Guest guest Posted October 18, 1999 Report Share Posted October 18, 1999 Well, I have been on the vitamin regimen for about 4 months now with some improvement but my hormone levels are still high and my goiter is still clearly visible. In addition I have been on PTU (12 x 50mg per day) for almost a year. My symptoms are virtually gone as compared to before my diagnosis as hyperT (because of PTU). Predictably, my endo is adamant about the RAI treatment. The scan revealed that my thyroid is quite large, 200 grams. I also tried the CMO treatment that some of you may have heard of and it doesn't appear to have had any effect. Other than the thyroid, my health is excellent (if that makes any sense). I have some questions that the group maybe able to help me with: 1. Given that I have a high degree of self-discipline and I am willing to do just about anything to cure this disease, do you think it is at all possible to achieve a remission w/o RAI given the advanced state of the disease? 2. Would it be worthwhile to see a alternative practitioner and does anyone know one in the San , CA area? 3. Should I try herb therapy and are there any sources which outline which herbs should be taken? I almost underwent RAI, but changed my mind at the last minute. These are the things that concern me about RAI (let me know if my reasoning here is valid despite it's extreme simplicity): 1. I just don't believe that the radiation damage can be completely isolated to the thyroid. I don't know how long the radioactive iodine is present in the bloodstream, but obviously some is going to be picked up by other organs while it is present and those cells will suffer damage also. Granted in a healthy person that cell damage will be repaired, but this nevertheless must be an enormous stress on the immune system (especially considering that I would have to undergo 2 or 3 rounds!) 2. I am aware of the studies regarding RAI and cancer, but how healthy are post RAI patients in general throughout their life? Are they more likely to contract other auto-immune diseases? An in-law of mine lost his kidney shortly after RAI. I realize there's now way to prove cause and effect here but frankly it scares the hell out of me. Thanks for the support, Quote Link to comment Share on other sites More sharing options...
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