Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 HOPE!!!! Where would we be without it??? I know from personal experience that it is a long, tough journey. I have been diagnosed with Chronic LD and have been on IV treatment for 22 months. The improvements are very small, slow and gradual, but they are improvements. I am so much better then I was 2 years ago. I still have a ways to go, but I am able to drive again, cook, and clean house on my " good " days. It took a long time for these days to come, and I relish the moments when I can function " normally " or whatever that is or used to be. Grab on to whatever encouragement you can get and hang on to it, I know that it is a rough ride but hang in there and know that you are not alone. Although, I am sure there are many days that you may feel that way. Keep in touch and keep on keeping on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2001 Report Share Posted January 13, 2001 Thanks Emma- I am amazed and inspired by you all who hang on for so long. Thank you for what you go through. I hope one day the pain everyone with Lyme has gone through will be recognized and understood in this world, that it will serve to pave the way for future patients to get the standard of care they need and deserve, and for quicker diagnosis (and maybe one day a true cure). God bless, Merry :-) > HOPE!!!! Where would we be without it??? I know from personal experience > that it is a long, tough journey. I have been diagnosed with Chronic LD and > have been on IV treatment for 22 months. The improvements are very small, > slow and gradual, but they are improvements. I am so much better then I was > 2 years ago. I still have a ways to go, but I am able to drive again, cook, > and clean house on my " good " days. It took a long time for these days to > come, and I relish the moments when I can function " normally " or whatever > that is or used to be. Grab on to whatever encouragement you can get and > hang on to it, I know that it is a rough ride but hang in there and know > that you are not alone. Although, I am sure there are many days that you > may feel that way. Keep in touch and keep on keeping on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 I sure hope that someone soon finds the real cause and cure for MCS....I have not been diagnosed with it but sure sounds like me.........CAN NOT tolerate (Certain) scents.......mostly perfumes.....no problems with garden and household chemicals that I know of.......The only time I seem to need help is in the office where certain co-workers perfumes send me into an attack. Most pesticides do not seem to bother me, as don't most glues, p[aints and other such things.....even gas and diesel fumes do not crreate a problem for me........BUT PUT me anywhere Vanderbuilt cologne/body lotion and I am a goner!!!!! There are a few others to but haven't been able to get their names...... I have left out of stores and other public places because of someones perfume triggering a reaction........but can't walk away at work. In a message dated 5/17/03 9:37:11 AM Pacific Daylight Time, writes: Message: 3 Date: Sat, 17 May 2003 05:44:27 -0400 From: "Barbara Herskovitz" <bherk@...> Subject: Perfume Plot Could Land Wife in Prison http://www.foxnews.com/story/0,2933,87094,00.html Perfume Plot Could Land Wife in Prison Friday, May 16, 2003 JENSEN BEACH, Fla. - When Lynda put on perfume and lit scented candles around the house, it wasn't romance she had on her mind. It was spite, police say. , 36, was arrested last week on charges she tried to seriously injure her chemically sensitive husband. In addition to using the perfume and candles, sprayed the house with bug killer and Lysol disinfectant, plugged in scented air fresheners, and emptied lavender sachets around the home, her husband says. , 46, says the fragrances caused him to swoon -- and not in the hearts-and-flowers sense, either. He says he fell into a stupor that left him too feeble even to call for help. "This extreme exposure made me very ill with severe brain fog, headache, numbness and trembling and pain throughout my body so severe I could barely move," he wrote in his complaint. His wife denies using fragrances to torment her husband and suggests he is faking his sensitivity to chemicals. She says she often dabbed on perfume and it never affected him before during their three-year marriage. "He takes a little bit of the truth and twists it into full-blown lies," she says. 