offenders

of our kids Civil Rights.

In California there are others that overlap and then create the

problem of them sending parents in circles where each department is

claiming to other is responsible. (Medicaid and Regional Centers

under the Lanterman Act). We have lived with that here.

And, sometimes the departments, like the Regional Centers waste

incredible amounts of money on legal advocacy for themselves, for

example, while spending only a fraction of the funds for the kids.

For example, they spent over $70,000 to deny of a $1,900 service.

I'm only looking at her words where she said she would be an

advocate, and I deeply believe McCain will be an advocate for

our kids because of her life long actions.

I will not advocate them to anyone on this list, though.

I just wanted people to hear what I heard last night.

Blessings

At 12:33 PM 9/4/2008, you wrote:

>FYI.

>

>Janet R. Vohs | Director of Publications and Curriculum

>Parents' PLACE

>Massachusetts Parent Information & Resource Center (PIRC)

>1135 Tremont Street | Boston, MA | 02120

>Phone: 617-399-8333 | Fax: 617-572-2094 | Web:

><<http://www.pplace.org/>http://www.pplace.org/>

>www.pplace.org

>A project of the Federation for Children with Special Needs

>Informing, Educating, Empowering Parents

>

>_____

>

>From: Betsy [mailto:banderson@...]

>Sent: Thursday, September 04, 2008 3:06 PM

>'Janet Vohs'

>Subject: Palin's funding cuts for special education schools

>

>See Bob's e-mail below

>

>Betsy

>Family Voices

>Federation for Children

>1135 Tremont St, suite 420

>Boston, MA 02120

>Tel (617) 399-8321

>Fax (617) 399-8325

>E-Mail <mailto:betsyand%40familyvoices.org>betsyand@...

>_____

>

>From: Crabtree [mailto:RCrabtree@...]

>Sent: Thursday, September 04, 2008 2:02 PM

>To:

> " <mailto:maria.marolda%40TCH.Harvard.edu>maria.marolda@... " .GWIA.KC\

SBOS;

><mailto:abele%40bu.edu>abele@...; Aida Khan;

> Masterman, Ph.D.; Ann Brochin, Ph.D.; Ann Helmus; Ann Stambler;

><mailto:ann_densmore%40post.harvard.edu>ann_densmore@...;

><mailto:aroberts%40bostonhigashi.org>aroberts@...; Beth Foley

><<mailto:BethF%40cc.usu.edu>BethF@...>; Betsy ;

><mailto:Betsy.Kammerer%40childrens.harvard.edu>Betsy.Kammerer@...\

..edu;

>Bonnie Singer, Ph.D.; Carol Leavell, Ph.D.; Mason;

><mailto:celiane.rey-casserly%40TCH.Harvard.edu>celiane.rey-casserly@...\

..edu;

> Gehrenbeck-Shim; Gleason;

> Trimble; Urion; Dina Traniello; Goodell, Ph.D.;

> Leonard, Ph.D.; Lipman Leonard;

><mailto:frankhouser%40earthlink.net>frankhouser@...;

><mailto:gfelopulos%40partners.org>gfelopulos@...;

><mailto:GrabowskiKSG%40aol.com>GrabowskiKSG@...;

><mailto:grodz%40rcn.com>grodz@...;

><mailto:GTIMMEL%40PARTNERS.ORG>GTIMMEL@...; Harvey Botman,

>Ph.D.; Hochheiser;

> Rossman; Ilda King; internet:

><mailto:frazer%40a1.tch.harvard.edu>frazer@...; internet:

><mailto:tsipis%40binah.cc.brandeis.edu>tsipis@...;

>internet:

><mailto:urion%40a1.tch.harvard.edu>urion@...; internet:

><mailto:waber%40a1.tch.harvard.edu>waber@...; Janice

>Ware; McCormick; Jayne Fisher; Joan

>Axelrod; Joan Toussaint; Joanne Kledaras; Johanne Pino (Mass Advocates);

>Judith Souweine; Levine, Ph.D.; Karl Pulkkinen; Lasoski, Psy. D.;

> Benkov, Ph.D.; Leo Sarkissian; Lynne Rachlis; Margaret Bauman, M.D.;

>Martha Stearns; <mailto:MBorr70056%40aol.com>MBorr70056@...;

> McConville; Meredith Warshaw;

> Dorsey; Musinsky & Associates;

><mailto:nrosoff%40learningprep.org>nrosoff@...; Penny

>Prather; Phoebe ; Castro, Ph.D.; Rich Robison; Crabtree;

><mailto:Robison%40fcsn.org>Robison@...; Rocky Krein, Ph.D.;

> Cohen; ronna fried; Sam Moncata;

>Steve Berk; Steve Krom; Brefach, Ed.D.; Downing; Grant;

>

>Subject: FW: Palin's funding cuts for special education schools

>

>To my sped friends and colleagues:

>

>Emmett Finocche, an associate in our real estate department at KC & S,

>mentioned at lunch today having seen a comment questioning Palin's

>description of herself last evening as an " advocate " for families of

>children with disabilities in light of some action she apparently took as

>Governor to cut special ed resources by a whopping 62%. I asked him to

>track that item down, since the special education advocacy community ought

>to be alert to the facts around any representations like Ms. Palin's.

