Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 you gotta find the right 'duck'.....is PA far from NJ? there are LLMD there....maybe Sue nj on this egroup could help you. In a message dated 4/10/01 8:49:07 AM, mtprn@... writes: << Cheryl, how do you get a duck to work with your LLMD that is out of state, so far ducks in NJ will not participate in this collaboration. Do I need to find an LLMD in NJ too! God Bless you all, pat NJ >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Cheryl, how do you get a duck to work with your LLMD that is out of state, so far ducks in NJ will not participate in this collaboration. Do I need to find an LLMD in NJ too! God Bless you all, pat NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 May I ask where you got your medical braclet with the compartment? Thanks, this would be very valuable. Teena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Hi Clyde, you are not imagining things and it's not a dumb question. When I was first dx'd in Nov 99 and on Pred and Imuran, I did not have to shave my legs or underarms for 6 months. I didn't grow hair, except on my face. My husband looked at me one night and said " Honey, I hate to tell you this, by you have beard. " LOL. I was humiliated. I went to the drug store and bought some hair remover and it worked. Now, I did lose hair from my head and it's started to slow come back. My doc told me it was all a side effect of the high does of Pred. Hope that helps you realize you're not alone. Take Care, in La AIH Nov 99 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 , I am a patient of Dr. DeWet's and have only good things to say for his treatment protocol. I have done all of the ivs you mentioned. Yes, the hydrogen peroxide does burn. In fact, it hurt so much I just wanted sombody to come in and cut my arm off. I did a series of 11, I think. I do the Meyers cocktail every time I do the five day series of iv's. Part of it is paid by insurance and the rest we must pick up. I am one who has not done the baths. I usually just take a hot bath and soak. I purchased the epson salt and then ended up using it on my gardens. I can tell you that the herxheimer you are experiencing is temporary but only time will tell just what temporary means for you. The longer I am with this group and on this journey, the more I realize it is so individualized. I use UltraClear and UltraInflamX and think both are good products. Being a pickey eater can either benefit you are hurt you, depending on what you mean by pickey. I think these drinks taste great mixed with some fruit in soy or rice milk. Be sure to remember to throw in your freshly ground flax seeds into the mix, also. Being pickey about not eating sweets and caffeine can be a big boost to you. I don't know your diagnosis but mine is scleroderma so pain or something not tasting like french fries is just not something that will stop me from doing what I need to be doing. I hope this information will help you on your journey. The first step is to trust Dr. DeWet. I do believe he is remarkable in doing his research. Best of heath to you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Zoe Have you considered adding the piece on drugs posted here a few weeks ago? And, have you considered adding your website to your signature line? mjh In a message dated 2/13/2005 5:44:47 AM Eastern Standard Time, writes: Date: Sun, 13 Feb 2005 03:56:25 -0000 From: " zoe88025 " <Zll51@...> Subject: Re: Digest Number 1756-link to my page Hi Marilyn, This is the link to my web page ( " Looking for Zoey " ). It has articles on neurofeedback and on raising the seizure threshold. Zoe http://www.indiana.edu/~pietsch/home.html#special mjh http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Marilyn, I do want to put more on the page about drugs, especially on using them safely. I'm working on a piece now about vitamin D and seizures and there's a lot about drugs in this. Many, if not most of the drugs can affect how vitamin D is metabolized and this can have devastating effects on health, including making seizures worse. If we evaluated our seizures from a nutritional perspective, many, if not most of us, could likely find ways to become seizure free. Maybe I should add my website to my signature line? I throw so much information at people anyway, I didn't want to overdo. What do you think? Zoe > Zoe > > Have you considered adding the piece on drugs posted here a few weeks ago? > > And, have you considered adding your website to your signature line? > > mjh > > In a message dated 2/13/2005 5:44:47 AM Eastern Standard Time, > writes: > Date: Sun, 13 Feb 2005 03:56:25 -0000 > From: " zoe88025 " <Zll51@h...> > Subject: Re: Digest Number 1756-link to my page > > > Hi Marilyn, > This is the link to my web page ( " Looking for Zoey " ). It has > articles on neurofeedback and on raising the seizure threshold. > Zoe > http://www.indiana.edu/~pietsch/home.html#special > > mjh > http://foxhillfarm.us/FireBasil/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Hi Marilyn, How would I add this to my signature line? Zoe http://www.indiana.edu/~pietsch/home.html#special " Looking for Zoey " > Zoe > > Have you considered adding the piece on drugs posted here a few weeks ago? > > And, have you considered adding your website to your signature line? > > mjh > > In a message dated 2/13/2005 5:44:47 AM Eastern Standard Time, > writes: > Date: Sun, 13 Feb 2005 03:56:25 -0000 > From: " zoe88025 " <Zll51@h...> > Subject: Re: Digest Number 1756-link to my page > > > Hi Marilyn, > This is the link to my web page ( " Looking for Zoey " ). It has > articles on neurofeedback and on raising the seizure threshold. > Zoe > http://www.indiana.edu/~pietsch/home.html#special > > mjh > http://foxhillfarm.us/FireBasil/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2005 Report Share Posted December 23, 2005 Hi, I just discovered this group via a friend with CFS who has an autist child. What kinds of experiences have people with CFS had with LDN? I've been sick for 14 years. The first 1 1/2 or so years I took LDN and also mega vitamin drips.That was in 1991-92. I very slowly got better and was in good shape for a year. The doc who gave me LDN said that was why I got better; the doc who gave me the drips said the drips made me better. I continued to work all that time Moved from nyc to San Francisco, thinking it would be better for my health. It wasn't. Relapsed in late 1993 and I've been sick ever since and on disability. Tried LDN again about ten year ago but didn''t see any improvement. But now I'm thinking about it again for the obvious reason that nothing else has worked. My primary symptoms are: terrible non-restorative sleep (which only started five years ago); cognitive problems, which can take about a a half dozen different forms; low energy to no energy. I used to have the bad 'flu-like' symptoms but that's rare now unless I over do it; and I had terrible food intolerances (passing out after meals!) which are now under control; also, I used to have bad energy crashes where in the span of a few minutes it felt like the mitochondrias in all my cells shut down and I'd go, literally, into a coma-like state for an hour or two, once or twice a day. That seems behind me after almost a year on zithromax (I was chasing down a possible Lyme infection). Don't know if it's relevant, but I've an autistic cousin -- the classical kind, i.e., autistic from birth. thanks in advance for any responses. michael Quote Link to comment Share on other sites More sharing options...
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