's husband claims to suffer from a rare disorder called multiple chemical sensitivity (search), an allergic reaction to perfumes and other scents that he says can be fatal. The couple had been feuding over a $150,000 workers' compensation settlement that the husband received in March for his illness. says he and his wife were talking about splitting up, and his wife became hostile when he refused to give her half the money and the house. He says his wife, with help from her stepdaughter, subjected him to three days of torment in early April. She started with perfume, then moved on to other scents after police came to the couple's home and said it wasn't a crime to wear fragrance, he says. "They thought the effect it had on me was hilarious," he wrote in his complaint. Finally, after 's doctor supplied a letter to verify his sensitivity to scents, police arrested the wife. She was released after being charged with aggravated battery (search), which carries up to 15 years in prison. "When everything comes out, the facts will show that it's a lot more serious than just spraying perfume," says , a prosecutor. "Her actions went further than just simply being a pest. She crossed over a line when she actually put someone's life in danger." During his three days of misery, says, his wife had call block installed on their phone so he could not reach his doctor and took their computer apart so he could not use e-mail. The cause of multiple chemical sensitivity is unknown, and some authorities question whether it even really exists. traces his illness to toxic mold (search) and cleaning chemicals in the county courthouse where he worked more than 10 years ago. Before his wife's arrest, got a restraining order against her last month, but a judge dissolved it 10 days later after Lynda 's attorney argued was exaggerating his illness. Attorney Steger showed photographs of gardening and exposing himself to chemicals and other substances without any ill effects. Steger also called friends of the couple to testify that they have worn cologne during visits to the home without bothering . "We've already proven him to be a fraud," Steger says. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 That is strange,as a result of 12 years of severe mold exposure I cant even handle cooking odors, car exhaust, smoke....you are to just perfumes?????? Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Hi I took the same product that had epradra in it and I was so exausted during the day and could not sleep at night and I was only taking 3 per day. The directions say to start out the 1st week taking 1 three times a day and the second week up it to 2 three times a day. I would reccommend following the directions to see how your body reacts before you go all out. I am now taking the same product but without the epradra. Be very careful if your's has the epradra in it, it is very dangerous. Good luck! in Texas > > Message: 14 > Date: Mon, 26 May 2003 21:31:42 -0000 > From: " night_wind1 " <night_wind1@...> > Subject: Ultra Beta Trim > > I'm using ultra beta trim, starting today. Says to take 2-3 before > meals 3 times a day and not to exceed 9 a day. I'm wondering if I can > do it like this..... > 2-1st meal > 1-2nd meal > 2-3rd meal > 1-4th meal > 2-5th meal > 1-6th meal > __________ > total 9 a day > Anyone else use this? Or know how it works? > Tinkle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Oh yes, definitely stay on the list, I am. On the " older kids " I meant another parent and I would like to have home meetings with other parents to discuss what we are facing and can do. As well as being on this very informed and needed list. I'm trying to locate other parents of adults in this area (San ) that could meet face to face as well. Thanks , I didn't realize I hadn't stated it correctly. Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Oh yes, definitely stay on the list, I am. On the " older kids " I meant another parent and I would like to have home meetings with other parents to discuss what we are facing and can do. As well as being on this very informed and needed list. I'm trying to locate other parents of adults in this area (San ) that could meet face to face as well. Thanks , I didn't realize I hadn't stated it correctly. Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2004 Report Share Posted July 17, 2004 Hi Jo, On pages 179 & 180 of the Advanced Cancer Book, Dr says you can do it all in 1 day, taking the parasite herbs 1st, then after you settle from that, taking the l-cysteine and following that 5 hours later with the ozonated olive oil. Hope that helps. Regards, Terri----- Re: (unknown)<BR> ><BR> >Leo,<BR> >Can this joker be blocked please? <BR> >Jan<BR> ><BR> ><BR> ><BR> >Try this:<BR> ><BR> ><a href= " http://carpefriggingdiem.com/index.htm " >http://carpefriggingdiem.com/index\ ..htm</a><BR> ><BR> ><BR> ><BR> >> the subject of an ozonator came up so I wanted to share some info <BR> >with the group. Dr Donsbach sells a pure air and water ozonator for <BR> >$2.99 or $1.99 I believe for 2. If you call 800-950-2190 he will <BR> >send you a free video on how to use it, I ozonate my fruit and <BR> >vegetables and water, and you can ozonate your room and their is an <BR> >attachment for your ears for ear infections. best Judy<BR> >> <BR> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2005 Report Share Posted January 2, 2005 I apologize.................I forgot to delete the whole mess before sending................ARRGGHHH!!!!!! Quote Link to comment Share on other sites More sharing options...
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