Re: Eye involvement, RAI, bee pollen

[Guest guest]

In a message dated 12/5/99 3:03:04 PM Central Standard Time, BU007@...

writes:

> I've heard that

> some people take bee pollen for relief from allergies. Anyone else heard

> that? You would think that pollen would aggravate allergies.

Isn't this the basic premise behind homeopathy? I have not investigated it in

depth, but my fundamental understanding is that homeopathy uses the smallest

of doses of whatever the antagonist is to help " cure " the ailment. I have not

tried homeopathic - in part because it seems to be a paradox - but maybe that

simplicity is it's genius. I have certainly heard much anecdotal evidence in

favor. , I'm not sure that I recall you ever going down that path? Your

thoughts? As to bee pollen, I have heard it used as an immune system builder.

One woman I know has been giving it to her family for the last year and

maintains that her school-age kids haven't come down with a cold or flu

since.

[Guest guest]

Anyone who has had allergies and developed eye disease?

> When you add to this research the anecdotal information that some people=

> =20

> benefit from taking bee pollen, it gets very interesting. I've heard that=20

> some people take bee pollen for relief from allergies. Anyone else heard=20

> that? You would think that pollen would aggravate allergies.

> Here are the studies (no authors or titles,but if you want more info let=

> =20

> me know). What do you think?

>

,

These studies are very, very interesting. There really does seem to be a

connection between reactions to pollen and perhaps other allergen, and the

autoimmune process in Graves/Hashimotos.

One other anecdotal bit to add: when first diagnosed, I read about a year's

worth of posts on the National Graves Disease Foundation's BB. I was struck by

a thread in which several people commented that they'd had a bad sinus infection

weeks prior to diagnosis and many wondered if there was a connection since so

many people had the same thing. I too had a very bad sinus infection and was on

antibiotics for several weeks a couple of months before my graves diagnosis.

Perhaps there was some sort of allergy reaction happening in those of us with

sinus infections -- of course, the etiology of sinus infections are never

investigated because they appear as a relatively minor medical problem, so we'll

never know, but I think it's an interesting link.

>The remission rate is significantly less in=20

> patients with IgE elevation than in those with normal IgE. These findings=20

> suggest that TRAb synthesis is increased when IgE synthesis is stimulated.=20

I went into remission relatively easily (yes, I'm extremely grateful) and prior

to Graves, had no trouble with bee stings. They hurt for a minute and then were

fine. So I'm assuming my IgE was normal -- possibly still is -- and perhaps

this increased my chances for remission.

I got stung by a wasp or hornet or something during hyperT and before taking bee

pollen and this time the sting was different -- it was much more painful,

remained swollen for a week.

Who knows? Maybe there's some interaction between the processes. If I'm now

more vulnerable to bad sting reactions, and perhaps with a higher IgE, perhaps

the bee pollen will operate on homeopathic principles: the smallest possible

dose will protect and alter the body.

It's worth trying to me, so I'll keep taking that quarter teaspoon daily.

To the person wondering about starting -- it's important to take a granule or

two in the presence of another person before you start the full dose. Some

people have life threatening reactions to pollen (I know someone who did). If a

two or three granules cause no reaction, build up slowly untill you get to a

quarter teaspoon or full teaspoon, depending upon how acute your condition is.

I'm not sure how long to take it -- my husband took bee pollen for six months

about four years ago because he had HORRIBLE, life altering allergies each

spring. He's now pollen allergy free. He took it for eight or nine months, I

think.

[Guest guest]

'VE JUST COME OUT OF THE HOSPITAL WHERE THEY'VE DECIDED I'M SO HYPERTHROIDE

THAT THE ONLY ALTERNATIVE IS TO BURN IT OUT. iT'S AFFECTED MY EYES, MY

HEART, AND MY GENERALY " ILL " HEALTH. I CAN'T LIVE LIKE THIS, I'D RATHER BE

DEAD. i SWEAT WITH HOT FLASHES, MY HEART BEATS REALLY FAST AND SKIPS BEATS

THEN THUDS, REALLLY HARD. i CAN'T EAT, SLEEP, OR LIVE NATURALLY ANY OTHER

WAY. wHAT DOES A PERSON DO? hOSPITAL IS AN ABUSIVE EXPERIENCE. oNE IS NOT A

SPIRITUAL BEING THERE, BUT A SLAB OF MEAT. tHEY'RE SO SURPRISED WHEN A

PERSON SAYS, " NO " . wHAT NEXT? dOES ANYBODY HAVE ANY IDEAS EXCEPT TAKING

COPPER OR? i'M IN TROUBLE AND I NEED HELP. RENEE'

[Guest guest]

'

Are you seeing an endocrinologist, or just a general practioner?