>Here's the info:

>

>Here is a link to a CBS fact-check piece which points out Palin's 62% cut of

>state funding for special education schools in Alaska:

>

><http://www.cbsnews.com/stories/2008/09/04/politics/animal/main4414049.shtml>ht\

tp://www.cbsnews.com/stories/2008/09/04/politics/animal/main4414049.shtml

>

>Also attached are PDFs of the actual budget documents showing the cuts. The

>2007 budget is pre-Palin. The 2008 Budget is her first budget, where you can

>see the most significant cut.

>

>Politics = the art of shaping reality to fit the need of the moment, eh?

>

>Best to all,

>

>Bob

>

>_____

>

>Applicable U.S. Treasury Regulations require that we inform you that any

>Federal tax advice contained in this communication (including any

>attachments) is not intended or written to be used, and cannot be used, for

>the purpose of (i) avoiding penalties under the Internal Revenue Code or

>(ii) promoting, marketing or recommending to another party any transaction

>or matter addressed herein.

>

>***********************************************************

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>Thank you.

>

>

[Guest guest]

,

While I agree with you in many ways on

bureaucracy, you are advocating a political party

and its idea, more than some people want. I'm

not sure this is the best place for that.

Remember, this can also be broken down to a

Federal vs State's Rights issue as well. Federal

gov't mandates services, and state's don't follow

through and our kids are caught in the middle of

the Constitutional legal argument - regardless of which side a person is on.

So, the politics, as always can be left to

perceptions... glass is half empty vs half full.

I only wanted to point out that for the first

time in history a candidate opened the doors for

our kids. You and I have been at this full force

for 13 years now ( turns 13 tomorrow!) and

this is the first time a candidate focused on

and her needs (sic = all our kids)

I don't care if Adlai son comes back from

the grave as long as he delivers my daughter's Civil Rights.

But, I also don't want to push petty or simply personal politics.

Blessings

At 12:08 PM 9/4/2008, you wrote:

>Dr ,

>

>The democrat party has historically supported

>more government programs and thus more

>government control--often with disastrous

>long-term results. It is precisely this ideology

>that created and perpetuates the bureaucracy

>that restricts access to HBOT and reimbursement

>of HBOT as evidenced by the 35+ year existence

>of the HBOT " noncovered " list at

><http://www.cms.hhs.gov/transmittals/Downloads/r164cim.pdf>http://www.cms.hhs.g\

ov/transmittals/Downloads/r164cim.pdf

>

>

>No matter how noble the reason(s) for creating

>government programs--i.e., when Medicaid for

>children was created in 1967, President Lyndon

> stated " The problem is to discover, as

>early as possible, the ills that handicap our

>children. There must be continuing follow-up and

>treatment so that handicaps do not go

>untreated. " (13 Congressional Record 2883.

>February 8, 1967)--whereas " handicaps " refers

>specifically to cerebral palsy and other

>brain-injury, nonetheless the end result some 41

>years later is a Medicaid program that

>bureaucratically adopts

><http://www.cms.hhs.gov/transmittals/Downloads/r164cim.pdf>http://www.cms.hhs.g\

ov/transmittals/Downloads/r164cim.pdf

>so that the program originally designed to help

>CP children has now become the HBOT gatekeeper

>and primary barrier to accessing what CP children most need: HBOT.

>

>This is the exact argument the GOP perpetually

>makes about the problem with big government. A

>well-intended program eventually becomes the

>biggest barrier to solving a problem.

>

>Now in 2008 we have a Mom of a special needs

>child who has pledged to be the #1 advocate for

>these children. I would relish 30 minutes with

>her to explain EPSDT and HBOT--as she would open

>access to HBOT 10 minutes later.

>

>I would encourage you to rethink your vote for

>this year. Just try it. Call it an experiment.

>

>DF

>

> [ ] Palin

> >> To:

> <mailto:medicaid%40>medicaid

> >> Date: Thursday, September 4, 2008, 11:41 AM

> >>

> >>

> >>

> >>

> >>

> >>

> >> Hi everyone.

> >>

> >> Look, I think there is an unspoken rule on these pages

> >> about not

> >> discussing personal politics, and I strongly support that.

> >>

> >> However, this is also a page for us supporting our kids,

> >> whom we all

> >> love with all our hearts.

> >>

> >> So, I feel it is important to suggest to everyone to heed

> >>

> >> Palin's statement last night:

> >>

> >> She will be an advocate for special needs children in the

> >> White House.

> >>

> >> Now, I am under no illusions that any of us will be able to

> >> call her

> >> up and get help with our IEP, Insurance problems, etc.

> >>

> >> But, I also feel this is one of the greatest opportunities

> >> to move

> >> the Civil Rights of our kids forward so they can have their

> >> voices

> >> heard and needs met.

> >>

> >> I will not step on anyone's toes to push Palin;

> >> nor will I open

> >> debates on the two candidates. This is not the place for

> >> that. We

> >> have too many other battles to fight.

> >>

> >> However, please consider the hockey mom who also loves her

> >> little boy

> >> with all her heart and listen to her two speech lines about

> >> the

> >> Parents of Special Needs kids; and how she will advocate

> >> for us and them.

> >>

> >> Blessings to all.

> >>

> >> Ed Nemeth

> >> President, CEO

> >> Spectrum Events

> >> 444 North Third Street, Suite 304

> >> Sacramento, CA 95814

> >>

> >> 916-856-7044 x 339

> >> 916-856-7040 (fax)

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>

> >>