My gp sent me to an endo specialist, and I have been working with him for

a couple of months. My health is not great-there are days when I

feel I would be better off just to have a massive heart attack and die,

also. You must hang in there and find someone who knows what they're

talking about. In my case, they don't know what has caused my hyperactive

thyroid, and at this point I don't care what caused it-I only want to get

better and live the life I was living before I got this God awful disease.

I am going to see my endo next week. Hopefully he will put me on

the anti thyroid meds, but I am also going to try the copper and calcium/magnesium

also. I do not have the eye problems-they are not sure yet if I have

Grave's. I do have a general itching and watering of my eyes-but

no protrusion-from what I understand, that only happens in a small number

of cases. It takes time to get a hold of this disease and start to

feel better. I am on Inderal for my heart and tremors, and I take

St. 's Wort for depression. Both have helped ease some of my

symptoms, but they are really just covering up the underlying problem.

Please be sure you are seeing and talking to the right people!

nathaniel brody wrote:

'VE JUST COME OUT OF THE HOSPITAL WHERE THEY'VE DECIDED

I'M SO HYPERTHROIDE

THAT THE ONLY ALTERNATIVE IS TO BURN IT OUT. iT'S AFFECTED MY EYES,

MY

HEART, AND MY GENERALY "ILL" HEALTH. I CAN'T LIVE LIKE THIS, I'D RATHER

BE

DEAD. i SWEAT WITH HOT FLASHES, MY HEART BEATS REALLY FAST AND

SKIPS BEATS

THEN THUDS, REALLLY HARD. i CAN'T EAT, SLEEP, OR LIVE NATURALLY ANY

OTHER

WAY. wHAT DOES A PERSON DO? hOSPITAL IS AN ABUSIVE EXPERIENCE. oNE

IS NOT A

SPIRITUAL BEING THERE, BUT A SLAB OF MEAT. tHEY'RE SO SURPRISED WHEN

A

PERSON SAYS, "NO". wHAT NEXT? dOES ANYBODY HAVE ANY IDEAS EXCEPT

TAKING

COPPER OR? i'M IN TROUBLE AND I NEED HELP. RENEE'

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[Guest guest]

Dear ,

I had Graves disease several years ago, and suffered from sinus infections

years before that. I wonder how many of us with Graves also had sinus

infections. Maybe it was all the antibiotics we took that messed us up, or

maybe it was something else. Perhaps our systems were prone to go out of

balance because of the antibiotics.

AntJoan

[Guest guest]

help. lisa; thank you for answer. i'm on tapazzole, and and my thyroid at

this time iss normal. nevervetheless, iii'm having hot flasheses, shaking

terribly, sweating, all to the eenth degree. I'm taking 60mg. tapazole daily

and still not controlled. What are the down sides of having radiation

killing therapy. I am led to believe that there's llittle left for me.

Please tell me, what's wrong which can follow radiation

renee'

[Guest guest]

lisa; thanks for the input. my dr is an endrocrinologist and had been

baffled by the course of my disease. takinf a very high dose of tappazole

has not controlled my disease and i'm just out of the hospital where

they've been trying to get a handle on it. At this point, all they ccan tell

me is; we want you to go off the tapiizole and we'll radiate your thyroid

to death. I've been so sick, I'm ready to say yes. please, help! What does

anyone else do when in such extremis?

renee'

[Guest guest]

According to my Dr an infection could be a GD trigger. I also had a severe

sinus infection just 2 month before feeling all of the hypert symptoms.

Re: Eye involvement, RAI, bee pollen

>

> Dear ,

>

> I had Graves disease several years ago, and suffered from sinus infections

> years before that. I wonder how many of us with Graves also had sinus

> infections. Maybe it was all the antibiotics we took that messed us up,

or

> maybe it was something else. Perhaps our systems were prone to go out of

> balance because of the antibiotics.

>

> AntJoan

>

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